Guest guest Posted August 9, 1999 Report Share Posted August 9, 1999 Lyndia, thanks for your honesty. I must say that part of the reason I want off HL is the pills. I suppose if you only take 15 in the morning, that would be o.k. As of this morning, when I decided to stop HL, I was taking ... 10 pills at breakfast, lunch, and dinner (30 pills total); 7 pills at 10 am and 3 pm (14 total); and 4 in the evening sometime, so my total pill taking for the entire day was ... a grand total of 48 pills! A few too many for me. I can handle 15 just in the morning, trust me! I understand about the feeling better part; I felt better before, too, so I hope to feel good again on Atkins! I also am looking forward to trying a new way of eating for life. While I think I will miss the carbs, I am willing to give the induction a try! No (low) carbs for two weeks ... it's worth it! :-) Terri ----- Original Message ----- To: <Atkins-A-WayOfLifeonelist> << Hey, how many of you actually took his advice and got blood tests? How many of you use the LTS? Do y'all take vitamins/supplements? I didn't take the test. I started June 14th at 176.5/166/??? . I do take plenty of supplements. I think when I finish the ones that I have I will see how I feel on something like " Super " One A Day, but keep on with the chromium picolinate. I take close to 15 pills each a.m. I am not having a great weight loss but I have to admit that I have never felt better. This is a WOE I can handle hopefully for the rest of my life. Lyndia Alabama Atkins Way of Life since 6/14/99 " Only cat lovers know the luxury of fur coated, musical hot water bottles that never go cold " meet my family at http://www.geocities.com/Heartland/Park/8396/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Ann, What kind of supplements should I be taking if I am hyper? e Re: When am I going to get better on ATD'S > > > > > > > > > > > Hi and e, > > > I agree - any products with caffeine and ephedra are no-no's for Grave's > > > patients. Acutally any time you are taking ephedra you should avoid > > > caffeine - Graves or no-Graves. The combination of caffeine and ephedra > can > > > cause heart arrhythmias in even the healthiest person. > > > > > > Sorry to get off topic, but I think this is information everyone must be > > > aware of! > > > > > > Thanks, > > > Ann > > > > Oh this is perfectly on topic :-) I have also found that I not only have > > to avoid caffeine as much as possible and ephedra, I also found I had to > > avoid alcohol. If I did manage to drink anything (what the aftertasteof > > PTU does to a good single malt whiskey is criminal) 3 sips and I'm falling > > down drunk. Heck, just wave the bottle at me and I'm tipsy. > > > > What we eat and drink and take as supplements all affect the body, and > > when things are screwed up as with Graves' we got to be extra aware of > > what we ingest and how it makes us feel. > > > > Jean > > > > > > > > ------------------------------------------------------------------------ > > Avoid the lines and visit avis.com for quick and easy online > > reservations. Enjoy a compact car nationwide for only $29 a day! > > Click here for more details. > > http://click./1/3011/3/_/585824/_/956086534/ > > ------------------------------------------------------------------------ > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > > > > > ------------------------------------------------------------------------ > Enjoy the award-winning journalism of The New York Times with > convenient home delivery. And for a limited time, get 50% off for the > first 8 weeks by subscribing. Pay by credit card and receive an > additional 4 weeks at this low introductory rate. > http://click./1/3102/3/_/585824/_/956088323/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Ann, What kind of supplements should I be taking if I am hyper? e Re: When am I going to get better on ATD'S > > > > > > > > > > > Hi and e, > > > I agree - any products with caffeine and ephedra are no-no's for Grave's > > > patients. Acutally any time you are taking ephedra you should avoid > > > caffeine - Graves or no-Graves. The combination of caffeine and ephedra > can > > > cause heart arrhythmias in even the healthiest person. > > > > > > Sorry to get off topic, but I think this is information everyone must be > > > aware of! > > > > > > Thanks, > > > Ann > > > > Oh this is perfectly on topic :-) I have also found that I not only have > > to avoid caffeine as much as possible and ephedra, I also found I had to > > avoid alcohol. If I did manage to drink anything (what the aftertasteof > > PTU does to a good single malt whiskey is criminal) 3 sips and I'm falling > > down drunk. Heck, just wave the bottle at me and I'm tipsy. > > > > What we eat and drink and take as supplements all affect the body, and > > when things are screwed up as with Graves' we got to be extra aware of > > what we ingest and how it makes us feel. > > > > Jean > > > > > > > > ------------------------------------------------------------------------ > > Avoid the lines and visit avis.com for quick and easy online > > reservations. Enjoy a compact car nationwide for only $29 a day! > > Click here for more details. > > http://click./1/3011/3/_/585824/_/956086534/ > > ------------------------------------------------------------------------ > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > > > > > ------------------------------------------------------------------------ > Enjoy the award-winning journalism of The New York Times with > convenient home delivery. And for a limited time, get 50% off for the > first 8 weeks by subscribing. Pay by credit card and receive an > additional 4 weeks at this low introductory rate. > http://click./1/3102/3/_/585824/_/956088323/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 On the subject of supplements - I have taken supplements for years. I plan to continue, but would love to