Re: homeopathic preparations

[Guest guest]

Hi Elaine, I have just reread your email about turning the clock back

and using alternative treatments. Are you still looking for a happy RAI

person? I find it incredible and scarry that there is not one, even on

the other board. I'm not going to say this in publicly but I have tried

some alternative treaments such as bugleweed and they did nothing.

Before I had this Graves flareup and I have come to believe that we do

have flareups like many other autoimmune disease, I was dealing with a

diet that was too low in fat. I think that I was too concerned with the

diabetes and the stress on it contributed to the meltdown.

We've had some new people join the dragon boat team. I have only talked

to one about her thyroid but guess what? She has Hashimotos.

[Guest guest]

& Elaine,

Greetings! , I saw your message and was just going to respond when I say

Elaine's!! I must say that I'm trying to do all of the things that she's

recommending and I'm (have I mentioned this?) pretty damn grateful to have been

the beneficiary of lessons Elaine and others have learned the hard way. I often

marvel that I still have my thyroid, fairly normal eyes, and am in remission --

all without conventional treatment! Wow!!

To answer your questions, , I've been finishing up a quarter of teaching at

a nearby state university. I've also returned to a dissertation I left three

years ago and am trying rather frantically to finish this summer. It's been a

really busy time, but I've missed the conversations on this list.

Anyway, that's where I'm at. I'm also still coming to terms with Graves . . .

I'm really not the " same " physical body (or psychological or spiritual person) I

was before my diagnosis. I'm still struggling with some things that I clearly

see as related to my thyroid imbalance, but my problems are minor compared to

the ones I experienced while hyper thyroid and the problems I hear others have

post-RAI.

Well I'm off. Spent the night in the emergency room with my three year old who

got a cut on his cornea. Ouch. Poor guy.

[Guest guest]

Terry: I'd say the key to your successful use of RAI was

" I kept in constant contact with my endro, explained to him what was

happening, he

did additional tests, and then increased my meds. "

If more patients had the type of endocrinologist you had (responsive and

accepting of your observations about your body) there might be more success

stories.

[Guest guest]

,

It has been some time since I have written on the board, but I am one

who is very happy with the RAI solution. I had the option back in 93 or

94 to have surgery or RAI and opted for RAI.

The use of PTU and other drugs was not an option for me after

researching the side effects of such. I did not look into alternative

methods as my medical option sounded good to me.

Now as for my after life it has been very good. There have been times

when my meds required adjustment and they were difficult. I kept in

constant contact with my endro, explained to him what was happening, he

did additional tests, and then increased my meds.

The key issues I have found are in following your meds, watching your

diet to not include items which counteract your meds, and being open

with the doctor.

Terry

Hearn wrote:

>

>

>

> Hi Elaine, I have just reread your email about turning the clock back

> and using alternative treatments. Are you still looking for a happy RAI

> person? I find it incredible and scarry that there is not one, even on

> the other board. I'm not going to say this in publicly but I have tried

> some alternative treaments such as bugleweed and they did nothing.

> Before I had this Graves flareup and I have come to believe that we do

> have flareups like many other autoimmune disease, I was dealing with a

> diet that was too low in fat. I think that I was too concerned with the

> diabetes and the stress on it contributed to the meltdown.

> We've had some new people join the dragon boat team. I have only talked

> to one about her thyroid but guess what? She has Hashimotos.

>

>

>

> ---------------------------

[Guest guest]

Hi Terry-

I think the major complaint about our treatment is that they try to lump

everyone into the same category when RAI is considered. I think there's

an age and sex component to this that's currently going ignored. Unless

I visit my endocrinologist every 2 weeks, I don't think I can be

effectively regulated. That's not going to happen since the tests he

runs cost between $200-$500 every time I visit. I'm a 37 year old woman

that had RAI at 24. Elaineakadaisy, help me here please.

I do think it's great that you're doing well and we need to hear about

cases like yours too.

Take care,

Terry Stone wrote:

>

>

>

> ,

> It has been some time since I have written on the board, but I am one

> who is very happy with the RAI solution. I had the option back in 93 or

> 94 to have surgery or RAI and opted for RAI.

> The use of PTU and other drugs was not an option for me after

> researching the side effects of such. I did not look into alternative

> methods as my medical option sounded good to me.

