Re: Hi and Amantadine

[Guest guest]

Welcome aboard, Reb! ) I've no experience with Amantadine, but I did want to officially welcome you to our wonderful group. I'm Challis, daughter of Sharon/Wobbletowalk. My Mother has MS and we don't know what I have, but MS seems a good place to look. And my newest Neuro seems to agree. lol I've had symptoms for over ten years, with more coming about 8 years ago and even more since. I'm married to , and we live in Arizona where we've raised our children. is 20, will be 17 soon, Jenna is 7 and Maya will be 4 soon. It's very nice to meet you. ) Challis reb_41se wrote: Hi all,I am a new member, looking forward to learn from all the others here!My wife, , was diagnosed with MS in december – and I have beensearching for a good group or web forum whith other people afflictedby MS one way or the other. Seems I found it here!Now, I have one question already... has been prescribedAmantadine, and has been taking it for a week (2 pills every day forthis, the first week, and after that it's supposed to be 4 pills everyday, according to the prescription). So far whe feels it is helpingher with her fatigue some, even if it doesn't take it away completely.She is a

little concerned with possible side effects, the doctor saidthere is virtually none, but it would help to hear from someone whohave personal experience with that drug. Therefor, everybody, what are your experiences with Amantadine? Sideeffects? Did/does it help you? Does it continue to help when you havebeen on it for a while, or is it one of those drugs whose effect tendto wear off when you get more used to it?love/Reb

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when.

[Guest guest]

http://www.answers.com/topic/amantadine?cat=health An odd way to welcome

Reb to our group, but why not? I am n and I have MS, and what I do in

my spare time is find LINKS to things. And the GOOD news is that you can

always delete the links! Welcome aboard this amazing ship of people con

founded by our "Multiple Surprises!"

Love to you and to yours,

n, 70, diagnosed with MS at age 19; they WERE right, and that is why

I am here in this amazing group!

-------------- Original message --------------

Welcome aboard, Reb! )

I've no experience with Amantadine, but I did want to officially welcome you to our wonderful group.

I'm Challis, daughter of Sharon/Wobbletowalk. My Mother has MS and we don't know what I have, but MS seems a good place to look. And my newest Neuro seems to agree. lol

I've had symptoms for over ten years, with more coming about 8 years ago and even more since.

I'm married to , and we live in Arizona where we've raised our children. is 20, will be 17 soon, Jenna is 7 and Maya will be 4 soon.

It's very nice to meet you. )

Challis

reb_41se <reb_41seyahoo (DOT) se> wrote:

Hi all,I am a new member, looking forward to learn from all the others here!My wife, , was diagnosed with MS in december – and I have beensearching for a good group or web forum whith other people afflictedby MS one way or the other. Seems I found it here!Now, I have one question already... has been prescribedAmantadine, and has been taking it for a week (2 pills every day forthis, the first week, and after that it's supposed to be 4 pills everyday, according to the prescription). So far whe feels it is helpingher with her fatigue some, even if it doesn't take it away completely.She is a little concerned with possible side effects, the doctor saidthere is virtually none, but it would help to hear from someone whohave personal experience with that drug. Therefor, everybody, what are your experiences with Amantadine? Sideeffects? Did/does it help you? Does it continue to help when you havebeen o

n it for a while, or is it one of those drugs whose effect tendto wear off when you get more used to it?love/Reb

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when.

[Guest guest]

Wellcome to the group..I'm new here also...they adopted me right in LOL (really I just jumped in and haven't been quiet). I was on the Amantadine before my neuro switched my Rx to Provigil. I didn't notice of any side effects, but so far (thank goodness) I haven't had any really bad experiences with side effects of any medication that I've been on. I was on the Amantadine for a few months and I found myself still extremely tired, so my neuro switched me. The Provigil seems to work better, and now, (thanks to this group) I split my dose in half and take one later in the day, especially if I know I have something I want to do, or somewhere I want to go. I think that besides my other symptoms, fatigue

is the worst...

Also, I was diagnose not too long ago (April 06) and this has been an eye opening experience, to put it lightly! Please give your wife my blessings and I hope that she is doing well. I'm so happy with this group..they have made me laugh, cry, and laugh some more. I think you will find these people extra-ordinary in every sense!

Side note to all: Just saying that I'm thinking of all you and pray for me...I'm trying a new recipe w/ peaches (2 recipes actually, kinda mixed together). I spent the weekend at my mom's and my husband cleaned the whole house for me so I'm rewarding him by making some kind of peach cobbler..lol...I hope it's a reward anyway.

Much love!!

Hi and Amantadine

Hi all,I am a new member, looking forward to learn from all the others here!My wife, , was diagnosed with MS in december – and I have beensearching for a good group or web forum whith other people afflictedby MS one way or the other. Seems I found it here!Now, I have one question already... has been prescribedAmantadine, and has been taking it for a week (2 pills every day forthis, the first week, and after that it's supposed to be 4 pills everyday, according to the prescription) . So far whe feels it is helpingher with her fatigue some, even if it doesn't take it away completely.She is a little concerned with possible side effects, the doctor saidthere is virtually none, but it would help to hear from someone whohave personal experience with that drug. Therefor, everybody, what are your experiences with Amantadine? Sideeffects? Did/does it help you? Does it continue to help when you havebeen

on it for a while, or is it one of those drugs whose effect tendto wear off when you get more used to it?love/Reb

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

Hi Reb:I'm so glad you joined us but I'm sorry to hear your wife has been diagnosed with MS. I don't have any experience with Amantadine so I can't help you there. I have take Provigil and it worked but tends to give me headaches and the cost is very high. I just started on Ritalin last week and so far it's working for me. I have serious fatigue and was sleeping anywhere from 3 to 5 hours during the day. 90% of MS patients have fatigue and it is the #1 most troublesome symptom that people with MS face. What other symptoms does your wife have? And where do you live? Am I correct in thinking you are in Sweden?Sharon This email is a

natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Hi and Amantadine

Hi all,

I am a new member, looking forward to learn from all the others here!

My wife, , was diagnosed with MS in december – and I have been

searching for a good group or web forum whith other people afflicted

by MS one way or the other. Seems I found it here!

Now, I have one question already... has been prescribed

Amantadine, and has been taking it for a week (2 pills every day for

this, the first week, and after that it's supposed to be 4 pills every

day, according to the prescription) . So far whe feels it is helping

her with her fatigue some, even if it doesn't take it away completely.

She is a little concerned with possible side effects, the doctor said

there is virtually none, but it would help to hear from someone who

have personal experience with that drug.

Therefor, everybody, what are your experiences with Amantadine? Side

effects? Did/does it help you? Does it continue to help when you have

been on it for a while, or is it one of those drugs whose effect tend

to wear off when you get more used to it?

love

/Reb

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Yahoo! Search.

[Guest guest]

I found it had the opposite effect...made me more tired and the Dr. said that sometimes happens. Kathi

Hi and Amantadine

Hi all,I am a new member, looking forward to learn from all the others here!My wife, , was diagnosed with MS in december – and I have beensearching for a good group or web forum whith other people afflictedby MS one way or the other. Seems I found it here!Now, I have one question already... has been prescribedAmantadine, and has been taking it for a week (2 pills every day forthis, the first week, and after that it's supposed to be 4 pills everyday, according to the prescription). So far whe feels it is helpingher with her fatigue some, even if it doesn't take it away completely.She is a little concerned with possible side effects, the doctor saidthere is virtually none, but it would help to hear from someone whohave personal experience with that drug. Therefor, everybody, what are your experiences with Amantadine? Sideeffects? Did/does it help you? Does it continue to help when you havebeen on it for a while, or is it one of those drugs whose effect tendto wear off when you get more used to it?love/Reb

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/885 - Release Date: 7/3/2007 10:02 AM

[Guest guest]

Hi all,

And thanks a lot for everybody´s responses and welcomes!

Some of you mentioned Provigil, and I think that was the alternative

that 's neuro was talking about, but if I understood it correctly,

it tend to have more side effects. If Amantadine doesn't work,

however, it's something we'll have to look into more. The cost is,

luckily enough, not something we have to worry about since it's the

government and not us who pay the bill (the advantages of that system

does become more distinct when you are faced with a chronic disease

like MS...).

It's correct that we are in Sweden, Sharon (very perceptive of you!).

In the south of Sweden, to be more exact, but not in the parts that

were flooded last week (another lucky thing...). is a research

scientist in a pharmaceutical company, and I am a librarian but right

now back in college trying to get a doctorate (a dr. in the title

would give me a better shot at the librarian positions I want the most).

I think the " worst " symptom for is the fatigue, but she also gets

a tingling sensation and(or lose sensation in and sometimes lose a

little control of her left leg, that's especially when she is tired or

have walked a bit, so she always carry a cane if she is going to walk

a bit longer than usual, and/or if she knows there is a possibility

she will be tired later on (fx. she brings it with her to work, but

usually don't need it until she is leaving for home, and tired after a

days work). And she also has lost a little of her fine motor skills in

her hands. The symptoms have become worse since her last relapse (the

one that led to her getting her diagnose, in november-december last year).

This is all quite new to us, but we have begun to find our way around

it (but only just begun, though).

love

/Reb

[Guest guest]

--I take provigil. It has been a blessing that gets me through the

work day.

- In MSersLife , " reb_41se " wrote:

>

> Hi all,

>

> And thanks a lot for everybody´s responses and welcomes!

>

> Some of you mentioned Provigil, and I think that was the alternative

> that 's neuro was talking about, but if I understood it

correctly,

> it tend to have more side effects. If Amantadine doesn't work,

> however, it's something we'll have to look into more. The cost is,

> luckily enough, not something we have to worry about since it's the

> government and not us who pay the bill (the advantages of that

system

> does become more distinct when you are faced with a chronic disease

> like MS...).

>

> It's correct that we are in Sweden, Sharon (very perceptive of

you!).