hear what some of you are taking that help with Graves. If I need to add something to my regimen I want to do it sooner than later! Thanks, Ann Ann McCrea, RN Internet Director www.NavigateDreams.com Re: When am I going to get better on ATD'S > > > > > Hi and e, > > I agree - any products with caffeine and ephedra are no-no's for Grave's > > patients. Acutally any time you are taking ephedra you should avoid > > caffeine - Graves or no-Graves. The combination of caffeine and ephedra can > > cause heart arrhythmias in even the healthiest person. > > > > Sorry to get off topic, but I think this is information everyone must be > > aware of! > > > > Thanks, > > Ann > > Oh this is perfectly on topic :-) I have also found that I not only have > to avoid caffeine as much as possible and ephedra, I also found I had to > avoid alcohol. If I did manage to drink anything (what the aftertasteof > PTU does to a good single malt whiskey is criminal) 3 sips and I'm falling > down drunk. Heck, just wave the bottle at me and I'm tipsy. > > What we eat and drink and take as supplements all affect the body, and > when things are screwed up as with Graves' we got to be extra aware of > what we ingest and how it makes us feel. > > Jean > > > > ------------------------------------------------------------------------ > Avoid the lines and visit avis.com for quick and easy online > reservations. Enjoy a compact car nationwide for only $29 a day! > Click here for more details. > http://click./1/3011/3/_/585824/_/956086534/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 >>On the subject of supplements - I have taken supplements for years. I plan to continue, but would love to hear what some of you are taking that help with Graves. If I need to add something to my regimen I want to do it sooner than later! My doc told me I needed to take extra calcium, so I take those Viactin calcium chews every day. She wanted me to take a multi, but I can't take those...they kill my stomach and have never made me feel very good. So I take a personalized mix that seems to be making a difference. I take one each daily of L-Lysine (1000mg), Ginkgo (120mg), Calcium (500mg), a B-Complete mix (has all sorts of stuff....really making in difference in my stamina...I've been staying up a lot later since I've been taking it! And waking up earlier, too...); E (400 IU); and last but not least Zinc (50mg). I recommend this B multi to anyone who's feeling a bit tired. I got it at Rite Aid, and it's from PharmAssure. I hope I'm not taking anything I shouldn't be taking! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 >>On the subject of supplements - I have taken supplements for years. I plan to continue, but would love to hear what some of you are taking that help with Graves. If I need to add something to my regimen I want to do it sooner than later! My doc told me I needed to take extra calcium, so I take those Viactin calcium chews every day. She wanted me to take a multi, but I can't take those...they kill my stomach and have never made me feel very good. So I take a personalized mix that seems to be making a difference. I take one each daily of L-Lysine (1000mg), Ginkgo (120mg), Calcium (500mg), a B-Complete mix (has all sorts of stuff....really making in difference in my stamina...I've been staying up a lot later since I've been taking it! And waking up earlier, too...); E (400 IU); and last but not least Zinc (50mg). I recommend this B multi to anyone who's feeling a bit tired. I got it at Rite Aid, and it's from PharmAssure. I hope I'm not taking anything I shouldn't be taking! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 I have gone to 1200 calcium (600-650 twice a day), while also attempting to maintain some additional intake through nutrition, because of fear of bone loss. I have always taken a multi-vitamin, garlic, and E, so that is not new with Graves. I also take an omega3 supplement, but understand there may be some question about that, and I may need more comment about it when I finish my current supply (I had a big supply when I encountered my second bout with GD). I have seen suggestions about copper and bee pollen but know little about them and tend to be cautious about adding them to my daily intake. The ephedra comments have been interesting. I have always considered it a highly questionable item and we have had cases of young people in my area (dieters) suffering serious complications from using the item. I also believe that my interest in cooking exotic foods encouraged an over-consumption of natural iodine (seaweed, etc.) and may have brought me out of a remission of almost 8 years. This bout has been worse than the first, but has finally reacted well to PTU (I am currently at 3 per day). In regards to anger, my husband's last illness and death preceded my first bout with Graves. It is very difficult for me now to tell you how much was the anger over his death and how much was associated with Graves. But, yes, indeed, I was in a rage for much of a year after his death, eventually quit my job, isolated myself from anyone I felt " irritated " me (most everyone did) and became almost a recluse. It was the only way I could make it through a day. Elaine Re: supplements > On the subject of supplements - I have taken supplements for years. I plan > to continue, but would love to hear what some of you are taking that help > with Graves. If I need to add something to my regimen I want to do it > sooner than later! