Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I don't believe there is a surgery to correct a coloboma, unless it's something new. Weir Mom to Kennedy, 5 yr old CHARGEr, 14, 12 and wife to Graeme New Brunswick, Canada Visit our family web site: http://personal.nbnet.nb.ca/gweir CHARGE Syndrome Canada: http://www.chargesyndrome.ca coloboma surgery Just wondering if anyone has had surgery to correct a coloboma. Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi, I haven't heard of such an operation. Our son has bilateral colobomas and as far as we have learned it would be impossible to try to construct a retina and optic nerve where they are missing. Sure would be nice, though! He sees amazingly well, however, for how bad his colobomas look. Bo coloboma surgery Just wondering if anyone has had surgery to correct a coloboma. Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 hi as far as i am aware a coloboma cannot be repaired jo ----- Original Message ----- > Just wondering if anyone has had surgery to correct a coloboma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 We have had 3 opthamologist and they all have said there is no surgery for coloboma. Has your Opthamologist said anything different? , mom to r 20 mo.Charge, and Raelynn 4 yrs. gena7132 wrote:Just wondering if anyone has had surgery to correct a coloboma. Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
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