Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 Hello Doug, Pleae explain what you mean by “AS” since I didn’t use “AS” in my email. Chuck Always as close as the other end of your computer to help address any prostate cancer concerns. " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack/Prostate Cancer Advocate/Mentor Wichita, Kansas Chapter, Us TOOBiography: http://www.ustoowichita.org/leaders.cfm?content=bio & id=1 Email: maack1@... Chapter Website " Observations " : http://www.ustoowichita.org/observations.cfm From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of dtcSent: Monday, August 29, 2011 9:21 AMTo: ProstateCancerSupport Subject: Re: Undecided Chuck,Where do you get the kind of AS you suggest?I have been to 2 top hospitals, and the testing (other than DRE and PSA) is not routinely done.Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 Chuck Maack wrote: >Hello Doug, > >Please explain what you mean by “AS†since I didn’t use “AS†in my email. Probably " Active Surveillance " .    Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 Chuck Maack wrote: >Hello Doug, > >Please explain what you mean by “AS†since I didn’t use “AS†in my email. Probably " Active Surveillance " .    Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 I certainly thought of that, Alan, but the email he is citing had nothing in it regarding “AS.†Chuck From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Alan MeyerSent: Monday, August 29, 2011 12:11 PMTo: ProstateCancerSupport Subject: Re: Re: Undecided Chuck Maack wrote:>Hello Doug,> >Please explain what you mean by “AS†since I didn’t use “AS†in my email.Probably " Active Surveillance " . Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2011 Report Share Posted August 30, 2011 sobysobe wrote: .... > However, it's unrealistic to think that you can educate the > doctor, and then convince him to do the tests. .... Doug, I think you're right about a lot of doctors, but not all of them. I get routine care at a Kaiser Permanente HMO. Most of the doctors I've had there have at least been open to suggestions for tests and will discuss them with me. I wouldn't be able to talk them into something that was ridiculously expensive, or something that they firmly believed to be useless or harmful, but if I explain why I want some test done they've usually ordered it for me. I haven't done that often, but it has worked when I have. Another avenue for more extensive testing is the research centers. Most of these are university hospitals but there are also some that are not associated with universities. Doctors at those places are often more knowledgeable about unusual tests than their colleagues in private practice, and are sometimes more interested in learning new things. So if you want some non-routine testing don't give up too soon. Try your oncologist, urologist, or GP - whoever you see for this care. If you don't get anywhere, try the other guy and, if you're not satisfied with the care you're getting, ask around about other doctors. Best of luck. Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Doug, One thing we all had to do was to manage our own research. You ask which doctors follow an AS (Active Surveillance) protocol and ask for their names. Why do you want their names? Do you want to consult with them? If so the first question is where do you live? Do you want to travel for these consultations? How far? One of the early AS doctors is based in London, England. Do you want his name? Are you going to get across to see him? Start doing some work for yourself. Put Active Surveillance Prostate Cancer into a search engine like Google. You can see the papers that have been produced on the subject and the authors. You can see where the authors are based. You can go to my site at http://www.yananow.org/exp_data.php?desc=All and read the stories of men on AS – you can even search them by State and perhaps find a doctor who has advised someone on the site who lives near you. There are many other paths to go down in your search. The point I am trying to make is that it is not in your best interests to say “Spoon Feed Me” – you need to get down to collect the information that suits you best. By all means ask for help in finding it, but get on with it. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.org and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of sobysobe Sent: Thursday, 1 September 2011 1:32 AM To: ProstateCancerSupport Subject: Re: Undecided Chuck, Thanks for the detailed response. My experience is that doctors have a pretty much set protocol, for whatever they do, and they stick to it. Therefore, I was asking for the name of a specific doctor(s), who followed the specific testing protocol for AS, as outlined in your paper. If yes, please give us the name(s). If not, thanks for the information. Doug` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Terry,You're a pragmatist, and well meaning, but there's more guys than you realize -- college education or not -- who can wade through and decipher all-but-Greek medical-speak.tdrTo: ProstateCancerSupport Sent: Wednesday, August 31, 2011 2:52 PMSubject: RE: Re: Undecided Doug, One thing we all had to do was to manage our own research. You ask which doctors follow an AS (Active Surveillance) protocol and ask for their names. Why do you want their names? Do you want to consult with them? If so the first question is where do you live? Do you want to travel for these consultations? How far? One of the early AS doctors is based in London , England . Do you want his name? Are you going to get across to see him? Start doing some work for yourself. Put Active Surveillance Prostate Cancer into a search engine like Google. You can see the papers that have been produced on the subject and the authors. You can see where the authors are based. You can go to my site at http://www.yananow.org/exp_data.php?desc=All and read the stories of men on AS – you can even search them by State and perhaps find a doctor who has advised someone on the site who lives near you. There are many other paths to go down in your search. The point I am trying to make is that it is not in your best interests to say “Spoon Feed Me†– you need to get down to collect the information that suits you best. By all means ask for help in finding it, but get on with it. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.org and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy†My ers : "As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data" From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of sobysobe Sent: Thursday, 1 September 2011 1:32 AM To: ProstateCancerSupport Subject: Re: Undecided Chuck, Thanks for the detailed response. My experience is that doctors have a pretty much set protocol, for whatever they do, and they stick to it. Therefore, I was asking for the name of a specific doctor(s), who followed the specific testing protocol for AS, as outlined in your paper. If yes, please give us the name(s). If not, thanks for the information. Doug` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 TDR, I dropped out of school at age 15. I didn’t go to college or university or……. What I know I taught myself. I know it is not easy to understand all the gobbledygook that is published, but it isn’t impossible – and you can always ask for help in ‘translating’ this. But if you are looking for some doctor to help with AS, that doesn’t require a degree, it requires persistence – at least in my opinion. All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of TD Roebling Sent: Thursday, 1 September 2011 8:29 AM To: ProstateCancerSupport Subject: Re: Re: Undecided Terry, You're a pragmatist, and well meaning, but there's more guys than you realize -- college education or not -- who can wade through and decipher all-but-Greek medical-speak. tdr To: ProstateCancerSupport Sent: Wednesday, August 31, 2011 2:52 PM Subject: RE: Re: Undecided Doug, One thing we all had to do was to manage our own research. You ask which doctors follow an AS (Active Surveillance) protocol and ask for their names. Why do you want their names? Do you want to consult with them? If so the first question is where do you live? Do you want to travel for these consultations? How far? One of the early AS doctors is based in London , England . Do you want his name? Are you going to get across to see him? Start doing some work for yourself. Put Active Surveillance Prostate Cancer into a search engine like Google. You can see the papers that have been produced on the subject and the authors. You can see where the authors are based. You can go to my site at http://www.yananow.org/exp_data.php?desc=All and read the stories of men on AS – you can even search them by State and perhaps find a doctor who has advised someone on the site who lives near you. There are many other paths to go down in your search. The point I am trying to make is that it is not in your best interests to say “Spoon Feed Me” – you need to get down to collect the information that suits you best. By all means ask for help in finding it, but get on with it. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.org and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” My ers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of sobysobe Sent: Thursday, 1 September 2011 1:32 AM To: ProstateCancerSupport Subject: Re: Undecided Chuck, Thanks for the detailed response. My experience is that doctors have a pretty much set protocol, for whatever they do, and they stick to it. Therefore, I was asking for the name of a specific doctor(s), who followed the specific testing protocol for AS, as outlined in your paper. If yes, please give us the name(s). If not, thanks for the information. Doug` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Terry,Have a friend that mirrors your scholastic creds and became a distinguished Shakespearean actor. Defies my comprehension. I never could track the meaning of Shakespeare, no matter how many times I re-read it; or his pep talks that it twould be become clearer the more I did it. NEVER HAPPENED!I need the Tony-Has-A-Pony-version. Nobody will ever make money overestimating what I can do.tdrTo: ProstateCancerSupport Sent: Wednesday, August 31, 2011 5:07 PMSubject: RE: Re: Undecided TDR, I dropped out of school at age 15. I didn’t go to college or university or……. What I know I taught myself. I know it is not easy to understand all the gobbledygook that is published, but it isn’t impossible – and you can always ask for help in ‘translating’ this. But if you are looking for some doctor to help with AS, that doesn’t require a degree, it requires persistence – at least in my opinion. All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of TD Roebling Sent: Thursday, 1 September 2011 8:29 AM To: ProstateCancerSupport Subject: Re: Re: Undecided Terry, You're a pragmatist, and well meaning, but there's more guys than you realize -- college education or not -- who can wade through and decipher all-but-Greek medical-speak. tdr To: ProstateCancerSupport Sent: Wednesday, August 31, 2011 2:52 PM Subject: RE: Re: Undecided Doug, One thing we all had to do was to manage our own research. You ask which doctors follow an AS (Active Surveillance) protocol and ask for their names. Why do you want their names? Do you want to consult with them? If so the first question is where do you live? Do you want to travel for these consultations? How far? One of the early AS doctors is based in London , England . Do you want his name? Are you going to get across to see him? Start doing some work for yourself. Put Active Surveillance Prostate Cancer into a search engine like Google. You can see the papers that have been produced on the subject and the authors. You can see where the authors are based. You can go to my site at http://www.yananow.org/exp_data.php?desc=All and read the stories of men on AS – you can even search them by State and perhaps find a doctor who has advised someone on the site who lives near you. There are many other paths to go down in your search. The point I am trying to make is that it is not in your best interests to say “Spoon Feed Me†– you need to get down to collect the information that suits you best. By all means ask for help in finding it, but get on with it. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.org and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy†My ers : "As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data" From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of sobysobe Sent: Thursday, 1 September 2011 1:32 AM To: ProstateCancerSupport Subject: Re: Undecided Chuck, Thanks for the detailed response. My experience is that doctors have a pretty much set protocol, for whatever they do, and they stick to it. Therefore, I was asking for the name of a specific doctor(s), who followed the specific testing protocol for AS, as outlined in your paper. If yes, please give us the name(s). If not, thanks for the information. Doug` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 TD Roebling wrote: .... > I need the Tony-Has-A-Pony-version. Nobody will ever make > money overestimating what I can do. Well TD, I have to say that you are ahead of some people. I often think I know what I'm doing only to find out later that I don't. At least you know what you don't know! And you ask questions - another thing that some of us don't do when we should. Don't run yourself down too much. I think you're doing okay. Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hope my onc thinks so next week, AlantdrTo: "ProstateCancerSupport " <ProstateCancerSupport >Sent: Thursday, September 1, 2011 11:58 AMSubject: Re: Re: Undecided TD Roebling wrote: .... > I need the Tony-Has-A-Pony-version. Nobody will ever make > money overestimating what I can do. Well TD, I have to say that you are ahead of some people. I often think I know what I'm doing only to find out later that I don't. At least you know what you don't know! And you ask questions - another thing that some of us don't do when we should. Don't run yourself down too much. I think you're doing okay. Alan Quote Link to comment Share on other sites More sharing options...
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