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Re: Hi and Amantadine

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n,

Thanks. I think that having MS is a blessing

in many ways. It has made me more compassionate and empathetic. You hate to

think that everyone needs a disease in order to care.  A chronic illness

changes your priorities and the way you look at life. And especially the way

you look at others.

Have a great day n,

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Rojas5915@...

Sent: Thursday, July 12, 2007

10:56 AM

To: MSersLife

Subject: RE: Hi and

Amantadine

Connie, and all, if only we all just CARED about one another, we would

not even

NEED laws to enforce common decency and consideration. We are

sorely lacking

in common decency in this nation at this time. I am so sorry to

read all that has be

fallen you, but very glad that you chose to post about it. We all

need to understand

this!

Love to you, Connie,

n

--------- Re: Hi and Amantadine

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi all,

> >

> >

> >

> > And thanks a lot for everybody´s responses and welcomes!

> >

> >

> >

> > Some of you mentioned Provigil, and I think that was the alternative

> >

> > that 's neuro was talking about, but if I understood it

correctly,

> >

> > it tend to have more side effects. If Amantadine doesn't work,

> >

> > however, it's something we'll have to look into more. The cost is,

> >

> > luckily enough, not something we have to worry about since it's the

> >

> > government and not us who pay the bill (the advantages of that system

> >

> > does become more distinct when you are faced with a chronic disease

> >

> > like MS...).

> >

> >

> >

> > It's correct that we are in Sweden,

Sharon

(very perceptiv e of you!).

> >

> > In the south of Sweden,

to be more exact, but not in the parts that

> >

> > were flooded last week (another lucky thing...). is a research

> >

> > scientist in a pharmaceutical company, and I am a librarian but right

> >

> > now back in college trying to get a doctorate (a dr. in the title

> >

> > would give me a better shot at the librarian positions I want the

> most).

> >

> >

> >

> > I think the " worst " symptom for is the fatigue, but

she also gets

> >

> > a tingling sensation and(or lose sensation in and sometimes lose a

> >

> > little control of her left leg, that's especially when she is tired

or

> >

> > have walked a bit, so she always carry a cane if she is going to walk

> >

> > a bit longer than usual, and/or if she knows there is a possibility

> >

> > she will be tired later on (fx. she brings it with her to work, but

> >

> > usually don't need it until she is leaving for home, and tired after

a

> >

> > days work). And she also has lost a little of her fine motor skills

in

> >

> > her hands. The symptoms have become worse since her last relapse (the

> >

> > one that led to her getting her diagnose, in november-december last

> year).

> >

> >

> >

> > This is all quite new to us, but we have begun to find our way around

> >

> > it (but only just begun, though).

> >

> >

> >

> > love

> >

> >

> >

> > /Reb

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > BR>> >

> >

> >

> > <!--

> >

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font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}

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> >

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> >

> >

> >

> >

> >

> >

> >

> ______ ____________________________________________________

> > Moody friends. Drama queens. Your life? Nope! - their life, your

> story. Play Sims Stories at Yahoo! Games.

> > http://sims.yahoo.com/

> >

>

>

>

>

>

>

> Have a great day! Joanne

>

> ---------------------------------

> Don't be flakey. Get Yahoo! Mail for Mobile

and

> always stay connected to friends.

>

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I just wanted to jump in quick here and see if you all were talking

about SSDI? I also live in NY like Joanne and here it's like they

automatically send out a blanket withdrawal when you request SSDI.

They said they talked to people whom they never spoke to. It was

ridiculous.

I used to work as a bank teller and then was moved up as a customer

service rep in the credit union where I opened accts. took loan

applications, helped people with their checking accts. cds, money

markets, savings bonds, all things dealing with banking. There is no

way the way my mind and memory work now that I could ever do that

again. Anyone who knew me knew that I was looking forward to going

back to work when Zack went to kindergarten. I even tried to take a

night job and a Kohls dept. store. I couldn't do it, and this was

before my MS dx. My anxiety got the better of me.

Despite the fact that I have a terrible time with stress and anxiety

and can't stand the cold or the heat at all. As it is now we are

barely living paycheck to paycheck and now I'm having to start to see

a psychiatrist!!!! My husband will be leaving soon to train to become

a Sgt. with the prison system and who knows how long he'll be gone!!!

I'm a mess. I can't lift things, not even the laundry basket, can't

keep my arms over my head for more than two minutes.

What really irritates me is that I've worked since I was 15 and

earned the money that they are deciding if I am eligible for. I have

to prove that I need it!!! I am appealing the decision with a lawyer

but am jumping through alot of hoops and going through a lot of red

tape and will be waiting about 18 months before my day in court.

NY is one of the hardest states to recieve any kind of disability or

SSDI or compensation. Write to your congressman or anyone that is on

the state level, I did and I actually got a response within 15

minutes of their receipt of my fax. They can't gaurantee you will get

it but they can push your case along faster.

Connie, you're not alone. We are all struggling in one way or another.

Hugs,

Peggy

> > >

> > > Hi Reb:

> > >

> > > Is on one of what we call the CRAB-T drugs? That would be

> > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call

them

> > disease modifying drugs. I was on Avonex for 5 years then decided

I

> > felt so good I didn't need it any longer. That was in 2003. Now

I've

> > had some progression and I regret my decision to stop taking

Avonex

> > injections. I do believe in the disease modifying drugs. They are

> > especially important in early relapsing remitting MS. I'm sure

> > has done her " research " though. (laughing). A research scientist!

> > That's very impressive indeed. And you are going for your

doctorate.

> > How long do you have until graduation?

> > >

> > > I was on Provigil and it worked for me but the cost did hold me

> > back. I started on Ritalin several weeks ago and it is working

very

> > well but I saw my doctor yesterday and my blood pressure is up, a

side

> > effect of Ritalin. I may not be able to stay on this drug. We'll

> > decide next month when I have another blood pressure check. I have

> > high blood pressure anyway so this is bad news for me.

> > >

> > > I just sent a link to the group map if you would like to add

your

> > location (it was a post with the subject: location). And we have a

> > birthday calendar, too. If you would to send your birthdays I

would

> > be glad to add them to the calendar. We also have a group photo

> > section where you could put photos of you and and some of

your

> > area if you would like. I know we would all like to see some of

your

> > country. We have one member from Turkey, several from the UK, one

> > from Central America, several from Canada and the rest from the

USA.

> > I live in Arizona, USA. Have you ever visited the USA? I've always

> > wanted to go to Europe but have never had the chance. My niece

lived

> > in Holland for 4 years while her husband was stationed there with

our

> > military. She loved it. Then they were stationed in London for

> > awhile. She preferred Holland.

> > >

> > > The fatigue is awful and is hard for others to understand. When

it

> > hits me I can not stay awake. Is able to keep working as

usual?

> > >

> > > I participated in a teleconference with one of our top research

> > physicians in the field of MS and he pushed the idea of exercise

being

> > extremely important for MS. For many years MSers have been told

to be

> > careful with exercise because it can overheat your body, bringing

on

> > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > exercise because people with MS can lose use of their muscles and

it's

> > very difficult to regain that muscle strength. In 2001 I had hand

> > weakness and difficulty with fine motor tasks. We moved to a farm

and

> > I started milking goats and got my hand strength back and it

improved

> > my fine motor skills as well. So needs to milk goats.

(laughing)

> > >

> > > love

> > > Sharon

> > >

> > > This email is a natural hand made product. The slight

variations in

> > spelling and grammar enhance its individual character and beauty

and

> > in no way are to be considered flaws or defects.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Re: Hi and Amantadine

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi all,

> > >

> > >

> > >

> > > And thanks a lot for everybody´s responses and welcomes!

> > >

> > >

> > >

> > > Some of you mentioned Provigil, and I think that was the

alternative

> > >

> > > that 's neuro was talking about, but if I understood it

correctly,

> > >

> > > it tend to have more side effects. If Amantadine doesn't work,

> > >

> > > however, it's something we'll have to look into more. The cost

is,

> > >

> > > luckily enough, not something we have to worry about since it's

the

> > >

> > > government and not us who pay the bill (the advantages of that

system

> > >

> > > does become more distinct when you are faced with a chronic

disease

> > >

> > > like MS...).

> > >

> > >

> > >

> > > It's correct that we are in Sweden, Sharon (very perceptive of

you!).

> > >

> > > In the south of Sweden, to be more exact, but not in the parts

that

> > >

> > > were flooded last week (another lucky thing...). is a

research

> > >

> > > scientist in a pharmaceutical company, and I am a librarian but

right

> > >

> > > now back in college trying to get a doctorate (a dr. in the

title

> > >

> > > would give me a better shot at the librarian positions I want

the

> > most).

> > >

> > >

> > >

> > > I think the " worst " symptom for is the fatigue, but she

also gets

> > >

> > > a tingling sensation and(or lose sensation in and sometimes

lose a

> > >

> > > little control of her left leg, that's especially when she is

tired or

> > >

> > > have walked a bit, so she always carry a cane if she is going

to walk

> > >

> > > a bit longer than usual, and/or if she knows there is a

possibility

> > >

> > > she will be tired later on (fx. she brings it with her to work,

but

> > >

> > > usually don't need it until she is leaving for home, and tired

after a

> > >

> > > days work). And she also has lost a little of her fine motor

skills in

> > >

> > > her hands. The symptoms have become worse since her last

relapse (the

> > >

> > > one that led to her getting her diagnose, in november-december

last

> > year).

> > >

> > >

> > >

> > > This is all quite new to us, but we have begun to find our way

around

> > >

> > > it (but only just begun, though).

> > >

> > >

> > >

> > > love

> > >

> > >

> > >

> > > /Reb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > <!--

> > >

> > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

> > sans-serif;}

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> > > padding:5px 0;

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> > > padding-bottom:10px;}

> > >

> > > #ygrp-vital{

> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px

8px;}

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> > >

> >

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> > >

> >

> font-family:Arial;font-weight:bold;color:#628c2a;font-

size:100%;line-height:122%;}

> > > #ygrp-sponsor .ad a{

> > > text-decoration:none;}

> > > #ygrp-sponsor .ad a:hover{

> > > text-decoration:underline;}

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> > > margin:0;}

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> > > -->

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > Moody friends. Drama queens. Your life? Nope! - their life, your

> > story. Play Sims Stories at Yahoo! Games.

> > > http://sims.yahoo.com/

> > >

> >

> >

> >

> >

> >

> >

> > Have a great day! Joanne

> >

> > ---------------------------------

> > Don't be flakey. Get Yahoo! Mail for Mobile and

> > always stay connected to friends.

> >

>

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There's a PT at work? Wow, I've heard wonderful things of Sweden over the years, regarding medical care and accommodations (including costs covered), and it's just sounding better and better. Maybe we should look at Sweden. How is Homeschooling there? LOL Hugs, Challis reb_41se wrote: I am sorry to hear that! almost felt that they were doing to muchaccomodations for her, since she

wasn't sure she needed them all, buttheir response to that was that "When the day come that you need it,you may not have the energy to ask for it, so why not make sure it'salready in place by then?" The physical therapist at her work (who'sjob it is to help the employers with everything from chosing the deskand desk chair that is most right, most ergonomical, for them, to workplace adjustments in cases such as 's) that helped her withassesing her needs and trying out the new equipment also convinced herthat these things will help her, and in retrospect she feels that ithas been helpful. The company does have a general policy of doing whatever they can tokeep the employers happy, the idea is to get and keep a reputation ofbeing a good empoyer, and thus have a head start over competitors whenthey need to recruit – probably not a bad idea. love/Reb> >> > Hi Reb:> > > > Is on one of what we call the CRAB-T drugs? That would be> Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them> disease modifying drugs. I was on Avonex for 5 years then decided I> felt so good I didn't need it any longer. That was in 2003. Now I've> had some progression and I

regret my decision to stop taking Avonex> injections. I do believe in the disease modifying drugs. They are> especially important in early relapsing remitting MS. I'm sure > has done her "research" though. (laughing). A research scientist! > That's very impressive indeed. And you are going for your doctorate.> How long do you have until graduation? > > > > I was on Provigil and it worked for me but the cost did hold me> back. I started on Ritalin several weeks ago and it is working very> well but I saw my doctor yesterday and my blood pressure is up, a side> effect of Ritalin. I may not be able to stay on this drug. We'll> decide next month when I have another blood pressure check. I have> high blood pressure anyway so this is bad news for me.> > > > I just sent a link to the group map if you would like to add your> location (it was a post with the

subject: location). And we have a> birthday calendar, too. If you would to send your birthdays I would> be glad to add them to the calendar. We also have a group photo> section where you could put photos of you and and some of your> area if you would like. I know we would all like to see some of your> country. We have one member from Turkey, several from the UK, one> from Central America, several from Canada and the rest from the USA. > I live in Arizona, USA. Have you ever visited the USA? I've always> wanted to go to Europe but have never had the chance. My niece lived> in Holland for 4 years while her husband was stationed there with our> military. She loved it. Then they were stationed in London for> awhile. She preferred Holland. > > > > The fatigue is awful and is hard for others to understand. When it> hits me I can not stay awake. Is able to keep

working as usual? > > > > I participated in a teleconference with one of our top research> physicians in the field of MS and he pushed the idea of exercise being> extremely important for MS. For many years MSers have been told to be> careful with exercise because it can overheat your body, bringing on> symptoms or a relapse. But Dr. Vollmer said it is imperative to> exercise because people with MS can lose use of their muscles and it's> very difficult to regain that muscle strength. In 2001 I had hand> weakness and difficulty with fine motor tasks. We moved to a farm and> I started milking goats and got my hand strength back and it improved> my fine motor skills as well. So needs to milk goats. (laughing)> > > > love> > Sharon> > > > This email is a natural hand made product. The slight variations in> spelling and grammar enhance

its individual character and beauty and> in no way are to be considered flaws or defects.> > > > > > > > > > > > > > Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > that 's neuro was talking about, but if I

understood it correctly,> > > > it tend to have more side effects. If Amantadine doesn't work,> > > > however, it's something we'll have to look into more. The cost is,> > > > luckily enough, not something we have to worry about since it's the> > > > government and not us who pay the bill (the advantages of that system> > > > does become more distinct when you are faced with a chronic disease> > > > like MS...).> > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > > > In the south of Sweden, to be more exact, but not in the parts that> > > > were flooded last week (another lucky thing...). is a research> > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > now back in

college trying to get a doctorate (a dr. in the title> > > > would give me a better shot at the librarian positions I want the> most). > > > > > > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > little control of her left leg, that's especially when she is tired or> > > > have walked a bit, so she always carry a cane if she is going to walk> > > > a bit longer than usual, and/or if she knows there is a possibility> > > > she will be tired later on (fx. she brings it with her to work, but> > > > usually don't need it until she is leaving for home, and tired after a> > > > days work). And she also has lost a little of her fine motor skills in> > >