> In the south of Sweden, to be more exact, but not in the parts that

> were flooded last week (another lucky thing...). is a research

> scientist in a pharmaceutical company, and I am a librarian but

right

> now back in college trying to get a doctorate (a dr. in the title

> would give me a better shot at the librarian positions I want the

most).

>

> I think the " worst " symptom for is the fatigue, but she also

gets

> a tingling sensation and(or lose sensation in and sometimes lose a

> little control of her left leg, that's especially when she is tired

or

> have walked a bit, so she always carry a cane if she is going to

walk

> a bit longer than usual, and/or if she knows there is a possibility

> she will be tired later on (fx. she brings it with her to work, but

> usually don't need it until she is leaving for home, and tired

after a

> days work). And she also has lost a little of her fine motor skills

in

> her hands. The symptoms have become worse since her last relapse

(the

> one that led to her getting her diagnose, in november-december last

year).

>

> This is all quite new to us, but we have begun to find our way

around

> it (but only just begun, though).

>

> love

>

> /Reb

>

[Guest guest]

Welcome to the group Reb.

I have not tried Amantadine. I am on Ritalin for fatigue like Sharon. I have been on it for over three

months and have not had any side effects. It has really helped me. No more falling

asleep at work.

My neurologist listed Amantadine as one of

the MS fatigue drugs when we were deciding what I should go on. She thinks

Ritalin is more effective. They are both less expensive than Provigil, which my

insurance company wouldn’t pay for.

Is your wife feeling any side effects?

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Sunday, July 08, 2007 10:36

PM

To: MSersLife

Subject: Re: Hi and

Amantadine

Hi Reb:

I'm so glad you joined us but I'm sorry to hear your wife has been diagnosed

with MS. I don't have any experience with Amantadine so I can't help you

there. I have take Provigil and it worked but tends to give me headaches

and the cost is very high. I just started on Ritalin last week and so far

it's working for me. I have serious fatigue and was sleeping anywhere

from 3 to 5 hours during the day. 90% of MS patients have fatigue and it

is the #1 most troublesome symptom that people with MS face.

What other symptoms does your wife have? And where do you live? Am

I correct in thinking you are in Sweden?

Sharon

This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and in no way

are to be considered flaws or defects.

Hi and Amantadine

Hi all,

I am a new member, looking forward to learn from all the others here!

My wife, , was diagnosed with MS in december – and I have been

searching for a good group or web forum whith other people afflicted

by MS one way or the other. Seems I found it here!

Now, I have one question already... has been prescribed

Amantadine, and has been taking it for a week (2 pills every day for

this, the first week, and after that it's supposed to be 4 pills every

day, according to the prescription) . So far whe feels it is helping

her with her fatigue some, even if it doesn't take it away completely.

She is a little concerned with possible side effects, the doctor said

there is virtually none, but it would help to hear from someone who

have personal experience with that drug.

Therefor, everybody, what are your experiences with Amantadine? Side

effects? Did/does it help you? Does it continue to help when you have

been on it for a while, or is it one of those drugs whose effect tend

to wear off when you get more used to it?

love

/Reb

Luggage? GPS? Comic books?

Check out fitting gifts

for grads at Yahoo! Search.

[Guest guest]

She is not feeling any side effects of the Amantadine. At least not

yet, sometimes those don't show until you are on the " normal " dose. We

hope for the best. She has had quite a few side effects from her Rebif

though, they did go away when she had been on that for 4-5 months, but

then they came back again.

/Reb

>

> Welcome to the group Reb.

>

>

> I have not tried Amantadine. I am on Ritalin for fatigue like

Sharon. I have

> been on it for over three months and have not had any side effects.

It has

> really helped me. No more falling asleep at work.

>

> My neurologist listed Amantadine as one of the MS fatigue drugs when

we were

> deciding what I should go on. She thinks Ritalin is more effective.

They are

> both less expensive than Provigil, which my insurance company

wouldn't pay

> for.

>

> Is your wife feeling any side effects?

>

>

>

> Connie

>

>

>

[Guest guest]

I tried it. Sugar pill, did nothing... Akiba -- Re: Hi and Amantadine Hi all,And thanks a lot for everybody´s responses and welcomes!Some of you mentioned Provigil, and I think that was the alternativethat 's neuro was talking about, but if I understood it correctly,it tend to have more side effects. If Amantadine doesn't work,however, it's something we'll have to look into more. The cost is,luckily enough, not something we have to worry about since it's thegovernment and not us who pay the bill (the advantages of that systemdoes become more distinct when you are faced with a chronic diseaselike MS...).It's correct that we are in Sweden, Sharon (very perceptive of you!).In the south of Sweden, to be more exact, but not in the parts thatwere flooded last week (another lucky thing...). is a researchscientist in a pharmaceutical company, and I am a librarian but rightnow back in college trying to get a doctorate (a dr. in the titlewould give me a better shot at the librarian positions I want the most). I think the "worst" symptom for is the fatigue, but she also getsa tingling sensation and(or lose sensation in and sometimes lose alittle control of her left leg, that's especially when she is tired orhave walked a bit, so she always carry a cane if she is going to walka bit longer than usual, and/or if she knows there is a possibilityshe will be tired later on (fx. she brings it with her to work, butusually don't need it until she is leaving for home, and tired after adays work). And she also has lost a little of her fine motor skills inher hands. The symptoms have become worse since her last relapse (theone that led to her getting her diagnose, in november-december last year).This is all quite new to us, but we have begun to find our way aroundit (but only just begun, though). love/Reb

[Guest guest]

Reb,

I am also on Rebif. What are her side

effects?

I have some injection site reactions. And

a nasty headache if I forget my Tylenol and don’t go to bed.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of reb_41se

Sent: Monday, July 09, 2007 11:21

AM

To: MSersLife

Subject: Re: Hi and

Amantadine

She is not feeling any side effects of the Amantadine.

At least not

yet, sometimes those don't show until you are on the " normal " dose.

We

hope for the best. She has had quite a few side effects from her Rebif

though, they did go away when she had been on that for 4-5 months, but

then they came back again.

/Reb

>

> Welcome to the group Reb.

>

>

> I have not tried Amantadine. I am on Ritalin for fatigue like

Sharon. I have

> been on it for over three months and have not had any side effects.

It has

> really helped me. No more falling asleep at work.

>

> My neurologist listed Amantadine as one of the MS fatigue drugs when

we were

> deciding what I should go on. She thinks Ritalin is more effective.

They are

> both less expensive than Provigil, which my insurance company

wouldn't pay

> for.

>

> Is your wife feeling any side effects?

>

>

>

> Connie

>

>

>

[Guest guest]

Hi Reb,

I'm glad to welcome you to this group. Everyone here is awesome and

always ready to help. I'm sorry to hear about your wife, but so nice

to hear that you are there for her and are willing to learn what you

can about the disease to do what you can for her.

I took Provigil for my fatigue at first. It made me feel like I was

on speed, and that was 1/2 of 1/2 of a dose, lol!!!! I was up for 2

days straight!!! So then I was put on Amantadine. I take that once a

day, 100mg, I'm still not feeling any more energized by it. I think

I'm going to ask my neuro to up my dosage.

How is your wife taking her dx? What type of MS does she have? I hope

you can convince her to get on and chat with us also.

By the way, my name is Peggy, 40, dx with RRMS, last July 27th. I am

married to for 21 yrs. We hve 2 kids ,17 & Zack, almost

5!! We live in central NY.

Hope you love it here!!! Come back soon.

Hugs,

Peggy

>

> Hi all,

>

> I am a new member, looking forward to learn from all the others

here!

> My wife, , was diagnosed with MS in december – and I have been

> searching for a good group or web forum whith other people afflicted

> by MS one way or the other. Seems I found it here!

>

> Now, I have one question already... has been prescribed

> Amantadine, and has been taking it for a week (2 pills every day for

> this, the first week, and after that it's supposed to be 4 pills

every

> day, according to the prescription). So far whe feels it is helping

> her with her fatigue some, even if it doesn't take it away

completely.

> She is a little concerned with possible side effects, the doctor

said

> there is virtually none, but it would help to hear from someone who

> have personal experience with that drug.

>

> Therefor, everybody, what are your experiences with Amantadine? Side

> effects? Did/does it help you? Does it continue to help when you

have

> been on it for a while, or is it one of those drugs whose effect

tend

> to wear off when you get more used to it?

>

> love

>

> /Reb

>

[Guest guest]

Hi Peggy,

Getting the MS diagnosis was actually a great relief for , and for

myself, as before that both ALS (Amyotrophic lateral sclerosis =

certain death) and tumours in the brain was suspected. We had a really

scary week in the hospital before the diagnosis was pinned down.

But of course, a chronic disease is always a chronic disease. I think

what gets to her the most is the unpredictability of it, she has

always been the planning type and here is something she can't plan

and/or will defy what ever plans she may be making for it.

She has RRMS.

Maybe she will chat with you some time, but these internet groups

aren't really her thing... ;0) Plus, right now she is usually to tired

to do much of anything beside working

love

/Reb

> >

> > Hi all,

> >

> > I am a new member, looking forward to learn from all the others

> here!

> > My wife, , was diagnosed with MS in december – and I have been

> > searching for a good group or web forum whith other people afflicted

> > by MS one way or the other. Seems I found it here!

> >

> > Now, I have one question already... has been prescribed

> > Amantadine, and has been taking it for a week (2 pills every day for

> > this, the first week, and after that it's supposed to be 4 pills

> every

> > day, according to the prescription). So far whe feels it is helping

> > her with her fatigue some, even if it doesn't take it away

> completely.

> > She is a little concerned with possible side effects, the doctor

> said

> > there is virtually none, but it would help to hear from someone who

> > have personal experience with that drug.

> >

> > Therefor, everybody, what are your experiences with Amantadine? Side

> > effects? Did/does it help you? Does it continue to help when you

> have

> > been on it for a while, or is it one of those drugs whose effect

> tend

> > to wear off when you get more used to it?