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 I have gone to 1200 calcium (600-650 twice a day), while also attempting to maintain some additional intake through nutrition, because of fear of bone loss. I have always taken a multi-vitamin, garlic, and E, so that is not new with Graves. I also take an omega3 supplement, but understand there may be some question about that, and I may need more comment about it when I finish my current supply (I had a big supply when I encountered my second bout with GD). I have seen suggestions about copper and bee pollen but know little about them and tend to be cautious about adding them to my daily intake. The ephedra comments have been interesting. I have always considered it a highly questionable item and we have had cases of young people in my area (dieters) suffering serious complications from using the item. I also believe that my interest in cooking exotic foods encouraged an over-consumption of natural iodine (seaweed, etc.) and may have brought me out of a remission of almost 8 years. This bout has been worse than the first, but has finally reacted well to PTU (I am currently at 3 per day). In regards to anger, my husband's last illness and death preceded my first bout with Graves. It is very difficult for me now to tell you how much was the anger over his death and how much was associated with Graves. But, yes, indeed, I was in a rage for much of a year after his death, eventually quit my job, isolated myself from anyone I felt " irritated " me (most everyone did) and became almost a recluse. It was the only way I could make it through a day. Elaine Re: supplements > On the subject of supplements - I have taken supplements for years. I plan > to continue, but would love to hear what some of you are taking that help > with Graves. If I need to add something to my regimen I want to do it > sooner than later! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 I showed my wholistic doctor 's list, and he asked me to first do a blood test to see what my copper levels were. When I asked my endo to include that test in my monthly labs, he told me that a true copper level test is very expensive, and instead did a ceruloplasmin test, which he said indicates how much copper is in the system. I came in on the low end of normal on this test. Has anyone else run ceruloplasmin levels, and is there any problem with having too much copper in the system? At 08:52 AM 04/19/2000 -0500, wrote: >Ann, > > believes that nutritional changes can send hyperthyroidism into >remission and there are people on the hyperthyroid list that have indeed >gone into remission using alternative measures and many, many who used atds >and supplements. I'm taking some of the supplements recommended, mostly >copper/zinc/selenium/iron. Shen Holy Macro! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Hi, I take a lot of supplements, but I've never taken MGN-3.... From what I can tell on the 'net, MGN-3 is regarded as one of those " hmm...it might help but not enough info seems to be out there right now " kinda things. For example, Ralph Moss put MGN-3 on a slide of " new treatments of interest " in a talk he gave last year http://www.cancerdecisions.com/speeches/glccm2001.html The Life Extension Foundation says ********************************************************************* Immune Enhancement Protocol http://www.lef.org/protocols/prtcl-062b.shtml MGN-3 is a complex containing arabinoxylane as a major component. It is produced by hydrolyzing rice bran using enzymes from mycelia of certain mushrooms. Some studies suggest it might improve immunity by, among other things, enhancing natural killer cell activity and production of tumor necrosis factor alpha. Some evidence suggests that MGN-3 has activity against HIV. Results from three small studies of healthy individuals and individuals with cancer suggest that MGN-3 also enhances natural killer cell activity. Most studies have been either in vitro or small human studies (Ghoneum 1995, 1998; Ghoneum et al. 1996). In research at the Department of Otolaryngology of Drew University of Medicine and Science, MGN-3 was examined for its effect on human NK cell activity (Ghoneum 1998). During 2 months of supplementation, NK activity was shown to have increased significantly, leading to the conclusion that MGN-3 could be used as a new biological response modifier with possible therapeutic effects against cancer. More research is definitely needed into the benefits of this supplement. ********************************************************************** And the notorious Barrett of Quackwatch fame (VERY anti ANY supplement!) says http://www.quackwatch.com/01QuackeryRelatedTopics/Cancer/mgn3.html " The key question in evaluating a proposed anti-cancer product is not whether it affects blood levels of various cells but whether it can influence tumor growth and survival time. Only well-designed clinical trials can determine that -- and no such study has been published. Arabinoxylan is a complex sugar (polysaccharide). It has been known for many years that various large polysaccharide molecules can stimulate immune responses in mice. However, it has not been demonstrated that NK cells destroy cancer cells in humans. " Which is not all that " terrible " a review (for him LOL!) So I guess the jury is still out on MGN-3 - it seems to be POSSIBLE that it could help.... Did you know that mushroom supplements have been used for many years in Oriental cultures for cancer therapy - have you explored http://ourworld.compuserve.com/homepages/suthercon/PSK.htm ? See the stuff on the MD website, for example. Steve Dunn, webmaster of the excellent site Cancerguide, also had a very favorable writeup of JHS Natural Products version of PSK http://www.cancerguide.org/psk.html That product seems to maybe be backed by more research than MGN-3. Just some thoughts. Hey, welcome to the group! Best Wishes, PS Be sure you see my alt med page for other stuff!!! http://ourworld.compuserve.com/homepages/suthercon/Altther.htm > Has anyone been taking or know of anyone who is taking a product called MGN-3? It is supposed to stimulate NK or natural T-killer cells to more aggressively attack cancer cells. > > > Quote Link to comment Share on other sites More sharing options...
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