> her hands. The symptoms have become worse since her last relapse (the> > > > one that led to her getting her diagnose, in november-december last> year).> > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > it (but only just begun, though). > > > > > > > > love> > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> sans-serif;}> > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > #ygrp-mlmsg select, input, textarea {font:99% arial,

helvetica,> clean, sans-serif;}> > #ygrp-mlmsg pre, code {font:115% monospace;}> > #ygrp-mlmsg * {line-height:1.22em;}> > #ygrp-text{> > font-family:Georgia;> > }> > #ygrp-text p{> > margin:0 0 1em 0;}> > #ygrp-tpmsgs{> > font-family:Arial;> > clear:both;}> > #ygrp-vitnav{> > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > #ygrp-vitnav a{> > padding:0 1px;}> > #ygrp-actbar{> > clear:both;margin:25px> 0;white-space:nowrap;color:#666;text-align:right;}> > #ygrp-actbar .left{> > float:left;white-space:nowrap;}> > .bld{font-weight:bold;}> > #ygrp-grft{> > font-family:Verdana;font-size:77%;padding:15px 0;}> > #ygrp-ft{> >

font-family:verdana;font-size:77%;border-top:1px solid #666;> > padding:5px 0;> > }> > #ygrp-mlmsg #logo{> > padding-bottom:10px;}> > > > #ygrp-vital{> > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > #ygrp-vital #vithd{> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > #ygrp-vital ul{> > padding:0;margin:2px 0;}> > #ygrp-vital ul li{> > list-style-type:none;clear:both;border:1px solid #e0ecee;> > }> > #ygrp-vital ul li .ct{> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > #ygrp-vital ul li .cat{> > font-weight:bold;}>

> #ygrp-vital a {> > text-decoration:none;}> > > > #ygrp-vital a:hover{> > text-decoration:underline;}> > > > #ygrp-sponsor #hd{> > color:#999;font-size:77%;}> > #ygrp-sponsor #ov{> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > #ygrp-sponsor #ov ul{> > padding:0 0 0 8px;margin:0;}> > #ygrp-sponsor #ov li{> > list-style-type:square;padding:6px 0;font-size:77%;}> > #ygrp-sponsor #ov li a{> > text-decoration:none;font-size:130%;}> > #ygrp-sponsor #nc {> > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > #ygrp-sponsor .ad{> > padding:8px 0;}> > #ygrp-sponsor .ad #hd1{>

>>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > #ygrp-sponsor .ad a{> > text-decoration:none;}> > #ygrp-sponsor .ad a:hover{> > text-decoration:underline;}> > #ygrp-sponsor .ad p{> > margin:0;}> > o {font-size:0;}> > .MsoNormal {> > margin:0 0 0 0;}> > #ygrp-text tt{> > font-size:120%;}> > blockquote{margin:0 0 0 4px;}> > .replbq {margin:4;}> > -->> > > > > > > > > > > > > > > > > > > >> __________________________________________________________> > Moody friends. Drama queens. Your life? Nope! - their life, your> story. Play Sims Stories at Yahoo! Games.>

> http://sims.yahoo.com/> >> > > > > > > Have a great day! Joanne> > ---------------------------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends.>

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Hey, Denmark is even better, and even the classes in public school are SMALL!

Love,

n

--------- Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > that 's neuro was talking about, but if I understood it correctly,> &gt

; > > it tend to have more side effects. If Amantadine doesn't work,> > > > however, it's something we'll have to look into more. The cost is,> > > > luckily enough, not something we have to worry about since it's the> > > > government and not us who pay the bill (the advantages of that system> > > > does become more distinct when you are faced with a chronic disease> > > > like MS...).> > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > > > In the south of Sweden, to be more exact, but not in the parts that> > > > were flooded last week (another lucky thing...). is a research> > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > now back in college trying to get a doctorate (a dr. in t

he title> > > > would give me a better shot at the librarian positions I want the> most). > > > > > > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > little control of her left leg, that's especially when she is tired or> > > > have walked a bit, so she always carry a cane if she is going to walk> > > > a bit longer than usual, and/or if she knows there is a possibility> > > > she will be tired later on (fx. she brings it with her to work, but> > > > usually don't need it until she is leaving for home, and tired after a> > > > days work). And she also has lost a little of her fine motor skills in> > > > her hands. The symptoms have become worse since he

r last relapse (the> > > > one that led to her getting her diagnose, in november-december last> year).> > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > it (but only just begun, though). > > > > > > > > love> > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> sans-serif;}> > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> clean, sans-serif;}> > #ygrp-mlmsg pre, code {font:1

15% monospace;}> > #ygrp-mlmsg * {line-height:1.22em;}> > #ygrp-text{> > font-family:Georgia;> > }> > #ygrp-text p{> > margin:0 0 1em 0;}> > #ygrp-tpmsgs{> > font-family:Arial;> > clear:both;}> > #ygrp-vitnav{> > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > #ygrp-vitnav a{> > padding:0 1px;}> > #ygrp-actbar{> > clear:both;margin:25px> 0;white-space:nowrap;color:#666;text-align:right;}> > #ygrp-actbar .left{> > float:left;white-space:nowrap;}> > .bld{font-weight:bold;}> > #ygrp-grft{> > font-family:Verdana;font-size:77%;padding:15px 0;}> > #ygrp-ft{> > font-family:verdana;font-size:77%;border-top:1px solid #666;> > pa

dding:5px 0;> > }> > #ygrp-mlmsg #logo{> > padding-bottom:10px;}> > > > #ygrp-vital{> > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > #ygrp-vital #vithd{> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > #ygrp-vital ul{> > padding:0;margin:2px 0;}> > #ygrp-vital ul li{> > list-style-type:none;clear:both;border:1px solid #e0ecee;> > }> > #ygrp-vital ul li .ct{> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > #ygrp-vital ul li .cat{> > font-weight:bold;}> > #ygrp-vital a {> > text-decoration:none;}> > > > #ygrp-vital a:hov

er{> > text-decoration:underline;}> > > > #ygrp-sponsor #hd{> > color:#999;font-size:77%;}> > #ygrp-sponsor #ov{> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > #ygrp-sponsor #ov ul{> > padding:0 0 0 8px;margin:0;}> > #ygrp-sponsor #ov li{> > list-style-type:square;padding:6px 0;font-size:77%;}> > #ygrp-sponsor #ov li a{> > text-decoration:none;font-size:130%;}> > #ygrp-sponsor #nc {> > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > #ygrp-sponsor .ad{> > padding:8px 0;}> > #ygrp-sponsor .ad #hd1{> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > #ygrp-sponsor .ad a{> > text-decoration:

none;}> > #ygrp-sponsor .ad a:hover{> > text-decoration:underline;}> > #ygrp-sponsor .ad p{> > margin:0;}> > o {font-size:0;}> > .MsoNormal {> > margin:0 0 0 0;}> > #ygrp-text tt{> > font-size:120%;}> > blockquote{margin:0 0 0 4px;}> > .replbq {margin:4;}> > -->> > > > > > > > > > > > > > > > > > > >> __________________________________________________________> > Moody friends. Drama queens. Your life? Nope! - their life, your> story. Play Sims Stories at Yahoo! Games.> > http://sims.yahoo.com/> >> > > > > > > Have a great day! Joanne> > ----------------

-----------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends.>

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I'm curious... if the Neuro writes the order, and the employer refuses to follow it, are they not responsible when your health suffers for it? Clearly, if they refuse to (word gone)... follow it, and if you are passed over for promotions or your evals reflect it, then they are in violation of your legal rights under the ADA. It's hard when we have to decide between just dealing with things or dealing with the problems of fighting, isn't it? HUGS, Challis connie buran wrote: Reb, European nations are light years ahead of the US with accommodations. The maternity leave time in Germany is 14 weeks with 100% of pay and benefits. In the US, it is unpaid leave or your vacation time. Many of the teachers I work with come back from having a baby after just a few weeks because they can’t afford to stay home.

I asked my neurologist for a letter stating that I needed to stay indoors during the cold months—in Texas that is about 3. I stand outside for duty every morning waiting for students. It is very hard for me to walk after that. My legs need about an hour to work right again. The neuro said she is worried my employer will use it against me in evaluations or promotions. The teacher who assigns duties won’t allow me to stay on indoor duty. She gets headaches in the cold was her answer. Luckily on bitter cold days, my wonderful friends switch with me and let me stay in. Our society looks at a disability as a liability. Sad!! Connie From: MSersLife [mailto:MSersLife ] On Behalf Of reb_41seSent: Thursday, July 12, 2007 7:28 AMTo: MSersLife Subject: Re: Hi and Amantadine I am sorry to hear that! almost felt that they were doing to muchaccomodations for her, since she wasn't sure she needed them all, buttheir response to that was that "When the day come that you need it,you may

not have the energy to ask for it, so why not make sure it'salready in place by then?" The physical therapist at her work (who'sjob it is to help the employers with everything from chosing the deskand desk chair that is most right, most ergonomical, for them, to workplace adjustments in cases such as 's) that helped her withassesing her needs and trying out the new equipment also convinced herthat these things will help her, and in retrospect she feels that ithas been helpful. The company does have a general policy of doing whatever they can tokeep the employers happy, the idea is to get and keep a reputation ofbeing a good empoyer, and thus have a head start over competitors whenthey need to recruit – probably not a bad idea. love/Reb> >> > Hi Reb:> > > > Is on one of what we call the CRAB-T drugs? That would be> Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them> disease modifying drugs. I was on Avonex for 5 years then decided I> felt so good I didn't need it any longer. That was in 2003. Now I've> had some progression and I regret my decision to stop taking Avonex> injections. I do believe

in the disease modifying drugs. They are> especially important in early relapsing remitting MS. I'm sure > has done her "research" though. (laughing). A research scientist! > That's very impressive indeed. And you are going for your doctorate.> How long do you have until graduation? > > > > I was on Provigil and it worked for me but the cost did hold me> back. I started on Ritalin several weeks ago and it is working very> well but I saw my doctor yesterday and my blood pressure is up, a side> effect of Ritalin. I may not be able to stay on this drug. We'll> decide next month when I have another blood pressure check. I have> high blood pressure anyway so this is bad news for me.> > > > I just sent a link to the group map if you would like to add your> location (it was a post with the subject: location). And we have a> birthday calendar, too. If you would

to send your birthdays I would> be glad to add them to the calendar. We also have a group photo> section where you could put photos of you and and some of your> area if you would like. I know we would all like to see some of your> country. We have one member from Turkey, several from the UK, one> from Central America, several from Canada and the rest from the USA. > I live in Arizona, USA. Have you ever visited the USA? I've always> wanted to go to Europe but have never had the chance. My niece lived> in Holland for 4 years while her husband was stationed there with our> military. She loved it. Then they were stationed in London for> awhile. She preferred Holland. > > > > The fatigue

is awful and is hard for others to understand. When it> hits me I can not stay awake. Is able to keep working as usual? > > > > I participated in a teleconference with one of our top research> physicians in the field of MS and he pushed the idea of exercise being> extremely important for MS. For many years MSers have been told to be> careful with exercise because it can overheat your body, bringing on> symptoms or a relapse. But Dr. Vollmer said it is imperative to> exercise because people with MS can lose use of their muscles and it's> very difficult to regain that muscle strength. In 2001 I had hand> weakness and difficulty with fine motor tasks. We moved to a farm and> I started milking goats and got my hand strength back and it improved> my fine motor skills as well. So needs to milk goats. (laughing)> > > > love> >

Sharon> > > > This email is a natural hand made product. The slight variations in> spelling and grammar enhance its individual character and beauty and> in no way are to be considered flaws or defects.> > > > > > > > > > > > > > Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > >

> > Some of you mentioned Provigil, and I think that was the alternative> > > > that 's neuro was talking about, but if I understood it correctly,> > > > it tend to have more side effects. If Amantadine doesn't work,> > > > however, it's something we'll have to look into more. The cost is,> > > > luckily enough, not something we have to worry about since it's the> > > > government and not us who pay the bill (the advantages of that system> > > > does become more distinct when you are faced with a chronic disease> > > > like MS...).> > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > > > In the south of Sweden, to be more exact, but not in the parts that> >

> > were flooded last week (another lucky thing...). is a research> > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > now back in college trying to get a doctorate (a dr. in the title> > > > would give me a better shot at the librarian positions I want the> most). > > > > > > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > little control of her left leg, that's especially when she is tired or> > > > have walked a bit, so she always carry a cane if she is going to walk> > > > a bit longer than usual, and/or if she knows there is a possibility> > > > she will be tired later on (fx. she brings it with her to work,

but> > > > usually don't need it until she is leaving for home, and tired after a> > > > days work). And she also has lost a little of her fine motor skills in> > > > her hands. The symptoms have become worse since her last relapse (the> > > > one that led to her getting her diagnose, in november-december last> year).> > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > it (but only just begun, though). > > > > > > > > love> > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > #ygrp-mlmsg

{font-size:13px;font-family:arial, helvetica, clean,> sans-serif;}> > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> clean, sans-serif;}> > #ygrp-mlmsg pre, code {font:115% monospace;}> > #ygrp-mlmsg * {line-height:1.22em;}> > #ygrp-text{> > font-family:Georgia;> > }> > #ygrp-text p{> > margin:0 0 1em 0;}> > #ygrp-tpmsgs{> > font-family:Arial;> > clear:both;}> > #ygrp-vitnav{> > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > #ygrp-vitnav a{> > padding:0 1px;}> > #ygrp-actbar{> > clear:both;margin:25px> 0;white-space:nowrap;color:#666;text-align:right;}> > #ygrp-actbar

..left{> > float:left;white-space:nowrap;}> > .bld{font-weight:bold;}> > #ygrp-grft{> > font-family:Verdana;font-size:77%;padding:15px 0;}> > #ygrp-ft{> > font-family:verdana;font-size:77%;border-top:1px solid #666;> > padding:5px 0;> > }> > #ygrp-mlmsg #logo{> > padding-bottom:10px;}> > > > #ygrp-vital{> > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > #ygrp-vital #vithd{> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > #ygrp-vital ul{> > padding:0;margin:2px 0;}> > #ygrp-vital ul li{> > list-style-type:none;clear:both;border:1px solid #e0ecee;> > }> > #ygrp-vital

ul li .ct{> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > #ygrp-vital ul li .cat{> > font-weight:bold;}> > #ygrp-vital a {> > text-decoration:none;}> > > > #ygrp-vital a:hover{> > text-decoration:underline;}> > > > #ygrp-sponsor #hd{> > color:#999;font-size:77%;}> > #ygrp-sponsor #ov{> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > #ygrp-sponsor #ov ul{> > padding:0 0 0 8px;margin:0;}> > #ygrp-sponsor #ov li{> > list-style-type:square;padding:6px 0;font-size:77%;}> > #ygrp-sponsor #ov li a{> > text-decoration:none;font-size:130%;}> > #ygrp-sponsor #nc {> >

background-color:#eee;margin-bottom:20px;padding:0 8px;}> > #ygrp-sponsor .ad{> > padding:8px 0;}> > #ygrp-sponsor .ad #hd1{> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > #ygrp-sponsor .ad a{> > text-decoration:none;}> > #ygrp-sponsor .ad a:hover{> > text-decoration:underline;}> > #ygrp-sponsor .ad p{> > margin:0;}> > o {font-size:0;}> > .MsoNormal {> > margin:0 0 0 0;}> > #ygrp-text tt{> > font-size:120%;}> > blockquote{margin:0 0 0 4px;}> > .replbq {margin:4;}> > -->> > > > > > > > > > > > > > > > > > > >>

__________________________________________________________> > Moody friends. Drama queens. Your life? Nope! - their life, your> story. Play Sims Stories at Yahoo! Games.> > http://sims.yahoo.com/> >> > > > > > > Have a great day! Joanne> > ---------------------------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends.>

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Only 14 weeks in Germany? I thought they had a little longer. But I am

sure you are right, it's not my strong side... In Sweden it's 390

days, with 80% of pay (the same as you get when you are home/away from

work sick, except of course that there is no upper time limit on being

home ill). The first 10 days both parents can stay at home together

with the new baby and get 80% of pay, the rest of the days the

maternity benefits (that could be " paternity " benefits as well, should

the father be the parent who stays home) is limited to one parent at a

time. 60 of the 390 days are reserved for the father, he doesn't have

to use them, but if he doesn't they are gone, they are not transferred

to the mother. After the 390 days you can get an additional 90 days on

very low pay (30$ per child and day).

