Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 , you noted: > 3. The sleeping problems I'm having can't help. ... Last night > I woke up at 1:30 and 3:30 - not unusual - but last night I was > soaked in sweat. That was unique. This can be a result of the heart laboring to decrease the CO2 level in the bloodstream. (Our breathing is triggered by an increase in CO2 ... not a decrease in O2). > 4. Starting in mid September I started experiencing chest > discomfort - kind of a pressure or heaviness welling up from > my gut that made breathing a little labored ... Again, the chest attempting to labor against the obstruction can cause this problem. Especially if the sleep pattern change was fairly sudden. > - and throat tightening. I soon got an annoying permanent > lump in my throat. The resulting snoring and abrasion of the throat due to the obstruction can cause this. I know if my obstructive sleep apnea is worse than normal by the problems with this. > ... An ENT found swelling and irritation around my larynx > that was characteristic of LPRD, a subtle form of acid > reflux. He put me on Prilosec and Mylanta. WARNING! Acid reflux can be caused by an obstruction. It gets MUCH worse. I sometimes awaken to a lung full of acid reflux. This is not safe, and can result in very serious health problems. > 6. I've got what a dermatologist told me last week is a > textbook case of yeast infection. ... Ditto here. BTW, might indicate an issue with blood sugar ... elevate the blood sugar and the possibility of skin infection increases. > Whaddya think? , please remember, I am in no way a doctor, nor is this any type of diagnosis. The most important thing you can do is to go see a sleep specialist. It is VERY likely you have obstructive sleep apnea, which is very common with MSA. It places a VERY large burden on your body. Unmanaged, it WILL increase problems with your health. Get it under control, and some of these issues should lessen. It won't make it go away. I wish it would. And I sure hope it is something this easy to manage. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 , Sorry to hear that you're doing poorly. Looking at your list of woes, I have a few ideas. 1.) Get UTI test strips and check at once for a UTI. Do not wait on this. You KNOW those can be serious. Your overall symptoms sound like the result of an infection, so even if the strip is negative, call your doc. 2.) Salt tablets. Rob takes Thermotabs, 4 a day. You can get them at CVS, but the pharmacist has to order them. They are NOT a prescription item. Salt is necessary to make the flourinef effective, and it's almost impossible to get enough by just ssalting your food. 3.) Increase the flourinef? You would have to check with your doc, but Rob takes .3 mg a day at this point. 4.) Are you drinking enough water? 5.) You may be allergic to latex, which may be in the condom cath. Have you tried Detrol? It works really well for Rob. 6.) On the midrodine, is that 10 mg per day total, or 10 mg each dose? If it's 10 mg per day total, you might be able to increase it. Rob takes 10 mg per dose, 2 doses a day for 20 mg total. Also, when are you taking the midrodine? You shouldn't take it within 6 hours of bedtime. Rob takes his upon waking and again at 4 pm and this schedule seems to work for him. 7.) Maybe you should cut back on the sinimet. Again, check with your doc. Keep us posted , we're worried about you. Carol & Rob > To Team MSA: > > Hi Gang. I need the benefit of your collective wisdom. I'm in trouble. > > In the 13 months since my diagnosis, I've experienced gradual deterioration. > But the rate of my decline accelerated after Labor Day and a little more than > a week ago, I fell off a cliff. I've hit potholes before and bounced back > after a few days but this seems different. Today is the first day I've had > the strength and energy to compose a lengthy e-mail. > > Here's what's happening to me. Is this " normal " (whatever that means) > disease progression? Or is something else happening? In either case, any > ideas about what I can do to climb out of this pit I'm in? (WARNING: some of > the descriptions that follow are graphic and may not be suitable for women > and children.) > > 1. It all seemed to start when I increased my Sinemet dose in August to > compensate for declining effectiveness. I went from 3-a-day 1½ tabs of > 25/100 to every three hours. I knew worse OH was a risk and I got it but not > bad, just a few