Re: Hi and Amantadine

July 17, 2007

Hi would need a pen-pal that knows english. You could try an add for if you want I know it would make him happy to make contact with some child his age.

Bill

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > > > > > Some of you mentioned Provigil, and I think that was thealternative> > > > > > > > that 's neuro was talking about, but if I understood it> correctly,> > > > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > > > however, it's something we'll have to look into more. Thecost is,> > > > > > > > luckily enough, not something we have to worry about sinceit's the> > > > > > > > government and not us who pay the bill (the advantages of that> system> > > > > > > > does become more distinct when you are faced with a chronicdisease> > > > > > > > like MS...).> > > > > > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of> you!).> > > > > > > > In the south of Sweden, to be more exact, but not in theparts that> > > > > > > > were flooded last week (another lucky thing...). is aresearch> > > > > > > > scientist in a pharmaceutical company, and I am a librarian but> right> > > > > > > > now back in college trying to get a doctorate (a dr. in thetitle> > > > > > > > would give me a better shot at the librarian positions Iwant the> > > most). > > > > > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but she> also gets> > > > > > > > a tingling sensation and(or lose sensation in and sometimeslose a> > > > > > > > little control of her left leg, that's especially when she is> tired or> > > > > > > > have walked a bit, so she always carry a cane if she is going to> walk> > > > > > > > a bit longer than usual, and/or if she knows there is apossibility> > > > > > > > she will be tired later on (fx. she brings it with her towork, but> > > > > > > > usually don't need it until she is leaving for home, and tired> after a> > > > > > > > days work). And she also has lost a little of her fine motor> skills in> > > > > > > > her hands. The symptoms have become worse since her last relapse> (the> > > > > > > > one that led to her getting her diagnose, innovember-december last> > > year).> > > > > > > > > > > > > > > > This is all quite new to us, but we have begun to find our way> around> > > > > > > > it (but only just begun, though). > > > > > > > > > > > > > > > > love> > > > > > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > __________________________________________________________> > > > Moody friends. Drama queens. Your life? Nope! - their life, your> > > story. Play Sims Stories at Yahoo! Games.> > > > http://sims.yahoo.com/> > > >> > > > > > > > > > > > > > > > > > > > > Have a great day! Joanne> > > > > > ---------------------------------> > > Don't be flakey. Get Yahoo! Mail for Mobile and > > > always stay connected to friends.> > >> > > > > > > > > > > > > > Never miss an email again!> > Yahoo! Toolbar alerts you the instant new Mail arrives. Check itout.> >>

July 17, 2007

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

July 17, 2007

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

July 18, 2007

His birthday is in August. He already has big plans as to who will spend the night for a sleep over. I hide upstairs most of the evening and keep them off the stairs. We started into mowing this summer and it makes happy to be passing that job on.

He was very happy making money from his lemonade.

Bill

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

August 24, 2007

Bill,

I just recieved a reply from that kid's magazine I mentioned, and

apparently they don't run pen pal adds any more. Sorry!

love

/Reb

> > > > >

> > > > > Hi Reb:

> > > > >

> > > > > Is on one of what we call the CRAB-T drugs? That would be

> > > > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors

> call them

> > > > disease modifying drugs. I was on Avonex for 5 years then

> decided I

> > > > felt so good I didn't need it any longer. That was in 2003.

> Now I've

> > > > had some progression and I regret my decision to stop taking

> Avonex

> > > > injections. I do believe in the disease modifying drugs.

They are

> > > > especially important in early relapsing remitting MS. I'm sure

>

> > > > has done her " research " though. (laughing). A research

scientist!

> > > > That's very impressive indeed. And you are going for your

> doctorate.

> > > > How long do you have until graduation?

> > > > >

> > > > > I was on Provigil and it worked for me but the cost did

hold me

> > > > back. I started on Ritalin several weeks ago and it is working

> very

> > > > well but I saw my doctor yesterday and my blood pressure is

> up, a side

> > > > effect of Ritalin. I may not be able to stay on this drug. We'll

> > > > decide next month when I have another blood pressure check.

