Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Dear Nancie welsomne to the list. Please make yourself right at home and ask anything you like. I was dx'd 11 years ago with RP so I know all about what fun it is!! (not) Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 In a message dated 01/28/2000 11:19:24 PM Central Standard Time, suiska@... writes: << I just got remarried (now here's a weird story for you)to my first husband two years ago. We we married the first time in 1970 and he went to Viet Nam and well we parted friends. But almost thrity years later here we are. >> Hi Nancie, That is a cool story! You will have to tell us more...You should go on a talk show, and we could all watch Hey, I married my boyfriend's best friend. LOL Needless to say they aren't best friends anymore. My husband and I use to double date all the time but we weren't together....LOL Anyway, glad your aboard..... Love, Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi SAndy nice to meet you. I live in San Diego California. I just got remarried (now here's a weird story for you)to my first husband two years ago. We we married the first time in 1970 and he went to Viet Nam and well we parted friends. But almost thrity years later here we are. My friends told me I should've contacted Oprah or something but not my thing. Up till then I was a single parent for almost 10 years. I've got two great kids, a son thats 26 living in Idaho and a daughter thats 19. She is trying to get scholarships to go to Vanguard University in September. She wants to become a youth minister. I truly feel that is her calling also. Are you getting slammed by all that bad weather out there? I was talking to a friend in South Carolina today and he hasn't gone to work for two days because of the weather. How about you? How are you doing? Thanks for the welcome! nancie --- biglou5685@... wrote: > Nancie, > > Welcome to the RP. list. This is a great group of > wonderful and supportive people. I am looking > forward to getting to know you. Where are you from? > I live in Northern Ohio. I was dx. with RP. in May > of > 1999. Again, welcome. > > Take Care, > Sandy > ===== Everyone hears what you say, friends listen to what you say, best friends listen to what you don't say. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi SAndy nice to meet you. I live in San Diego California. I just got remarried (now here's a weird story for you)to my first husband two years ago. We we married the first time in 1970 and he went to Viet Nam and well we parted friends. But almost thrity years later here we are. My friends told me I should've contacted Oprah or something but not my thing. Up till then I was a single parent for almost 10 years. I've got two great kids, a son thats 26 living in Idaho and a daughter thats 19. She is trying to get scholarships to go to Vanguard University in September. She wants to become a youth minister. I truly feel that is her calling also. Are you getting slammed by all that bad weather out there? I was talking to a friend in South Carolina today and he hasn't gone to work for two days because of the weather. How about you? How are you doing? Thanks for the welcome! nancie --- biglou5685@... wrote: > Nancie, > > Welcome to the RP. list. This is a great group of > wonderful and supportive people. I am looking > forward to getting to know you. Where are you from? > I live in Northern Ohio. I was dx. with RP. in May > of > 1999. Again, welcome. > > Take Care, > Sandy > ===== Everyone hears what you say, friends listen to what you say, best friends listen to what you don't say. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 01/29/2000 9:33:14 PM Eastern Standard Time, suiska@... writes: << and well we parted friends. But almost thrity years > later here we are. >> > Hi Nancie, > That is a cool story! You will have to tell us > more...You should go on a talk > show, and we could all watch >> I led a boring lfe Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 --- Lu1953@... wrote: > In a message dated 01/28/2000 11:19:24 PM Central > Standard Time, > suiska@... writes: > > << I just got remarried (now here's a weird > story for you)to my first husband two years ago. We > we > married the first time in 1970 and he went to Viet > Nam > and well we parted friends. But almost thrity years > later here we are. >> > Hi Nancie, > That is a cool story! You will have to tell us > more...You should go on a talk > show, and we could all watch > Hey, I married my boyfriend's best friend. LOL > Needless to say they aren't > best friends anymore. My husband and I use to double > date all the time but we > weren't together....LOL > Anyway, glad your aboard..... > Love, > Lu > ===== Everyone hears what you say, friends listen to what you say, best friends listen to what you don't say. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 Hi Sandy, Thank you for the welcome! I am enjoying the e-mails and knowing that there are people out there having much more serious flare up than I at this time. So far, I am just having a lot of nausea from the meds I'm trying to take. Look forward to hearing from you again. Love Lucy in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Hi Sandy, Thanks for the welcome. I, too, know some people with Fibromyalgia who are seeing progress with the antibiotics. It is a slow process, but it is in the right direction. I'm glad to see that the treatment is finally gaining acceptance among the medical community. I take 200mg of Minocin on Monday, Wednesday and Friday. Then I take 500mg of Zithromax on Tuesdays and Saturdays. Kind of a wierd pattern, but it works! In the early days of my illness I was given lots of rounds of penicillan type antibiotics to clear up repeat UTIs. From what I have read, the penicillans