Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Hi Deanna thanks for all the info. I know it will help so many asking the same questions. My biggest problem is getting my family to tell me there fears it drives me nuts. It's almost like sometimes if we don't say lupus than Mom is really ok. My youngest still thinks I'm dying no matter how many times I tell her I'm not but I also let her know yes I am sick that doesn't mean I'm dying. My girls have always seen Mom go go go and now I can't do it and all the doctor appt's I think that's what scares them the most. I have always been fairly healthy up till the past 16 months. We all are so guilty of thinking that won't happen to me and I am guilty of it. Now I say that, that won't happen to me reached up and bit me in the ass and said oh yes you. It's not fair but neither is a lot of things. I know if my family is there for me I can get through this I just need them more now than ever. As long as I have my family I will get through this maybe not conquer it but at least live with it and be grateful for every day I wake up. With all the small strokes I have had believe me waking up is a blessing to me in so many ways. Thanks again for all the information it will help so many. Quote Link to comment Share on other sites More sharing options...
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