> >

> > love

> >

> > /Reb

> >

>

[Guest guest]

Connie,

She gets some injection site reactions - but nothing permanent as of

yet. And she gets headaches, aching joints and muscles and the

shivers. Not necessarily all of it at the same time though...

/Reb

> >

> > Welcome to the group Reb.

> >

> >

> > I have not tried Amantadine. I am on Ritalin for fatigue like

> Sharon. I have

> > been on it for over three months and have not had any side effects.

> It has

> > really helped me. No more falling asleep at work.

> >

> > My neurologist listed Amantadine as one of the MS fatigue drugs when

> we were

> > deciding what I should go on. She thinks Ritalin is more effective.

> They are

> > both less expensive than Provigil, which my insurance company

> wouldn't pay

> > for.

> >

> > Is your wife feeling any side effects?

> >

> >

> >

> > Connie

> >

>

> >

> >

>

[Guest guest]

Oh, thank goodness it wasn't ALS. Or a brain tumor, for that matter. Challis reb_41se wrote: Hi Peggy,Getting the MS diagnosis was actually a great relief for , and formyself, as before that both ALS (Amyotrophic lateral sclerosis =certain death) and tumours in the brain was suspected. We had a reallyscary week in the hospital before the diagnosis was pinned down. But of course, a chronic disease is always a chronic

disease. I thinkwhat gets to her the most is the unpredictability of it, she hasalways been the planning type and here is something she can't planand/or will defy what ever plans she may be making for it. She has RRMS.Maybe she will chat with you some time, but these internet groupsaren't really her thing... ;0) Plus, right now she is usually to tiredto do much of anything beside working :(love /Reb> >> > Hi all,> > >

> I am a new member, looking forward to learn from all the others > here!> > My wife, , was diagnosed with MS in december – and I have been> > searching for a good group or web forum whith other people afflicted> > by MS one way or the other. Seems I found it here!> > > > Now, I have one question already... has been prescribed> > Amantadine, and has been taking it for a week (2 pills every day for> > this, the first week, and after that it's supposed to be 4 pills > every> > day, according to the prescription). So far whe feels it is helping> > her with her fatigue some, even if it doesn't take it away > completely.> > She is a little concerned with possible side effects, the doctor > said> > there is virtually none, but it would help to hear from someone who> > have personal experience with that drug. >

> > > Therefor, everybody, what are your experiences with Amantadine? Side> > effects? Did/does it help you? Does it continue to help when you > have> > been on it for a while, or is it one of those drugs whose effect > tend> > to wear off when you get more used to it?> > > > love> > > > /Reb> >>

Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut.

[Guest guest]

She is certainly not alone when it comes to not liking the

unpredictability of MS. I think that is one of the worse parts of the

disease for all of us. You really can't make any plans. You basically

live day to day. You never know how you are going to feel when you

wake up.

I'm glad it was none of those other things they were thinking of

either, for both of you. Nothing like that ever entered my mind when

I went for my first MRI. I had 2 months of vertigo. The first time it

happened was June and it lasted about 2 days then went away. I

thought it was my blood pressure meds and stopped taking them. The

vertigo came back a month later but last 3 1/2 days. Nothing helped.

Not lying down, sitting, closing my eyes. I couldn't walk straight,

felt like everything was spinning. I called the dr. He said, oh it's

probably an inner ear thing, but lets send you for an MRI to rule out

anything big. Didn't think anything of it. Went back to the office

the next day by myself. I was friends with the nurse and I could tell

by the look on her face.

So I start naming all these things off. I never mentioned cancer, I

don't know why, but I didn't, she kept saying no and when I got to

MS, she didn't say a word. I was in shock. She made me call my

husband who was at home with our 4 yr old son who is also severe

ADHD/ODD and such a handful. It's strange how 4 very small words like

YOU HAVE M S can change your life forever. Like everyone says it's

not a death sentence but it is a life changing experience.

We are here for you whatever it is you need!!!

Hugs,

Peggy

> > >

> > > Hi all,

> > >

> > > I am a new member, looking forward to learn from all the others

> > here!

> > > My wife, , was diagnosed with MS in december – and I have

been

> > > searching for a good group or web forum whith other people

afflicted

> > > by MS one way or the other. Seems I found it here!

> > >

> > > Now, I have one question already... has been prescribed

> > > Amantadine, and has been taking it for a week (2 pills every

day for

> > > this, the first week, and after that it's supposed to be 4

pills

> > every

> > > day, according to the prescription). So far whe feels it is

helping

> > > her with her fatigue some, even if it doesn't take it away

> > completely.

> > > She is a little concerned with possible side effects, the

doctor

> > said

> > > there is virtually none, but it would help to hear from someone

who

> > > have personal experience with that drug.

> > >

> > > Therefor, everybody, what are your experiences with Amantadine?

Side

> > > effects? Did/does it help you? Does it continue to help when

you

> > have

> > > been on it for a while, or is it one of those drugs whose

effect

> > tend

> > > to wear off when you get more used to it?

> > >

> > > love

> > >

> > > /Reb

> > >

> >

>

[Guest guest]

I guess there are worse diseases to have than MS.I was Dx in 2003 after a 10 year battle of trying to get a Dx. My whole last pregnancy in 93 was spent on antibiotics because the doc thought I kept getting inner ear infections because of my continued dizzy spells. In 95 I spent a month being numb from the waist down, I saw a neuro, he did a CT scan and said I was fine. My primary then sent me for back xrays and I had a ulrasound of my lower body. The only thing last was found was a cyst on my ovary that went away after a few months. Eventually I got the feeling back in my legs and moved on. After a few more years of UTI's,inner ear infections and eye probs my new primary listened to me and ordered an MRI. And guess what I had 4 lesions on my brain. She then referred me to a neuro in stown and sure enough I got my DX and he figures by the lesions I had that I had MS many years probably since early 90's. My mom also had MS.Peggy

wrote: She is certainly not alone when it comes to not liking the unpredictability of MS. I think that is one of the worse parts of the disease for all of us. You really can't make any plans. You basically live day to day. You never know how you are going to feel when you wake up.I'm glad it was none of those other things they were thinking of either, for both of you. Nothing like that ever entered my mind when I went for my first MRI. I had 2 months of vertigo. The first time it

happened was June and it lasted about 2 days then went away. I thought it was my blood pressure meds and stopped taking them. The vertigo came back a month later but last 3 1/2 days. Nothing helped. Not lying down, sitting, closing my eyes. I couldn't walk straight, felt like everything was spinning. I called the dr. He said, oh it's probably an inner ear thing, but lets send you for an MRI to rule out anything big. Didn't think anything of it. Went back to the office the next day by myself. I was friends with the nurse and I could tell by the look on her face.So I start naming all these things off. I never mentioned cancer, I don't know why, but I didn't, she kept saying no and when I got to MS, she didn't say a word. I was in shock. She made me call my husband who was at home with our 4 yr old son who is also severe ADHD/ODD and such a handful. It's strange how 4 very small words like YOU HAVE M S can change

your life forever. Like everyone says it's not a death sentence but it is a life changing experience.We are here for you whatever it is you need!!!Hugs,Peggy> >

>> > > Hi all,> > > > > > I am a new member, looking forward to learn from all the others > > here!> > > My wife, , was diagnosed with MS in december – and I have been> > > searching for a good group or web forum whith other people afflicted> > > by MS one way or the other. Seems I found it here!> > > > > > Now, I have one question already... has been prescribed> > > Amantadine, and has been taking it for a week (2 pills every day for> > > this, the first week, and after that it's supposed to be 4 pills > > every> > > day, according to the prescription). So far whe feels it is helping> > > her with her fatigue some, even if it doesn't take it away > > completely.> > > She is a little concerned with possible side effects, the doctor

> > said> > > there is virtually none, but it would help to hear from someone who> > > have personal experience with that drug. > > > > > > Therefor, everybody, what are your experiences with Amantadine? Side> > > effects? Did/does it help you? Does it continue to help when you > > have> > > been on it for a while, or is it one of those drugs whose effect > > tend> > > to wear off when you get more used to it?> > > > > > love> > > > > > /Reb> > >> >>Have a great day! Joanne

Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Hi Reb:Is on one of what we call the CRAB-T drugs? That would be Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them disease modifying drugs. I was on Avonex for 5 years then decided I felt so good I didn't need it any longer. That was in 2003. Now I've had some progression and I regret my decision to stop taking Avonex injections. I do believe in the disease modifying drugs. They are especially important in early relapsing remitting MS. I'm sure has done her "research" though. (laughing). A research scientist! That's very impressive indeed. And you are going for your doctorate. How long do you have until graduation? I was on

Provigil and it worked for me but the cost did hold me back. I started on Ritalin several weeks ago and it is working very well but I saw my doctor yesterday and my blood pressure is up, a side effect of Ritalin. I may not be able to stay on this drug. We'll decide next month when I have another blood pressure check. I have high blood pressure anyway so this is bad news for me.I just sent a link to the group map if you would like to add your location (it was a post with the subject: location). And we have a birthday calendar, too. If you would to send your birthdays I would be glad to add them to the calendar. We also have a group photo section where you could put photos of you and and some of your area if you would like. I know we would all like to see some of your country. We have one member from Turkey, several from the UK, one from Central America, several from Canada and the rest from the USA. I

live in Arizona, USA. Have you ever visited the USA? I've always wanted to go to Europe but have never had the chance. My niece lived in Holland for 4 years while her husband was stationed there with our military. She loved it. Then they were stationed in London for awhile. She preferred Holland. The fatigue is awful and is hard for others to understand. When it hits me I can not stay awake. Is able to keep working as usual? I participated in a teleconference with one of our top research physicians in the field of MS and he pushed the idea of exercise being extremely important for MS. For many years MSers have been told to be careful with exercise because it can overheat your body, bringing on symptoms or a relapse. But Dr. Vollmer said it is imperative to exercise because people with MS can lose use of their muscles and it's very difficult to regain that muscle strength. In 2001 I

had hand weakness and difficulty with fine motor tasks. We moved to a farm and I started milking goats and got my hand strength back and it improved my fine motor skills as well. So needs to milk goats. (laughing)loveSharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Hi and Amantadine

Hi all,

And thanks a lot for everybody´s responses and welcomes!