I think that creating possibilities for parents and child to start out

their life together with a little peace and quiet and togetherness is

something that the society as a whole benefits from.

Sorry to hear about your problems at work!

I think you are right in that having an illness like MS can be a

blessing too, in that it makes you get other priorities in life and

get more considerate and caring.

love

/Reb

> > >

> > > Hi Reb:

> > >

> > > Is on one of what we call the CRAB-T drugs? That would be

> > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them

> > disease modifying drugs. I was on Avonex for 5 years then decided I

> > felt so good I didn't need it any longer. That was in 2003. Now I've

> > had some progression and I regret my decision to stop taking Avonex

> > injections. I do believe in the disease modifying drugs. They are

> > especially important in early relapsing remitting MS. I'm sure

> > has done her " research " though. (laughing). A research scientist!

> > That's very impressive indeed. And you are going for your doctorate.

> > How long do you have until graduation?

> > >

> > > I was on Provigil and it worked for me but the cost did hold me

> > back. I started on Ritalin several weeks ago and it is working very

> > well but I saw my doctor yesterday and my blood pressure is up, a side

> > effect of Ritalin. I may not be able to stay on this drug. We'll

> > decide next month when I have another blood pressure check. I have

> > high blood pressure anyway so this is bad news for me.

> > >

> > > I just sent a link to the group map if you would like to add your

> > location (it was a post with the subject: location). And we have a

> > birthday calendar, too. If you would to send your birthdays I would

> > be glad to add them to the calendar. We also have a group photo

> > section where you could put photos of you and and some of your

> > area if you would like. I know we would all like to see some of your

> > country. We have one member from Turkey, several from the UK, one

> > from Central America, several from Canada and the rest from the USA.

> > I live in Arizona, USA. Have you ever visited the USA? I've always

> > wanted to go to Europe but have never had the chance. My niece lived

> > in Holland for 4 years while her husband was stationed there with our

> > military. She loved it. Then they were stationed in London for

> > awhile. She preferred Holland.

> > >

> > > The fatigue is awful and is hard for others to understand. When it

> > hits me I can not stay awake. Is able to keep working as usual?

> > >

> > > I participated in a teleconference with one of our top research

> > physicians in the field of MS and he pushed the idea of exercise being

> > extremely important for MS. For many years MSers have been told to be

> > careful with exercise because it can overheat your body, bringing on

> > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > exercise because people with MS can lose use of their muscles and it's

> > very difficult to regain that muscle strength. In 2001 I had hand

> > weakness and difficulty with fine motor tasks. We moved to a farm and

> > I started milking goats and got my hand strength back and it improved

> > my fine motor skills as well. So needs to milk goats. (laughing)

> > >

> > > love

> > > Sharon

> > >

> > > This email is a natural hand made product. The slight variations in

> > spelling and grammar enhance its individual character and beauty and

> > in no way are to be considered flaws or defects.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Re: Hi and Amantadine

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi all,

> > >

> > >

> > >

> > > And thanks a lot for everybody´s responses and welcomes!

> > >

> > >

> > >

> > > Some of you mentioned Provigil, and I think that was the alternative

> > >

> > > that 's neuro was talking about, but if I understood it

correctly,

> > >

> > > it tend to have more side effects. If Amantadine doesn't work,

> > >

> > > however, it's something we'll have to look into more. The cost is,

> > >

> > > luckily enough, not something we have to worry about since it's the

> > >

> > > government and not us who pay the bill (the advantages of that

system

> > >

> > > does become more distinct when you are faced with a chronic disease

> > >

> > > like MS...).

> > >

> > >

> > >

> > > It's correct that we are in Sweden, Sharon (very perceptive of

you!).

> > >

> > > In the south of Sweden, to be more exact, but not in the parts that

> > >

> > > were flooded last week (another lucky thing...). is a research

> > >

> > > scientist in a pharmaceutical company, and I am a librarian but

right

> > >

> > > now back in college trying to get a doctorate (a dr. in the title

> > >

> > > would give me a better shot at the librarian positions I want the

> > most).

> > >

> > >

> > >

> > > I think the " worst " symptom for is the fatigue, but she

also gets

> > >

> > > a tingling sensation and(or lose sensation in and sometimes lose a

> > >

> > > little control of her left leg, that's especially when she is

tired or

> > >

> > > have walked a bit, so she always carry a cane if she is going to

walk

> > >

> > > a bit longer than usual, and/or if she knows there is a possibility

> > >

> > > she will be tired later on (fx. she brings it with her to work, but

> > >

> > > usually don't need it until she is leaving for home, and tired

after a

> > >

> > > days work). And she also has lost a little of her fine motor

skills in

> > >

> > > her hands. The symptoms have become worse since her last relapse

(the

> > >

> > > one that led to her getting her diagnose, in november-december last

> > year).

> > >

> > >

> > >

> > > This is all quite new to us, but we have begun to find our way

around

> > >

> > > it (but only just begun, though).

> > >

> > >

> > >

> > > love

> > >

> > >

> > >

> > > /Reb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > <!--

> > >

> > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

> > sans-serif;}

> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

> > clean, sans-serif;}

> > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > > #ygrp-mlmsg * {line-height:1.22em;}

> > > #ygrp-text{

> > > font-family:Georgia;

> > > }

> > > #ygrp-text p{

> > > margin:0 0 1em 0;}

> > > #ygrp-tpmsgs{

> > > font-family:Arial;

> > > clear:both;}

> > > #ygrp-vitnav{

> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > > #ygrp-vitnav a{

> > > padding:0 1px;}

> > > #ygrp-actbar{

> > > clear:both;margin:25px

> > 0;white-space:nowrap;color:#666;text-align:right;}

> > > #ygrp-actbar .left{

> > > float:left;white-space:nowrap;}

> > > .bld{font-weight:bold;}

> > > #ygrp-grft{

> > > font-family:Verdana;font-size:77%;padding:15px 0;}

> > > #ygrp-ft{

> > > font-family:verdana;font-size:77%;border-top:1px solid #666;

> > > padding:5px 0;

> > > }

> > > #ygrp-mlmsg #logo{

> > > padding-bottom:10px;}

> > >

> > > #ygrp-vital{

> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

> > > #ygrp-vital #vithd{

> > >

> >

>

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform

> :uppercase;}

> > > #ygrp-vital ul{

> > > padding:0;margin:2px 0;}

> > > #ygrp-vital ul li{

> > > list-style-type:none;clear:both;border:1px solid #e0ecee;

> > > }

> > > #ygrp-vital ul li .ct{

> > >

> >

>

font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;paddin

> g-right:.5em;}

> > > #ygrp-vital ul li .cat{

> > > font-weight:bold;}

> > > #ygrp-vital a {

> > > text-decoration:none;}

> > >

> > > #ygrp-vital a:hover{

> > > text-decoration:underline;}

> > >

> > > #ygrp-sponsor #hd{

> > > color:#999;font-size:77%;}

> > > #ygrp-sponsor #ov{

> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > > #ygrp-sponsor #ov ul{

> > > padding:0 0 0 8px;margin:0;}

> > > #ygrp-sponsor #ov li{

> > > list-style-type:square;padding:6px 0;font-size:77%;}

> > > #ygrp-sponsor #ov li a{

> > > text-decoration:none;font-size:130%;}

> > > #ygrp-sponsor #nc {

> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}

> > > #ygrp-sponsor .ad{

> > > padding:8px 0;}

> > > #ygrp-sponsor .ad #hd1{

> > >

> >

>

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:

> 122%;}

> > > #ygrp-sponsor .ad a{

> > > text-decoration:none;}

> > > #ygrp-sponsor .ad a:hover{

> > > text-decoration:underline;}

> > > #ygrp-sponsor .ad p{

> > > margin:0;}

> > > o {font-size:0;}

> > > .MsoNormal {

> > > margin:0 0 0 0;}

> > > #ygrp-text tt{

> > > font-size:120%;}

> > > blockquote{margin:0 0 0 4px;}

> > > .replbq {margin:4;}

> > > -->

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > Moody friends. Drama queens. Your life? Nope! - their life, your

> > story. Play Sims Stories at Yahoo! Games.

> > > http://sims. <http://sims.yahoo.com/> yahoo.com/

> > >

> >

> >

> >

> >

> >

> >

> > Have a great day! Joanne

> >

> > ---------------------------------

> > Don't be flakey. Get Yahoo! Mail for Mobile and

> > always stay connected to friends.

> >

>

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Guest guest

Not ALL, but most teachers, in most districts, in most states, do not contribute

to Social Security nor to Medicare; this baffles me; I was married to a teacher

until his death; his school district did not take out Social Security, nor, later

Medicare. When he became terminally ill (a year to live; managed 11 months),

he applied for Medi-Cal (Medicaid in California) and got it, with a monthly

stipend--or would have, had he lived another two weeks. Denial may NOT

mean that you are being determined disabled. NOT ALL workers do con

tribute to Social Security--and why any organization representing teachers

would make such a decision is beyond MY grasp. In my husband's school

district, the teacher's aids were unionized and did contribute to both Social

Security and Medicare! Also, at this time, no one who EARNS more than

about $92,500.00 in any year pays, beyond that amount, into either Social

Security nor into Medicare! And we wonder why these systems are under

funded! Well, I myself do not wonder, I just stare at the Golden Gate Bridge

and scream, just for effect, now and then! Then I call Senator

(Ted) Kennedy's office again, as his health care staff are superb! The

number is at the Senate Office Building in D.C.

n, linkless in Oakland, at this moment,

with love to you all!

--------- Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood it correctly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > gove

rnment and not us who pay the bill (the advantages of that system> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > &gt

; > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she is tired or> > > > > > have walked a bit, so she always carry a cane if she is going to walk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tired after a> > > > > > days work). And she also has lost a little of her fine motor skills in> > > > > > her hands. The symptoms have become worse since her last relapse (the> > &gt

; > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}> > > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}> > > .bl

d{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > > padding-bottom:10px;}> > > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> > > }> gt; > #ygrp-vital ul li .ct{> > >> >> font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > > text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >> >> font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}> > > --&g

t;> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >>

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Guest guest

Gee, I botched that one up, having meant to type "Denial may NOT mean that

you are NOT being determined NOT to be disabled." Should have found that

link!

Love, and thank you all for putting up with me,

n

--------- Re: Hi and Amantadine> > >

> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood it correctly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > >

> gove rnment and not us who pay the bill (the advantages of that system> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > &g

t; > > ; > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she is tired or> > > > > > have walked a bit, so she always carry a cane if she is going to walk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tired after a> > > > > > days work). And she also has lost a little of her fine motor skills in> > > > > > her hands. The symptoms have become worse since her last relapse (the

> > > ; > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}> > > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}&g

t; > > .bl d{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > > padding-bottom:10px;}> > > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> >

> }> gt; > #ygrp-vital ul li .ct{> > >> >> font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > > text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >> >> font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}&gt

; > > -- & g t;> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >>

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Guest guest

n,

You are right. I don’t pay into

Social Security at all. I pay into a Teacher’s Retirement Account. You

don’t have a choice at my school district.

 

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Rojas5915@...

Sent: Thursday, July 12, 2007

12:56 PM

To: MSersLife

Subject: Re: Re: Hi and

Amantadine

Not ALL, but most teachers, in most districts, in most states, do not

contribute

to Social Security nor to Medicare; this baffles me; I was married to a

teacher

until his death; his school district did not take out Social Security,

nor, later

Medicare. When he became terminally ill (a year to live; managed

11 months),

he applied for Medi-Cal (Medicaid in California) and got it, with a monthly

stipend--or would have, had he lived another two weeks. Denial

may NOT

mean that you are being determined disabled. NOT ALL workers do

con

tribute to Social Security--and why any organization representing

teachers

would make such a decision is beyond MY grasp. In my husband's

school

district, the teacher's aids were unionized and did contribute to both

Social

Security and Medicare! Also, at this time, no one who EARNS more

than

about $92,500.00 in any year pays, beyond that amount, into either

Social

Security nor into Medicare! And we wonder why these systems are

under

funded! Well, I myself do not wonder, I just stare at the Golden Gate Bridge

and scream, just for effect, now and then! Then I call Senator

(Ted) Kennedy's office again, as his health care staff are

superb! The

number is at the Senate

Office Building

in D.C.

n, linkless in Oakland, at this moment,

with love to you all!

--------- Re: Hi and Amantadine

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi all,

> > >

> > >

> > >

> > > And thanks a lot for everybody´s responses and welcomes!

> > >

> > >

> > >

> > > Some of you mentioned Provigil, and I think that was the

alternative

> > >

> > > that 's neuro was talking about, but if I understood it

correctly,

> > >

> > > it tend to have more side effects. If Amantadine doesn't work,

> > >

> > > however, it's something we'll have to look into more. The cost

is,

> > >

> > > luckily enough, not something we have to worry about since it's

the

> > >

> > > gove rnment and not us who pay the bill (the advantages of that

system

> > >

> > > does become more distinct when you are faced with a chronic

disease

> > >

> > > like MS...).

> > >

> > >

> > >

> > > It's correct that we are in Sweden,

Sharon (very

perceptive of

you!).

> > >

> > > In the south of Sweden,

to be more exact, but not in the parts

that

> > >

> > > were flooded last week (another lucky thing...). is a

research

> > >

> > > scientist in a pharmaceutical company, and I am a librarian but

right

> > >

> > > now back in college trying to get a doctorate (a dr. in the

title

> > >

> > > would give me a better shot at the librarian positions I want

the

> > most).

> > >

> > >

> > > ;

> > > I think the " worst " symptom for is the fatigue,

but she

also gets

> > >

> > > a tingling sensation and(or lose sensation in and sometimes

lose a

> > >

> > > little control of her left leg, that's especially when she is

tired or

> > >

> > > have walked a bit, so she always carry a cane if she is going

to walk

> > >

> > > a bit longer than usual, and/or if she knows there is a

possibility

> > >

> > > she will be tired later on (fx. she brings it with her to work,

but

> > >

> > > usually don't need it until she is leaving for home, and tired

after a

> > >

> > > days work). And she also has lost a little of her fine motor

skills in

> > >

> > > her hands. The symptoms have become worse since her last

relapse (the

> > > ;

> > > one that led to her getting her diagnose, in november-december

last

> > year).