more dizzy spells now and then. It was worth it to keep my > mobility. > > But then my OH started to progressively worsen. From dizzy spells > occasionally when I would work out with weights to spells with every exercise > to spells just walking or standing around. BP swings are wilder. I take a > supine reading when I first wake up and then after standing two minutes; the > drop these days is 80-100 points. Yesterday it went from 166/86 to 64/40. > > I'm taking Florinef (.2 MG a day) and Pro-Amatine (10 MG 3-a-day) and > potassium supplements. Haven't seen a cardiologist in over a year; got an > appointment with a new one in two weeks. > > 2. The real problem I've got now, for the last 10 days really, is what I call > " the Ws. " I'm extremely weak, weary, wobbly, and woozy. I haven't been able > to exercise or walk at all. I just feel awful full time. > > My psychiatrist just put me on Provigil. I know it's for narcolepsy but he > says they are having some success with it treating the weakness and fatigue > that accompanies depression. (I have a history of depression and my MSA > decline has sunk my mood so I've also resumed Prozac after going off it a > year ago.) > > 3. The sleeping problems I'm having can't help. I get 4 to 6 hours a night. > I take 10 MG of Ambien that gives me about 2½ to 3 hours and when I wake up a > second 10 MG gets me another 2-3. I'm trying a new sleeping pill: Temazepam > (Restoril). I know some of you use Trazadone but my psychiatrist worries > about OH affects. > > Last night I woke up at 1:30 and 3:30 - not unusual - but last night I was > soaked in sweat. That was unique. > > 4. Starting in mid September I started experiencing chest discomfort - kind > of a pressure or heaviness welling up from my gut that made breathing a > little labored - and throat tightening. I soon got an annoying permanent > lump in my throat. > > My internist did a workup that showed no explanation for the chest problem > (no cardio problem). An ENT found swelling and irritation around my larynx > that was characteristic of LPRD, a subtle form of acid reflux. He put me on > Prilosec and Mylanta. > > 5. Constipation is a lot worse. My long-time formula of prunes, bran, > doscusate sodium, hydration, and exercise has failed me. My internist has me > taking Fibercon and using glycerine suppositories. > > 6. I've got what a dermatologist told me last week is a textbook case of > yeast infection. A one-dose pill and anti-fungal cream (typical vaginal > treatment) seemed to clear up the problem while I laid off using my condom > catheters but since I resumed using them it's back. OUCH! > > 7. And the latest addition, my bladder seems to be acting up. Yesterday I > had some very intense urges to urinate accompanied by almost a burning > sensation but very little urine production. And in the middle of last night > I had the same thing but no urine release. Alongside this, however, I'm also > peeing pretty " normally. " My overnight urine production seems to be > increasing somewhat. It's routinely over 1000 ML. (A UTI?) > > > Whaddya think? > > Thanks. > > Moller… too weak and weary to join the million family march from the > shadow of our Nation's capital Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 , I agree wholeheartedly with Fisher's comments. I forgot about sleep in my earlier response. You should ask about a sleep study. Carol & Rob > , you noted: > > > 3. The sleeping problems I'm having can't help. ... Last night > > I woke up at 1:30 and 3:30 - not unusual - but last night I was > > soaked in sweat. That was unique. > > This can be a result of the heart laboring to decrease the CO2 level in the > bloodstream. (Our breathing is triggered by an increase in CO2 ... not a > decrease in O2). > > > 4. Starting in mid September I started experiencing chest > > discomfort - kind of a pressure or heaviness welling up from > > my gut that made breathing a little labored ... > > Again, the chest attempting to labor against the obstruction can cause this > problem. Especially if the sleep pattern change was fairly sudden. > > > - and throat tightening. I soon got an annoying permanent > > lump in my throat. > > The resulting snoring and abrasion of the throat due to the obstruction can > cause this. I know if my obstructive sleep apnea is worse than normal by > the problems with this. > > > ... An ENT found swelling and irritation around my larynx > > that was characteristic of LPRD, a