Re: (graves_support) Strange question

January 21, 1973

Hi Gang, As the flu has ahlf the world down. How many of you Graves

people are OK?

January 19, 2000

Hi Kari-

I had an awful burning pain through the back of my neck, shoulders and

back along with stiffness and achiness. Later, it progressed and went

down my left arm. Eventually, I lost all feeling in most of my left

hand and all feeling in my thumb and forefinger. The other digits

tingled. This wasn't constant but seemed to be cyclic and became more

and more severe as the years went by. I had it for many years post-RAI

after my thyroid no longer functioned but it's been gone since I've

supplemented with T3.

My circumstances were different from yours since this occurred for me

long after my goiter was gone and I had no thyroid function left.

Take care,

Utecht

Kari Sagen wrote:

>

> I have an odd question. From time to time my neck gets really stiff

> in the back and sides, and following that, my ribs and back as well

> get stiff and sore. I think it's probably how I sleep, but it often

> follows bouts of swollen goiter. Does anyone else ever get this? In

> relation to Graves, I mean. The sides of my neck are just *killing*

> me today, but I wonder if it's how I slept, or if it's my thyroid.

>

> Just wondering.

>

> Thanks,

>

> Kari

>

> ---------------------------

January 20, 2000

, you said that you felt these symptoms post Ria. It sounds like

fibromyalgia like symptoms. When I started to feel hypo(despite being

called subclinical hyper) I also had severe pain in neck shoulders, back ,

arms and legs. I also had carpal tunnel like syndrome with tingling and

numbness in my hands. It's interesting that you said that when you went on

T3 your symptoms subsided. With me because I haven't been nuked yet, my

thyroid started to kick in again, and when my numbers started to rise again

the symptoms lessened. I still believe that I have true fibromyalgia and

possible arthritis ( my Mom died in Feb due to complications of Rheum

arthritis) but at least I don't have as much pain. Maybe Kari is started to

feel some hypo symptoms as her numbers begin to drop.

Re: (graves_support) Strange question

>

> Hi Kari-

>

> I had an awful burning pain through the back of my neck, shoulders and

> back along with stiffness and achiness. Later, it progressed and went

> down my left arm. Eventually, I lost all feeling in most of my left

> hand and all feeling in my thumb and forefinger. The other digits

> tingled. This wasn't constant but seemed to be cyclic and became more

> and more severe as the years went by. I had it for many years post-RAI

> after my thyroid no longer functioned but it's been gone since I've

> supplemented with T3.

>

> My circumstances were different from yours since this occurred for me

> long after my goiter was gone and I had no thyroid function left.

>

> Take care,

>

> Utecht

>

> Kari Sagen wrote:

> >

> > I have an odd question. From time to time my neck gets really

stiff

> > in the back and sides, and following that, my ribs and back as well

> > get stiff and sore. I think it's probably how I sleep, but it

often

> > follows bouts of swollen goiter. Does anyone else ever get this?

In

> > relation to Graves, I mean. The sides of my neck are just

*killing*

> > me today, but I wonder if it's how I slept, or if it's my thyroid.

> >

> > Just wondering.

> >

> > Thanks,

> >

> > Kari

> >

> > ---------------------------

January 20, 2000

Hi -

This is fascinating. I do know that they don't really know what

fibromyalgia really is (kind of like chronic fatigue syndrome). I

wonder if it can be caused by thyroid imbalances in either direction. I

know of a few hyperthyroid patients with it too.

Take care,

Iannuzzi wrote:

>

> , you said that you felt these symptoms post Ria. It sounds like

> fibromyalgia like symptoms. When I started to feel hypo(despite being

> called subclinical hyper) I also had severe pain in neck shoulders, back ,

> arms and legs. I also had carpal tunnel like syndrome with tingling and

> numbness in my hands. It's interesting that you said that when you went on

> T3 your symptoms subsided. With me because I haven't been nuked yet, my

> thyroid started to kick in again, and when my numbers started to rise again

> the symptoms lessened. I still believe that I have true fibromyalgia and

> possible arthritis ( my Mom died in Feb due to complications of Rheum

> arthritis) but at least I don't have as much pain. Maybe Kari is started to

> feel some hypo symptoms as her numbers begin to drop.

>

> Re: (graves_support) Strange question

>

> >

> > Hi Kari-

> >

> > I had an awful burning pain through the back of my neck, shoulders and

> > back along with stiffness and achiness. Later, it progressed and went

> > down my left arm. Eventually, I lost all feeling in most of my left

> > hand and all feeling in my thumb and forefinger. The other digits

> > tingled. This wasn't constant but seemed to be cyclic and became more

> > and more severe as the years went by. I had it for many years post-RAI

> > after my thyroid no longer functioned but it's been gone since I've

> > supplemented with T3.

> >

> > My circumstances were different from yours since this occurred for me

> > long after my goiter was gone and I had no thyroid function left.

> >

> > Take care,

> >

> > Utecht

> >

> > Kari Sagen wrote:

> > >

> > > I have an odd question. From time to time my neck gets really

> stiff

> > > in the back and sides, and following that, my ribs and back as well

> > > get stiff and sore. I think it's probably how I sleep, but it

> often

> > > follows bouts of swollen goiter. Does anyone else ever get this?

> In

> > > relation to Graves, I mean. The sides of my neck are just

> *killing*

> > > me today, but I wonder if it's how I slept, or if it's my thyroid.

> > >

> > > Just wondering.

> > >

> > > Thanks,

> > >

> > > Kari

> > >

> > > ---------------------------

January 20, 2000

Hi -

I had to rush off to pick up my son and didn't get to the second part of

your letter.

Did they check you for rheumatoid arthritis yet? All these diseases

have a genetic component but they can delay some of the degeneration if

inflammation is kept to a minimum.

On the other hand, I was diagnosed with arthritis too (non-rheumatoid-I

tested negative) which also disappeared when I supplemented with T3. I

have a problem effectively converting T4 (replacement hormone) to T3

(active hormone). My T3 levels were very low. No one recognized it as

a cause of many of my symptoms until recently. I had had symptoms for

many years before then and saw lots of specialists. But they all tried

to treat them independently. I finally got relief with the help of a

very knowledgeable endocrinologist (Why not look there? I had no

thyroid function and thyroid hormone is needed for metabolism by every

cell in your body).

I'm very sorry about the loss of your mother. I just lost mine this

past August and I still can't believe it.