> Now as for my after life it has been very good. There have been times

> when my meds required adjustment and they were difficult. I kept in

> constant contact with my endro, explained to him what was happening, he

> did additional tests, and then increased my meds.

> The key issues I have found are in following your meds, watching your

> diet to not include items which counteract your meds, and being open

> with the doctor.

> Terry

>

> Hearn wrote:

> >

> >

> >

> > Hi Elaine, I have just reread your email about turning the clock back

> > and using alternative treatments. Are you still looking for a happy RAI

> > person? I find it incredible and scarry that there is not one, even on

> > the other board. I'm not going to say this in publicly but I have tried

> > some alternative treaments such as bugleweed and they did nothing.

> > Before I had this Graves flareup and I have come to believe that we do

> > have flareups like many other autoimmune disease, I was dealing with a

> > diet that was too low in fat. I think that I was too concerned with the

> > diabetes and the stress on it contributed to the meltdown.

> > We've had some new people join the dragon boat team. I have only talked

> > to one about her thyroid but guess what? She has Hashimotos.

> >

> >

> >

> > ---------------------------

[Guest guest]

Redhengirl,

I have to agree with you on the response by my endro. If I do not

discuss issue with him it is like he has a 6th sense and asks questions

which are right on the money.

He checks not only my blood tests and such, but asks about my

physical and mental well being. The last time I was borderline hypo and

he was questioning if he should increase my med ---- he ask if I was

tired, if my legs hurt, is I was having heart palpitations, and 3 or 4

other questions and increased my meds (I was getting sleepy in the

afternoons around 1 or 2). His issue is now for me to loose weight which

has been impossible for the last 12 months - diet and exercise were

getting no where; also, I have gone from .075 to .125 synthroid and may

well go up again this month.

All just push the doctor and remind him or her that they are employed

by you.

Terry

Redhengirl@... wrote:

>

> From: Redhengirl@...

>

> Terry: I'd say the key to your successful use of RAI was

>

> " I kept in constant contact with my endro, explained to him what was

> happening, he

> did additional tests, and then increased my meds. "

>

> If more patients had the type of endocrinologist you had (responsive and

> accepting of your observations about your body) there might be more success

> stories.

>

> ---------------------------

[Guest guest]

Correction! One major complaint.

Take care,

Utecht wrote:

>

>

>

> Hi Terry-

>

> I think the major complaint about our treatment is that they try to lump

> everyone into the same category when RAI is considered. I think there's

> an age and sex component to this that's currently going ignored. Unless

> I visit my endocrinologist every 2 weeks, I don't think I can be

> effectively regulated. That's not going to happen since the tests he

> runs cost between $200-$500 every time I visit. I'm a 37 year old woman

> that had RAI at 24. Elaineakadaisy, help me here please.

>

> I do think it's great that you're doing well and we need to hear about

> cases like yours too.

>

> Take care,

>

>

>

> Terry Stone wrote:

> >

> >

> >

> > ,

> > It has been some time since I have written on the board, but I am one

> > who is very happy with the RAI solution. I had the option back in 93 or

> > 94 to have surgery or RAI and opted for RAI.

> > The use of PTU and other drugs was not an option for me after

> > researching the side effects of such. I did not look into alternative

> > methods as my medical option sounded good to me.

> > Now as for my after life it has been very good. There have been times

> > when my meds required adjustment and they were difficult. I kept in

> > constant contact with my endro, explained to him what was happening, he

> > did additional tests, and then increased my meds.

> > The key issues I have found are in following your meds, watching your

> > diet to not include items which counteract your meds, and being open

> > with the doctor.

> > Terry

> >

> > Hearn wrote:

> > >

> > >

> > >

> > > Hi Elaine, I have just reread your email about turning the clock back

> > > and using alternative treatments. Are you still looking for a happy RAI

> > > person? I find it incredible and scarry that there is not one, even on

> > > the other board. I'm not going to say this in publicly but I have tried

> > > some alternative treaments such as bugleweed and they did nothing.

> > > Before I had this Graves flareup and I have come to believe that we do

> > > have flareups like many other autoimmune disease, I was dealing with a

> > > diet that was too low in fat. I think that I was too concerned with the

> > > diabetes and the stress on it contributed to the meltdown.

> > > We've had some new people join the dragon boat team. I have only talked

> > > to one about her thyroid but guess what? She has Hashimotos.

> > >

> > >

> > >

> > > ---------------------------