> > >

> > >

> > >

> > > This is all quite new to us, but we have begun to find our way

around

> > >

> > > it (but only just begun, though).

> > >

> > >

> > >

> > > love

> > >

> > >

> > >

> > > /Reb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > <!--

> > >

> > > #ygrp-mlmsg {font-size:13px;font-family:arial,

helvetica, clean,

> > sans-serif;}

> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

> > clean, sans-serif;}

> > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > > #ygrp-mlmsg * {line-height:1.22em;}

> > > #ygrp-text{

> > > font-family:Georgia;

> > > }

> > > #ygrp-text p{

> > > margin:0 0 1em 0;}

> > > #ygrp-tpmsgs{

> > > font-family:Arial;

> > > clear:both;}

> > > #ygrp-vitnav{

> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > > #ygrp-vitnav a{

> > > padding:0 1px;}

> > > #ygrp-actbar{

> > > clear:both;margin:25px

> > 0;white-space:nowrap;color:#666;text-align:right;}

> > > #ygrp-actbar .left{

> > > float:left;white-space:nowrap;}

> > > .bl d{font-weight:bold;}

> > > #ygrp-grft{

> > > font-family:Verdana;font-size:77%;padding:15px

0;}

> > > #ygrp-ft{

> > > font-family:verdana;font-size:77%;border-top:1px

solid #666;

> > > padding:5px 0;

> > > }

> > > #ygrp-mlmsg #logo{

> > > padding-bottom:10px;}

> > >

> > > #ygrp-vital{

> > > background-color:#e0ecee;margin-bottom:20px;padding:2px

0 8px

8px;}

> > > #ygrp-vital #vithd{

> > >

> >

> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-

transform:uppercase;}

> > > #ygrp-vital ul{

> > > padding:0;margin:2px 0;}

> > > #ygrp-vital ul li{

> > > list-style-type:none;clear:both;border:1px solid

#e0ecee;

> > > }

> gt; > #ygrp-vital ul li .ct{

> > >

> >

> font-weight:bold;color:#ff7900;float:right;width:2em;text-

align:right;padding-right:.5em;}

> > > #ygrp-vital ul li .cat{

> > > font-weight:bold;}

> > > #ygrp-vital a {

> > > text-decoration:none;}

> > >

> > > #ygrp-vital a:hover{

> > > text-decoration:underline;}

> > >

> > > #ygrp-sponsor #hd{

> > > color:#999;font-size:77%;}

> > > #ygrp-sponsor #ov{

> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > > #ygrp-sponsor #ov ul{

> > > padding:0 0 0 8px;margin:0;}

> > > #ygrp-sponsor #ov li{

> > > list-style-type:square;padding:6px 0;font-size:77%;}

> > > #ygrp-sponsor #ov li a{

> > > text-decoration:none;font-size:130%;}

> > > #ygrp-sponsor #nc {

> > > background-color:#eee;margin-bottom:20px;padding:0

8px;}

> > > #ygrp-sponsor .ad{

> > > padding:8px 0;}

> > > #ygrp-sponsor .ad #hd1{

> > >

> >

> font-family:Arial;font-weight:bold;color:#628c2a;font-

size:100%;line-height:122%;}

> > > #ygrp-sponsor .ad a{

> > > text-decoration:none;}

> > > #ygrp-sponsor .ad a:hover{

> > > text-decoration:underline;}

> > > #ygrp-sponsor .ad p{

> > > margin:0;}

> > > o {font-size:0;}

> > > .MsoNormal {

> > > margin:0 0 0 0;}

> > > #ygrp-text tt{

> > > font-size:120%;}

> > > blockquote{margin:0 0 0 4px;}

> > > .replbq {margin:4;}

> > > -- & g t;

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > Moody friends. Drama queens. Your life? Nope! - their life, your

> > story. Play Sims Stories at Yahoo! Games.

> > > http://sims.yahoo.com/

> > >

> >

> >

> >

> >

> >

> >

> > Have a great day! Joanne

> >

> > ---------------------------------

> > Don't be flakey. Get Yahoo! Mail for Mobile and

> > always stay connected to friends.

> >

>

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Welcome Reb. You will find that this is a one of a kind group. We share anything and everything and no question is taboo. It's nice to have a safe place to go to and get the answers you need or hear someone else say, that happens to me also. I am 37, a nurse(now unable to work), married with 2 kids, Kaleb 14 and 6. I have in my home a cane, walker, wheelchair and shower chair. Some days I use none and some days I may need it all. I live in a small town of 436 people called Avery, it's 2 hr drive to Dallas were my neurologist are. ' in TexasSharon Marsden wrote: Hi Reb:I'm so glad you joined us but I'm sorry to hear your wife has been diagnosed with MS. I don't have any experience with Amantadine so I can't help you there. I have take Provigil and it worked but tends to give me headaches and the cost is very high. I just started on Ritalin last week and so far it's working for me. I have serious fatigue and was sleeping anywhere from 3 to 5 hours during the day. 90% of MS patients have fatigue and it is the #1 most troublesome symptom that people with MS face. What other symptoms does your wife have? And where do you live? Am I correct in thinking you are in Sweden?Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Hi and Amantadine Hi all,I am a new member,

looking forward to learn from all the others here!My wife, , was diagnosed with MS in december – and I have beensearching for a good group or web forum whith other people afflictedby MS one way or the other. Seems I found it here!Now, I have one question already... has been prescribedAmantadine, and has been taking it for a week (2 pills every day forthis, the first week, and after that it's supposed to be 4 pills everyday, according to the prescription) . So far whe feels it is helpingher with her fatigue some, even if it doesn't take it away completely.She is a little concerned with possible side effects, the doctor saidthere is virtually none, but it would help to hear from someone whohave personal experience with that drug. Therefor, everybody, what are your experiences with Amantadine? Sideeffects? Did/does it help you? Does it continue to help when you havebeen on it for a while, or is it one of

those drugs whose effect tendto wear off when you get more used to it?love/Reb Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. '

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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Here in NY it's an automatic thing they take right out of your

paycheck as soon as you start working even at the age of 16!!! We are

constantly hearing how there won't be enough money to pay us when we

hit our retirement age of 65.

There have been several attempts to do away with the SS and let

people invest their own money but then our state gov't wouldn't have

those funds to use.

I just don't like the idea of someone else deciding if I deserve to

get my money now or when and if I reach the age of 65. That doesn't

seem right to me. Instead of me having to prove I'm disabled they

should have to prove I'm not.

Oh well, and the wheels move slowly forward...

Hugs,

Peggy

> > > >

> > > > Hi Reb:

> > > >

> > > > Is on one of what we call the CRAB-T drugs? That would be

> > > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors

call

> them

> > > disease modifying drugs. I was on Avonex for 5 years then

decided

> I

> > > felt so good I didn't need it any longer. That was in 2003. Now

> I've

> > > had some progression and I regret my decision to stop taking

> Avonex

> > > injections. I do believe in the disease modifying drugs. They

are

> > > especially important in early relapsing remitting MS. I'm sure

>

> > > has done her " research " though. (laughing). A research

scientist!

> > > That's very impressive indeed. And you are going for your

> doctorate.

> > > How long do you have until graduation?

> > > >

> > > > I was on Provigil and it worked for me but the cost did hold

me

> > > back. I started on Ritalin several weeks ago and it is working

> very

> > > well but I saw my doctor yesterday and my blood pressure is up,

a

> side

> > > effect of Ritalin. I may not be able to stay on this drug. We'll

> > > decide next month when I have another blood pr essure check. I

have

> > > high blood pressure anyway so this is bad news for me.

> > > >

> > > > I just sent a link to the group map if you would like to add

> your

> > > location (it was a post with the subject: location). And we

have a

> > > birthday calendar, too. If you would to send your birthdays I

> would

> > > be glad to add them to the calendar. We also have a group photo

> > > section where you could put photos of you and and some of

> your

> > > area if you would like. I know we would all like to see some of

> your

> > > country. We have one member from Turkey, several from the UK,

one

> > > from Central America, several from Canada and the rest from the

> USA.

> > > I live in Arizona, USA. Have you ever visited the USA? I've

always

> > > wanted to go to Europe but have never had the chance. My niece

> lived

> > > in Holland for 4 years while her husband w as stationed there

with

> our

> > > military. She loved it. Then they were stationed in London for

> > > awhile. She preferred Holland.

> > > >

> > > > The fatigue is awful and is hard for others to understand.

When

> it

> > > hits me I can not stay awake. Is able to keep working as

> usual?

> > > >

> > > > I participated in a teleconference with one of our top

research

> > > physicians in the field of MS and he pushed the idea of

exercise

> being

> > > extremely important for MS. For many years MSers have been told

> to be

> > > careful with exercise because it can overheat your body,

bringing

> on

> > > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > > exercise because people with MS can lose use of their muscles

and

> it's

> > > very difficult to regain that muscle strength. In 2001 I had

hand

> > > weakness and difficulty with fine motor tasks. We moved to a

farm

> and

> > > I started milking goats and got my hand strength back and it

> improved

> > > my fine motor skills as well. So needs to milk goats.

> (laughing)

> > > >

> > > > love

> > > > Sharon

> > > >

> > > > This email is a natural hand made product. The slight

> variations in

> > > spelling and grammar enhance its individual character and

beauty

> and

> > > in no way are to be considered flaws or defects.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Re: Hi and Amantadine

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Hi all,

> > > >

> > > >

> > > >

> > > > And thanks a lot for everybody´s responses and welcomes!

> > > >

> > > >

> > > >

> > > > Some of you mentioned Provigil, and I think that was the

> alternative

> > > >

> > > > that 's neuro was talking about, but if I understood it

> correctly,

> > > >

> > > > it tend to have more side effects. If Amantadine doesn't work,

> > > >

> > > > however, it's something we'll have to look into more. The

cost

> is,

> > > >

> > > > luckily enough, not something we have to worry about since

it's

> the

> > > >

> > > > gove rnment and not us who pay the bill (the advantages of

that

> system

> > > >

> > > > does become more distinct when you are faced with a chronic

> disease

> > > >

> > > > like MS...).

> > > >

> > > >

> > > >

> > > > It's correct that we are in Sweden, Sharon (very perceptive

of

> you!).

> > > >

> > > > In the south of Sweden, to be more exact, but not in the

parts

> that

> > > >

> > > > were flooded last week (another lucky thing...). is a

> research

> > > >

> > > > scientist in a pharmaceutical company, and I am a librarian

but

> right

> > > >

> > > > now back in college trying to get a doctorate (a dr. in the

> title

> > > >

> > > > would give me a better shot at the librarian positions I want

> the

> > > most).

> > > >

> > > >

> > > > ;

> > > > I think the " worst " symptom for is the fatigue, but she

> also gets

> > > >

> > > > a tingling sensation and(or lose sensation in and sometimes

> lose a

> > > >

> > > > little control of her left leg, that's especially when she is

> tired or

> > > >

> > > > have walked a bit, so she always carry a cane if she is going

> to walk

> > > >

> > > > a bit longer than usual, and/or if she knows there is a

> possibility

> > > >

> > > > she will be tired later on (fx. she brings it with her to

work,

> but

> > > >

> > > > usually don't need it until she is leaving for home, and

tired

> after a

> > > >

> > > > days work). And she also has lost a little of her fine motor

> skills in

> > > >

> > > > her hands. The symptoms have become worse since her last

> relapse (the

> > > > ;

> > > > one that led to her getting her diagnose, in november-

december

> last

> > > year).

> > > >

> > > >

> > > >

> > > > This is all quite new to us, but we have begun to find our

way

> around

> > > >

> > > > it (but only just begun, though).

> > > >

> > > >

> > > >

> > > > love

> > > >

> > > >

> > > >

> > > > /Reb

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > <!--

> > > >

> > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica,

clean,

> > > sans-serif;}

> > > > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > > > #ygrp-mlmsg select, input, textarea {font:99% arial,

helvetica,

> > > clean, sans-serif;}

> > > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > > > #ygrp-mlmsg * {line-height:1.22em;}

> > > > #ygrp-text{

> > > > font-family:Georgia;

> > > > }

> > > > #ygrp-text p{

> > > > margin:0 0 1em 0;}

> > > > #ygrp-tpmsgs{

> > > > font-family:Arial;

> > > > clear:both;}

> > > > #ygrp-vitnav{

> > > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > > > #ygrp-vitnav a{

> > > > padding:0 1px;}

> > > > #ygrp-actbar{

> > > > clear:both;margin:25px

> > > 0;white-space:nowrap;color:#666;text-align:right;}

> > > > #ygrp-actbar .left{

> > > > float:left;white-space:nowrap;}

> > > > .bl d{font-weight:bold;}

> > > > #ygrp-grft{

> > > > font-family:Verdana;font-size:77%;padding:15px 0;}

> > > > #ygrp-ft{

> > > > font-family:verdana;font-size:77%;border-top:1px solid #666;

> > > > padding:5px 0;

> > > > }

> > > > #ygrp-mlmsg #logo{

> > > > padding-bottom:10px;}

> > > >

> > > > #ygrp-vital{

> > > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px

> 8px;}

> > > > #ygrp-vital #vithd{

> > > >

> > >

> > font-size:77%;font-family:Verdana;font-

weight:bold;color:#333;text-

> transform:uppercase;}

> > > > #ygrp-vital ul{

> > > > padding:0;margin:2px 0;}

> > > > #ygrp-vital ul li{

> > > > list-style-type:none;clear:both;border:1px solid #e0ecee;

> > > > }

> > gt; > #ygrp-vital ul li .ct{

> > > >

> > >

> > font-weight:bold;color:#ff7900;float:right;width:2em;text-

> align:right;padding-right:.5em;}

> > > > #ygrp-vital ul li .cat{

> > > > font-weight:bold;}

> > > > #ygrp-vital a {

> > > > text-decoration:none;}

> > > >

> > > > #ygrp-vital a:hover{

> > > > text-decoration:underline;}

> > > >

> > > > #ygrp-sponsor #hd{

> > > > color:#999;font-size:77%;}

> > > > #ygrp-sponsor #ov{

> > > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > > > #ygrp-sponsor #ov ul{

> > > > padding:0 0 0 8px;margin:0;}

> > > > #ygrp-sponsor #ov li{

> > > > list-style-type:square;padding:6px 0;font-size:77%;}

> > > > #ygrp-sponsor #ov li a{

> > > > text-decoration:none;font-size:130%;}

> > > > #ygrp-sponsor #nc {

> > > > background-color:#eee;margin-bottom:20px;padding:0 8px;}

> > > > #ygrp-sponsor .ad{

> > > > padding:8px 0;}

> > > > #ygrp-sponsor .ad #hd1{

> > > >

> > >

> > font-family:Arial;font-weight:bold;color:#628c2a;font-

> size:100%;line-height:122%;}

> > > > #ygrp-sponsor .ad a{

> > > > text-decoration:none;}

> > > > #ygrp-sponsor .ad a:hover{

> > > > text-decoration:underline;}

> > > > #ygrp-sponsor .ad p{

> > > > margin:0;}

> > > > o {font-size:0;}

> > > > .MsoNormal {

> > > > margin:0 0 0 0;}

> > > > #ygrp-text tt{

> > > > font-size:120%;}

> > > > blockquote{margin:0 0 0 4px;}

> > > > .replbq {margin:4;}

> > > > -- & g t;

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > __________________________________________________________

> > > > Moody friends. Drama queens. Your life? Nope! - their life,

your

> > > story. Play Sims Stories at Yahoo! Games.

