YANA is back in business

[Guest guest]

Well, I am back and Yana is now open for business again. You can share your prostate

cancer experience by going to http://www.yananow.org/JoinUsForm.html

JOIN US

or, if you have already told your story, you can update it at http://www.yananow.org/UpdateYourStatsForm.html

UPDATE YOUR STORY

The planned changes on

the site are not yet quite complete, but the initial ones will make it a good

deal easier for me to deal with the data and will also make access by visitors

simpler – and hopefully quicker. For the time being, things continue as

they were.

I uploaded some of the updates in early

December before I went on vacation, the rest have been done today or yesterday.

GOOD NEWS/BAD NEWS

The Good News is that reports of the

passing of http://www.yananow.org/Mentors/B.htm

DEREK BIRD have been greatly exaggerated. When he did not respond to a

reminder, I feared the worst, but although he is far from well, with his PSA

heading North of 200 ng/ml he didn’t respond to me because he was in

hospital with a broken leg. He has now been discharged but is feeling rather

poorly.

Regrettably, two other members passed on with

notifications coming in while I was away:

http://www.yananow.org/Mentors/TimK.htm

TIM KEEFER diagnosed aged 50 in 2008 with

metastasized disease with a Gleason Score of 8 and a PSA of 375 ng/ml passed on

in October last year http://www.yananow.org/Mentors/S.htm

PAUL S diagnosed aged 51 in 2009 with metastasized disease with a Gleason Score

of 9 and a PSA of 362 ng/ml passed on earlier this month

NEW POST:

http://www.yananow.org/Mentors/A.htm

RICHARD A chose RALP (Robotic Assisted

Laparoscopic Prostatectomy) with adjuvant IMRT (Intensity Modulated Radiation

Therapy) and ADT (Androgen Deprivation Therapy) for a T3 GS 7 diagnosis

UPDATES FROM MEMBERS:

http://www.yananow.org/Mentors/S.htm ERIC SONDEEN decided to try Degarelix after his failed HIFU (High

Intensity Focused Ultrasound) and ADT (Androgen Deprivation Therapy)

http://www.yananow.org/Mentors/DaveH.htm DAVE H just had his third biopsy in 12 months – no change in

diagnosis so he continues his (AS) Active Surveillance

http://www.yananow.org/Mentors/LennyH.htm

LENNY HIRSCH Gold Four Star Member and just

over 14 years after his diagnosis, having tried a number of therapies to

control his disease, he is now headed for EBRT (External Beam Radiation

Therapy)

http://www.yananow.org/Mentors/DougH.htm

DOUG HARVEY with a PSA of 0.29 ng/ml after RP (Radical

Prostatectomy) he is looking for advice on radiologists to carry out his salvage

EBRT (External Beam Radiation Therapy)

http://www.yananow.org/Mentors/NedG.htm NED G has persuaded his urologist to support (AS) Active

Surveillance despite his age of 46 at diagnosis

NEW LINK

While I was away Dr Gerald Chodak

produced two publications. One is what has been termed a Vook - described as an

innovation in reading

that blends a well-written book, high-quality video and the power of the

Internet into a single, complete story. I think both are excellent publications

and would be very helpful, especially for newly diagnosed men. These

publications are linked on the RESOURCES page of the site at http://www.yananow.org/resources.html#gerry

Anyone interested in seeing where we went

for our White Christmas Tour can see some of my pictures here http://tinyurl.com/WhiteX2010

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going

strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html