Re: Hypo & ATD'S

[Guest guest]

In a message dated 04/07/2000 6:56:38 AM Pacific Daylight Time,

rscoggin@... writes:

> There is no " cure " for

> Graves, even if one is in " remission " for 20+ years, one stressful event

and

> it'll be back. Given the way I handle stress, it would be much sooner than

> later (I manage stress as well as I can with exercise and relaxation, but

my

Dear ,

One stressful event huh? Now that is superlative negative thinking and I

wholeheartedly reject this negative suggestion. And I say press on all you

out there in your various length and stage remissions and enjoy it!

, if what you say is true then you could do RAI and if you don't learn

how to handle stress you may find your immune system could create other weird

anti-bodies and then your body succomb to a different auto-immune disease,

or the GD antibodies ( which RAI does not change..hence eye diesease etc.)

will just ravage some other part of your body. The thyroid is the victim,

not the perpetrator. I know some folks do fine after each kind of treatment

and I hope that you are benefited by RAI and have restored health in all

realms. I understand that it takes different patience levels to put up with

various treatments, and we each have to choose in the myriad specifics of our

lives. But the three main methods, ATD's Rai and Surgery are all best used

with adjunctives that are aimed at our habits of diet, exercise, inner peace

and all.

Think on this....all physical healing is temporary. In these temporal

moments may we all learn to experience time and health in a larger and more

transcedent context...it is much less stressful.

Best regards with concern, Jeannette

[Guest guest]

I'm trying to assimilate all of these new and sometimes discrepant

statistics... I realize the RAI was a done-deal in regard to going hypo. My

Endo advised me of such and I consented to it. There is no " cure " for

Graves, even if one is in " remission " for 20+ years, one stressful event and

it'll be back. Given the way I handle stress, it would be much sooner than

later (I manage stress as well as I can with exercise and relaxation, but my

body just doesn't handle the everyday pressures of home, family, and

children like others can). Hyperthyroid symptoms were way too scary for me.

I had already been through it twice, felt manic and panicky, and I much

prefer the sloth-like feeling of being hypo. I KNOW I'm becoming more hypo

over time. I KNOW drugs will never replace the function of my dying gland.

All endocrine organs run on feedback and my thyroid is now unresponsive to

that input. So, like now, when I've increased my exercise schedule, I need

more thyroid hormone to replace what I need for this increased activity in

my life. Same for pregnancy. We weren't built to need one static amount of

hormone every morning at 7 a.m.

As for my negativity towards ATDs, that's just from my personal experience.

I sincerely hope they work in bringing about long term remissions of

hyperthyroid symptoms in those taking them.

I had high hopes for them, but I believe I was mismanaged medically and

didn't know better. I guess I hang on to the negative statistics of ATDs

and remissions to make myself feel better about my condition. I don't put

much credence in all of these stats being bandied around anyway. I heard a

good quote once: " If you can't get a study to produce the results you were

expecting, you didn't design it right. " All I can go by is my body and how

it reacts to certain stimuli. I can't go by averages produced in studies

and believe it'll work that way for me.

Renée

Mom to , 10,

and Sierra Dawn, 08/22/99

http://cscoggin.home.netcom.com

[Guest guest]

I heard

a

good quote once: " If you can't get a study to produce the results you

were

expecting, you didn't design it right. "

Hi -

That's probably true. Hey! My study on Entamoeba didn't turn out anything like

I expected it to. It turned out

even better with many surprises. But then again, I was naive enough to think

that all scientists designed their

studies for unbiased results. As the years have gone on, it's very apparent

that that doesn't happen unless you're

studying something found in as innocuous a medium as turtle poop (or snake poop,

or lizard poop or frog

poop.......). Obviously, I didn't really have any ulterior motives! Or did I?

: )

Take care,

Utecht

wrote:

> I'm trying to assimilate all of these new and sometimes discrepant

> statistics... I realize the RAI was a done-deal in regard to going hypo. My

> Endo advised me of such and I consented to it. There is no " cure " for

> Graves, even if one is in " remission " for 20+ years, one stressful event and

> it'll be back. Given the way I handle stress, it would be much sooner than

> later (I manage stress as well as I can with exercise and relaxation, but my

> body just doesn't handle the everyday pressures of home, family, and

> children like others can). Hyperthyroid symptoms were way too scary for me.

> I had already been through it twice, felt manic and panicky, and I much

> prefer the sloth-like feeling of being hypo. I KNOW I'm becoming more hypo

> over time. I KNOW drugs will never replace the function of my dying gland.

> All endocrine organs run on feedback and my thyroid is now unresponsive to

> that input. So, like now, when I've increased my exercise schedule, I need

> more thyroid hormone to replace what I need for this increased activity in

> my life. Same for pregnancy. We weren't built to need one static amount of

> hormone every morning at 7 a.m.

>

> As for my negativity towards ATDs, that's just from my personal experience.

> I sincerely hope they work in bringing about long term remissions of

> hyperthyroid symptoms in those taking them.

> I had high hopes for them, but I believe I was mismanaged medically and

> didn't know better. I guess I hang on to the negative statistics of ATDs

> and remissions to make myself feel better about my condition. I don't put

> much credence in all of these stats being bandied around anyway. I heard a

> good quote once: " If you can't get a study to produce the results you were

> expecting, you didn't design it right. " All I can go by is my body and how

> it reacts to certain stimuli. I can't go by averages produced in studies

> and believe it'll work that way for me.