> > > > http://sims. <http://sims.yahoo.com/> yahoo.com/

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Have a great day! Joanne

> > >

> > > ---------------------------------

> > > Don't be flakey. Get Yahoo! Mail for Mobile and

> > > always stay connected to friends.

> > >

> >

>

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Since you are in Sweden, I would love a postcard sometime for my little girl. When I was small, my great-aunt traveled all over the world and would send cards with stamps. Me and my great grandmother would remve the stamps and place them in a photo album. Some of my fondest memories as a child was looking at that book with her and deciding which stamps from what countries were our favorites. The same goes for anyone who lives outside of the US. Then she can send you a thank you card with a special stamp from us. in Texasreb_41se wrote: Hi all,And thanks a lot for everybody´s responses and welcomes!Some of you mentioned Provigil, and I think that was the alternativethat 's neuro was talking about, but if I understood it correctly,it tend to have more side effects. If Amantadine doesn't work,however, it's something we'll have to look into more. The cost is,luckily enough, not something we have to worry about since it's thegovernment and not us who pay the bill (the advantages of that systemdoes become more distinct when you are faced with a chronic diseaselike MS...).It's correct that we are in Sweden, Sharon (very perceptive of you!).In the south of Sweden, to be more exact, but not in the parts thatwere flooded last week (another lucky thing...). is a researchscientist in a pharmaceutical company, and I am a librarian but rightnow back in college

trying to get a doctorate (a dr. in the titlewould give me a better shot at the librarian positions I want the most). I think the "worst" symptom for is the fatigue, but she also getsa tingling sensation and(or lose sensation in and sometimes lose alittle control of her left leg, that's especially when she is tired orhave walked a bit, so she always carry a cane if she is going to walka bit longer than usual, and/or if she knows there is a possibilityshe will be tired later on (fx. she brings it with her to work, butusually don't need it until she is leaving for home, and tired after adays work). And she also has lost a little of her fine motor skills inher hands. The symptoms have become worse since her last relapse (theone that led to her getting her diagnose, in november-december last year).This is all quite new to us, but we have begun to find our way aroundit (but only just begun, though).

love/Reb'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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Reb, n here!

I re-read my previous comments about the medical care in Denmark!

Actually I have been to every Scandinavian Country and I must say

that Sweden puts most of the world to shame because of the very

high quality of its medical care. I have not visited since 1984, but

it was astonishing then! Keep on posting!

Love,

n

-------------- Original message --------------

Since you are in Sweden, I would love a postcard sometime for my little girl. When I was small, my great-aunt traveled all over the world and would send cards with stamps. Me and my great grandmother would remve the stamps and place them in a photo album. Some of my fondest memories as a child was looking at that book with her and deciding which stamps from what countries were our favorites. The same goes for anyone who lives outside of the US. Then she can send you a thank you card with a special stamp from us.

in Texasreb_41se <reb_41seyahoo (DOT) se> wrote:

Hi all,And thanks a lot for everybody´s responses and welcomes!Some of you mentioned Provigil, and I think that was the alternativethat 's neuro was talking about, but if I understood it correctly,it tend to have more side effects. If Amantadine doesn't work,however, it's something we'll have to look into more. The cost is,luckily enough, not something we have to worry about since it's thegovernment and not us who pay the bill (the advantages of that systemdoes become more distinct when you are faced with a chronic diseaselike MS...).It's correct that we are in Sweden, Sharon (very perceptive of you!).In the south of Sweden, to be more exact, but not in the parts thatwere flooded last week (another lucky thing...). is a researchscientist in a pharmaceutical company, and I am a librarian but rightnow back in college trying to get a doctorate (a dr. in the titlewould give me a better shot at the lib

rarian positions I want the most). I think the "worst" symptom for is the fatigue, but she also getsa tingling sensation and(or lose sensation in and sometimes lose alittle control of her left leg, that's especially when she is tired orhave walked a bit, so she always carry a cane if she is going to walka bit longer than usual, and/or if she knows there is a possibilityshe will be tired later on (fx. she brings it with her to work, butusually don't need it until she is leaving for home, and tired after adays work). And she also has lost a little of her fine motor skills inher hands. The symptoms have become worse since her last relapse (theone that led to her getting her diagnose, in november-december last year).This is all quite new to us, but we have begun to find our way aroundit (but only just begun, though). love/Reb

' in Texas

Courage is not being fearless, courage is facing your fears and not running for cover!

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What a great idea!! Love to all,

Re: Hi and Amantadine

Since you are in Sweden, I would love a postcard sometime for my little girl. When I was small, my great-aunt traveled all over the world and would send cards with stamps. Me and my great grandmother would remve the stamps and place them in a photo album. Some of my fondest memories as a child was looking at that book with her and deciding which stamps from what countries were our favorites. The same goes for anyone who lives outside of the US. Then she can send you a thank you card with a special stamp from us.

in Texasreb_41se <reb_41seyahoo (DOT) se> wrote:

Hi all,And thanks a lot for everybody´s responses and welcomes!Some of you mentioned Provigil, and I think that was the alternativethat 's neuro was talking about, but if I understood it correctly,it tend to have more side effects. If Amantadine doesn't work,however, it's something we'll have to look into more. The cost is,luckily enough, not something we have to worry about since it's thegovernment and not us who pay the bill (the advantages of that systemdoes become more distinct when you are faced with a chronic diseaselike MS...).It's correct that we are in Sweden, Sharon (very perceptive of you!).In the south of Sweden, to be more exact, but not in the parts thatwere flooded last week (another lucky thing...). is a researchscientist in a pharmaceutical company, and I am a librarian but rightnow back in college trying to get a doctorate (a dr. in the titlewould give me a better shot at

the librarian positions I want the most). I think the "worst" symptom for is the fatigue, but she also getsa tingling sensation and(or lose sensation in and sometimes lose alittle control of her left leg, that's especially when she is tired orhave walked a bit, so she always carry a cane if she is going to walka bit longer than usual, and/or if she knows there is a possibilityshe will be tired later on (fx. she brings it with her to work, butusually don't need it until she is leaving for home, and tired after adays work). And she also has lost a little of her fine motor skills inher hands. The symptoms have become worse since her last relapse (theone that led to her getting her diagnose, in november-december last year).This is all quite new to us, but we have begun to find our way aroundit (but only just begun, though). love/Reb

' in Texas

Courage is not being fearless, courage is facing your fears and not running for cover!

The fish are biting.

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A Dr. I had known for years was the first to tell me it was neurological. I had bladder retention and was going to have to start self-cathing and he said this only happens in MS or spinal injuries. He had tears in hisa eyes. I felt sorry for him. When I worked for the surgeon I had to go with him at times to tell the family we'd found cancer. It is a very helpless feeling and you know you can't do or say anything to help. ' in TexasPeggy wrote: She is

certainly not alone when it comes to not liking the unpredictability of MS. I think that is one of the worse parts of the disease for all of us. You really can't make any plans. You basically live day to day. You never know how you are going to feel when you wake up.I'm glad it was none of those other things they were thinking of either, for both of you. Nothing like that ever entered my mind when I went for my first MRI. I had 2 months of vertigo. The first time it happened was June and it lasted about 2 days then went away. I thought it was my blood pressure meds and stopped taking them. The vertigo came back a month later but last 3 1/2 days. Nothing helped. Not lying down, sitting, closing my eyes. I couldn't walk straight, felt like everything was spinning. I called the dr. He said, oh it's probably an inner ear thing, but lets send you for an MRI to rule out anything big. Didn't think anything of it. Went

back to the office the next day by myself. I was friends with the nurse and I could tell by the look on her face.So I start naming all these things off. I never mentioned cancer, I don't know why, but I didn't, she kept saying no and when I got to MS, she didn't say a word. I was in shock. She made me call my husband who was at home with our 4 yr old son who is also severe ADHD/ODD and such a handful. It's strange how 4 very small words like YOU HAVE M S can change your life forever. Like everyone says it's not a death sentence but it is a life changing experience.We are here for you whatever it is you need!!!Hugs,Peggy> > >> > > Hi all,> > > > > > I am a new member, looking forward to learn from all the others > > here!> > > My wife, , was diagnosed with MS in december – and I have been> > > searching for a good group or web forum whith other people afflicted> > > by MS one way or the other. Seems I found it here!> > > > > > Now, I have one question already... has been

prescribed> > > Amantadine, and has been taking it for a week (2 pills every day for> > > this, the first week, and after that it's supposed to be 4 pills > > every> > > day, according to the prescription). So far whe feels it is helping> > > her with her fatigue some, even if it doesn't take it away > > completely.> > > She is a little concerned with possible side effects, the doctor > > said> > > there is virtually none, but it would help to hear from someone who> > > have personal experience with that drug. > > > > > > Therefor, everybody, what are your experiences with Amantadine? Side> > > effects? Did/does it help you? Does it continue to help when you > > have> > > been on it for a while, or is it one of those drugs whose effect > >

tend> > > to wear off when you get more used to it?> > > > > > love> > > > > > /Reb> > >> >>'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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That's right, the classes in public school in Denmark are even smaller

than in Sweden, they even have small(er) classes on the high school

level. A friend of ours is a high school teacher in Denmark (and she

is Danish). We once had the opportunity to visit her at work, and

beforehand she said it was just too bad that we were coming on the day

when she had the really huge class, she would have preferred to show

us one of the more moderately sized classes she teaches in. When we

got there, we visited in a class of about 25 students, and leaving the

class room we commented on how lucky it was that she had had a change

of schedule, 'cause in our eyes 25 students is not a huge high school

class, it's a (compared to Swedish standards) normal size of a class

before high school (school year 1 to 9), but a quite small high school

class (in Sweden there is about 30 students in a high school class).

She really didn't see what we where talking about - that WAS the huge

class, a normal sized class would have been around 20 students she

said...

On the other hand, from what we saw (and, not the least HEARD!), the

students were a lot louder and way less disciplined than we would have

expected in a Swedish class (I used to work in two different school

libraries, so I've had some experience with in-class work in recent

days). I guess that's why they have to keep the classes smaller,

because even if we didn't feel that 25 was a huge number of students

in a high school class, we had to agree with our friend that 5 more

students in that particular class and it would have been completely

out of hand.

I think one reason why public schools are better funded in the

Scandinavian countries is that the public schools are not (like I

understand they are in Britain), the last alternative, the one you

have to choose if you are not well off enough to send your kids to a

private school but wouldn't otherwise choose. The public school here

are the number one option for most people, even in the upper classes

and definitely in the middle class, it's a very small minority that

chose other schooling alternatives for their kids. That makes the

public schools not so much something the society is offering to the

poor, but a concern for everyone. It keeps the quality of the public

schools a very important issue for the politicians, it's the one issue

you can expect practically all parties to try to make part of their

image in the elections.

/Reb

> > >

> > > Hi Reb:

> > >

> > > Is on one of what we call the CRAB-T drugs? That would be

> > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them

> > disease modifying drugs. I was on Avonex for 5 years then decided I

> > felt so good I didn't need it any longer. That was in 2003. Now I've

> > had some progression and I regret my decision to stop taking Avonex

> > injections. I do believe in the disease modifying drugs. They are

> > especially important in early relapsing remitting MS. I'm sure

> > has done her " research " though. (laughing). A research scientist!

> > That's very impressive indeed. And you are going for your doctorate.

> > How long do you have until graduation?

> > >

> > > I was on Provigil and it worked for me but the cost did hold me

> > back. I started on Ritalin several weeks ago and it is working very

> > well but I saw my doctor yesterday and my blood pressure is up, a side

> > effect of Ritalin. I may not be able to stay on this drug. We'll

> > decide next month when I have another blood pressure check. I have

> > high blood pressure anyway so this is bad news for me.

> > >

> > > I just sent a link to the group map if you would like to add your

> > location (it was a post with the subject: location). And we have a

> > birthday calendar, too. If you would to send your birthdays I would

> > be glad to add them to the calendar. We also have a group photo

> > section where you could put photos of you and and some of your

> > area if you would like. I know we would all like to see some of your

> > country. We have one member from Turkey, several from the UK, one

> > from Central America, several from Canada and the rest from the USA.

> > I live in Arizona, USA. Have you ever visited the USA? I've always

> > wanted to go to Europe but have never had the chance. My niece lived

> > in Holland for 4 years while her husband was stationed there with our

> > military. She loved it. Then they were stationed in London for

> > awhile. She preferred Holland.

> > >

> > > The fatigue is awful and is hard for others to understand. When it

> > hits me I can not stay awake. Is able to keep working as usual?

> > >

> > > I participated in a teleconference with one of our top research

> > physicians in the field of MS and he pushed the idea of exercise being

> > extremely important for MS. For many years MSers have been told to be

> > careful with exercise because it can overheat your body, bringing on

> > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > exercise because people with MS can lose use of their muscles and it's

> > very difficult to regain that muscle strength. In 2001 I had hand

> > weakness and difficulty with fine motor tasks. We moved to a farm and

> > I started milking goats and got my hand strength back and it improved

> > my fine motor skills as well. So needs to milk goats. (laughing)

> > >

> > > love

> > > Sharon

> > >

> > > This email is a natural hand made product. The slight variations in

> > spelling and grammar enhance its individual character and beauty and

> > in no way are to be considered flaws or defects.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Re: Hi and Amantadine

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi all,

> > >

> > >

> > >

> > > And thanks a lot for everybody´s responses and welcomes!

> > >

> > >

> > >

> > > Some of you mentioned Provigil, and I think that was the alternative

> > >

> > > that 's neuro was talking about, but if I understood it

correctly,

> > >

> > > it tend to have more side effects. If Amantadine doesn't work,

> > >

> > > however, it's something we'll have to look into more. The cost is,

> > >

> > > luckily enough, not something we have to worry about since it's the

> > >

> > > government and not us who pay the bill (the advantages of that

system

> > >

> > > does become more distinct when you are faced with a chronic disease

> > >

> > > like MS...).

> > >

> > >

> > >

> > > It's correct that we are in Sweden, Sharon (very perceptive of

you!).

> > >

> > > In the south of Sweden, to be more exact, but not in the parts that

> > >

> > > were flooded last week (another lucky thing...). is a research

> > >

> > > scientist in a pharmaceutical company, and I am a librarian but

right

> > >

> > > now back in college trying to get a doctorate (a dr. in the title

> > >

> > > would give me a better shot at the librarian positions I want the

> > most).