I have

> > > > high blood pressure anyway so this is bad news for me.

> > > > >

> > > > > I just sent a link to the group map if you would like to add

> your

> > > > location (it was a post with the subject: location). And we

have a

> > > > birthday calendar, too. If you would to send your birthdays I

> would

> > > > be glad to add them to the calendar. We also have a group photo

> > > > section where you could put photos of you and and some of

> your

> > > > area if you would like. I know we would all like to see some

> of your

> > > > country. We have one member from Turkey, several from the

UK, one

> > > > from Central America, several from Canada and the rest from

> the USA.

> > > > I live in Arizona, USA. Have you ever visited the USA? I've

always

> > > > wanted to go to Europe but have never had the chance. My niece

> lived

> > > > in Holland for 4 years while her husband was stationed there

> with our

> > > > military. She loved it. Then they were stationed in London for

> > > > awhile. She preferred Holland.

> > > > >

> > > > > The fatigue is awful and is hard for others to understand.

> When it

> > > > hits me I can not stay awake. Is able to keep working as

> usual?

> > > > >

> > > > > I participated in a teleconference with one of our top

research

> > > > physicians in the field of MS and he pushed the idea of

> exercise being

> > > > extremely important for MS. For many years MSers have been

> told to be

> > > > careful with exercise because it can overheat your body,

> bringing on

> > > > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > > > exercise because people with MS can lose use of their muscles

> and it's

> > > > very difficult to regain that muscle strength. In 2001 I had

hand

> > > > weakness and difficulty with fine motor tasks. We moved to a

> farm and

> > > > I started milking goats and got my hand strength back and it

> improved

> > > > my fine motor skills as well. So needs to milk goats.

> (laughing)

> > > > >

> > > > > love

> > > > > Sharon

> > > > >

> > > > > This email is a natural hand made product. The slight

> variations in

> > > > spelling and grammar enhance its individual character and

> beauty and

> > > > in no way are to be considered flaws or defects.

> > > > >

> > > > > Re: Hi and Amantadine

> > > > >

> > > > > Hi all,

> > > > >

> > > > > And thanks a lot for everybody´s responses and welcomes!

> > > > >

> > > > > Some of you mentioned Provigil, and I think that was the

> alternative

> > > > >

> > > > > that 's neuro was talking about, but if I understood it

> > correctly,

> > > > >

> > > > > it tend to have more side effects. If Amantadine doesn't work,

> > > > >

> > > > > however, it's something we'll have to look into more. The

> cost is,

> > > > >

> > > > > luckily enough, not something we have to worry about since

> it's the

> > > > >

> > > > > government and not us who pay the bill (the advantages of that

> > system

> > > > >

> > > > > does become more distinct when you are faced with a chronic

> disease

> > > > >

> > > > > like MS...).

> > > > >

> > > > > It's correct that we are in Sweden, Sharon (very perceptive of

> > you!).

> > > > >

> > > > > In the south of Sweden, to be more exact, but not in the

> parts that

> > > > >

> > > > > were flooded last week (another lucky thing...). is a

> research

> > > > >

> > > > > scientist in a pharmaceutical company, and I am a

librarian but

> > right

> > > > >

> > > > > now back in college trying to get a doctorate (a dr. in the

> title

> > > > >

> > > > > would give me a better shot at the librarian positions I

> want the

> > > > most).

> > > > >

> > > > > I think the " worst " symptom for is the fatigue, but she

> > also gets

> > > > >

> > > > > a tingling sensation and(or lose sensation in and sometimes

> lose a

> > > > >

> > > > > little control of her left leg, that's especially when she is

> > tired or

> > > > >

> > > > > have walked a bit, so she always carry a cane if she is

going to

> > walk

> > > > >

> > > > > a bit longer than usual, and/or if she knows there is a

> possibility

> > > > >

> > > > > she will be tired later on (fx. she brings it with her to

> work, but

> > > > >

> > > > > usually don't need it until she is leaving for home, and tired

> > after a

> > > > >

> > > > > days work). And she also has lost a little of her fine motor

> > skills in

> > > > >

> > > > > her hands. The symptoms have become worse since her last

relapse

> > (the

> > > > >

> > > > > one that led to her getting her diagnose, in

> november-december last

> > > > year).