Some of you mentioned Provigil, and I think that was the alternative

that 's neuro was talking about, but if I understood it correctly,

it tend to have more side effects. If Amantadine doesn't work,

however, it's something we'll have to look into more. The cost is,

luckily enough, not something we have to worry about since it's the

government and not us who pay the bill (the advantages of that system

does become more distinct when you are faced with a chronic disease

like MS...).

It's correct that we are in Sweden, Sharon (very perceptive of you!).

In the south of Sweden, to be more exact, but not in the parts that

were flooded last week (another lucky thing...). is a research

scientist in a pharmaceutical company, and I am a librarian but right

now back in college trying to get a doctorate (a dr. in the title

would give me a better shot at the librarian positions I want the most).

I think the "worst" symptom for is the fatigue, but she also gets

a tingling sensation and(or lose sensation in and sometimes lose a

little control of her left leg, that's especially when she is tired or

have walked a bit, so she always carry a cane if she is going to walk

a bit longer than usual, and/or if she knows there is a possibility

she will be tired later on (fx. she brings it with her to work, but

usually don't need it until she is leaving for home, and tired after a

days work). And she also has lost a little of her fine motor skills in

her hands. The symptoms have become worse since her last relapse (the

one that led to her getting her diagnose, in november-december last year).

This is all quite new to us, but we have begun to find our way around

it (but only just begun, though).

love

/Reb

Got a little couch potato?

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[Guest guest]

Hi Sharon,

is on Rebif, and has been since the diagnose more or less (i

believe she started right after all the december and early januari

holidays, quite soon after the verified diagnosis, but a few weeks

after the preliminary MS diagnosis).

I have a few years left til my graduation, because I chose to do the

doctorate in a " new " field (new in relation to my earlier education,

that is). I have a masters degree in library and information, and so

could have gone on a faster track towards doctorate there, but it

would mean that we would've had to move, and that's not very doable

right now.

has had a high blood pressure too – not sure if it's related to

her medication or just high anyway, probably a little bit of both

since she has a blood pressure problem running in her family. But she

managed to lower it considerable just by lowering her intake of salt!

It's still a little higher than the ideal, but not alarmingly so.

My aunt lives in Florida, US, with her husband, and her son (my

cousin) with wife and daughter also lives there (but in another city),

and my mother visited her there when she was pregnant with me, so I

guess in a sense I have visited the US too, didn't get to see much

though ; ) But after my birth I haven't been there, I would love to,

but the opportunity hasn't come along. Both my sister and my brother

are going there this year, though (but not together, my sister went

with her boyfriend last month, and my brother will go with his

girlfriend in august). My aunt visits Sweden almost eyery year, and

(my cousin) with family nearly as often, so we still get to

see them.

is able to keep working as usual, to a large part due to a

helpful and understanding employer. Apart from some workplace

adjustments, mainly aimed at helping her with the problems with her

hands, she has also been given an office of her own (at her department

the usual is that two people share an office, just like two people

also share a laboratory), with a door to close when she needs a little

peace and quiet. In addition to that, they have also put a rest chair

in her office, to use when she needs to lean back and close her eyes

for a while. If she needs to lay down for a little longer there are

sort-of bedrooms (rooms with simpler types of beds, intended for that

kind of short-time use) she can use. She has also been issued a

pocket-PC that will remind her of meatings and such, to help with her

slight problems with cognition (her stationary work-computer can do

the same, of course, but if she is in the lab, which is where she

spends most of her working hours, a reminder on the computer in her

office isn't going to do her any good...). It's probably a good thing

to work for a company that used to do MS-resaerch, I guess; Even if

they don't work in that area any more, much knowledge about MS still

exists within the organisation.

Before she started on Amantadine, though, she wanted badly to cut her

work hours a little, now the fatigue is a little better. Hopefully it

will stay that way, for as long as possible.

I have put the both of us in the birthday calender, and will look

closer at the map when I have a little more time ; )

love

/Reb

>

> Hi Reb:

>

> Is on one of what we call the CRAB-T drugs? That would be

Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them

disease modifying drugs. I was on Avonex for 5 years then decided I

felt so good I didn't need it any longer. That was in 2003. Now I've

had some progression and I regret my decision to stop taking Avonex

injections. I do believe in the disease modifying drugs. They are

especially important in early relapsing remitting MS. I'm sure

has done her " research " though. (laughing). A research scientist!

That's very impressive indeed. And you are going for your doctorate.

How long do you have until graduation?

>

> I was on Provigil and it worked for me but the cost did hold me

back. I started on Ritalin several weeks ago and it is working very

well but I saw my doctor yesterday and my blood pressure is up, a side

effect of Ritalin. I may not be able to stay on this drug. We'll

decide next month when I have another blood pressure check. I have

high blood pressure anyway so this is bad news for me.

>

> I just sent a link to the group map if you would like to add your

location (it was a post with the subject: location). And we have a

birthday calendar, too. If you would to send your birthdays I would

be glad to add them to the calendar. We also have a group photo

section where you could put photos of you and and some of your

area if you would like. I know we would all like to see some of your

country. We have one member from Turkey, several from the UK, one

from Central America, several from Canada and the rest from the USA.

I live in Arizona, USA. Have you ever visited the USA? I've always

wanted to go to Europe but have never had the chance. My niece lived

in Holland for 4 years while her husband was stationed there with our

military. She loved it. Then they were stationed in London for

awhile. She preferred Holland.

>

> The fatigue is awful and is hard for others to understand. When it

hits me I can not stay awake. Is able to keep working as usual?

>

> I participated in a teleconference with one of our top research

physicians in the field of MS and he pushed the idea of exercise being

extremely important for MS. For many years MSers have been told to be

careful with exercise because it can overheat your body, bringing on

symptoms or a relapse. But Dr. Vollmer said it is imperative to

exercise because people with MS can lose use of their muscles and it's

very difficult to regain that muscle strength. In 2001 I had hand

weakness and difficulty with fine motor tasks. We moved to a farm and

I started milking goats and got my hand strength back and it improved

my fine motor skills as well. So needs to milk goats. (laughing)

>

> love

> Sharon

>

> This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and

in no way are to be considered flaws or defects.

>

>

>

>

>

>

> Re: Hi and Amantadine

>

>

>

>

>

>

>

>

>

>

>

>

>

> Hi all,

>

>

>

> And thanks a lot for everybody´s responses and welcomes!

>

>

>

> Some of you mentioned Provigil, and I think that was the alternative

>

> that 's neuro was talking about, but if I understood it correctly,

>

> it tend to have more side effects. If Amantadine doesn't work,

>

> however, it's something we'll have to look into more. The cost is,

>

> luckily enough, not something we have to worry about since it's the

>

> government and not us who pay the bill (the advantages of that system

>

> does become more distinct when you are faced with a chronic disease

>

> like MS...).

>

>

>

> It's correct that we are in Sweden, Sharon (very perceptive of you!).

>

> In the south of Sweden, to be more exact, but not in the parts that

>

> were flooded last week (another lucky thing...). is a research

>

> scientist in a pharmaceutical company, and I am a librarian but right

>

> now back in college trying to get a doctorate (a dr. in the title

>

> would give me a better shot at the librarian positions I want the

most).

>

>

>

> I think the " worst " symptom for is the fatigue, but she also gets

>

> a tingling sensation and(or lose sensation in and sometimes lose a

>

> little control of her left leg, that's especially when she is tired or

>

> have walked a bit, so she always carry a cane if she is going to walk

>

> a bit longer than usual, and/or if she knows there is a possibility

>

> she will be tired later on (fx. she brings it with her to work, but

>

> usually don't need it until she is leaving for home, and tired after a

>

> days work). And she also has lost a little of her fine motor skills in

>

> her hands. The symptoms have become worse since her last relapse (the

>

> one that led to her getting her diagnose, in november-december last

year).

>

>

>

> This is all quite new to us, but we have begun to find our way around

>

> it (but only just begun, though).

>

>

>

> love

>

>

>

> /Reb

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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____

> Moody friends. Drama queens. Your life? Nope! - their life, your

story. Play Sims Stories at Yahoo! Games.