> > >

> > >

> > >

> > > I think the " worst " symptom for is the fatigue, but she

also gets

> > >

> > > a tingling sensation and(or lose sensation in and sometimes lose a

> > >

> > > little control of her left leg, that's especially when she is

tired or

> > >

> > > have walked a bit, so she always carry a cane if she is going to

walk

> > >

> > > a bit longer than usual, and/or if she knows there is a possibility

> > >

> > > she will be tired later on (fx. she brings it with her to work, but

> > >

> > > usually don't need it until she is leaving for home, and tired

after a

> > >

> > > days work). And she also has lost a little of her fine motor

skills in

> > >

> > > her hands. The symptoms have become worse since her last relapse

(the

> > >

> > > one that led to her getting her diagnose, in november-december last

> > year).

> > >

> > >

> > >

> > > This is all quite new to us, but we have begun to find our way

around

> > >

> > > it (but only just begun, though).

> > >

> > >

> > >

> > > love

> > >

> > >

> > >

> > > /Reb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > <!--

> > >

> > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

> > sans-serif;}

> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

> > clean, sans-serif;}

> > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > > #ygrp-mlmsg * {line-height:1.22em;}

> > > #ygrp-text{

> > > font-family:Georgia;

> > > }

> > > #ygrp-text p{

> > > margin:0 0 1em 0;}

> > > #ygrp-tpmsgs{

> > > font-family:Arial;

> > > clear:both;}

> > > #ygrp-vitnav{

> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > > #ygrp-vitnav a{

> > > padding:0 1px;}

> > > #ygrp-actbar{

> > > clear:both;margin:25px

> > 0;white-space:nowrap;color:#666;text-align:right;}

> > > #ygrp-actbar .left{

> > > float:left;white-space:nowrap;}

> > > .bld{font-weight:bold;}

> > > #ygrp-grft{

> > > font-family:Verdana;font-size:77%;padding:15px 0;}

> > > #ygrp-ft{

> > > font-family:verdana;font-size:77%;border-top:1px solid #666;

> > > padding:5px 0;

> > > }

> > > #ygrp-mlmsg #logo{

> > > padding-bottom:10px;}

> > >

> > > #ygrp-vital{

> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

> > > #ygrp-vital #vithd{

> > >

> >

>

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\

ercase;}

> > > #ygrp-vital ul{

> > > padding:0;margin:2px 0;}

> > > #ygrp-vital ul li{

> > > list-style-type:none;clear:both;border:1px solid #e0ecee;

> > > }

> > > #ygrp-vital ul li .ct{

> > >

> >

>

font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\

ght:.5em;}

> > > #ygrp-vital ul li .cat{

> > > font-weight:bold;}

> > > #ygrp-vital a {

> > > text-decoration:none;}

> > >

> > > #ygrp-vital a:hover{

> > > text-decoration:underline;}

> > >

> > > #ygrp-sponsor #hd{

> > > color:#999;font-size:77%;}

> > > #ygrp-sponsor #ov{

> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > > #ygrp-sponsor #ov ul{

> > > padding:0 0 0 8px;margin:0;}

> > > #ygrp-sponsor #ov li{

> > > list-style-type:square;padding:6px 0;font-size:77%;}

> > > #ygrp-sponsor #ov li a{

> > > text-decoration:none;font-size:130%;}

> > > #ygrp-sponsor #nc {

> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}

> > > #ygrp-sponsor .ad{

> > > padding:8px 0;}

> > > #ygrp-sponsor .ad #hd1{

> > >

> >

>

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\

;}

> > > #ygrp-sponsor .ad a{

> > > text-decoration:none;}

> > > #ygrp-sponsor .ad a:hover{

> > > text-decoration:underline;}

> > > #ygrp-sponsor .ad p{

> > > margin:0;}

> > > o {font-size:0;}

> > > .MsoNormal {

> > > margin:0 0 0 0;}

> > > #ygrp-text tt{

> > > font-size:120%;}

> > > blockquote{margin:0 0 0 4px;}

> > > .replbq {margin:4;}

> > > -->

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > Moody friends. Drama queens. Your life? Nope! - their life, your

> > story. Play Sims Stories at Yahoo! Games.

> > > http://sims.yahoo.com/

> > >

> >

> >

> >

> >

> >

> >

> > Have a great day! Joanne

> >

> > ---------------------------------

> > Don't be flakey. Get Yahoo! Mail for Mobile and

> > always stay connected to friends.

> >

>

>

>

>

>

>

> Never miss an email again!

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>

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Guest guest

That's right, the classes in public school in Denmark are even smaller

than in Sweden, they even have small(er) classes on the high school

level. A friend of ours is a high school teacher in Denmark (and she

is Danish). We once had the opportunity to visit her at work, and

beforehand she said it was just too bad that we were coming on the day

when she had the really huge class, she would have preferred to show

us one of the more moderately sized classes she teaches in. When we

got there, we visited in a class of about 25 students, and leaving the

class room we commented on how lucky it was that she had had a change

of schedule, 'cause in our eyes 25 students is not a huge high school

class, it's a (compared to Swedish standards) normal size of a class

before high school (school year 1 to 9), but a quite small high school

class (in Sweden there is about 30 students in a high school class).

She really didn't see what we where talking about - that WAS the huge

class, a normal sized class would have been around 20 students she

said...

On the other hand, from what we saw (and, not the least HEARD!), the

students were a lot louder and way less disciplined than we would have

expected in a Swedish class (I used to work in two different school

libraries, so I've had some experience with in-class work in recent

days). I guess that's why they have to keep the classes smaller,

because even if we didn't feel that 25 was a huge number of students

in a high school class, we had to agree with our friend that 5 more

students in that particular class and it would have been completely

out of hand.

I think one reason why public schools are better funded in the

Scandinavian countries is that the public schools are not (like I

understand they are in Britain), the last alternative, the one you

have to choose if you are not well off enough to send your kids to a

private school but wouldn't otherwise choose. The public school here

are the number one option for most people, even in the upper classes

and definitely in the middle class, it's a very small minority that

chose other schooling alternatives for their kids. That makes the

public schools not so much something the society is offering to the

poor, but a concern for everyone. It keeps the quality of the public

schools a very important issue for the politicians, it's the one issue

you can expect practically all parties to try to make part of their

image in the elections.

/Reb

> > >

> > > Hi Reb:

> > >

> > > Is on one of what we call the CRAB-T drugs? That would be

> > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them

> > disease modifying drugs. I was on Avonex for 5 years then decided I

> > felt so good I didn't need it any longer. That was in 2003. Now I've

> > had some progression and I regret my decision to stop taking Avonex

> > injections. I do believe in the disease modifying drugs. They are

> > especially important in early relapsing remitting MS. I'm sure

> > has done her " research " though. (laughing). A research scientist!

> > That's very impressive indeed. And you are going for your doctorate.

> > How long do you have until graduation?

> > >

> > > I was on Provigil and it worked for me but the cost did hold me

> > back. I started on Ritalin several weeks ago and it is working very

> > well but I saw my doctor yesterday and my blood pressure is up, a side

> > effect of Ritalin. I may not be able to stay on this drug. We'll

> > decide next month when I have another blood pressure check. I have

> > high blood pressure anyway so this is bad news for me.

> > >

> > > I just sent a link to the group map if you would like to add your

> > location (it was a post with the subject: location). And we have a

> > birthday calendar, too. If you would to send your birthdays I would

> > be glad to add them to the calendar. We also have a group photo

> > section where you could put photos of you and and some of your

> > area if you would like. I know we would all like to see some of your

> > country. We have one member from Turkey, several from the UK, one

> > from Central America, several from Canada and the rest from the USA.

> > I live in Arizona, USA. Have you ever visited the USA? I've always

> > wanted to go to Europe but have never had the chance. My niece lived

> > in Holland for 4 years while her husband was stationed there with our

> > military. She loved it. Then they were stationed in London for

> > awhile. She preferred Holland.

> > >

> > > The fatigue is awful and is hard for others to understand. When it

> > hits me I can not stay awake. Is able to keep working as usual?

> > >

> > > I participated in a teleconference with one of our top research

> > physicians in the field of MS and he pushed the idea of exercise being

> > extremely important for MS. For many years MSers have been told to be

> > careful with exercise because it can overheat your body, bringing on

> > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > exercise because people with MS can lose use of their muscles and it's

> > very difficult to regain that muscle strength. In 2001 I had hand

> > weakness and difficulty with fine motor tasks. We moved to a farm and

> > I started milking goats and got my hand strength back and it improved

> > my fine motor skills as well. So needs to milk goats. (laughing)

> > >

> > > love

> > > Sharon

> > >

> > > This email is a natural hand made product. The slight variations in

> > spelling and grammar enhance its individual character and beauty and

> > in no way are to be considered flaws or defects.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Re: Hi and Amantadine

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi all,

> > >

> > >

> > >

> > > And thanks a lot for everybody´s responses and welcomes!

> > >

> > >

> > >

> > > Some of you mentioned Provigil, and I think that was the alternative

> > >

> > > that 's neuro was talking about, but if I understood it

correctly,

> > >

> > > it tend to have more side effects. If Amantadine doesn't work,

> > >

> > > however, it's something we'll have to look into more. The cost is,

> > >

> > > luckily enough, not something we have to worry about since it's the

> > >

> > > government and not us who pay the bill (the advantages of that

system

> > >

> > > does become more distinct when you are faced with a chronic disease

> > >

> > > like MS...).

> > >

> > >

> > >

> > > It's correct that we are in Sweden, Sharon (very perceptive of

you!).

> > >

> > > In the south of Sweden, to be more exact, but not in the parts that

> > >

> > > were flooded last week (another lucky thing...). is a research

> > >

> > > scientist in a pharmaceutical company, and I am a librarian but

right

> > >

> > > now back in college trying to get a doctorate (a dr. in the title

> > >

> > > would give me a better shot at the librarian positions I want the

> > most).

> > >

> > >

> > >

> > > I think the " worst " symptom for is the fatigue, but she

also gets

> > >

> > > a tingling sensation and(or lose sensation in and sometimes lose a

> > >

> > > little control of her left leg, that's especially when she is

tired or

> > >

> > > have walked a bit, so she always carry a cane if she is going to

walk

> > >

> > > a bit longer than usual, and/or if she knows there is a possibility

> > >

> > > she will be tired later on (fx. she brings it with her to work, but

> > >

> > > usually don't need it until she is leaving for home, and tired

after a

> > >

> > > days work). And she also has lost a little of her fine motor

skills in

> > >

> > > her hands. The symptoms have become worse since her last relapse

(the

> > >

> > > one that led to her getting her diagnose, in november-december last

> > year).

> > >

> > >

> > >

> > > This is all quite new to us, but we have begun to find our way

around

> > >

> > > it (but only just begun, though).

> > >

> > >

> > >

> > > love

> > >

> > >

> > >

> > > /Reb

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > <!--

> > >

> > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

> > sans-serif;}

> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

> > clean, sans-serif;}

> > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > > #ygrp-mlmsg * {line-height:1.22em;}

> > > #ygrp-text{

> > > font-family:Georgia;

> > > }

> > > #ygrp-text p{

> > > margin:0 0 1em 0;}

> > > #ygrp-tpmsgs{

> > > font-family:Arial;

> > > clear:both;}

> > > #ygrp-vitnav{

> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > > #ygrp-vitnav a{

> > > padding:0 1px;}

> > > #ygrp-actbar{

> > > clear:both;margin:25px

> > 0;white-space:nowrap;color:#666;text-align:right;}

> > > #ygrp-actbar .left{

> > > float:left;white-space:nowrap;}

> > > .bld{font-weight:bold;}

> > > #ygrp-grft{

> > > font-family:Verdana;font-size:77%;padding:15px 0;}

> > > #ygrp-ft{

> > > font-family:verdana;font-size:77%;border-top:1px solid #666;

> > > padding:5px 0;

> > > }

> > > #ygrp-mlmsg #logo{

> > > padding-bottom:10px;}

> > >

> > > #ygrp-vital{

> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

> > > #ygrp-vital #vithd{

> > >

> >

>

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\

ercase;}

> > > #ygrp-vital ul{

> > > padding:0;margin:2px 0;}

> > > #ygrp-vital ul li{

> > > list-style-type:none;clear:both;border:1px solid #e0ecee;

> > > }

> > > #ygrp-vital ul li .ct{

> > >

> >

>

font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\

ght:.5em;}

> > > #ygrp-vital ul li .cat{

> > > font-weight:bold;}

> > > #ygrp-vital a {

> > > text-decoration:none;}

> > >

> > > #ygrp-vital a:hover{

> > > text-decoration:underline;}

> > >

> > > #ygrp-sponsor #hd{

> > > color:#999;font-size:77%;}

> > > #ygrp-sponsor #ov{

> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > > #ygrp-sponsor #ov ul{

> > > padding:0 0 0 8px;margin:0;}

> > > #ygrp-sponsor #ov li{

> > > list-style-type:square;padding:6px 0;font-size:77%;}

> > > #ygrp-sponsor #ov li a{

> > > text-decoration:none;font-size:130%;}

> > > #ygrp-sponsor #nc {

> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}

> > > #ygrp-sponsor .ad{

> > > padding:8px 0;}

> > > #ygrp-sponsor .ad #hd1{

> > >

> >

>

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\

;}

> > > #ygrp-sponsor .ad a{

> > > text-decoration:none;}

> > > #ygrp-sponsor .ad a:hover{

> > > text-decoration:underline;}

> > > #ygrp-sponsor .ad p{

> > > margin:0;}

> > > o {font-size:0;}

> > > .MsoNormal {

> > > margin:0 0 0 0;}

> > > #ygrp-text tt{

> > > font-size:120%;}

> > > blockquote{margin:0 0 0 4px;}

> > > .replbq {margin:4;}

> > > -->

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > Moody friends. Drama queens. Your life? Nope! - their life, your

> > story. Play Sims Stories at Yahoo! Games.

> > > http://sims.yahoo.com/

> > >

> >

> >

> >

> >

> >

> >

> > Have a great day! Joanne

> >

> > ---------------------------------

> > Don't be flakey. Get Yahoo! Mail for Mobile and

> > always stay connected to friends.

> >

>

>

>

>

>

>

> Never miss an email again!

> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.

>

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Reb, thank you for this very informative post, which certainly accords

with what I have witnessed as well. It would be wonderful if here in

the States, the public schools were what, as they once were, the

schools that most EVERYONE went to as a first resort! We might

even be able to get them funded in that case! Thank you for all

that you have written.

Cheers to you,

n Rojas

--------- Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyo

u!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a ca

ne if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love

> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}> > > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}> > > .bld{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > > padding-bottom:10px;}> &gt

; > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> > > }> > > #ygrp-vital ul li .ct{> > >> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > > text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >> >>font-family:Arial;font-weight:bold;color:#628c2a;font

-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}> > > -->> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sim

s Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

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Hi ,

Of course I could do that! Just send me the snail-mail adress you

would like for me to use.

On some occation I might even have the opportunity to send one from

Denmark too (we go there once in a while, it's not so far from the

south of Sweden)

love

/Reb

> Hi all,

>

> And thanks a lot for everybody´s responses and welcomes!

>

> Some of you mentioned Provigil, and I think that was the alternative

> that 's neuro was talking about, but if I understood it correctly,

> it tend to have more side effects. If Amantadine doesn't work,

> however, it's something we'll have to look into more. The cost is,

> luckily enough, not something we have to worry about since it's the

> government and not us who pay the bill (the advantages of that system

> does become more distinct when you are faced with a chronic disease

> like MS...).

