Re: obsessing and compulsing over food

[Guest guest]

Hi ,

Althugh it sounds like some definite compulsive behavior, lining food up

in 4's. I can't help but wonder if she might be also telling you she is

still hungry. I know that and Kendra are both on the tiny side

and for Kendra she definitely has more need of food. I agree with you

wholeheartedly that might do much better with more frequent

small meals. It makes a lot of sense to me.

What I read recently says that one glass of water per each ten pounds of

weight is appropriate, but that is for a 'typical' person not

necessarily someone with complex issues such as CHARGE. But if it is

accurate, I guess it would mean might benefit from 6 glasses of

water per day.

obsessing and compulsing over food

Hello!

I know that mosy of our CHARGErs have problems associated with

with getting off the feeding tube, eating orally and maintaining the

weight. has been eating orally for about 6 years, she has

been off and on the tube during this time and is currently off. My

problem is the obsessing and compulsing over food, she is constantly

signing that she is hungary, even when she just ate a bowl of

oatmeal, applesauce and yogurt. She will sneak into the kitchen and

get something out and sit there to eat it, but it's not 1, she lines

them up in 4's. is also always asking for a drink, yet she

is just beginning thickened liquids orally and prefers it through her

tube. I notice that if I give her water right before she eats she is

able to digest the food better and doesn't have much difficulty with

swallowing. All of her foods are blended, with a calorie enhancer.

She is 61lbs.Any insights on this behavior? I would like to put a

baby gate up for the kitchen to limit her access, but legally, I am

not allowed. I put the cases of Ensure pudding up high and she

climbs on whatever to get at them. The dietician wants her on an

eating schedule of 3 meals a day, I don't think that will ever happen

as I am thinking smaller meals more frequently would be better. When

she is with her parent's she does what she wants when she wants, so

anything I do try ends up in an automatic regression.

Also, I would be interested in the e-stim therapy by Marcy, as

Everett is about 2 hours North of us.

, friend of 23 CHARGE

[Guest guest]

Hello,

I can't help but wonder if she might be also telling you she is

> still hungry.

She is eating constantly! Her Ensure pudding come in the 4 packs

and she helps herself to as many as she can fit in her arms. I will

give her a bowl of mashed potatoes, mixed with green beans, she will

finish that and think that she needs to finish off the pan.

>

> I guess it would mean might benefit from 6 glasses of

> water per day.

>

recieves 1200ml of water a day.

[Guest guest]

can she eat proteins? eating all carbohydrates at a meal will not fill her

up/stay with her as not nutritious. just a thought

-- Re: obsessing and compulsing over food

Hello,

I can't help but wonder if she might be also telling you she is

> still hungry.

She is eating constantly! Her Ensure pudding come in the 4 packs

and she helps herself to as many as she can fit in her arms. I will

give her a bowl of mashed potatoes, mixed with green beans, she will

finish that and think that she needs to finish off the pan.

>

> I guess it would mean might benefit from 6 glasses of

> water per day.

>

recieves 1200ml of water a day.

[Guest guest]

> can she eat proteins? eating all carbohydrates at a meal will not

fill her

> up/stay with her as not nutritious.

>

Yes, she often has chicken with her potatoes, but I have to blend

it in or she eat it. The Ensure pudding provides quite a bit of

protein, but I think that a prescription of 12 a day is a bit

excessive.

[Guest guest]

There have been many times when , too, has eaten and eaten and eaten.

There have been others when she hasn't eaten until 5:00 in the afternoon.

I've never understood this. Martha

[Guest guest]

, I know what you mean, my son ate basically nothing but mac/cheese

for 4 years! ...

....but now he is a total gourmet,. eats everything, makes his own fresh

sushi, pork tenderloin with apricot chutney etc! He watches Emeril, runs to

the computer to the Food Channel site, prints out the recipes and hands them

to me! Yikes!

Barbra Mousouris ('s Mom)

[Guest guest]

Barbra,

TOOOOO amazing and cool. :-) Maybe my oldest daughter who is a chef,

and and Kendra could open up a restaurant!! Of course a percentage

of the foods would need to come from the Schwarzbein Connection

cookbook. :-)

Re: Re: obsessing and compulsing over food

, I know what you mean, my son ate basically nothing but

mac/cheese

for 4 years! ...

....but now he is a total gourmet,. eats everything, makes his own fresh

sushi, pork tenderloin with apricot chutney etc! He watches Emeril,

runs to

the computer to the Food Channel site, prints out the recipes and hands

them

to me! Yikes!

Barbra Mousouris ('s Mom)

[Guest guest]

sounds great! you and I can get free samples of everything and relax with a

good glass of wine.

-- Re: Re: obsessing and compulsing over food

, I know what you mean, my son ate basically nothing but

mac/cheese

for 4 years! ...

.....but now he is a total gourmet,. eats everything, makes his own fresh

sushi, pork tenderloin with apricot chutney etc! He watches Emeril,

runs to

the computer to the Food Channel site, prints out the recipes and hands

them

to me! Yikes!

Barbra Mousouris ('s Mom)