subtle form of acid > > reflux. He put me on Prilosec and Mylanta. > > WARNING! Acid reflux can be caused by an obstruction. It gets MUCH worse. > I sometimes awaken to a lung full of acid reflux. This is not safe, and can > result in very serious health problems. > > > 6. I've got what a dermatologist told me last week is a > > textbook case of yeast infection. ... > > Ditto here. BTW, might indicate an issue with blood sugar ... elevate the > blood sugar and the possibility of skin infection increases. > > > Whaddya think? > > , please remember, I am in no way a doctor, nor is this any type of > diagnosis. The most important thing you can do is to go see a sleep > specialist. It is VERY likely you have obstructive sleep apnea, which is > very common with MSA. It places a VERY large burden on your body. > Unmanaged, it WILL increase problems with your health. Get it under > control, and some of these issues should lessen. It won't make it go away. > I wish it would. And I sure hope it is something this easy to manage. > > > Regards, > =jbf= > > B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 , Have you had a blood chemistry done recently? (Since all this started). Blood chemistry can get out of hand easily and cause much of what you are describing. As some of the other's have mentioned there are other possibilities also. You know MSA - a few fast balls, then a curve. There are also several flu bugs running around the DC area. Yes, infection is a possibility - blood infections do not show in urine samples. The burning could be a UTI. Final thought - are you getting enough salt. With taking potassium you may be flushing out more sodium. Now you have tons of junk to think about ) Hopefully it is just MSA saying it's seasonal change time and will go away soon. Maybe it's that long shadow of the Capital blocking your sunlight. ) Charlotte has had less energy recently also. Take care, Bill and Charlotte ------------------------------------------------------------- JVM2929@... wrote: > To Team MSA: > > Hi Gang. I need the benefit of your collective wisdom. I'm in trouble. > > In the 13 months since my diagnosis, I've experienced gradual deterioration. > But the rate of my decline accelerated after Labor Day and a little more than > a week ago, I fell off a cliff. I've hit potholes before and bounced back > after a few days but this seems different. Today is the first day I've had > the strength and energy to compose a lengthy e-mail. > > Here's what's happening to me. Is this " normal " (whatever that means) > disease progression? Or is something else happening? In either case, any > ideas about what I can do to climb out of this pit I'm in? (WARNING: some of > the descriptions that follow are graphic and may not be suitable for women > and children.) > > 1. It all seemed to start when I increased my Sinemet dose in August to > compensate for declining effectiveness. I went from 3-a-day 1½ tabs of > 25/100 to every three hours. I knew worse OH was a risk and I got it but not > bad, just a few more dizzy spells now and then. It was worth it to keep my > mobility. > > But then my OH started to progressively worsen. From dizzy spells > occasionally when I would work out with weights to spells with every exercise > to spells just walking or standing around. BP swings are wilder. I take a > supine reading when I first wake up and then after standing two minutes; the > drop these days is 80-100 points. Yesterday it went from 166/86 to 64/40. > > I'm taking Florinef (.2 MG a day) and Pro-Amatine (10 MG 3-a-day) and > potassium supplements. Haven't seen a cardiologist in over a year; got an > appointment with a new one in two weeks. > > 2. The real problem I've got now, for the last 10 days really, is what I call > " the Ws. " I'm extremely weak, weary, wobbly, and woozy. I haven't been able > to exercise or walk at all. I just feel awful full time. > > My psychiatrist just put me on Provigil. I know it's for narcolepsy but he > says they are having some success with it treating the weakness and fatigue > that accompanies depression. (I have a history of depression and my MSA > decline has sunk my mood so I've also resumed Prozac after going off it a > year ago.) > > 3. The sleeping problems I'm having can't help. I get 4 to 6 hours a night. > I take 10 MG of Ambien that gives me about 2½ to 3 hours and when I wake up a > second 10 MG gets me another 2-3. I'm trying a new sleeping pill: Temazepam > (Restoril). I know some of you use Trazadone but my psychiatrist worries > about OH affects. > > Last night I woke up at 1:30 and 3:30 - not unusual - but last night I was > soaked in sweat. That was unique. > > 4. Starting in mid September I started experiencing chest discomfort - kind > of a pressure or heaviness welling up from my gut that made breathing a > little labored - and throat tightening. I soon got an annoying permanent > lump in my throat. > > My internist did a workup that showed no explanation for the chest problem > (no cardio problem). An ENT found swelling and irritation around my larynx > that was characteristic of LPRD, a subtle form of acid reflux. He put me on > Prilosec and Mylanta. > > 5. Constipation is a lot worse. My long-time formula of prunes, bran, > doscusate sodium, hydration, and exercise has failed me. My internist has me > taking Fibercon and using glycerine suppositories. > > 6. I've got what a dermatologist told me last week is a textbook case of > yeast infection. A one-dose pill and anti-fungal cream (typical vaginal > treatment) seemed to clear up the problem while I laid off using my condom > catheters but since I resumed using them it's back. OUCH! > > 7. And the latest addition, my bladder seems to be acting up. Yesterday I > had some very intense urges to urinate accompanied by almost a burning > sensation but very little urine production. And in the middle of last night > I had the same thing but no urine release. Alongside this, however, I'm also > peeing pretty " normally. " My overnight urine production seems to be > increasing somewhat. It's routinely over 1000 ML. (A UTI?) > > Whaddya think? > > Thanks. > > Moller… too weak and weary to join the million family march from the > shadow of our Nation's capital > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 I'm NOT a doctor but I do have some experience that comes from taking care of my mom. Here are a few thinkg you can try. I apologize in advance if they seem simplistic or you have already considered them. 1. Sinemet - - it helps only some and hurts others. Work closely with your doctor. In addition, are you taking your pills with citris juice. See the Mayo Clinic study referenced below on how citris juices can alter and magnify the effects of certain drugs. (headline)GO EASY ON THE GRAPEFRUIT JUICE Sour citrus interacts badly with common drugs http://www.healthscout.com/cgi-bin/WebObjects/Af.woa?ap=1 & id=103640 2. Sleeping - Consider visiting a sleep clinic to get monitored? 3. Dizziness: Are you sleeping with your head elevated? Some suggest that putting a few bricks under the feet of the head of your bed will help strengthen your blood pressure over time. 4. Constipation: Have you tried Swiss Kriss tablets before bedtime. They are natural, primarily senna, very mild, not habit forming and work much better than prunes etc. You can buy them without prescription at most healthfood stores and they are much cheaper than brand name tablets (60 pills for about $6.) 5. Salt tablets. Some people just don't get enough salt through regular eating. You can buy salt tablets over the counter in most pharmacies. Also salt will stimulate thirst and we all know that you need lots of fluids to keep your blood pressure up (as long as you don't already ahve high blood pressure.) Sure you end up urinating more, but the price of falling less should be worth it. 6. Are you monitoring sugar intake. Sometimes people forget to eat sugar, like an orange or an apple and that makes them feel week and dizzy (sugar low.) 7. Fresh air. We found that my mother perks up a lot just by getting a ride in a wheel chair. We're not sure why but we do know that staying in bed or in a chair all day is a common reaction to feeling weak and dizzy but it can make things worse. Can someone take you out for a wheel chair ride or even a ride in a car with some windows open? I hope that some of these tips are helpful. Take care. > To Team MSA: > > Hi Gang. I need the benefit of your collective wisdom. I'm in trouble. > > In the 13 months since my diagnosis, I've experienced gradual deterioration. > But the rate of my decline accelerated after Labor Day and a little more than > a week ago, I fell off a cliff. I've hit potholes before and bounced back > after a few days but this seems different. Today is the first day I've had > the strength and energy to compose a lengthy e-mail. > > Here's what's happening to me. Is this " normal " (whatever that means) > disease progression? Or is something else happening? In either case, any > ideas about what I can do to climb out of this pit I'm in? (WARNING: some of > the descriptions that follow are graphic and may not be suitable for women > and children.) > > 1. It all seemed to start when I increased my Sinemet dose in August to > compensate for declining effectiveness. I went from 3-a-day 1½ tabs of > 25/100 to every three hours. I knew worse OH was a risk and I got it but not > bad, just a few more dizzy spells now and then. It was worth it to keep my > mobility. > > But then my OH started to progressively worsen. From dizzy spells > occasionally when I would work out with weights to spells with every exercise > to spells just walking or standing around. BP swings are wilder. I take a > supine reading when I first wake up and then after standing two minutes; the > drop these days is 80-100 points. Yesterday it went from 166/86 to 64/40. > > I'm taking Florinef (.2 MG a day) and Pro-Amatine (10 MG 3-a-day) and > potassium supplements. Haven't seen a cardiologist in over a year; got an > appointment with a new one in two weeks. > > 2. The real problem I've got now, for the last 10 days really, is what I call > " the Ws. " I'm extremely weak, weary, wobbly, and woozy. I haven't been able > to exercise or walk at all. I just feel awful full time. > > My psychiatrist just put me on Provigil. I know it's for narcolepsy but he > says they are having some success with it treating the weakness and fatigue > that accompanies depression. (I have a history of depression and my MSA > decline has sunk my mood so I've also resumed Prozac after going off it a > year ago.) > > 3. The sleeping problems I'm having can't help. I get 4 to 6 hours a night. > I take 10 MG of Ambien that gives me about 2½ to 3 hours and when I wake up a > second 10 MG gets me another 2-3. I'm trying a new sleeping pill: Temazepam > (Restoril). I know some of you use Trazadone but my psychiatrist worries > about OH affects. > > Last night I woke up at 1:30 and 3:30 - not unusual - but last night I was > soaked in sweat. That was unique. > > 4. Starting in mid September I started experiencing chest discomfort - kind > of a pressure or heaviness welling up from my gut that made breathing a > little labored - and throat tightening. I soon got an annoying permanent > lump in my throat. > > My internist did a workup that showed no explanation for the chest problem > (no cardio problem). An ENT found swelling and irritation around my larynx > that was characteristic of LPRD, a subtle form of acid reflux. He put me on > Prilosec and Mylanta. > > 5. Constipation is a lot worse. My long-time formula of prunes, bran, > doscusate sodium, hydration, and exercise has failed me. My internist has me > taking Fibercon and using glycerine suppositories. > > 6. I've got what a dermatologist told me last week is a textbook case of > yeast infection. A one-dose pill and anti-fungal cream (typical vaginal > treatment) seemed to clear up the problem while I laid off using my condom > catheters but since I resumed using them it's back. OUCH! > > 7. And the latest addition, my bladder seems to be acting up. Yesterday I > had some very intense urges to urinate accompanied by almost a burning > sensation but very little urine production. And in the middle of last night > I had the same thing but no urine release. Alongside this, however, I'm also > peeing pretty " normally. " My overnight urine production seems to be > increasing somewhat. It's routinely over 1000 ML. (A UTI?) > > > Whaddya think? > > Thanks. > > Moller… too weak and weary to join the million family march from the > shadow of our Nation's capital Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Moller: Have you had a sleep study done for apnea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Hi : Don't know if I'll be much help - but here goes. With regards to the 'lump' in your chest I have a hiatus hernia and I find by laying on my left side with my head raised and raising my left arm so the elbow is above the shoulder, I can get some relief. As for the constipation I asked the doctor for a stool softener and found it irritated my bladder so I had symptoms just like you described. I only discovered it by accident but since I quit using it about 6-8 months ago, I haven't had any of that burning urgency and inability to pass the urine. I've always had an