> http://sims.yahoo.com/

>

[Guest guest]

Sounds like is a lucky girl. My boss is the most uncaring in the world about my disease. She feels if you cant do your job then you dont belong here. I do work for the state of NY and Im sure with a BIG fight I could get somemore accomodations. I did manage to get a chair available for me to sit in if needed. that took months of paperwork, doctors notes etc. I also did take a different job that I can be in AC, but that was just lucky it came along when it did. reb_41se wrote: Hi Sharon, is

on Rebif, and has been since the diagnose more or less (ibelieve she started right after all the december and early januariholidays, quite soon after the verified diagnosis, but a few weeksafter the preliminary MS diagnosis).I have a few years left til my graduation, because I chose to do thedoctorate in a "new" field (new in relation to my earlier education,that is). I have a masters degree in library and information, and socould have gone on a faster track towards doctorate there, but itwould mean that we would've had to move, and that's not very doableright now. has had a high blood pressure too – not sure if it's related toher medication or just high anyway, probably a little bit of bothsince she has a blood pressure problem running in her family. But shemanaged to lower it considerable just by lowering her intake of salt!It's still a little higher than the ideal, but not alarmingly so. My

aunt lives in Florida, US, with her husband, and her son (mycousin) with wife and daughter also lives there (but in another city),and my mother visited her there when she was pregnant with me, so Iguess in a sense I have visited the US too, didn't get to see muchthough ; ) But after my birth I haven't been there, I would love to,but the opportunity hasn't come along. Both my sister and my brotherare going there this year, though (but not together, my sister wentwith her boyfriend last month, and my brother will go with hisgirlfriend in august). My aunt visits Sweden almost eyery year, and (my cousin) with family nearly as often, so we still get tosee them. is able to keep working as usual, to a large part due to ahelpful and understanding employer. Apart from some workplaceadjustments, mainly aimed at helping her with the problems with herhands, she has also been given an office of her own (at her

departmentthe usual is that two people share an office, just like two peoplealso share a laboratory), with a door to close when she needs a littlepeace and quiet. In addition to that, they have also put a rest chairin her office, to use when she needs to lean back and close her eyesfor a while. If she needs to lay down for a little longer there aresort-of bedrooms (rooms with simpler types of beds, intended for thatkind of short-time use) she can use. She has also been issued apocket-PC that will remind her of meatings and such, to help with herslight problems with cognition (her stationary work-computer can dothe same, of course, but if she is in the lab, which is where shespends most of her working hours, a reminder on the computer in heroffice isn't going to do her any good...). It's probably a good thingto work for a company that used to do MS-resaerch, I guess; Even ifthey don't work in that area any more, much

knowledge about MS stillexists within the organisation. Before she started on Amantadine, though, she wanted badly to cut herwork hours a little, now the fatigue is a little better. Hopefully itwill stay that way, for as long as possible.I have put the both of us in the birthday calender, and will lookcloser at the map when I have a little more time ; )love/Reb >> Hi Reb:> > Is on one of what we call the CRAB-T drugs? That would beCopaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call themdisease modifying drugs. I was on Avonex for 5 years then decided Ifelt so good I didn't need it any longer. That was in 2003. Now I'vehad some progression and I regret my decision to stop taking Avonexinjections. I do believe in the

disease modifying drugs. They areespecially important in early relapsing remitting MS. I'm sure has done her "research" though. (laughing). A research scientist! That's very impressive indeed. And you are going for your doctorate.How long do you have until graduation? > > I was on Provigil and it worked for me but the cost did hold meback. I started on Ritalin several weeks ago and it is working verywell but I saw my doctor yesterday and my blood pressure is up, a sideeffect of Ritalin. I may not be able to stay on this drug. We'lldecide next month when I have another blood pressure check. I havehigh blood pressure anyway so this is bad news for me.> > I just sent a link to the group map if you would like to add yourlocation (it was a post with the subject: location). And we have abirthday calendar, too. If you would to send your birthdays I wouldbe glad to add them to the calendar. We also

have a group photosection where you could put photos of you and and some of yourarea if you would like. I know we would all like to see some of yourcountry. We have one member from Turkey, several from the UK, onefrom Central America, several from Canada and the rest from the USA. I live in Arizona, USA. Have you ever visited the USA? I've alwayswanted to go to Europe but have never had the chance. My niece livedin Holland for 4 years while her husband was stationed there with ourmilitary. She loved it. Then they were stationed in London forawhile. She preferred Holland. > > The fatigue is awful and is hard for others to understand. When ithits me I can not stay awake. Is able to keep working as usual? > > I participated in a teleconference with one of our top researchphysicians in the field of MS and he pushed the idea of exercise beingextremely important for MS. For many years MSers

have been told to becareful with exercise because it can overheat your body, bringing onsymptoms or a relapse. But Dr. Vollmer said it is imperative toexercise because people with MS can lose use of their muscles and it'svery difficult to regain that muscle strength. In 2001 I had handweakness and difficulty with fine motor tasks. We moved to a farm andI started milking goats and got my hand strength back and it improvedmy fine motor skills as well. So needs to milk goats. (laughing)> > love> Sharon> > This email is a natural hand made product. The slight variations inspelling and grammar enhance its individual character and beauty andin no way are to be considered flaws or defects.> > > > > > > Re: Hi and Amantadine> > > > > > > > > > > > > > Hi all,> > > > And thanks a lot for everybody´s responses and welcomes!> > > > Some of you mentioned Provigil, and I think that was the alternative> > that 's neuro was talking about, but if I understood it correctly,> > it tend to have more side effects. If Amantadine doesn't work,> > however, it's something we'll have to look into more. The cost is,> > luckily enough, not something we have to worry about since it's the> > government and not us who pay the bill (the advantages of that system> > does become more distinct when you are faced

with a chronic disease> > like MS...).> > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > In the south of Sweden, to be more exact, but not in the parts that> > were flooded last week (another lucky thing...). is a research> > scientist in a pharmaceutical company, and I am a librarian but right> > now back in college trying to get a doctorate (a dr. in the title> > would give me a better shot at the librarian positions I want themost). > > > > I think the "worst" symptom for is the fatigue, but she also gets> > a tingling sensation and(or lose sensation in and sometimes lose a> > little control of her left leg, that's especially when she is tired or> > have walked a bit, so she always carry a cane if she is going to walk> > a bit longer

than usual, and/or if she knows there is a possibility> > she will be tired later on (fx. she brings it with her to work, but> > usually don't need it until she is leaving for home, and tired after a> > days work). And she also has lost a little of her fine motor skills in> > her hands. The symptoms have become worse since her last relapse (the> > one that led to her getting her diagnose, in november-december lastyear).> > > > This is all quite new to us, but we have begun to find our way around> > it (but only just begun, though). > > > > love> > > > /Reb> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica,

clean,sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}> #ygrp-tpmsgs{> font-family:Arial;> clear:both;}> #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px0;white-space:nowrap;color:#666;text-align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px

0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666;> padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee;> }> #ygrp-vital ul li .ct{>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a {> text-decoration:none;}> >

#ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}> #ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{> list-style-type:square;padding:6px 0;font-size:77%;}> #ygrp-sponsor #ov li a{> text-decoration:none;font-size:130%;}> #ygrp-sponsor #nc {> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{>

text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0;}> .MsoNormal {> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq {margin:4;}> -->> > > > > > > > > >__________________________________________________________> Moody friends. Drama queens. Your life? Nope! - their life, yourstory. Play Sims Stories at Yahoo! Games.> http://sims.yahoo.com/>Have a great day! Joanne

Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends.

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I got such a laugh out of this: "my mother visited her there when she was pregnant with me, so I guess in a sense I have visited the US too, didn't get to see much though ; )" No, I don't guess you would have seen much. LOL How wonderful 's employer sounds. They've certainly helped out a lot, haven't they? That's great. ) Challis reb_41se wrote: Hi Sharon, is on Rebif, and

has been since the diagnose more or less (ibelieve she started right after all the december and early januariholidays, quite soon after the verified diagnosis, but a few weeksafter the preliminary MS diagnosis).I have a few years left til my graduation, because I chose to do thedoctorate in a "new" field (new in relation to my earlier education,that is). I have a masters degree in library and information, and socould have gone on a faster track towards doctorate there, but itwould mean that we would've had to move, and that's not very doableright now. has had a high blood pressure too – not sure if it's related toher medication or just high anyway, probably a little bit of bothsince she has a blood pressure problem running in her family. But shemanaged to lower it considerable just by lowering her intake of salt!It's still a little higher than the ideal, but not alarmingly so. My aunt lives in

Florida, US, with her husband, and her son (mycousin) with wife and daughter also lives there (but in another city),and my mother visited her there when she was pregnant with me, so Iguess in a sense I have visited the US too, didn't get to see muchthough ; ) But after my birth I haven't been there, I would love to,but the opportunity hasn't come along. Both my sister and my brotherare going there this year, though (but not together, my sister wentwith her boyfriend last month, and my brother will go with hisgirlfriend in august). My aunt visits Sweden almost eyery year, and (my cousin) with family nearly as often, so we still get tosee them. is able to keep working as usual, to a large part due to ahelpful and understanding employer. Apart from some workplaceadjustments, mainly aimed at helping her with the problems with herhands, she has also been given an office of her own (at her departmentthe

usual is that two people share an office, just like two peoplealso share a laboratory), with a door to close when she needs a littlepeace and quiet. In addition to that, they have also put a rest chairin her office, to use when she needs to lean back and close her eyesfor a while. If she needs to lay down for a little longer there aresort-of bedrooms (rooms with simpler types of beds, intended for thatkind of short-time use) she can use. She has also been issued apocket-PC that will remind her of meatings and such, to help with herslight problems with cognition (her stationary work-computer can dothe same, of course, but if she is in the lab, which is where shespends most of her working hours, a reminder on the computer in heroffice isn't going to do her any good...). It's probably a good thingto work for a company that used to do MS-resaerch, I guess; Even ifthey don't work in that area any more, much knowledge about MS

stillexists within the organisation. Before she started on Amantadine, though, she wanted badly to cut herwork hours a little, now the fatigue is a little better. Hopefully itwill stay that way, for as long as possible.I have put the both of us in the birthday calender, and will lookcloser at the map when I have a little more time ; )love/Reb >> Hi Reb:> > Is on one of what we call the CRAB-T drugs? That would beCopaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call themdisease modifying drugs. I was on Avonex for 5 years then decided Ifelt so good I didn't need it any longer. That was in 2003. Now I'vehad some progression and I regret my decision to stop taking Avonexinjections. I do believe in the disease modifying

drugs. They areespecially important in early relapsing remitting MS. I'm sure has done her "research" though. (laughing). A research scientist! That's very impressive indeed. And you are going for your doctorate.How long do you have until graduation? > > I was on Provigil and it worked for me but the cost did hold meback. I started on Ritalin several weeks ago and it is working verywell but I saw my doctor yesterday and my blood pressure is up, a sideeffect of Ritalin. I may not be able to stay on this drug. We'lldecide next month when I have another blood pressure check. I havehigh blood pressure anyway so this is bad news for me.> > I just sent a link to the group map if you would like to add yourlocation (it was a post with the subject: location). And we have abirthday calendar, too. If you would to send your birthdays I wouldbe glad to add them to the calendar. We also have a group

