Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Thank you so much...all of you. Finding you was what God intended for me. I go through denial.....if they go away for a day, I put the drugs away and really believe (because I want to so badly) THERE! THEY ARE GONE FOREVER! but they are not. I hate having to take so many drugs that do so many things to me. I also start to think that I am crazy, and I am conjuring these things up somehow. This starts a spiral that leads to hopeless, helpless, dejection. Last night when my MD said " there isn't pain with urticaria, it's just itching. " I just cried for about an hour. I guess I can find new MDs though. Thank you all. _Judy W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Judy: Welcome to the Itchy & Scratchy Show, as I call it! I find this listserve to be a great support, just knowing we are not alone. Everyone seems to have somewhat unique conditions, and I would expect different causes. Mine seems to be related to pressure, heat, and probably pollen - I get itchy and/or hot areas anywhere on my body at any time day or night. They last minutes to hours, but usually worse if I scratch them, which seems to also start up fresh spots. Immediate relief for me comes from a brief application of cold (ice pack, or cool water); massaging rather than scratching (careful - little as possible); keeping my mind occupied with something else to ignore it. Prevention attempts: stay out of sun, keep covered with light clothing, stay cool (physically and mentally!), stay indoors with windows closed at worst pollen times, reduce as many possible allergens from my diet as possible the yeast reducing diet has helped), daily antihistamines (lately need to increase dose and switch brand, but not 100% effective), mental tricks to ignore the hot itchy spot when it starts (imagine building a barrier between that spot and the rest of you). Sorry for the long message, but as the wise woman said " be careful what you ask for " ! Good Luck - remember that most people seem to go through waves of symptoms, from intense times to remission. Riding the Wave - Donna from Canada Please help me with the itching! > I just joined this group. I've had CU off and on for 20 years. I > was in the ER last night about 1 am because I woke up and felt like > every inch of my body was on fire!! I can't remember being in this > much pain. Do you all call it pain? I get so angry when a medial > person says, " It shouldn't hurt...it should JUST ITCH " I think that > diminished what I'm experiencing and blows me off as an emergency > patient. Usually I can stay out of the ER unless my face is swelling > up, but, last night I was ready to make someone help me or die. I > can't live in that pain much longer. > I went to the ER, got IV Solumedrol and IV Benadryl, and was sent > home with the usualy scripts - Predinsone taper, Atarax, Zantac - > feeling human again. This happened even after my usual daily doses > of antihistimines. > So, I guess my questions are: > 1. What works for you all? What keeps the horrible itching under > control? > 2. Does anything keep the hives away? > 3. How do you live day to day with this? > 4. I live in Tidewater Area, Virginia...anyone know any good MDs > that can treat this? > 5. How do we survive the itching and still want to live? > > Thank you! > > Judy > > > > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Judy W. your Dr. sounds like the OB/GYN I had years ago that told me periods don't hurt. It was all in my head. Of course it was a male Dr. without female organs. I got another Dr. that has some brains and compassion. It seems like there is a percentage on non feeling Dr. out there handling UC cases that should not be practicing medicine. God spare us from them. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 > Urticaria > > Hello there. I wanna share my problem to you guys because I've been > checked by 2 doctors and 1 dermatologist. I experienced getting rashes > last 1998, it's a different kind of rash, it's reddish and kinda bumpy. > I saw the picture of a woman suffering from Urticaria and her hives were > similar to the rashes that I got. After a few months it faded > gradually.I didn't take any meds. After two years I got these rashes > again, this time it was all over my legs and few in my arms. I > experienced joint pains and at the end of the day my feet would swell. I > went to see a doctor, my first doctor told me that it was contact > dermatitis, the second doctor told me it was cause by bursting blood > vessels for unknown reasons, the dermatologist told me that it was > vasculitis and she gave me prednisone. I surfed the net and saw the > vasculitis page I'm not a doctor but the vasculitis described was very > different. I searched some more until I saw urticaria's page. I saw > pictures and the appearance of the hives were exactly like my rashes. > The symptoms described were kinda similar to what I was experiencing, > compared to vasculitis' description. Again, the rashes faded. After two > months it appeared again and I realized that whenever I feel cold > (really cold) I get these hives. But it wasn't itchy, it never was. Do > you think this is Cold Urticaria? Thanks and I'm looking forward to your > response > > Je > > > ______________________________________________________________________ > To unsubscribe, write to urticaria-unsubscribe@... > > BCENTRAL ListBot: > CoverageCorp is the leading provider of online insurance options for > businesses. Representing several of the nations' premier insurers, > CoverageCorp allows the business owner a choice of carriers, > coverage, payment options, and the ability to purchase coverage in > one business day. > > http://on.linkexchange.com/?ATID=278 & AID=1452 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Ok, Tracie