don't work against the mycoplasma. The tetracyclines like Minocin and Erythromaycin get rid of mycoplasmas....again, its a slow process. Maybe that's why doctors have dismissed it....they didn't give it a long enough time. Some doctors are at least willing to combine the methotrexate and the prednisone with the antibiotics. At least it's a start. take care, Connie Welcome > From: biglou5685@... > > Connie, > > Welcome. This certainly was a very interesting > post. I have some friends with Fibromyalgia > who are being treated with antibiotics. Their > Doctors also feel fibro is related to Mycoplasma. > What kind of antibiotic are you taking? > I am asking because when I first developed RP. > symtoms I had a lot of trouble breathing. My > doctor kept giving me one antibiotic after another > and I did not get any relief. He kept telling me > I had a respiratory infection. I did not get a RP. > dx. until my nose swelled. > > Take Care, > Sandy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 -- >I am new to the list and I would just like to say hi. >My morphine is kicking in...so hope everyone has a pain free week... Welcome, Keba. We're glad to have you with us, but sorry another person has this problem. Hooray for the morphine! Hope you're feeling better. jang --== Sent via Deja.com http://www.deja.com/ ==-- Before you buy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 on 9/9/00 9:38 PM, dcp6364@... at dcp6364@... wrote: > Welcome to the new members. Hope we all can be of some help. > > MARIE ---------------------------------------------------------------------------> Dear Marie, Hey! My name is Henry on, I'm 37, and I'm one of the new members here. Although I've had chronic Pancreatitis for eight years, and have been blessed with great doctors here in ton at The Medical University of South Carolina, and a super support group named, " Pancreatitis Partners, " my friends in the group have been telling me for several years to get online, and I would greatly benefit, and enjoy the wealth of information, and support given freely, and generously, by nice folks like you, and Karyn ! How long have you been suffering with this? Have you been online in this group a long time, and how long has Karyn's wonderful group been around? What's your life been like with this awful disease? Have you had a lot of ERCPs, sugery, and the like? I guess you've had to be in the hospital for long periods of time? What works best for you for dealing with the symptoms? Like I've heard time and again, we may have the same disease, but everybody is an individual, and people do tend to have a variety of different medical treatments that work differently from one to another. I was diagnosed with Chronic Pancreatitis in 1992, Mine was a result of pancreas divism. I have no history of alcohol abuse, and was overall a healthy person prior to the diagnosis. It just hit me out of the blue. For me the main problem with it from a medical viewpoint is no. 1 the severe pain, I know I don't have to tell you what this is like, but I'm just relating my story for you, so I can get to know you, and other folks here. I don't like being dependent on narcotic medicine, or any medicine, but fortunately, haven't developed an addiction. My pain management psychologist says that there is a difference between dependence, and addiction, and I'm greatful for that. 2nd. is the digestive aspects, in my case, nausea, vomiting, and often when my system isn't shut down, the diarrhea. I've been on TPN feeding in the past for two years, and just had to start again this month back on it because of losing too much weight, and not absorbing enough vitamins, and nutrients. I think this sets me up for further illness, because then I'm in a weaker condition, and can't fight off illness as well. I was diagnosed with insulin dependent diabetes in 1997. I hope that as I interact here with all of the great people online, I will start hearing and sharing with others out there in cyberspace. Please send me an e-mail when you feel like it, and have the time. I really do want to participate, and mabe after people start getting familiar with seeing me here, they will write. I guess it takes a while for the ball to get rolling with a new member on a site. like I said, the internet is all new to me, and I'm trying to learn the ropes. I've already seen by reading through the various e-mails posted here that this is a nice, safe, friendly support group. I like the way that people share, and help each other out with their encouraging words, and concern for each other. The internet really is a great tool for bringing people together in a spirit of care, and sharing with a devastating, and life changing disease like pancreatitis is. Thank you again for the kind welcome, and I really do look forward to hearing from you and many other folks here! Sorry so long, but just starting out! Sincerely & Greatfully, Henry on Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 In a message dated 9/12/00 10:39:31 PM Eastern Daylight Time, howmtp@... writes: << Hey! My name is Henry on, I'm 37, and I'm one of the new members here. >> Welcome Henry, sorry you have Panc. and all of it's problems. Cyberspace will be helpful and interesting so keep that up it was a step in the right direction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Welcome Wendi I know your sister will be able to answer most your questions however we are here for you. Deb I loved your outline on after the procedure it was very well done. Have a good day Robin o - Calif 211-135-???? Dec 5 2002 _________________________________________________________________ Help protect your PC: Get a free online virus scan at McAfee.com. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
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