photosection where you could put photos of you and and some of yourarea if you would like. I know we would all like to see some of yourcountry. We have one member from Turkey, several from the UK, onefrom Central America, several from Canada and the rest from the USA. I live in Arizona, USA. Have you ever visited the USA? I've alwayswanted to go to Europe but have never had the chance. My niece livedin Holland for 4 years while her husband was stationed there with ourmilitary. She loved it. Then they were stationed in London forawhile. She preferred Holland. > > The fatigue is awful and is hard for others to understand. When ithits me I can not stay awake. Is able to keep working as usual? > > I participated in a teleconference with one of our top researchphysicians in the field of MS and he pushed the idea of exercise beingextremely important for MS. For many years MSers have been told

to becareful with exercise because it can overheat your body, bringing onsymptoms or a relapse. But Dr. Vollmer said it is imperative toexercise because people with MS can lose use of their muscles and it'svery difficult to regain that muscle strength. In 2001 I had handweakness and difficulty with fine motor tasks. We moved to a farm andI started milking goats and got my hand strength back and it improvedmy fine motor skills as well. So needs to milk goats. (laughing)> > love> Sharon> > This email is a natural hand made product. The slight variations inspelling and grammar enhance its individual character and beauty andin no way are to be considered flaws or defects.> > > > > > > Re: Hi and Amantadine> > > > > > > > > > > > > > Hi all,> > > > And thanks a lot for everybody´s responses and welcomes!> > > > Some of you mentioned Provigil, and I think that was the alternative> > that 's neuro was talking about, but if I understood it correctly,> > it tend to have more side effects. If Amantadine doesn't work,> > however, it's something we'll have to look into more. The cost is,> > luckily enough, not something we have to worry about since it's the> > government and not us who pay the bill (the advantages of that system> > does become more distinct when you are faced

with a chronic disease> > like MS...).> > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > In the south of Sweden, to be more exact, but not in the parts that> > were flooded last week (another lucky thing...). is a research> > scientist in a pharmaceutical company, and I am a librarian but right> > now back in college trying to get a doctorate (a dr. in the title> > would give me a better shot at the librarian positions I want themost). > > > > I think the "worst" symptom for is the fatigue, but she also gets> > a tingling sensation and(or lose sensation in and sometimes lose a> > little control of her left leg, that's especially when she is tired or> > have walked a bit, so she always carry a cane if she is going to walk> > a bit longer

than usual, and/or if she knows there is a possibility> > she will be tired later on (fx. she brings it with her to work, but> > usually don't need it until she is leaving for home, and tired after a> > days work). And she also has lost a little of her fine motor skills in> > her hands. The symptoms have become worse since her last relapse (the> > one that led to her getting her diagnose, in november-december lastyear).> > > > This is all quite new to us, but we have begun to find our way around> > it (but only just begun, though). > > > > love> > > > /Reb> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica,

clean,sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}> #ygrp-tpmsgs{> font-family:Arial;> clear:both;}> #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px0;white-space:nowrap;color:#666;text-align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px

0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666;> padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee;> }> #ygrp-vital ul li .ct{>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a {> text-decoration:none;}> >

#ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}> #ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{> list-style-type:square;padding:6px 0;font-size:77%;}> #ygrp-sponsor #ov li a{> text-decoration:none;font-size:130%;}> #ygrp-sponsor #nc {> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{>

text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0;}> .MsoNormal {> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq {margin:4;}> -->> > > > > > > > > >__________________________________________________________> Moody friends. Drama queens. Your life? Nope! - their life, yourstory. Play Sims Stories at Yahoo! Games.> http://sims.yahoo.com/>

Need Mail bonding?Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users.

[Guest guest]

I am sorry to hear that! almost felt that they were doing to much

accomodations for her, since she wasn't sure she needed them all, but

their response to that was that " When the day come that you need it,

you may not have the energy to ask for it, so why not make sure it's

already in place by then? " The physical therapist at her work (who's

job it is to help the employers with everything from chosing the desk

and desk chair that is most right, most ergonomical, for them, to work

place adjustments in cases such as 's) that helped her with

assesing her needs and trying out the new equipment also convinced her

that these things will help her, and in retrospect she feels that it

has been helpful.

The company does have a general policy of doing whatever they can to

keep the employers happy, the idea is to get and keep a reputation of

being a good empoyer, and thus have a head start over competitors when

they need to recruit – probably not a bad idea.

love

/Reb

> >

> > Hi Reb:

> >

> > Is on one of what we call the CRAB-T drugs? That would be

> Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them

> disease modifying drugs. I was on Avonex for 5 years then decided I

> felt so good I didn't need it any longer. That was in 2003. Now I've

> had some progression and I regret my decision to stop taking Avonex

> injections. I do believe in the disease modifying drugs. They are

> especially important in early relapsing remitting MS. I'm sure

> has done her " research " though. (laughing). A research scientist!

> That's very impressive indeed. And you are going for your doctorate.

> How long do you have until graduation?

> >

> > I was on Provigil and it worked for me but the cost did hold me

> back. I started on Ritalin several weeks ago and it is working very

> well but I saw my doctor yesterday and my blood pressure is up, a side

> effect of Ritalin. I may not be able to stay on this drug. We'll

> decide next month when I have another blood pressure check. I have

> high blood pressure anyway so this is bad news for me.

> >

> > I just sent a link to the group map if you would like to add your

> location (it was a post with the subject: location). And we have a

> birthday calendar, too. If you would to send your birthdays I would

> be glad to add them to the calendar. We also have a group photo

> section where you could put photos of you and and some of your

> area if you would like. I know we would all like to see some of your

> country. We have one member from Turkey, several from the UK, one

> from Central America, several from Canada and the rest from the USA.

> I live in Arizona, USA. Have you ever visited the USA? I've always

> wanted to go to Europe but have never had the chance. My niece lived

> in Holland for 4 years while her husband was stationed there with our

> military. She loved it. Then they were stationed in London for

> awhile. She preferred Holland.

> >

> > The fatigue is awful and is hard for others to understand. When it

> hits me I can not stay awake. Is able to keep working as usual?

> >

> > I participated in a teleconference with one of our top research

> physicians in the field of MS and he pushed the idea of exercise being

> extremely important for MS. For many years MSers have been told to be

> careful with exercise because it can overheat your body, bringing on

> symptoms or a relapse. But Dr. Vollmer said it is imperative to

> exercise because people with MS can lose use of their muscles and it's

> very difficult to regain that muscle strength. In 2001 I had hand

> weakness and difficulty with fine motor tasks. We moved to a farm and

> I started milking goats and got my hand strength back and it improved

> my fine motor skills as well. So needs to milk goats. (laughing)

> >

> > love

> > Sharon

> >

> > This email is a natural hand made product. The slight variations in

> spelling and grammar enhance its individual character and beauty and

> in no way are to be considered flaws or defects.

> >

> >

> >

> >

> >

> >

> > Re: Hi and Amantadine

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi all,

> >

> >

> >

> > And thanks a lot for everybody´s responses and welcomes!

> >

> >

> >

> > Some of you mentioned Provigil, and I think that was the alternative

> >

> > that 's neuro was talking about, but if I understood it correctly,

> >

> > it tend to have more side effects. If Amantadine doesn't work,

> >

> > however, it's something we'll have to look into more. The cost is,

> >

> > luckily enough, not something we have to worry about since it's the

> >

> > government and not us who pay the bill (the advantages of that system

> >

> > does become more distinct when you are faced with a chronic disease

> >

> > like MS...).

> >

> >

> >

> > It's correct that we are in Sweden, Sharon (very perceptive of you!).

> >

> > In the south of Sweden, to be more exact, but not in the parts that

> >

> > were flooded last week (another lucky thing...). is a research

> >

> > scientist in a pharmaceutical company, and I am a librarian but right

> >

> > now back in college trying to get a doctorate (a dr. in the title

> >

> > would give me a better shot at the librarian positions I want the

> most).

> >

> >

> >

> > I think the " worst " symptom for is the fatigue, but she also gets

> >

> > a tingling sensation and(or lose sensation in and sometimes lose a

> >

> > little control of her left leg, that's especially when she is tired or

> >

> > have walked a bit, so she always carry a cane if she is going to walk

> >

> > a bit longer than usual, and/or if she knows there is a possibility

> >

> > she will be tired later on (fx. she brings it with her to work, but

> >

> > usually don't need it until she is leaving for home, and tired after a

> >

> > days work). And she also has lost a little of her fine motor skills in

> >

> > her hands. The symptoms have become worse since her last relapse (the

> >

> > one that led to her getting her diagnose, in november-december last

> year).

> >

> >

> >

> > This is all quite new to us, but we have begun to find our way around

> >

> > it (but only just begun, though).

