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I've been out of circulation for about a week. Nothing like coming home to 800+ emails.....I must confess that I did not read them all. Hence, my question........what is CPAP and BIPAP? I can only imagine how much important stuff I missed. My news......the HRCT showed no advancement of the IPF.PFT numbers are pretty much the same except for the DCLO (DLCO??), you know what I mean. That number is alarming. That is only one of the follow-up questions that I didn't get to ask. Why the problem with the exchange, carbon dioxide for oxygen? We really liked the new pulmonologist. As a "new patient" they'd scheduled an hour appointment. He spent almost 2 hours with us. I had a list of questions, but didn't get all of them answered simply because we did so much yakking. He was genuinely impressed with the list of questions, kept saying so, kept telling Eva "I wish all my patients were like this". The "like this" is a DIRECT result of what I have learned here,

folks, thank you very much !!! What a relief.....going to Anchorage to meet a new doc and have him turn out to be great, knowledgeable, honest and open. He stopped the azathiaprine and prednisone......the imuran immediately, the prednisone titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that those drugs are meant for a 6 month trial only, and I've been on them alot longer than that. Didn't address the question - - prednisone for PF vs IPF. I'll be really glad to be off the stuff. I believe it saved my life a couple years ago, but things have changed. Also saw the chemo Oncologist....he proclaimed me to still be clean. All in all.... a pretty good trip. Eva says it is all the prayer, bless her heart, I'm certainly not one to argue with her. On the subject of smoking........Ohhhhhh, I'm jones'n already. I smoked for 28 years. Had been trying to quit for more than 2 years, using patches and Zyban (wellbutrin) off and

on. Then they found this lymph node the size of an egg in the middle of my chest, biopsy showed it to be malignant....dx....lung cancer. Amazing..........haven't had a cigarette since that day in August, 2004. I actually tried to have a cigarette in October 2004, but by that time the radiation had trashed my lungs and I couldn't physically get the smoke down, hurt bad. And that was it. I was talking to a class of hi-school juniors and seniors about a year ago, told them that story. One of the little wise-asses asked...." If you could, would you?" I had to tell the truth......"I don't know, probably". I still crave, I still love the smell, but I am SO thankful that I quit, and I will never start again. The physical addiction part is actually the easiest part to deal with. It's the mental part that, at my age, will never go away. Somebody here suggested to delay having a smoke for an hour. I've heard that the actual craving only lasts a matter of seconds. However,

if they come every 3 minutes........... Maybe 20 years ago I was living in a house with a lady and 2 children. I kept passing out, after tests for a week it was found to be carbon monoxide poisoning. The doctor called and said "first, go open all the windows, then I'll tell you what's wrong with you". I asked why the other people in the house weren't effected and he told me that, by virtue of the fact that I was a smoker, I carried 50% of a lethal dose of carbon monoxide in my bloodstream at all times. True or not, I stopped smoking at that very moment........no withdrawal, no craving, no moods, no nothin'. I was off the cigarettes for almost 5 months. Then I went to Australia....... and one night my friends and I enjoyed several Toohey's Olds, followed by several drops of tawny port.....next thing I know I'm working on a pack of Winfields. Did you know that they have cigarettes Down There that have 50 cigs to a pack?? Sorry

........negative advertising, I know. Truth is that I was just looking for an excuse to start smoking again. I've gone on.....and on and on.....oh well!! I missed you guys !!! jim IPF 05 alaska

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