>

> It's correct that we are in Sweden, Sharon (very perceptive of you!).

> In the south of Sweden, to be more exact, but not in the parts that

> were flooded last week (another lucky thing...). is a research

> scientist in a pharmaceutical company, and I am a librarian but right

> now back in college trying to get a doctorate (a dr. in the title

> would give me a better shot at the librarian positions I want the

most).

>

> I think the " worst " symptom for is the fatigue, but she also gets

> a tingling sensation and(or lose sensation in and sometimes lose a

> little control of her left leg, that's especially when she is tired or

> have walked a bit, so she always carry a cane if she is going to walk

> a bit longer than usual, and/or if she knows there is a possibility

> she will be tired later on (fx. she brings it with her to work, but

> usually don't need it until she is leaving for home, and tired after a

> days work). And she also has lost a little of her fine motor skills in

> her hands. The symptoms have become worse since her last relapse (the

> one that led to her getting her diagnose, in november-december last

year).

>

> This is all quite new to us, but we have begun to find our way around

> it (but only just begun, though).

>

> love

>

> /Reb

>

>

>

>

>

>

> ' in Texas

> Courage is not being fearless, courage is facing your fears and

not running for cover!

>

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Any advise for a new teacher? My oldest daughter Moriah (that just got married) just also graduated from college and got hired on at her first school, she will be teaching 2nd grade in a public school here in Oklahoma. I am just the proud mpmma, but any advise I will send to her. Love to all, reb_41se wrote: That's right, the classes in public school in Denmark are even smallerthan in Sweden, they even have small(er) classes on the high schoollevel. A friend of ours is a high school teacher

in Denmark (and sheis Danish). We once had the opportunity to visit her at work, andbeforehand she said it was just too bad that we were coming on the daywhen she had the really huge class, she would have preferred to showus one of the more moderately sized classes she teaches in. When wegot there, we visited in a class of about 25 students, and leaving theclass room we commented on how lucky it was that she had had a changeof schedule, 'cause in our eyes 25 students is not a huge high schoolclass, it's a (compared to Swedish standards) normal size of a classbefore high school (school year 1 to 9), but a quite small high schoolclass (in Sweden there is about 30 students in a high school class).She really didn't see what we where talking about - that WAS the hugeclass, a normal sized class would have been around 20 students shesaid... On the other hand, from what we saw (and, not the least HEARD!), thestudents

were a lot louder and way less disciplined than we would haveexpected in a Swedish class (I used to work in two different schoollibraries, so I've had some experience with in-class work in recentdays). I guess that's why they have to keep the classes smaller,because even if we didn't feel that 25 was a huge number of studentsin a high school class, we had to agree with our friend that 5 morestudents in that particular class and it would have been completelyout of hand.I think one reason why public schools are better funded in theScandinavian countries is that the public schools are not (like Iunderstand they are in Britain), the last alternative, the one youhave to choose if you are not well off enough to send your kids to aprivate school but wouldn't otherwise choose. The public school hereare the number one option for most people, even in the upper classesand definitely in the middle class, it's a very small

minority thatchose other schooling alternatives for their kids. That makes thepublic schools not so much something the society is offering to thepoor, but a concern for everyone. It keeps the quality of the publicschools a very important issue for the politicians, it's the one issueyou can expect practically all parties to try to make part of theirimage in the elections. /Reb> > >> > > Hi Reb:> > > > > > Is on one of what we call the CRAB-T drugs? That would be> > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them> > disease modifying drugs. I was on Avonex for 5 years then decided I> > felt so good I didn't need it any longer. That was in 2003. Now I've> > had some progression and I regret my decision to stop taking Avonex> > injections. I do believe in the disease modifying drugs. They are> > especially important in early relapsing remitting MS. I'm sure

> > has done her "research" though. (laughing). A research scientist! > > That's very impressive indeed. And you are going for your doctorate.> > How long do you have until graduation? > > > > > > I was on Provigil and it worked for me but the cost did hold me> > back. I started on Ritalin several weeks ago and it is working very> > well but I saw my doctor yesterday and my blood pressure is up, a side> > effect of Ritalin. I may not be able to stay on this drug. We'll> > decide next month when I have another blood pressure check. I have> > high blood pressure anyway so this is bad news for me.> > > > > > I just sent a link to the group map if you would like to add your> > location (it was a post with the subject: location). And we have a> > birthday calendar, too. If you would to send your birthdays I would>

> be glad to add them to the calendar. We also have a group photo> > section where you could put photos of you and and some of your> > area if you would like. I know we would all like to see some of your> > country. We have one member from Turkey, several from the UK, one> > from Central America, several from Canada and the rest from the USA. > > I live in Arizona, USA. Have you ever visited the USA? I've always> > wanted to go to Europe but have never had the chance. My niece lived> > in Holland for 4 years while her husband was stationed there with our> > military. She loved it. Then they were stationed in London for> > awhile. She preferred Holland. > > > > > > The fatigue is awful and is hard for others to understand. When it> > hits me I can not stay awake. Is able to keep working as usual? > > > > > > I

participated in a teleconference with one of our top research> > physicians in the field of MS and he pushed the idea of exercise being> > extremely important for MS. For many years MSers have been told to be> > careful with exercise because it can overheat your body, bringing on> > symptoms or a relapse. But Dr. Vollmer said it is imperative to> > exercise because people with MS can lose use of their muscles and it's> > very difficult to regain that muscle strength. In 2001 I had hand> > weakness and difficulty with fine motor tasks. We moved to a farm and> > I started milking goats and got my hand strength back and it improved> > my fine motor skills as well. So needs to milk goats. (laughing)> > > > > > love> > > Sharon> > > > > > This email is a natural hand made product. The slight variations in> >

spelling and grammar enhance its individual character and beauty and> > in no way are to be considered flaws or defects.> > > > > > > > > > > > > > > > > > > > > Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > >

> > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > >

> > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going

towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love>

> > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}>

> > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}> > > .bld{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > >

padding-bottom:10px;}> > > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> > > }> > > #ygrp-vital ul li .ct{> > >> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > >

text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >>

>>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}> > > -->> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> >

> Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

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It sounds like the employer has done a great job of adjusting to your wife's needs. That is very rare here in the US. My aunt and uncle used to live outside of Tampa bay and my cousins all still live there: one in the Tampa Bay area, one in ville and one down south. Love from Texas 'reb_41se wrote: Hi Sharon, is on Rebif, and has been since the diagnose more or less (ibelieve she started right after all the

december and early januariholidays, quite soon after the verified diagnosis, but a few weeksafter the preliminary MS diagnosis).I have a few years left til my graduation, because I chose to do thedoctorate in a "new" field (new in relation to my earlier education,that is). I have a masters degree in library and information, and socould have gone on a faster track towards doctorate there, but itwould mean that we would've had to move, and that's not very doableright now. has had a high blood pressure too – not sure if it's related toher medication or just high anyway, probably a little bit of bothsince she has a blood pressure problem running in her family. But shemanaged to lower it considerable just by lowering her intake of salt!It's still a little higher than the ideal, but not alarmingly so. My aunt lives in Florida, US, with her husband, and her son (mycousin) with wife and daughter also

lives there (but in another city),and my mother visited her there when she was pregnant with me, so Iguess in a sense I have visited the US too, didn't get to see muchthough ; ) But after my birth I haven't been there, I would love to,but the opportunity hasn't come along. Both my sister and my brotherare going there this year, though (but not together, my sister wentwith her boyfriend last month, and my brother will go with hisgirlfriend in august). My aunt visits Sweden almost eyery year, and (my cousin) with family nearly as often, so we still get tosee them. is able to keep working as usual, to a large part due to ahelpful and understanding employer. Apart from some workplaceadjustments, mainly aimed at helping her with the problems with herhands, she has also been given an office of her own (at her departmentthe usual is that two people share an office, just like two peoplealso share a

laboratory), with a door to close when she needs a littlepeace and quiet. In addition to that, they have also put a rest chairin her office, to use when she needs to lean back and close her eyesfor a while. If she needs to lay down for a little longer there aresort-of bedrooms (rooms with simpler types of beds, intended for thatkind of short-time use) she can use. She has also been issued apocket-PC that will remind her of meatings and such, to help with herslight problems with cognition (her stationary work-computer can dothe same, of course, but if she is in the lab, which is where shespends most of her working hours, a reminder on the computer in heroffice isn't going to do her any good...). It's probably a good thingto work for a company that used to do MS-resaerch, I guess; Even ifthey don't work in that area any more, much knowledge about MS stillexists within the organisation. Before she started on

Amantadine, though, she wanted badly to cut herwork hours a little, now the fatigue is a little better. Hopefully itwill stay that way, for as long as possible.I have put the both of us in the birthday calender, and will lookcloser at the map when I have a little more time ; )love/Reb >> Hi Reb:> > Is on one of what we call the CRAB-T drugs? That would beCopaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call themdisease modifying drugs. I was on Avonex for 5 years then decided Ifelt so good I didn't need it any longer. That was in 2003. Now I'vehad some progression and I regret my decision to stop taking Avonexinjections. I do believe in the disease modifying drugs. They areespecially important in early relapsing remitting MS.

I'm sure has done her "research" though. (laughing). A research scientist! That's very impressive indeed. And you are going for your doctorate.How long do you have until graduation? > > I was on Provigil and it worked for me but the cost did hold meback. I started on Ritalin several weeks ago and it is working verywell but I saw my doctor yesterday and my blood pressure is up, a sideeffect of Ritalin. I may not be able to stay on this drug. We'lldecide next month when I have another blood pressure check. I havehigh blood pressure anyway so this is bad news for me.> > I just sent a link to the group map if you would like to add yourlocation (it was a post with the subject: location). And we have abirthday calendar, too. If you would to send your birthdays I wouldbe glad to add them to the calendar. We also have a group photosection where you could put photos of you and and some of

yourarea if you would like. I know we would all like to see some of yourcountry. We have one member from Turkey, several from the UK, onefrom Central America, several from Canada and the rest from the USA. I live in Arizona, USA. Have you ever visited the USA? I've alwayswanted to go to Europe but have never had the chance. My niece livedin Holland for 4 years while her husband was stationed there with ourmilitary. She loved it. Then they were stationed in London forawhile. She preferred Holland. > > The fatigue is awful and is hard for others to understand. When ithits me I can not stay awake. Is able to keep working as usual? > > I participated in a teleconference with one of our top researchphysicians in the field of MS and he pushed the idea of exercise beingextremely important for MS. For many years MSers have been told to becareful with exercise because it can overheat your body,

bringing onsymptoms or a relapse. But Dr. Vollmer said it is imperative toexercise because people with MS can lose use of their muscles and it'svery difficult to regain that muscle strength. In 2001 I had handweakness and difficulty with fine motor tasks. We moved to a farm andI started milking goats and got my hand strength back and it improvedmy fine motor skills as well. So needs to milk goats. (laughing)> > love> Sharon> > This email is a natural hand made product. The slight variations inspelling and grammar enhance its individual character and beauty andin no way are to be considered flaws or defects.> > > > > > > Re:

Hi and Amantadine> > > > > > > > > > > > > > Hi all,> > > > And thanks a lot for everybody´s responses and welcomes!> > > > Some of you mentioned Provigil, and I think that was the alternative> > that 's neuro was talking about, but if I understood it correctly,> > it tend to have more side effects. If Amantadine doesn't work,> > however, it's something we'll have to look into more. The cost is,> > luckily enough, not something we have to worry about since it's the> > government and not us who pay the bill (the advantages of that system> > does become more distinct when you are faced with a chronic disease> > like MS...).> > > > It's correct that we are in Sweden, Sharon (very

perceptive of you!).> > In the south of Sweden, to be more exact, but not in the parts that> > were flooded last week (another lucky thing...). is a research> > scientist in a pharmaceutical company, and I am a librarian but right> > now back in college trying to get a doctorate (a dr. in the title> > would give me a better shot at the librarian positions I want themost). > > > > I think the "worst" symptom for is the fatigue, but she also gets> > a tingling sensation and(or lose sensation in and sometimes lose a> > little control of her left leg, that's especially when she is tired or> > have walked a bit, so she always carry a cane if she is going to walk> > a bit longer than usual, and/or if she knows there is a possibility> > she will be tired later on (fx. she brings it with her to work,

but> > usually don't need it until she is leaving for home, and tired after a> > days work). And she also has lost a little of her fine motor skills in> > her hands. The symptoms have become worse since her last relapse (the> > one that led to her getting her diagnose, in november-december lastyear).> > > > This is all quite new to us, but we have begun to find our way around> > it (but only just begun, though). > > > > love> > > > /Reb> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial,

helvetica,clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}> #ygrp-tpmsgs{> font-family:Arial;> clear:both;}> #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px0;white-space:nowrap;color:#666;text-align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px 0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666;> padding:5px 0;> }>

#ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee;> }> #ygrp-vital ul li .ct{>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a {> text-decoration:none;}> > #ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}>

#ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{> list-style-type:square;padding:6px 0;font-size:77%;}> #ygrp-sponsor #ov li a{> text-decoration:none;font-size:130%;}> #ygrp-sponsor #nc {> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{> text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0;}> .MsoNormal {> margin:0 0 0 0;}> #ygrp-text

tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq {margin:4;}> -->> > > > > > > > > >__________________________________________________________> Moody friends. Drama queens. Your life? Nope! - their life, yourstory. Play Sims Stories at Yahoo! Games.> http://sims.yahoo.com/>' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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Hi Reb I have a 9 year old that for some reason would like to have a pen pal and would lkie to know if he might be able to write a student there?

He had purchased a little stuffed bear at the library recently and I asked him why he bought it. He said he wants to give it to his pen pal when he gets one.

Here is a photo of this was taken last year. We have a parade go by our home every Memorial Day and was selling lemonade. would be very happy to write someone. He was hoping to get a pen pal outside of the USA.

Bill

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}> > > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}> > > .bld{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > > padding-bottom:10px;}> > > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> > > }> > > #ygrp-vital ul li ..ct{> > >> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > > text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}> > > -->> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

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Oh Bill~ is so cute! How old is he? 9? Great pic too--colors vivid, image sharp. I wouldn't be surprised, Bill, if there is some way you can look into a pen-pal for online--an international one. I remember way back, when I was in Catholic grammar school, my 7th grade teacher arranged for each of us to have a pen-pal. I believe at the time I was studying French, so I was assigned a French pen-pal--Bernadette. We stayed in touch for about 3 or 4 years--it was fun. It gave her a chance to practice her written English, and me my written French--but I have to admit, she probably had more practice than I as I often just wrote in English too!

kate

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}> > > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}> > > .bld{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > > padding-bottom:10px;}> > > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> > > }> > > #ygrp-vital ul li ..ct{> > >> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > > text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}> > > -->> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

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Yes and will be 10 on the 16th 0f this month. Here is another photo of and also his cousin Mack. Macks mother is Peggy also and she has MS as well. They were selling lemonade at this years Memorial Day parade. He ended up making $17. My wife works with a woman her family are from Africa and asked Judy to see if she had friend in Africa she could write. She did have a friend in Africa but they have hard time getting the mail to the correct person there for some reason.