> >

> >

> >

> > love

> >

> >

> >

> > /Reb

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > <!--

> >

> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

> sans-serif;}

> > #ygrp-mlmsg table {font-size:inherit;font:100%;}

> > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

> clean, sans-serif;}

> > #ygrp-mlmsg pre, code {font:115% monospace;}

> > #ygrp-mlmsg * {line-height:1.22em;}

> > #ygrp-text{

> > font-family:Georgia;

> > }

> > #ygrp-text p{

> > margin:0 0 1em 0;}

> > #ygrp-tpmsgs{

> > font-family:Arial;

> > clear:both;}

> > #ygrp-vitnav{

> > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> > #ygrp-vitnav a{

> > padding:0 1px;}

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> 0;white-space:nowrap;color:#666;text-align:right;}

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> > float:left;white-space:nowrap;}

> > .bld{font-weight:bold;}

> > #ygrp-grft{

> > font-family:Verdana;font-size:77%;padding:15px 0;}

> > #ygrp-ft{

> > font-family:verdana;font-size:77%;border-top:1px solid #666;

> > padding:5px 0;

> > }

> > #ygrp-mlmsg #logo{

> > padding-bottom:10px;}

> >

> > #ygrp-vital{

> > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

> > #ygrp-vital #vithd{

> >

>

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\

ercase;}

> > #ygrp-vital ul{

> > padding:0;margin:2px 0;}

> > #ygrp-vital ul li{

> > list-style-type:none;clear:both;border:1px solid #e0ecee;

> > }

> > #ygrp-vital ul li .ct{

> >

>

font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\

ght:.5em;}

> > #ygrp-vital ul li .cat{

> > font-weight:bold;}

> > #ygrp-vital a {

> > text-decoration:none;}

> >

> > #ygrp-vital a:hover{

> > text-decoration:underline;}

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> > color:#999;font-size:77%;}

> > #ygrp-sponsor #ov{

> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > #ygrp-sponsor #ov ul{

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> > list-style-type:square;padding:6px 0;font-size:77%;}

> > #ygrp-sponsor #ov li a{

> > text-decoration:none;font-size:130%;}

> > #ygrp-sponsor #nc {

> > background-color:#eee;margin-bottom:20px;padding:0 8px;}

> > #ygrp-sponsor .ad{

> > padding:8px 0;}

> > #ygrp-sponsor .ad #hd1{

> >

>

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\

;}

> > #ygrp-sponsor .ad a{

> > text-decoration:none;}

> > #ygrp-sponsor .ad a:hover{

> > text-decoration:underline;}

> > #ygrp-sponsor .ad p{

> > margin:0;}

> > o {font-size:0;}

> > .MsoNormal {

> > margin:0 0 0 0;}

> > #ygrp-text tt{

> > font-size:120%;}

> > blockquote{margin:0 0 0 4px;}

> > .replbq {margin:4;}

> > -->

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> __________________________________________________________

> > Moody friends. Drama queens. Your life? Nope! - their life, your

> story. Play Sims Stories at Yahoo! Games.

> > http://sims.yahoo.com/

> >

>

>

>

>

>

>

> Have a great day! Joanne

>

> ---------------------------------

> Don't be flakey. Get Yahoo! Mail for Mobile and

> always stay connected to friends.

>

[Guest guest]

Reb,

European nations are light years ahead of

the US

with accommodations. The maternity leave time in Germany is 14 weeks with 100% of

pay and benefits. In the US,

it is unpaid leave or your vacation time. Many of the teachers I work with come

back from having a baby after just a few weeks because they can’t afford

to stay home.

I asked my neurologist for a letter stating that I needed to stay indoors

during the cold months—in Texas

that is about 3. I stand outside for duty every morning waiting for students. It

is very hard for me to walk after that. My legs need about an hour to work

right again. The neuro said she is worried my employer will use it against me

in evaluations or promotions. The teacher who assigns duties won’t allow

me to stay on indoor duty. She gets headaches in the cold was her answer.

Luckily on bitter cold days, my wonderful friends switch with me and let me

stay in. Our society looks at a disability as a liability. Sad!!

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of reb_41se

Sent: Thursday, July 12, 2007 7:28

AM

To: MSersLife

Subject: Re: Hi and

Amantadine

I am sorry to hear that! almost felt that they

were doing to much

accomodations for her, since she wasn't sure she needed them all, but

their response to that was that " When the day come that you need it,

you may not have the energy to ask for it, so why not make sure it's

already in place by then? " The physical therapist at her work (who's

job it is to help the employers with everything from chosing the desk

and desk chair that is most right, most ergonomical, for them, to work

place adjustments in cases such as 's) that helped her with

assesing her needs and trying out the new equipment also convinced her

that these things will help her, and in retrospect she feels that it

has been helpful.

The company does have a general policy of doing whatever they can to

keep the employers happy, the idea is to get and keep a reputation of

being a good empoyer, and thus have a head start over competitors when

they need to recruit – probably not a bad idea.

love

/Reb

> >

> > Hi Reb:

> >

> > Is on one of what we call the CRAB-T drugs? That would be

> Copaxone, Rebif, Avonex, Betaseron or Tysabri. Some doctors call them

> disease modifying drugs. I was on Avonex for 5 years then decided I

> felt so good I didn't need it any longer. That was in 2003. Now I've

> had some progression and I regret my decision to stop taking Avonex

> injections. I do believe in the disease modifying drugs. They are

> especially important in early relapsing remitting MS. I'm sure

> has done her " research " though. (laughing). A research

scientist!

> That's very impressive indeed. And you are going for your doctorate.

> How long do you have until graduation?

> >

> > I was on Provigil and it worked for me but the cost did hold me

> back. I started on Ritalin several weeks ago and it is working very

> well but I saw my doctor yesterday and my blood pressure is up, a side

> effect of Ritalin. I may not be able to stay on this drug. We'll

> decide next month when I have another blood pressure check. I have

> high blood pressure anyway so this is bad news for me.

> >

> > I just sent a link to the group map if you would like to add your

> location (it was a post with the subject: location). And we have a

> birthday calendar, too. If you would to send your birthdays I would

> be glad to add them to the calendar. We also have a group photo

> section where you could put photos of you and and some of your

> area if you would like. I know we would all like to see some of your

> country. We have one member from Turkey,

several from the UK,

one

> from Central America, several from Canada

and the rest from the USA.

> I live in Arizona, USA. Have you

ever visited the USA?

I've always

> wanted to go to Europe but have never had

the chance. My niece lived

> in Holland

for 4 years while her husband was stationed there with our

> military. She loved it. Then they were stationed in London for

> awhile. She preferred Holland.

> >

> > The fatigue is awful and is hard for others to understand. When it

> hits me I can not stay awake. Is able to keep working as usual?

> >

> > I participated in a teleconference with one of our top research

> physicians in the field of MS and he pushed the idea of exercise being

> extremely important for MS. For many years MSers have been told to be

> careful with exercise because it can overheat your body, bringing on

> symptoms or a relapse. But Dr. Vollmer said it is imperative to

> exercise because people with MS can lose use of their muscles and it's

> very difficult to regain that muscle strength. In 2001 I had hand

> weakness and difficulty with fine motor tasks. We moved to a farm and

> I started milking goats and got my hand strength back and it improved

> my fine motor skills as well. So needs to milk goats. (laughing)

> >

> > love

> > Sharon

> >

> > This email is a natural hand made product. The slight variations in

> spelling and grammar enhance its individual character and beauty and

> in no way are to be considered flaws or defects.

> >

> >

> >

> >

> >

> >

> > Re: Hi and Amantadine

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi all,

> >

> >

> >

> > And thanks a lot for everybody´s responses and welcomes!

> >

> >

> >

> > Some of you mentioned Provigil, and I think that was the alternative

> >

> > that 's neuro was talking about, but if I understood it

correctly,

> >

> > it tend to have more side effects. If Amantadine doesn't work,

> >

> > however, it's something we'll have to look into more. The cost is,

> >

> > luckily enough, not something we have to worry about since it's the

> >

> > government and not us who pay the bill (the advantages of that system

> >

> > does become more distinct when you are faced with a chronic disease

> >

> > like MS...).

> >

> >

> >

> > It's correct that we are in Sweden,

Sharon (very

perceptive of you!).

> >

> > In the south of Sweden,

to be more exact, but not in the parts that

> >

> > were flooded last week (another lucky thing...). is a research

> >

> > scientist in a pharmaceutical company, and I am a librarian but right

> >

> > now back in college trying to get a doctorate (a dr. in the title

> >

> > would give me a better shot at the librarian positions I want the

> most).

> >

> >

> >

> > I think the " worst " symptom for is the fatigue, but

she also gets

> >

> > a tingling sensation and(or lose sensation in and sometimes lose a

> >

> > little control of her left leg, that's especially when she is tired

or

> >

> > have walked a bit, so she always carry a cane if she is going to walk

> >

> > a bit longer than usual, and/or if she knows there is a possibility

> >

> > she will be tired later on (fx. she brings it with her to work, but

> >

> > usually don't need it until she is leaving for home, and tired after

a

> >

> > days work). And she also has lost a little of her fine motor skills

in

> >

> > her hands. The symptoms have become worse since her last relapse (the

> >

> > one that led to her getting her diagnose, in november-december last

> year).

> >

> >

> >

> > This is all quite new to us, but we have begun to find our way around

> >

> > it (but only just begun, though).

> >

> >

> >

> > love

> >

> >

> >

> > /Reb

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > <!--

> >

> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica,

clean,

> sans-serif;}

> > #ygrp-mlmsg table {font-size:inherit;font:100%;}

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> > #ygrp-vital a {

> > text-decoration:none;}

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> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> > #ygrp-sponsor #ov ul{

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> > #ygrp-sponsor #nc {

> > background-color:#eee;margin-bottom:20px;padding:0

8px;}

> > #ygrp-sponsor .ad{

> > padding:8px 0;}

> > #ygrp-sponsor .ad #hd1{

> >

>

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}

> > #ygrp-sponsor .ad a{

> > text-decoration:none;}

> > #ygrp-sponsor .ad a:hover{

> > text-decoration:underline;}

> > #ygrp-sponsor .ad p{

> > margin:0;}

> > o {font-size:0;}

> > .MsoNormal {

> > margin:0 0 0 0;}

> > #ygrp-text tt{

> > font-size:120%;}

> > blockquote{margin:0 0 0 4px;}

> > .replbq {margin:4;}

> > -->

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> __________________________________________________________

> > Moody friends. Drama queens. Your life? Nope! - their life, your

> story. Play Sims Stories at Yahoo! Games.

> > http://sims.yahoo.com/

> >

>

>

>

>

>

>

> Have a great day! Joanne

>

> ---------------------------------

> Don't be flakey. Get Yahoo! Mail for Mobile

and

> always stay connected to friends.