> > > > >

> > > > > This is all quite new to us, but we have begun to find our way

> > around

> > > > >

> > > > > it (but only just begun, though).

> > > > >

> > > > > love

> > > > >

> > > > > /Reb

> > > > >

> > > > > <!--

> > > > >

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> > > > > -->

> > > > >

> > > > __________________________________________________________

> > > > > Moody friends. Drama queens. Your life? Nope! - their

life, your

> > > > story. Play Sims Stories at Yahoo! Games.

> > > > > http://sims.yahoo.com/

> > > > >

> > > >

> > > > Have a great day! Joanne

> > > >

> > > > ---------------------------------

> > > > Don't be flakey. Get Yahoo! Mail for Mobile and

> > > > always stay connected to friends.

> > > >

> > >

> > > Never miss an email again!

> > > Yahoo! Toolbar alerts you the instant new Mail arrives. Check it

> out.

> > >

> >

>

August 24, 2007

Hi that was ok hasn't mentioned anything about a pen pal and that hasn't surprised me. He must have seen something on TV about pen pals and wanted to check it out more.

My son and both started school on Monday. They were both happy to go back to school.

Thanks for trying.

Bill

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the> alternative> > > > > > > > > > that 's neuro was talking about, but if I understood it> > correctly,> > > > > > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > > > > > however, it's something we'll have to look into more. The> cost is,> > > > > > > > > > luckily enough, not something we have to worry about since> it's the> > > > > > > > > > government and not us who pay the bill (the advantages of that> > system> > > > > > > > > > does become more distinct when you are faced with a chronic> disease> > > > > > > > > > like MS...).> > > > > > > > > > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of> > you!).> > > > > > > > > > In the south of Sweden, to be more exact, but not in the> parts that> > > > > > > > > > were flooded last week (another lucky thing...). is a> research> > > > > > > > > > scientist in a pharmaceutical company, and I am alibrarian but> > right> > > > > > > > > > now back in college trying to get a doctorate (a dr. in the> title> > > > > > > > > > would give me a better shot at the librarian positions I> want the> > > > most). > > > > > > > > > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but she> > also gets> > > > > > > > > > a tingling sensation and(or lose sensation in and sometimes> lose a> > > > > > > > > > little control of her left leg, that's especially when she is> > tired or> > > > > > > > > > have walked a bit, so she always carry a cane if she isgoing to> > walk> > > > > > > > > > a bit longer than usual, and/or if she knows there is a> possibility> > > > > > > > > > she will be tired later on (fx. she brings it with her to> work, but> > > > > > > > > > usually don't need it until she is leaving for home, and tired> > after a> > > > > > > > > > days work). And she also has lost a little of her fine motor> > skills in> > > > > > > > > > her hands. The symptoms have become worse since her lastrelapse> > (the> > > > > > > > > > one that led to her getting her diagnose, in> november-december last> > > > year).> > > > > > > > > > > > > > > > > > > > This is all quite new to us, but we have begun to find our way> > around> > > > > > > > > > it (but only just begun, though). > > > > > > > > > > > > > > > > > > > > love> > > > > > > > > > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > __________________________________________________________> > > > > Moody friends. Drama queens. Your life? Nope! - theirlife, your> > > > story. Play Sims Stories at Yahoo! Games.> > > > > http://sims.yahoo.com/> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > Have a great day! Joanne> > > > > > > > ---------------------------------> > > > Don't be flakey. Get Yahoo! Mail for Mobile and > > > > always stay connected to friends.> > > >> > > > > > > > > > > > > > > > > > > > > Never miss an email again!> > > Yahoo! Toolbar alerts you the instant new Mail arrives. Check it> out.> > >> >>

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