Bill

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > > > that 's neuro was talking about, but if I understood itcorrectly,> > > > > > it tend to have more side effects. If Amantadine doesn't work,> > > > > > however, it's something we'll have to look into more. The cost is,> > > > > > luckily enough, not something we have to worry about since it's the> > > > > > government and not us who pay the bill (the advantages of thatsystem> > > > > > does become more distinct when you are faced with a chronic disease> > > > > > like MS...).> > > > > > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive ofyou!).> > > > > > In the south of Sweden, to be more exact, but not in the parts that> > > > > > were flooded last week (another lucky thing...). is a research> > > > > > scientist in a pharmaceutical company, and I am a librarian butright> > > > > > now back in college trying to get a doctorate (a dr. in the title> > > > > > would give me a better shot at the librarian positions I want the> > most). > > > > > > > > > > > > I think the "worst" symptom for is the fatigue, but shealso gets> > > > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > > > little control of her left leg, that's especially when she istired or> > > > > > have walked a bit, so she always carry a cane if she is going towalk> > > > > > a bit longer than usual, and/or if she knows there is a possibility> > > > > > she will be tired later on (fx. she brings it with her to work, but> > > > > > usually don't need it until she is leaving for home, and tiredafter a> > > > > > days work). And she also has lost a little of her fine motorskills in> > > > > > her hands. The symptoms have become worse since her last relapse(the> > > > > > one that led to her getting her diagnose, in november-december last> > year).> > > > > > > > > > > > This is all quite new to us, but we have begun to find our wayaround> > > > > > it (but only just begun, though). > > > > > > > > > > > > love> > > > > > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> > sans-serif;}> > > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> > clean, sans-serif;}> > > #ygrp-mlmsg pre, code {font:115% monospace;}> > > #ygrp-mlmsg * {line-height:1.22em;}> > > #ygrp-text{> > > font-family:Georgia;> > > }> > > #ygrp-text p{> > > margin:0 0 1em 0;}> > > #ygrp-tpmsgs{> > > font-family:Arial;> > > clear:both;}> > > #ygrp-vitnav{> > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > > #ygrp-vitnav a{> > > padding:0 1px;}> > > #ygrp-actbar{> > > clear:both;margin:25px> > 0;white-space:nowrap;color:#666;text-align:right;}> > > #ygrp-actbar .left{> > > float:left;white-space:nowrap;}> > > .bld{font-weight:bold;}> > > #ygrp-grft{> > > font-family:Verdana;font-size:77%;padding:15px 0;}> > > #ygrp-ft{> > > font-family:verdana;font-size:77%;border-top:1px solid #666;> > > padding:5px 0;> > > }> > > #ygrp-mlmsg #logo{> > > padding-bottom:10px;}> > > > > > #ygrp-vital{> > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > > #ygrp-vital #vithd{> > >> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > > #ygrp-vital ul{> > > padding:0;margin:2px 0;}> > > #ygrp-vital ul li{> > > list-style-type:none;clear:both;border:1px solid #e0ecee;> > > }> > > #ygrp-vital ul li ..ct{> > >> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > > #ygrp-vital ul li .cat{> > > font-weight:bold;}> > > #ygrp-vital a {> > > text-decoration:none;}> > > > > > #ygrp-vital a:hover{> > > text-decoration:underline;}> > > > > > #ygrp-sponsor #hd{> > > color:#999;font-size:77%;}> > > #ygrp-sponsor #ov{> > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > > #ygrp-sponsor #ov ul{> > > padding:0 0 0 8px;margin:0;}> > > #ygrp-sponsor #ov li{> > > list-style-type:square;padding:6px 0;font-size:77%;}> > > #ygrp-sponsor #ov li a{> > > text-decoration:none;font-size:130%;}> > > #ygrp-sponsor #nc {> > > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > > #ygrp-sponsor .ad{> > > padding:8px 0;}> > > #ygrp-sponsor .ad #hd1{> > >> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > > #ygrp-sponsor .ad a{> > > text-decoration:none;}> > > #ygrp-sponsor .ad a:hover{> > > text-decoration:underline;}> > > #ygrp-sponsor .ad p{> > > margin:0;}> > > o {font-size:0;}> > > .MsoNormal {> > > margin:0 0 0 0;}> > > #ygrp-text tt{> > > font-size:120%;}> > > blockquote{margin:0 0 0 4px;}> > > .replbq {margin:4;}> > > -->> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > __________________________________________________________> > > Moody friends. Drama queens. Your life? Nope! - their life, your> > story. Play Sims Stories at Yahoo! Games.> > > http://sims.yahoo.com/> > >> > > > > > > > > > > > > > Have a great day! Joanne> > > > ---------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile and > > always stay connected to friends.> >> > > > > > > Never miss an email again!> Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.>

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Hi Bill,

Pen pals can be so much fun, and it's educational too! I had a couple

when I was about 's age, one in the US and one in Great Britain.

My brother took the " easy way out " and started " pen-palling " with our

cousin in the US – he started write as soon as he started to learn

English in school, his first letter was very short, it consisted only

of the sentence " Are you happy or not? " ...; 0 )

However, I'm afraid that her (our friend's) students may be a little

too old for (they´re 17-19 years old), and/or be in that age

where they may be hard to interest in a pen pal. But there is a

monthly magazine for kids in Sweden in about 's age and a couple

of years older (up to 13 or 14 perhaps), that have ads for pen pals

(or at least they had when I was in that age, it's where I found mine,

and if they for some reason don't run it regularly nowadays I am sure

they could put in a little something at request), it's called

Kamratposten. The web-page is at http://www.kamratposten.se/index.xml

, if you want to have a look at it (but it's all in Swedish though,

they don't have an English page). If you'd like to, I could try to get

a little ad for in there, I am sure there are many kids/young

people who would like to practice their English and get to know

someone in another part of the world at the same time. They will

probably still be a couple of years older than though, perhaps

11-12, since a 9 year old in Sweden have only just started to learn

English and wouldn't be able to read and write letters in English (at

least not any of more complexity and/or length than that first letter

my brother wrote...).

love

/Reb

> > > >

> > > > Hi Reb:

> > > >

> > > > Is on one of what we call the CRAB-T drugs? That would be

> > > Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors

call them

> > > disease modifying drugs. I was on Avonex for 5 years then

decided I

> > > felt so good I didn't need it any longer. That was in 2003.

Now I've

> > > had some progression and I regret my decision to stop taking

Avonex

> > > injections. I do believe in the disease modifying drugs. They are

> > > especially important in early relapsing remitting MS. I'm sure

> > > has done her " research " though. (laughing). A research scientist!

> > > That's very impressive indeed. And you are going for your

doctorate.

> > > How long do you have until graduation?

> > > >

> > > > I was on Provigil and it worked for me but the cost did hold me

> > > back. I started on Ritalin several weeks ago and it is working

very

> > > well but I saw my doctor yesterday and my blood pressure is

up, a side

> > > effect of Ritalin. I may not be able to stay on this drug. We'll

> > > decide next month when I have another blood pressure check. I have

> > > high blood pressure anyway so this is bad news for me.

> > > >

> > > > I just sent a link to the group map if you would like to add

your

> > > location (it was a post with the subject: location). And we have a

> > > birthday calendar, too. If you would to send your birthdays I

would

> > > be glad to add them to the calendar. We also have a group photo

> > > section where you could put photos of you and and some of

your

> > > area if you would like. I know we would all like to see some

of your

> > > country. We have one member from Turkey, several from the UK, one

> > > from Central America, several from Canada and the rest from

the USA.

> > > I live in Arizona, USA. Have you ever visited the USA? I've always

> > > wanted to go to Europe but have never had the chance. My niece

lived

> > > in Holland for 4 years while her husband was stationed there

with our

> > > military. She loved it. Then they were stationed in London for

> > > awhile. She preferred Holland.

> > > >

> > > > The fatigue is awful and is hard for others to understand.

When it

> > > hits me I can not stay awake. Is able to keep working as

usual?

> > > >

> > > > I participated in a teleconference with one of our top research

> > > physicians in the field of MS and he pushed the idea of

exercise being

> > > extremely important for MS. For many years MSers have been

told to be

> > > careful with exercise because it can overheat your body,

bringing on

> > > symptoms or a relapse. But Dr. Vollmer said it is imperative to

> > > exercise because people with MS can lose use of their muscles

and it's

> > > very difficult to regain that muscle strength. In 2001 I had hand

> > > weakness and difficulty with fine motor tasks. We moved to a

farm and

> > > I started milking goats and got my hand strength back and it

improved

> > > my fine motor skills as well. So needs to milk goats.

(laughing)

> > > >

> > > > love

> > > > Sharon

> > > >

> > > > This email is a natural hand made product. The slight

variations in

> > > spelling and grammar enhance its individual character and

beauty and

> > > in no way are to be considered flaws or defects.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Re: Hi and Amantadine

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Hi all,

> > > >

> > > >

> > > >

> > > > And thanks a lot for everybody´s responses and welcomes!

> > > >

> > > >

> > > >

> > > > Some of you mentioned Provigil, and I think that was the

alternative

> > > >

> > > > that 's neuro was talking about, but if I understood it

> correctly,

> > > >

> > > > it tend to have more side effects. If Amantadine doesn't work,

> > > >

> > > > however, it's something we'll have to look into more. The

cost is,

> > > >

> > > > luckily enough, not something we have to worry about since

it's the

> > > >

> > > > government and not us who pay the bill (the advantages of that

> system

> > > >

> > > > does become more distinct when you are faced with a chronic

disease

> > > >

> > > > like MS...).

> > > >

> > > >

> > > >

> > > > It's correct that we are in Sweden, Sharon (very perceptive of

> you!).

> > > >

> > > > In the south of Sweden, to be more exact, but not in the

parts that

> > > >

> > > > were flooded last week (another lucky thing...). is a

research

> > > >

> > > > scientist in a pharmaceutical company, and I am a librarian but

> right

> > > >

> > > > now back in college trying to get a doctorate (a dr. in the

title

> > > >

> > > > would give me a better shot at the librarian positions I

want the

> > > most).

> > > >

> > > >

> > > >

> > > > I think the " worst " symptom for is the fatigue, but she

> also gets

> > > >

> > > > a tingling sensation and(or lose sensation in and sometimes

lose a

> > > >

> > > > little control of her left leg, that's especially when she is

> tired or

> > > >

> > > > have walked a bit, so she always carry a cane if she is going to

> walk

> > > >

> > > > a bit longer than usual, and/or if she knows there is a

possibility

> > > >

> > > > she will be tired later on (fx. she brings it with her to

work, but

> > > >

> > > > usually don't need it until she is leaving for home, and tired

> after a

> > > >

> > > > days work). And she also has lost a little of her fine motor

> skills in

> > > >

> > > > her hands. The symptoms have become worse since her last relapse

> (the

> > > >

> > > > one that led to her getting her diagnose, in

november-december last

> > > year).

> > > >

> > > >

> > > >

> > > > This is all quite new to us, but we have begun to find our way

> around

> > > >

> > > > it (but only just begun, though).

> > > >

> > > >

> > > >

> > > > love

> > > >

> > > >

> > > >

> > > > /Reb

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > <!--

> > > >

> > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

> > > sans-serif;}

> > > > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > > > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

> > > clean, sans-serif;}

> > > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > > > #ygrp-mlmsg * {line-height:1.22em;}

> > > > #ygrp-text{

> > > > font-family:Georgia;

> > > > }

> > > > #ygrp-text p{

> > > > margin:0 0 1em 0;}

> > > > #ygrp-tpmsgs{

> > > > font-family:Arial;

> > > > clear:both;}

> > > > #ygrp-vitnav{

> > > > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > > > #ygrp-vitnav a{

> > > > padding:0 1px;}

> > > > #ygrp-actbar{

> > > > clear:both;margin:25px

> > > 0;white-space:nowrap;color:#666;text-align:right;}

> > > > #ygrp-actbar .left{

> > > > float:left;white-space:nowrap;}

> > > > .bld{font-weight:bold;}

> > > > #ygrp-grft{

> > > > font-family:Verdana;font-size:77%;padding:15px 0;}

> > > > #ygrp-ft{

> > > > font-family:verdana;font-size:77%;border-top:1px solid #666;

> > > > padding:5px 0;

> > > > }

> > > > #ygrp-mlmsg #logo{

> > > > padding-bottom:10px;}

> > > >

> > > > #ygrp-vital{

> > > > background-color:#e0ecee;margin-bottom:20px;padding:2px 0

8px 8px;}

> > > > #ygrp-vital #vithd{

> > > >

> > >

> >

>

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\

ercase;}

> > > > #ygrp-vital ul{

> > > > padding:0;margin:2px 0;}

> > > > #ygrp-vital ul li{

> > > > list-style-type:none;clear:both;border:1px solid #e0ecee;

> > > > }

> > > > #ygrp-vital ul li .ct{

> > > >

> > >

> >

>

font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\

ght:.5em;}

> > > > #ygrp-vital ul li .cat{

> > > > font-weight:bold;}

> > > > #ygrp-vital a {

> > > > text-decoration:none;}

> > > >

> > > > #ygrp-vital a:hover{

> > > > text-decoration:underline;}

> > > >

> > > > #ygrp-sponsor #hd{

> > > > color:#999;font-size:77%;}

> > > > #ygrp-sponsor #ov{

> > > > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > > > #ygrp-sponsor #ov ul{

> > > > padding:0 0 0 8px;margin:0;}

> > > > #ygrp-sponsor #ov li{

> > > > list-style-type:square;padding:6px 0;font-size:77%;}

> > > > #ygrp-sponsor #ov li a{

> > > > text-decoration:none;font-size:130%;}

> > > > #ygrp-sponsor #nc {

> > > > background-color:#eee;margin-bottom:20px;padding:0 8px;}

> > > > #ygrp-sponsor .ad{

> > > > padding:8px 0;}

> > > > #ygrp-sponsor .ad #hd1{

> > > >

> > >

> >

>

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\

;}

> > > > #ygrp-sponsor .ad a{

> > > > text-decoration:none;}

> > > > #ygrp-sponsor .ad a:hover{

> > > > text-decoration:underline;}

> > > > #ygrp-sponsor .ad p{

> > > > margin:0;}

> > > > o {font-size:0;}

> > > > .MsoNormal {

> > > > margin:0 0 0 0;}

> > > > #ygrp-text tt{

> > > > font-size:120%;}

> > > > blockquote{margin:0 0 0 4px;}

> > > > .replbq {margin:4;}

> > > > -->

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > __________________________________________________________

> > > > Moody friends. Drama queens. Your life? Nope! - their life, your

> > > story. Play Sims Stories at Yahoo! Games.

> > > > http://sims.yahoo.com/

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Have a great day! Joanne

> > >

> > > ---------------------------------

> > > Don't be flakey. Get Yahoo! Mail for Mobile and

> > > always stay connected to friends.

> > >

> >

> >

> >

> >

> >

> >

> > Never miss an email again!

> > Yahoo! Toolbar alerts you the instant new Mail arrives. Check it

out.

> >

>

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