Re: Cardiology Appointment Today

[Guest guest]

, I am so sorry. You're so right, each time we come back from the doctors with more bad news it does feel like you were kicked! I have Sarcoidosis too and wonder if it could be affecting your heart as well as your lungs. Mine affects my lungs and eyes. I have also found that if I eat well I don't need the statins and I swear by Omega Nutrition EB Oil capsules. I don't know if they help the PF but they work great for the sarcoid especially when I have flareups. I take 3 a day and they keep my cholesterol manageable, and take away the dry eye and blurry vision I get from the Sarcoid. I will be praying for you- Sarcoid/PF

3/2006 California Cardiology Appointment Today

Hi Everyone

I had a cardiology appointment today which was brought forward from

January 08 some weeks ago I had a angiogram, which came back showing

narrowing of the arteries in my chest, so now I have been put on

Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and

one at night and also statins and now I have a Nitrolingual pumpsray

this on top of everything else i cannot believe it, aspirin75mg, he

was also talking about other heart medication they can control it

with I asked where does it put me in relation to Ipf he said we will

work together with the Lung Centre at Wythenshawe but as far as

stents bypasses and stuff its a no go I want to say things in a bit

of Latin but because there are Ladies present on this Group I am

controling myself Talk about being kicked when your down. I was

already on some of this stuff the thing is its all being increased.

thomas (53yrs) wegeners granulomatosis/ Sarcoidosis / EAA / ipf 2005

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

What an absolutely horrible day. More than Latin is fully called for

after this day.

It's so difficult when we have multiple issues compounding the

situation. I know finding anything positive right now is tough and

you probably shouldn't even try to today. Tomorrow find something

positive. Maybe it will be that your doctors are going to work

together or if you're not satisfied you'll even see more. Maybe its

the realization that you forgetting the doctor for a second you feel

no different tomorrow than you did yesterday. So, while searching for

answers you bounce back and continue as you were.

But I think you fully deserve to be upset, frustrated and angry all

you want today. Just try to not let it carry over and ruin tomorrow

and the day after.

>

>

>

> Hi Everyone

>

> I had a cardiology appointment today which was brought forward

from

> January 08 some weeks ago I had a angiogram, which came back

showing

> narrowing of the arteries in my chest, so now I have been put on

> Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and

> one at night and also statins and now I have a Nitrolingual

pumpsray

> this on top of everything else i cannot believe it, aspirin75mg,he

> was also talking about other heart medication they can control it

> with I asked where does it put me in relation to Ipf he said we

will

> work together with the Lung Centre at Wythenshawe but as far as

> stents bypasses and stuff its a no go I want to say things in a

bit

> of Latin but because there are Ladies present on this Group I am

> controling myself Talk about being kicked when your down. I was

> already on some of this stuff the thing is its all being increased.

>

> thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf 2005

>

[Guest guest]

Hi

I'm so sorry to hear your news. If you want to speak anglo-saxon on line, feel free to e-mail me, I'm not easily offended, I used to run pubs!>> > > Hi Everyone> > I had a cardiology appointment today which was brought forward from > January 08 some weeks ago I had a angiogram, which came back showing > narrowing of the arteries in my chest, so now I have been put on > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and > one at night and also statins and now I have a Nitrolingual pumpsray > this on top of everything else i cannot believe it, aspirin75mg,he > was also talking about other heart medication they can control it > with I asked where does it put me in relation to Ipf he said we will > work together with the Lung Centre at Wythenshawe but as far as > stents bypasses and stuff its a no go I want to say things in a bit > of Latin but because there are Ladies present on this Group I am > controling myself Talk about being kicked when your down. I was > already on some of this stuff the thing is its all being increased.> > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf 2005>

[Guest guest]

Oh , I'm so sorry that you now have to face even MORE....life just isn't fair at times is it! I presume yout Doc has double checked ALL your medications/dosage to make sure they all work together okay????

Chin up, stay positive etc etc all fall somewhat flat for someone in your predicament, so instead I'll say .... do WHATEVER & SCREAM Whatever to let it ALL out....use 'colourful descriptors' all you blinkin' well like!!!!!!!

Regards,

in Oz

IPF: Fibrotic NSIP/UIP?????

Reynauds'

May 2007>> > > Hi Everyone> > I had a cardiology appointment today which was brought forward from > January 08 some weeks ago I had a angiogram, which came back showing > narrowing of the arteries in my chest, so now I have been put on > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and > one at night and also statins and now I have a Nitrolingual pumpsray > this on top of everything else i cannot believe it, aspirin75mg,he > was also talking about other heart medication they can control it > with I asked where does it put me in relation to Ipf he said we will > work together with the Lung Centre at Wythenshawe but as far as > stents bypasses and stuff its a no go I want to say things in a bit > of Latin but because there are Ladies present on this Group I am > controling myself Talk about being kicked when your down. I was > already on some of this stuff the thing is its all being increased.> > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf 2005>

[Guest guest]

,

Wouldn't it be good to get a little good news???? Your health problems are getting very complicated. Are your doctors communicating?