>

> Renée

> Mom to , 10,

> and Sierra Dawn, 08/22/99

> http://cscoggin.home.netcom.com

>

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> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

[Guest guest]

give me hyper any day. I feel like I'm dead when I'm in the normal

range.

Here's another article on the Block treatment from .

I'm sure that the " B " protocol I told you about, will fit you. It is not

called here " block and replace " , but *supplementation therapy. It's one

of

the main three protocols followed for thyroid blockers.

Didn't speak about doses at the Board, but here they are:

An initial dose of 30-45 mg/day metimazol or carbimazol three/four times

a

day is used; (or 300-450 mg/day three/four times daily)

On the sixth week, -when euthyroidism has been reached- it's added a

daily

dose on thyroxine 100/150 micrograms/day, at the necessary dose to

maintain

euthyroidism, according to each case.

The point is to ****AVOID GOING HYPO, with all the implications it has,

which in your specific case does not help.

Hypo is associated, among many other things, with problems in the

metabolissm of fat, thus weight gain.

Also, many folks on different BBs report that adding T3 to T4

supplementation, makes a big difference, specially in *moods and *brain

function. And even, many among them say that they feel better ussing

dessicated natural thyroid -from pigs- They call it Armour. I've never

tryed

it myself, so cannot speak from personal experience. But it is not

strange

since there is great affinity between pigs' tissues and humans' ones.

They

are even used for transplantations. So, nothing closer to a person's

thyroid

than the one from the pigs.

Perhaps you know from a study published at the NEJM, Feb 11, 1999 issue

about the use T3+T http://www.nejm.org/content/1999/0340/0006/0469.asp

[Guest guest]

Hi -

The addition of T3 has helped me tremendously. Mood and brain function are much

better but I also want to list all

the symptoms that have disappeared or improved with T3:

face and neck swelling, muscle aches and pains, arthritis, " sick " fatigue, panic

attacks, apnea, broken and bleeding

skin, irritable bowel syndrome, acne and neuropathies. And my lung capacity has

increased (I didn't know that was a

problem until it got better-I was so used to feeling like this).

For years they'd send me to all sorts of specialists to try to get rid of these

problems but none of the treatments

worked. Finally, I went to an endocrinologist who checked my T3 levels. They

were way low.

If any of you on thyroid supplements see yourself here, get your T3 levels

checked first before you waste time and

money running around to all the specialists. This might not be your problem,

but if you're hypothyroid it can't

hurt to check that first.

Take care,

Utecht

Hearn wrote:

> give me hyper any day. I feel like I'm dead when I'm in the normal

> range.

>

> Here's another article on the Block treatment from .

>

> I'm sure that the " B " protocol I told you about, will fit you. It is not

> called here " block and replace " , but *supplementation therapy. It's one

> of

> the main three protocols followed for thyroid blockers.

>

> Didn't speak about doses at the Board, but here they are:

>

> An initial dose of 30-45 mg/day metimazol or carbimazol three/four times

> a

> day is used; (or 300-450 mg/day three/four times daily)

>

> On the sixth week, -when euthyroidism has been reached- it's added a

> daily

> dose on thyroxine 100/150 micrograms/day, at the necessary dose to

> maintain

> euthyroidism, according to each case.

>

> The point is to ****AVOID GOING HYPO, with all the implications it has,

> which in your specific case does not help.

>

> Hypo is associated, among many other things, with problems in the

> metabolissm of fat, thus weight gain.

>

> Also, many folks on different BBs report that adding T3 to T4

> supplementation, makes a big difference, specially in *moods and *brain

> function. And even, many among them say that they feel better ussing

> dessicated natural thyroid -from pigs- They call it Armour. I've never

> tryed

> it myself, so cannot speak from personal experience. But it is not

> strange

> since there is great affinity between pigs' tissues and humans' ones.

> They

> are even used for transplantations. So, nothing closer to a person's

> thyroid

> than the one from the pigs.

>

> Perhaps you know from a study published at the NEJM, Feb 11, 1999 issue

> about the use T3+T http://www.nejm.org/content/1999/0340/0006/0469.asp

>

>

[Guest guest]

Well a few months ago I reported that I did not have much of a problem

with rage. Well

I had a mighty big episode on Saturday. It's strange because I am a love

and peace kind of person but I hate condescension. I know that maybe I

could have handled it better.

Years ago I would have felt guity for ages. Now I'm feeling quite at

peace with myself.

Some people are so rude that only extreme measures can straighten them

out. I hope that the next time this person opens her mouth to put

somebody in her place she remembers

my outburst.

good night.

[Guest guest]

:

You're not the only one. I did have a problem with rage, but thought

it had been taken care of by the PTU since there had been no

recurrence for a few months.

I missed my dosage by 25mg on Sunday and on Monday went ballistic

over

a rude driver. Really balistic. Smoke coming out of my ears. I am

wondering if the effects of my PTU intake actually occur or carry

over

into the next day,and if such a small dosage could make such a big

difference. Will start watching for a pattern.

Anyway, powerful and rageful Graves women unite!

> Well a few months ago I reported that I did not have much of a

problem

> with rage.

[Guest guest]

, I am sort of enjoying this. Perhaps that is perverse. However, I

have never gone balistic over anything less than comptempt. Most of my

life I just turned the other cheek but now I find I am unable to and I

really don't think that is such a terrible thing. I have not become a

mad woman who goes into a rage over trivial things. It still takes

comtempt.