Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 In a message dated 6/18/00 9:12:43 PM Eastern Daylight Time, mlapointe75@... writes: << Has anyone found that though for the most part your loved ones are supportive, sometimes they just don't get it? >> Been out of town, glad to be back...welcome back , glad you didn't leave Anyway to answer the question......My family understands it, for the most part. I just get tired of saying well I feel this way or that way/I can/can't do something because of the Graves. I personally drives me bonkers although I think it doesn't bother my family anymore. It's more just people outside of the family. It's hard to explain what's going on in my body to outsiders. They just kinda look at you and go oh, ok......they don't get it. Jewls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 Michele, Unfortunately I have been in that boat too. My great wife of (tomorrow 32 years) at times just blows up because I say I am tired or do not feel like it. I guess it is up to us to continually educate them about our problem and that it is real..... My best ally is my mother-in-law who is a retired nurse and really understands what is happening. Terry Michele - wrote: > > This is a question for everyone. > On this list we all have something in common. We all have Graves. It's > frustrating, can be extremely dibilitating, and we all need the support of > our loved ones. My question is: Has anyone found that though for the most > part your loved ones are supportive, sometimes they just don't get it? I > realize it's hard to understand something you're not going through > personally, but it seems sometimes my family feels I'm just not getting > better fast enough, and that's a pressure I just don't need to deal with > right now. I wake up every morning hoping that it'll be one of my good > days, and it's discouraging when it's not. I hate that I was once so active > and full of energy, and now a 5 minute bike ride is often more than my body > can handle. I don't know how to express to my family that this is something > I AM dealing with, and something that is not just going to go away over > night. I am getting better, I feel better more often than not, but I still > have my bad days. I guess I'm just sick and tired of explaining how I feel > to people, that in itself is exhausting. I hope I'm not the only one who > sometimes feels this way...any thoughts? > -Michele- > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > ------------------------------------------------------------------------ > Missing old school friends? Find them here: > http://click./1/5534/5/_/585824/_/961377094/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 Hi Michele- My husband is a doctor who has been with me through the entire almost 13 years that I've had Graves'. He gets impatient with me at times even though he knows what this disease entails. And sometimes, when he's down about it, he wishes that I was like I was when I was well. I think that's normal no matter how much your loved ones know about this disease. Their lives change too. But I've found that all the people that love me, especially my husband, are always there when I really need them. Take care, Utecht Michele - wrote: > This is a question for everyone. > On this list we all have something in common. We all have Graves. It's > frustrating, can be extremely dibilitating, and we all need the support of > our loved ones. My question is: Has anyone found that though for the most > part your loved ones are supportive, sometimes they just don't get it? I > realize it's hard to understand something you're not going through > personally, but it seems sometimes my family feels I'm just not getting > better fast enough, and that's a pressure I just don't need to deal with > right now. I wake up every morning hoping that it'll be one of my good > days, and it's discouraging when it's not. I hate that I was once so active > and full of energy, and now a 5 minute bike ride is often more than my body > can handle. I don't know how to express to my family that this is something > I AM dealing with, and something that is not just going to go away over > night. I am getting better, I feel better more often than not, but I still > have my bad days. I guess I'm just sick and tired of explaining how I feel > to people, that in itself is exhausting. I hope I'm not the only one who > sometimes feels this way...any thoughts? > -Michele- > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > ------------------------------------------------------------------------ > Missing old school friends? Find them here: > http://click./1/5534/5/_/585824/_/961377094/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 Hi Michele, I needed to wait until we got home from vacation today to send you this URL. This is where I sent my hubby to read, and he read the WHOLE site over a few days, but when he was done reading it he understood a lot more about what we go through and how unpredictable this disease is. Here is the URL take time and both of you explore it. http://members.xoom.com/thyroid/introduction.html I hope it helps you both as much as it helped us, it is Sue Rose's site that she put up, and helped bring me back to a place of sanity that I thought I had lost. As for anyone else, well if I am having a 'bad' day and some one asks what is wrong with me I just tell them I have Graves and today is not a good day. My close friends and some of my family have taken the time to at least learn some of what GD is about...anyone else, well they don't matter, in my opinion. Take care, Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 You're not alone. Not at all. It took awhile for my husband to understand that this was not a little cold that was going to go away in a week. I printed out quite a few of the posts from this list, and had him read them. He understands now. He has his moments, but as I'm getting better, he's just glad I'm feeling ok. From time to time, though, you've still got to remind them it's a Disease. But just having him read a few of these posts, re: family reactions to Graves (from a few months ago), *really* opened his eyes. It was easier than me explaining (especially if I was rage-y!!) Kari Family Support This is a question for everyone. On this list we all have something in common. We all have Graves. It's frustrating, can be extremely dibilitating, and we all need the support of our loved ones. My question is: Has anyone found that though for the most part your loved ones are supportive, sometimes they just don't get it? I realize it's hard to understand something you're not going through personally, but it seems sometimes my family feels I'm just not getting better fast enough, and that's a pressure I just don't need to deal with right now. I wake up every morning hoping that it'll be one of my good days, and it's discouraging when it's not. I hate that I was once so active and full of energy, and now a 5 minute bike ride is often more than my body can handle. I don't know how to express to my family that this is something I AM dealing with, and something that is not just going to go away over night. I am getting better, I feel better more often than not, but I still have my bad days. I guess I'm just sick and tired of explaining how I feel to people, that in itself is exhausting. I hope I'm not the only one who sometimes feels this way...any thoughts? -Michele- ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ------------------------------------------------------------------------ Missing old school friends? Find them here: http://click./1/5534/5/_/585824/_/961377094/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 Rage-y....a very accurate term. lol I seem to have a shorter fuse than I used to. Scares me sometimes, but others it gives me a little needed push to tell people when they've really pi$$ed me off! lol -Michele- > >Reply-To: graves_supportegroups >To: " 'graves_supportegroups' " <graves_supportegroups> >Subject: RE: Family Support >Date: Mon, 19 Jun 2000 10:43:44 -0700 > >You're not alone. Not at all. It took awhile for my husband to understand >that this was not a little cold that was going to go away in a week. I >printed out quite a few of the posts from this list, and had him read them. >He understands now. He has his moments, but as I'm getting better, he's >just glad I'm feeling ok. From time to time, though, you've still got to >remind them it's a Disease. But just having him read a few of these posts, >re: family reactions to Graves (from a few months ago), *really* opened his >eyes. It was easier than me explaining (especially if I was rage-y!!) > >Kari > > Family Support > > >This is a question for everyone. >On this list we all have something in common. We all have Graves. It's >frustrating, can be extremely dibilitating, and we all need the support of >our loved ones. My question is: Has anyone found that though for the most >part your loved ones are supportive, sometimes they just don't get it? I >realize it's hard to understand something you're not going through >personally, but it seems sometimes my family feels I'm just not getting >better fast enough, and that's a pressure I just don't need to deal with >right now. I wake up every morning hoping that it'll be one of my good >days, and it's discouraging when it's not. I hate that I was once so >active > >and full of energy, and now a 5 minute bike ride is often more than my body >can handle. I don't know how to express to my family that this is >something > >I AM dealing with, and something that is not just going to go away over >night. I am getting better, I feel better more often than not, but I still >have my bad days. I guess I'm just sick and tired of explaining how I feel >to people, that in itself is exhausting. I hope I'm not the only one who >sometimes feels this way...any thoughts? >-Michele- >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > >------------------------------------------------------------------------ >Missing old school friends? Find them here: >http://click./1/5534/5/_/585824/_/961377094/ >------------------------------------------------------------------------ > >------------------------------------- >The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 Rage-y....a very accurate term. lol I seem to have a shorter fuse than I used to. Scares me sometimes, but others it gives me a little needed push to tell people when they've really pi$$ed me off! lol -Michele- > >Reply-To: graves_supportegroups >To: " 'graves_supportegroups' " <graves_supportegroups> >Subject: RE: Family Support >Date: Mon, 19 Jun 2000 10:43:44 -0700 > >You're not alone. Not at all. It took awhile for my husband to understand >that this was not a little cold that was going to go away in a week. I >printed out quite a few of the posts from this list, and had him read them. >He understands now. He has his moments, but as I'm getting better, he's >just glad I'm feeling ok. From time to time, though, you've still got to >remind them it's a Disease. But just having him read a few of these posts, >re: family reactions to Graves (from a few months ago), *really* opened his >eyes. It was easier than me explaining (especially if I was rage-y!!) > >Kari > > Family Support > > >This is a question for everyone. >On this list we all have something in common. We all have Graves. It's >frustrating, can be extremely dibilitating, and we all need the support of >our loved ones. My question is: Has anyone found that though for the most >part your loved ones are supportive, sometimes they just don't get it? I >realize it's hard to understand something you're not going through >personally, but it seems sometimes my family feels I'm just not getting >better fast enough, and that's a pressure I just don't need to deal with >right now. I wake up every morning hoping that it'll be one of my good >days, and it's discouraging when it's not. I hate that I was once so >active > >and full of energy, and now a 5 minute bike ride is often more than my body >can handle. I don't know how to express to my family that this is >something > >I AM dealing with, and something that is not just going to go away over >night. I am getting better, I feel better more often than not, but I still >have my bad days. I guess I'm just sick and tired of explaining how I feel >to people, that in itself is exhausting. I hope I'm not the only one who >sometimes feels this way...any thoughts? >-Michele- >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > >------------------------------------------------------------------------ >Missing old school friends? Find them here: >http://click./1/5534/5/_/585824/_/961377094/ >------------------------------------------------------------------------ > >------------------------------------- >The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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