>

[Guest guest]

Reb~

What a blessing it is for to have such a supportive work force behind her. Sounds like their motto is the one that all companies should adopt. It's not the case for most companies in general.

By the way. I'm Valene (Val). I have forgotten all my manners and properly introduced myself and welcoming you and to the group. Please forgive me. I also have RRMS, though it seems to have progressed the last 7-8 years.

You have joined the best MS group on the web, as far as I'm concerned. And I hope you enjoy your stay here as long as you want to be here.

May God bless you and yours....Val @};-

I have no greater joy than to hear that my children walk in truth. 3rd 1:4

Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > that 's neuro was talking about, but if I understood it correctly,> > > > it tend to have more side effects. If Amantadine doesn't work,> > > > however, it's something we'll have to look into more. The cost is,> > > > luckily enough, not something we have to worry about since it's the> > > > government and not us who pay the bill (the advantages of that system> > > > does become more distinct when you are faced with a chronic disease> > > > like MS...).> > > > > > > > It's correct that we are in Sweden, Sharon (very perceptive of you!).> > > > In the south of Sweden, to be more exact, but not in the parts that> > > > were flooded last week (another lucky thing...). is a research> > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > now back in college trying to get a doctorate (a dr. in the title> > > > would give me a better shot at the librarian positions I want the> most). > > > > > > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > little control of her left leg, that's especially when she is tired or> > > > have walked a bit, so she always carry a cane if she is going to walk> > > > a bit longer than usual, and/or if she knows there is a possibility> > > > she will be tired later on (fx. she brings it with her to work, but> > > > usually don't need it until she is leaving for home, and tired after a> > > > days work). And she also has lost a little of her fine motor skills in> > > > her hands. The symptoms have become worse since her last relapse (the> > > > one that led to her getting her diagnose, in november-december last> year).> > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > it (but only just begun, though). > > > > > > > > love> > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!--> > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> sans-serif;}> > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> clean, sans-serif;}> > #ygrp-mlmsg pre, code {font:115% monospace;}> > #ygrp-mlmsg * {line-height:1.22em;}> > #ygrp-text{> > font-family:Georgia;> > }> > #ygrp-text p{> > margin:0 0 1em 0;}> > #ygrp-tpmsgs{> > font-family:Arial;> > clear:both;}> > #ygrp-vitnav{> > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > #ygrp-vitnav a{> > padding:0 1px;}> > #ygrp-actbar{> > clear:both;margin:25px> 0;white-space:nowrap;color:#666;text-align:right;}> > #ygrp-actbar .left{> > float:left;white-space:nowrap;}> > .bld{font-weight:bold;}> > #ygrp-grft{> > font-family:Verdana;font-size:77%;padding:15px 0;}> > #ygrp-ft{> > font-family:verdana;font-size:77%;border-top:1px solid #666;> > padding:5px 0;> > }> > #ygrp-mlmsg #logo{> > padding-bottom:10px;}> > > > #ygrp-vital{> > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > #ygrp-vital #vithd{> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > #ygrp-vital ul{> > padding:0;margin:2px 0;}> > #ygrp-vital ul li{> > list-style-type:none;clear:both;border:1px solid #e0ecee;> > }> > #ygrp-vital ul li .ct{> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > #ygrp-vital ul li .cat{> > font-weight:bold;}> > #ygrp-vital a {> > text-decoration:none;}> > > > #ygrp-vital a:hover{> > text-decoration:underline;}> > > > #ygrp-sponsor #hd{> > color:#999;font-size:77%;}> > #ygrp-sponsor #ov{> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > #ygrp-sponsor #ov ul{> > padding:0 0 0 8px;margin:0;}> > #ygrp-sponsor #ov li{> > list-style-type:square;padding:6px 0;font-size:77%;}> > #ygrp-sponsor #ov li a{> > text-decoration:none;font-size:130%;}> > #ygrp-sponsor #nc {> > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > #ygrp-sponsor .ad{> > padding:8px 0;}> > #ygrp-sponsor .ad #hd1{> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > #ygrp-sponsor .ad a{> > text-decoration:none;}> > #ygrp-sponsor .ad a:hover{> > text-decoration:underline;}> > #ygrp-sponsor .ad p{> > margin:0;}> > o {font-size:0;}> > .MsoNormal {> > margin:0 0 0 0;}> > #ygrp-text tt{> > font-size:120%;}> > blockquote{margin:0 0 0 4px;}> > .replbq {margin:4;}> > -->> > > > > > > > > > > > > > > > > > > >> __________________________________________________________> > Moody friends. Drama queens. Your life? Nope! - their life, your> story. Play Sims Stories at Yahoo! Games.> > http://sims.yahoo.com/> >> > > > > > > Have a great day! Joanne> > ---------------------------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends.>

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.10.2/894 - Release Date: 7/10/07 5:44 PM

[Guest guest]

Connie, and all, if only we all just CARED about one another, we would not even

NEED laws to enforce common decency and consideration. We are sorely lacking

in common decency in this nation at this time. I am so sorry to read all that has be

fallen you, but very glad that you chose to post about it. We all need to understand

this!

Love to you, Connie,

n

--------- Re: Hi and Amantadine> > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi all,> > > > > > > > And thanks a lot for everybody´s responses and welcomes!> > > > > > > > Some of you mentioned Provigil, and I think that was the alternative> > > > that 's neuro was talking about, but if I understood it correctly,> > > > it tend to have more side effects. If Amantadine doesn't work,> > > > however, it's something we'll have to look into more. The cost is,> > > > luckily enough, not something we have to worry about since it's the> > > > government and not us who pay the bill (the advantages of that system> > > > does become more distinct when you are faced with a chronic disease> > > > like MS...).> > > > > > > > It's correct that we are in Sweden, Sharon (very perceptiv

e of you!).> > > > In the south of Sweden, to be more exact, but not in the parts that> > > > were flooded last week (another lucky thing...). is a research> > > > scientist in a pharmaceutical company, and I am a librarian but right> > > > now back in college trying to get a doctorate (a dr. in the title> > > > would give me a better shot at the librarian positions I want the> most). > > > > > > > > I think the "worst" symptom for is the fatigue, but she also gets> > > > a tingling sensation and(or lose sensation in and sometimes lose a> > > > little control of her left leg, that's especially when she is tired or> > > > have walked a bit, so she always carry a cane if she is going to walk> > > > a bit longer than usual, and/or

if she knows there is a possibility> > > > she will be tired later on (fx. she brings it with her to work, but> > > > usually don't need it until she is leaving for home, and tired after a> > > > days work). And she also has lost a little of her fine motor skills in> > > > her hands. The symptoms have become worse since her last relapse (the> > > > one that led to her getting her diagnose, in november-december last> year).> > > > > > > > This is all quite new to us, but we have begun to find our way around> > > > it (but only just begun, though). > > > > > > > > love> > > > > > > > /Reb> > > > > > > > > > > > > > > > > > > > > > BR>> > > > > > > > <!--> > > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,> sans-serif;}> > #ygrp-mlmsg table {font-size:inherit;font:100%;}> > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,> clean, sans-serif;}> > #ygrp-mlmsg pre, code {font:115% monospace;}> > #ygrp-mlmsg * {line-height:1.22em;}> > #ygrp-text{> > font-family:Georgia;> > }> > #ygrp-text p{> > margin:0 0 1em 0;}> > #ygrp-tpmsgs{> > font-family:Arial;> > clear:both;}> > #ygrp-vitnav{> > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> > #ygrp-vitnav a{> > padding:0 1px;}> > #ygrp-actbar{> > clear:both;margin:25px> 0;white-sp

ace:nowrap;color:#666;text-align:right;}> > #ygrp-actbar .left{> > float:left;white-space:nowrap;}> > .bld{font-weight:bold;}> > #ygrp-grft{> > font-family:Verdana;font-size:77%;padding:15px 0;}> > #ygrp-ft{> > font-family:verdana;font-size:77%;border-top:1px solid #666;> > padding:5px 0;> > }> > #ygrp-mlmsg #logo{> > padding-bottom:10px;}> > > > #ygrp-vital{> > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> > #ygrp-vital #vithd{> >>font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> > #ygrp-vital ul{> > padding:0;margin:2px 0;}> > #ygrp-vital ul li{> > list-style-type:none;clear:both;border:1px solid #e0ecee;> > }> > #ygrp-vital ul li .ct{> >>font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> > #ygrp-vital ul li .cat{> > font-weight:bold;}> > #ygrp-vital a {> > text-decoration:none;}> > > > #ygrp-vital a:hover{> > text-decoration:underline;}> > > > #ygrp-sponsor #hd{> > color:#999;font-size:77%;}> > #ygrp-sponsor #ov{> > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> > #ygrp-sponsor #ov ul{> > padding:0 0 0 8px;margin:0;}> > #ygrp-sponsor #ov li{> > list-style-type:square;padding:6px 0;font-size:77%;}> > #ygrp-sponsor #ov li a{> > text-decoration:none;font-size:130%;}> > #ygrp-sponsor #nc {> > background-color:#eee;margin-bottom:20px;padding:0 8px;}> > #ygrp-sponsor .ad{> > padding:8px 0;}> > #ygrp-sponsor .ad #hd1{> >>font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> > #ygrp-sponsor .ad a{> > text-decoration:none;}> > #ygrp-sponsor .ad a:hover{> > text-decoration:underline;}> > #ygrp-sponsor .ad p{> > margin:0;}> > o {font-size:0;}> > .MsoNormal {> > margin:0 0 0 0;}> > #ygrp-text tt{> > font-size:120%;}> > blockquote{margin:0 0 0 4px;}> > .replbq {margin:4;}> > -->> > > > > > > > > > > > > > > > > > > >> ______

____________________________________________________> > Moody friends. Drama queens. Your life? Nope! - their life, your> story. Play Sims Stories at Yahoo! Games.> > http://sims.yahoo.com/> >> > > > > > > Have a great day! Joanne> > ---------------------------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends.>