New to PLS

[Guest guest]

I've been searching the interenet for information on PLS all morning

and have stumbled upon your page. I can see that this site will

probably be one I often visit. My sister in law was Dx with PLS

about six months ago by her neuroligist. Last week we went to the

MDA clinic and found great help there. I have many many questions,

but my most urgent question is how can I best help my sister in law

come to terms with this disease? She is a very stong person and

this diease is not something she is willing to give in to easily.

She does not want to use any mobility aids, yet walking on most days

is not possible. They gave us a wheelchair at the clinic. She is

very resistant to the wheelchair or any other type of aid. Because

of this she spends most of her time at home.

I see the wheelchair as an opportunity of her to have some freedom

back in her life and she sees the wheelchair as giving in to the

diesase. I'm sure that her response is very normal. I'm hoping that

some of you have had similar reactions and give me advice.

I want to help her accept the situation, but I'm not sure of the

best way, or even if I should try to hurry this process. Please let

me know what you wish your family had said or done, or better yet,

understood when you were in the accepting process.

[Guest guest]

Hi accept is not an option in my case i will try to find ways that help me

(cope) im lucky though i can still walk not great but i can .How long has she

had this im in the 4th yr. and cope is the word i had one person that i argued

with she said just accept that your going to die . my answer to that is not

until im ready to give in .Can she stand at all .How about a walker or cane how

about prosthetic devices .leg braces etc.coping is the key word here being

stubborn enough to be willing to try things even a wheel chair .But try all

options .Have an open mind if at all possible GEO

New to PLS

I've been searching the interenet for information on PLS all morning

and have stumbled upon your page. I can see that this site will

probably be one I often visit. My sister in law was Dx with PLS

about six months ago by her neuroligist. Last week we went to the

MDA clinic and found great help there. I have many many questions,

but my most urgent question is how can I best help my sister in law

come to terms with this disease? She is a very stong person and

this diease is not something she is willing to give in to easily.

She does not want to use any mobility aids, yet walking on most days

is not possible. They gave us a wheelchair at the clinic. She is

very resistant to the wheelchair or any other type of aid. Because

of this she spends most of her time at home.

I see the wheelchair as an opportunity of her to have some freedom

back in her life and she sees the wheelchair as giving in to the

diesase. I'm sure that her response is very normal. I'm hoping that

some of you have had similar reactions and give me advice.

I want to help her accept the situation, but I'm not sure of the

best way, or even if I should try to hurry this process. Please let

me know what you wish your family had said or done, or better yet,

understood when you were in the accepting process.