has landed. For a short while anyhow. I've come to realize that i can't continue on as I have been, so today and I are going to see my GP to talk to her about pain medication. I hope that the specialists in Sacramento at UCD have sent her the information and suggestions as to how to proceed. I have to admit that I am scared to allow myself to take anything for pain, and that I am truly feeling like I am betraying a promise to myself, a promise to my family, and even a promise to my god. I made a contract never to use again. September 29, 2003 would be 13 years clean and sober. This is a biggie guys, I don't know if I can go thru with this-- even if it means that I'm taking better care of myself by allowing the Pain of the NS to be less enabling. I'm not even sure if that makes sense. I have done all the self-talk of "Tracie, you owe it to yourself to take as good a care of yourself as you can. Even if that means painmeds." I have told myself that if my body is "as one with god, or your body is your temple- so you must take the route of accepting responsibilty for your wellness" . . . As you can see, this is a struggle on more than a physical level, it is my spirit/spiritual battle also. I've always expected myself to honor myself and my god and my commitment to both, both with my actions and with my deeds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Dear Tracie, Hon, I understand what you are saying about being dependent on the pain killers, but I don't think we are expected to live in pain.....I really think that if you use it for the pain only and not abuse it, you will be ok. No one deserves to live in severe pain and I don't really think our God expects you to. It is bad enough to live with the rest of this disease without having to fight the pain....... Hang in there and know that there are many here who will be pulling for you. Love, hugs, and lots of prayers, Darlene > Ok, Tracie has landed. For a short while anyhow. I've come to realize > that > i can't continue on as I have been, so today and I are going to see > my > GP to talk to her about pain medication. I hope that the specialists in > Sacramento at UCD have sent her the information and suggestions as to how > to > proceed. > > I have to admit that I am scared to allow myself to take anything for > pain, > and that I am truly feeling like I am betraying a promise to myself, a > promise > to my family, and even a promise to my god. I made a contract never to > use > again. September 29, 2003 would be 13 years clean and sober. > > This is a biggie guys, I don't know if I can go thru with this-- even if > it > means that I'm taking better care of myself by allowing the Pain of the NS > to > be less enabling. I'm not even sure if that makes sense. > > I have done all the self-talk of " Tracie, you owe it to yourself to take > as > good a care of yourself as you can. Even if that means painmeds. " I have > told > myself that if my body is " as one with god, or your body is your temple- > so > you must take the route of accepting responsibilty for your wellness " . . > . > > As you can see, this is a struggle on more than a physical level, it is my > spirit/spiritual battle also. I've always expected myself to honor myself > and > my god and my commitment to both, both with my actions and with my deeds. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Tracie, my sentiments exactly, what good are we if we can't enjoy life to be with our family or help others because we are in so much pain, I basically have to take hydrocodone every day but it allows me to feel like I can function with out feeling like I am going to scream because of the pain in my legs, hip, and oh yes the largest pain of all my head. Tracie, I know you have tried to function without it and that you would not take anything you didn't need to function for your daily life and I know that just by reading your posts because you are too much full of life. Take care of yourself. Your friendly Texan, Jeanna. Help Ok, Tracie has landed. For a short while anyhow. I've come to realize that i can't continue on as I have been, so today and I are going to see my GP to talk to her about pain medication. I hope that the specialists in Sacramento at UCD have sent her the information and suggestions as to how to proceed.I have to admit that I am scared to allow myself to take anything for pain, and that I am truly feeling like I am betraying a promise to myself, a promise to my family, and even a promise to my god. I made a contract never to use again. September 29, 2003 would be 13 years clean and sober. This is a biggie guys, I don't know if I can go thru with this-- even if it means that I'm taking better care of myself by allowing the Pain of the NS to be less enabling. I'm not even sure if that makes sense.I have done all the self-talk of "Tracie, you owe it to yourself to take as good a care of yourself as you can. Even if that means painmeds." I have told myself that if my body is "as one with god, or your body is your temple- so you must take the route of accepting responsibilty for your wellness" . . . As you can see, this is a struggle on more than a physical level, it is my spirit/spiritual battle also. I've always expected myself to honor myself and my god and my commitment to both, both with my actions and with my deeds. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Tracie, You NEED to do what you NEED to do. Pain meds have a purpose and a use. However, you must be smart in what you use and how much your use. I used Duragesic (transdermal fentanyl) patches which controlled my pain, did NOT make me “high”, allowed me to drive and relieved my pain. Please see a pain specialist. Mine is wonderful. And when I got off the Duragesic (because my pain was better and I made up my mind that I would live with what I still had) it was no problem. I slowly decreased the dosage and never went through withdrawal. Believe me, I felt the same as you do about pain meds, and the personal commitments, but when you need them, use them. That’s what they are for. Don’t be so hard on yourself or put too many constraints on yourself and suffer needlessly. Please write me or anybody on this NS site and talk about it. It sounds like you need to, I’m glad you shared with us (your NS family) and I don’t mean that in any negative way. Take care of yourself and your quality of life. Much love and hugs, Stinson Help Ok, Tracie has landed. For a short while anyhow. I've come to realize that i can't continue on as I have been, so today and I are going to see my GP to talk to her about pain medication. I hope that the specialists in Sacramento at UCD have sent her the information and suggestions as to how to proceed. I have to admit that I am scared to allow myself to take anything for pain, and that I am truly feeling like I am betraying a promise to myself, a promise to my family, and even a promise to my god. I made a contract never to use again. September 29, 2003 would be 13 years clean and sober. This is a biggie guys, I don't know if I can go thru with this-- even if it means that I'm taking better care of myself by allowing the Pain of the NS to be less enabling. I'm not even sure if that makes sense. I have done all the self-talk of " Tracie, you owe it to yourself to take as good a care of yourself as you can. Even if that means painmeds. " I have told myself that if my body is " as one with god, or your body is your temple- so you must take the route of accepting responsibilty for your wellness " . . . As you can see, this is a struggle on more than a physical level, it is my spirit/spiritual battle also. I've always expected myself to honor myself and my god and my commitment to both, both with my actions and with my deeds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Tracie, I will be keeping my fingers crossed for you. And extra special prayers. I know you've tried to be superwoman for a good long time. You deserve a rest from your pain. And look at me!!! I'm on methadone for god's sake, and I have never abused drugs in any way. I am grateful, though, to have it, because I can be really loving to my family, something I simply cannot do when I am in severe pain. Love yourself, girlfriend. And on a personal note, sorry to lose you on Yahoo messenger. I don't know what happened. I am slapping the backs of my hands right now! Regards, tiodaat@... wrote: Ok, Tracie has landed. For a short while anyhow. I've come to realize that i can't continue on as I have been, so today and I are going to see my GP to talk to her about pain medication. I hope that the specialists in Sacramento at UCD have sent her the information and suggestions as to how to proceed. I have to admit that I am scared to allow myself to take anything for pain, and that I am truly feeling like I am betraying a promise to myself, a promise to my family, and even a promise to my god. I made a contract never to use again. September 29, 2003 would be 13 years clean and sober. This is a biggie guys, I don't know if I can go thru with this-- even if it means that I'm taking better care of myself by allowing the Pain of the NS to be less enabling. I'm not even sure if that makes sense. I have done all the self-talk of "Tracie, you owe it to yourself to take as good a care of yourself as you can. Even if that means painmeds." I have told myself that if my body is "as one with god, or your body is your temple- so you must take the route of accepting responsibilty for your wellness" .. . . As you can see, this is a struggle on more than a physical level, it is my spirit/spiritual battle also. I've always expected myself to honor myself and my god and my commitment to both, both with my actions and with my deeds. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://www.elderwyn.com/neurosarcoidosis/chat.php Message Archives and Digest Attachment Pictures:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:- Add a website URL you have found useful. http://groups.yahoo.com/group/Neurosarcoidosis/links Personal Complaints or problems:- Please email the moderators mailto:Neurosarcoidosis-owner Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/join To subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you! ~~~~ *** ~~~ *** ~~~ *** ~~~~ Come stand by my side where I am going, Take my hand if I should stumble and fall, It's the strength and love that you share, That gives me what I need most of all. - Hoyt Axton ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Tracie, I'm so sorry that I did not see this message sooner. I am a recovering addict. I have been in the program since March 2000 and have been sober 9 months. My last relapse was with the Duragesic fentanyl patches.. I used them as prescribed at first then found a way to abuse them. I was in severe pain believe me. But the alcoholic addict took over. You have to be very careful. Be sure you are doing this for the right reasons and have exhausted all other non-narcotic pain med alternatives. Now I'm not talking to you sarcs who are not addicts. You wouldn’t understand. Tracie, if you decide to take the narc pain meds let someone else be responsible for it and dispense it to you. Take it only as rx and tell your physician you are a recovering addict. Be honest in all you do. Go to meetings everyday (especially while taking pain meds). Pray and meditate, Ask God to keep you sober every morning. Please e-mail me if you like Quote Link to comment Share on other sites More sharing options...
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