I'm sorry that your load is so heavy. Try to be strong and look at each day as a gift from God. We are all here for you and we care.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> > > Hi Everyone> > I had a cardiology appointment today which was brought forward from > January 08 some weeks ago I had a angiogram, which came back showing > narrowing of the arteries in my chest, so now I have been put on > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and > one at night and also statins and now I have a Nitrolingual pumpsray > this on top of everything else i cannot believe it, aspirin75mg,he > was also talking about other heart medication they can control it > with I asked where does it put me in relation to Ipf he said we will > work together with the Lung Centre at Wythenshawe but as far as > stents bypasses and stuff its a no go I want to say things in a bit > of Latin but because there are Ladies present on this Group I am > controling myself Talk about being kicked when your down. I was > already on some of this stuff the thing is its all being increased.> > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf 2005>

[Guest guest]

> >

> >

> >

> > Hi Everyone

> >

> > I had a cardiology appointment today which was brought forward

from

> > January 08 some weeks ago I had a angiogram, which came back

showing

> > narrowing of the arteries in my chest, so now I have been put on

> > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and

> > one at night and also statins and now I have a Nitrolingual

pumpsray

> > this on top of everything else i cannot believe it, aspirin75mg,he

> > was also talking about other heart medication they can control it

> > with I asked where does it put me in relation to Ipf he said we

will

> > work together with the Lung Centre at Wythenshawe but as far as

> > stents bypasses and stuff its a no go I want to say things in a

bit

> > of Latin but because there are Ladies present on this Group I am

> > controling myself Talk about being kicked when your down. I was

> > already on some of this stuff the thing is its all being

increased.

> >

> > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf

2005

> >

>

[Guest guest]

> >

> >

> >

> > Hi Everyone

> >

> > I had a cardiology appointment today which was brought forward

from

> > January 08 some weeks ago I had a angiogram, which came back

showing

> > narrowing of the arteries in my chest, so now I have been put on

> > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and

> > one at night and also statins and now I have a Nitrolingual

pumpsray

> > this on top of everything else i cannot believe it, aspirin75mg,he

> > was also talking about other heart medication they can control it

> > with I asked where does it put me in relation to Ipf he said we

will

> > work together with the Lung Centre at Wythenshawe but as far as

> > stents bypasses and stuff its a no go I want to say things in a

bit

> > of Latin but because there are Ladies present on this Group I am

> > controling myself Talk about being kicked when your down. I was

> > already on some of this stuff the thing is its all being

increased.

> >

> > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf

2005

> >

>

[Guest guest]

Well, that part sure sounds good and the fact that as difficult as it

is you're managing your medical care by making sure they all have the

information and provide it back and forth. I've read enough to know

you're filling each one in on everything too. Somehow I get the

impression that as frustrating as it can be and the words it makes

you want to use, you're determined enough that you're going to make

them figure it all out and give you answers as to how the different

issues affect one another. It would be nice if it didn't take so much

effort, but it does and you're doing it.

> > >

> > >

> > >

> > > Hi Everyone

> > >

> > > I had a cardiology appointment today which was brought forward

> from

> > > January 08 some weeks ago I had a angiogram, which came back

> showing

> > > narrowing of the arteries in my chest, so now I have been put on

> > > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning

and

> > > one at night and also statins and now I have a Nitrolingual

> pumpsray

> > > this on top of everything else i cannot believe it,

aspirin75mg,he

> > > was also talking about other heart medication they can control

it

> > > with I asked where does it put me in relation to Ipf he said we

> will

> > > work together with the Lung Centre at Wythenshawe but as far as

> > > stents bypasses and stuff its a no go I want to say things in a

> bit

> > > of Latin but because there are Ladies present on this Group I am

> > > controling myself Talk about being kicked when your down. I was

> > > already on some of this stuff the thing is its all being

> increased.

> > >

> > > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf

> 2005

> > >

> >

>

[Guest guest]

,

53 yrs. is way too young to have so many complicated medical problems. It is sometimes like a snowball, isn't it? I'm glad that you are smart and are able to keep up on all of it.

You called your doctor a consultant. Does that mean that you are from across the pond?

Take care,

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > >> > >> > >> > > Hi Everyone> > >> > > I had a cardiology appointment today which was brought forward > from> > > January 08 some weeks ago I had a angiogram, which came back > showing> > > narrowing of the arteries in my chest, so now I have been put on> > > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and> > > one at night and also statins and now I have a Nitrolingual > pumpsray> > > this on top of everything else i cannot believe it, aspirin75mg,he> > > was also talking about other heart medication they can control it> > > with I asked where does it put me in relation to Ipf he said we > will> > > work together with the Lung Centre at Wythenshawe but as far as> > > stents bypasses and stuff its a no go I want to say things in a > bit> > > of Latin but because there are Ladies present on this Group I am> > > controling myself Talk about being kicked when your down. I was> > > already on some of this stuff the thing is its all being > increased.> > >> > > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf > 2005> > >> >>

[Guest guest]

,

53 yrs. is way too young to have so many complicated medical problems. It is sometimes like a snowball, isn't it? I'm glad that you are smart and are able to keep up on all of it.

You called your doctor a consultant. Does that mean that you are from across the pond?

Take care,

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > >> > >> > >> > > Hi Everyone> > >> > > I had a cardiology appointment today which was brought forward > from> > > January 08 some weeks ago I had a angiogram, which came back > showing> > > narrowing of the arteries in my chest, so now I have been put on> > > Isosrbide Mononitrate 90mg, enalapiril 5mg one in the morning and> > > one at night and also statins and now I have a Nitrolingual > pumpsray> > > this on top of everything else i cannot believe it, aspirin75mg,he> > > was also talking about other heart medication they can control it> > > with I asked where does it put me in relation to Ipf he said we > will> > > work together with the Lung Centre at Wythenshawe but as far as> > > stents bypasses and stuff its a no go I want to say things in a > bit> > > of Latin but because there are Ladies present on this Group I am> > > controling myself Talk about being kicked when your down. I was> > > already on some of this stuff the thing is its all being > increased.> > >> > > thomas (53yrs) wegeners granulomatosis/Sarcoidosis / EAA / ipf > 2005> > >> >>