irritable bowel so quite often I find eating something fried or greasy will get me going as well as watching diet, but it certainly is a yoyo game between constipation and running. I'm usually up every 20-30 minutes from 11pm until 2pm to go to the bathroom and then every 2-3 hours after that. I also have one nightly bout with 'night sweats' but I thought for a long time it was a left-over from 11 years of very extreme hot flashes. I know now that it is just one more reason for SDS to get you up in the middle of the night. I keep a glass of water or cranberry juice and a small fan handy. As for the w's - If I try to overdo physically, I'll be down for days. Thanksgiving weekend my boys came down to do some repairs on my house, stayed over and on Sunday their wives and children joined them and I made dinner. By the time it was over, I was in a big chair watching the others clean up and grabbing a granchild for a hug whenever one ran by. For the next 3 days, I was on the sofa watching TV, reading or playing with the computer - no energy for anything. I used to be a high-energy person and it sure is hard to make yourself slow down, but it's that or BE down. Hope I've helped. (Ont. Can.) JVM2929@... wrote: > To Team MSA: > > Hi Gang. I need the benefit of your collective wisdom. I'm in trouble. > > In the 13 months since my diagnosis, I've experienced gradual deterioration. > But the rate of my decline accelerated after Labor Day and a little more than > a week ago, I fell off a cliff. I've hit potholes before and bounced back > after a few days but this seems different. Today is the first day I've had > the strength and energy to compose a lengthy e-mail. > > Here's what's happening to me. Is this " normal " (whatever that means) > disease progression? Or is something else happening? In either case, any > ideas about what I can do to climb out of this pit I'm in? (WARNING: some of > the descriptions that follow are graphic and may not be suitable for women > and children.) > > 1. It all seemed to start when I increased my Sinemet dose in August to > compensate for declining effectiveness. I went from 3-a-day 1½ tabs of > 25/100 to every three hours. I knew worse OH was a risk and I got it but not > bad, just a few more dizzy spells now and then. It was worth it to keep my > mobility. > > But then my OH started to progressively worsen. From dizzy spells > occasionally when I would work out with weights to spells with every exercise > to spells just walking or standing around. BP swings are wilder. I take a > supine reading when I first wake up and then after standing two minutes; the > drop these days is 80-100 points. Yesterday it went from 166/86 to 64/40. > > I'm taking Florinef (.2 MG a day) and Pro-Amatine (10 MG 3-a-day) and > potassium supplements. Haven't seen a cardiologist in over a year; got an > appointment with a new one in two weeks. > > 2. The real problem I've got now, for the last 10 days really, is what I call > " the Ws. " I'm extremely weak, weary, wobbly, and woozy. I haven't been able > to exercise or walk at all. I just feel awful full time. > > My psychiatrist just put me on Provigil. I know it's for narcolepsy but he > says they are having some success with it treating the weakness and fatigue > that accompanies depression. (I have a history of depression and my MSA > decline has sunk my mood so I've also resumed Prozac after going off it a > year ago.) > > 3. The sleeping problems I'm having can't help. I get 4 to 6 hours a night. > I take 10 MG of Ambien that gives me about 2½ to 3 hours and when I wake up a > second 10 MG gets me another 2-3. I'm trying a new sleeping pill: Temazepam > (Restoril). I know some of you use Trazadone but my psychiatrist worries > about OH affects. > > Last night I woke up at 1:30 and 3:30 - not unusual - but last night I was > soaked in sweat. That was unique. > > 4. Starting in mid September I started experiencing chest discomfort - kind > of a pressure or heaviness welling up from my gut that made breathing a > little labored - and throat tightening. I soon got an annoying permanent > lump in my throat. > > My internist did a workup that showed no explanation for the chest problem > (no cardio problem). An ENT found swelling and irritation around my larynx > that was characteristic of LPRD, a subtle form of acid reflux. He put me on > Prilosec and Mylanta. > > 5. Constipation is a lot worse. My long-time formula of prunes, bran, > doscusate sodium, hydration, and exercise has failed me. My internist has me > taking Fibercon and using glycerine suppositories. > > 6. I've got what a dermatologist told me last week is a textbook case of > yeast infection. A one-dose pill and anti-fungal cream (typical vaginal > treatment) seemed to clear up the problem while I laid off using my condom > catheters but since I resumed using them it's back. OUCH! > > 7. And the latest addition, my bladder seems to be acting up. Yesterday I > had some very intense urges to urinate accompanied by almost a burning > sensation but very little urine production. And in the middle of last night > I had the same thing but no urine release. Alongside this, however, I'm also > peeing pretty " normally. " My overnight urine production seems to be > increasing somewhat. It's routinely over 1000 ML. (A UTI?) > > Whaddya think? > > Thanks. > > Moller… too weak and weary to join the million family march from the > shadow of our Nation's capital > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Yes, a year ago. It showed no evidence of apnea -- only that its damn tough to sleep with two dozen electrodes pasted on you and knowing you are on camera! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Thanks, ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 I called my OB's office to find out what I can take or do for a VERY STUFFING NOSE, and I seem to be on hold forever. So, what can I do? I can't breathe! I was told no to nasal spray and yes to sudafed, but it's not working at all. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 Tylenol Allergy/Sinus works for me. I was sooooo sick last week and usually don't take any meds at all -- but my sister (who is also preg) said she swears by Tylenol Allergy/Sinus so I bought some and it worked wonders!!!!! > I called my OB's office to find out what I can take or do for a VERY > STUFFING NOSE, and I seem to be on hold forever. So, what can I do? > I can't breathe! I was told no to nasal spray and yes to sudafed, > but it's not working at all. > > Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 No nasal spray? I have been taking Tylenol Sinus and it doesn't seem to work. I finally did get in touch with the nurse at my OB's office and she said plain sudafed. Don't want that, but she did say that having a stuffy nose is part of being pregnant. Oh whatever! I can't breathe! There's gotten be relief somewhere, right? > > I called my OB's office to find out what I can take or do for a > VERY > > STUFFING NOSE, and I seem to be on hold forever. So, what can I > do? > > I can't breathe! I was told no to nasal spray and yes to sudafed, > > but it's not working at all. > > > > Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 You sound like me! LOL! I've had such terrible nasal congestion...especially at night, that hubby ends up moving to the couch because of my AWFUL snoring. ( My OB's office suggested benadryl. I take it only when I'm especially stuffy...ya know I just HATE to take much of anything. They say it's safe...but, I'd rather err on the side of caution. But, if you can't breathe, ya gotta do something! I also find that doing the old Vicks Vaporub works wonders, too. I'll boil a pot of water, scoop a couple spoons of the stuff into it, throw a towel over my head and breath it all in. Can't stand it in my eyes, though...gotta keep 'em closed! I think the lack of humidity is an issue...from running the heater in winter. I try to boil a couple pots of water each night (when I remember! ). This seams to help, too. Good luck! Blessings, in California EDD March 20, 2002 with baby GIRL #1 I need help! I called my OB's office to find out what I can take or do for a VERY STUFFING NOSE, and I seem to be on hold forever. So, what can I do? I can't breathe! I was told no to nasal spray and yes to sudafed, but it's not working at all. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 The pregnancy rhinitis is a real phenomenon... all of your mucus membranes swell when you're pg, no matter where they are in your body. I had a stuffed-up nose for pretty much my entire pregnancy with Isaac, and nothing helped much (although the humidifier was as helpful as anything). Sorry!!! Kris BAYBBBREZE23 wrote: > Don't want that, but she did say that > having a stuffy nose is part of being pregnant. Quote Link to comment Share on other sites More sharing options...
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