Tim

[Guest guest]

Tim,

I'm so sorry about your SIL. It sounds like you got lucky when you got inlaws......I got a great FIL and MIL when I got married....but, if my SIL and Nephews just disappeared off the face of this earth, it wouldn't hurt my feelings any! In fact, I would throw one heck of a party, and Since no one else in this town likes them either, I KNOW it would be a Huge party!!!! lmao

What I wanted to say though, is that the odds of the RSD spreading is great.....because 70% of those that do have it, does have some spread. But, I'm hoping that you are in the %30 range....and it never spreads!

The Migraines and RSD Headaches though are just part of having RSD. It sounds like yours is more of an RSD Headache though...in which normal Migraine meds don't help with...OTC or Prescription. And, there is nothing out there to actually help with them either, so we are left trying to find anything possible to help get rid of them.

I was on a combination of meds up to January that really helped me....if I did get one, it was really mild. But, because of these 3 meds, I rarely got one any longer.

I was on Paxil, Seroquel and Topamax. These 3 meds were a life saver for me when it came to those headaches...along with the severe anxiety attacks.

Seperately though, the paxil was for my Depression, the Seroquel was for the depression, sleep, anxiety attacks and the Topamax was for the muscle spasms and burning pain.

So, by being on just those 3 meds....3/4 of my symptoms were taken care of. All I had left was my pain meds to take care of the rest of it.

I know that what helped me might not help anyone else......but, if someone is on good insurance or State Medical.....and have the headaches, muscle spasms, burning, anxiety attacks, and Depression.....I would definately recommend that they try this combo themselves, and see if it does help. Give it 2 months though...at least, if not 3 before determining that it doesn't. It does take a little while for some of it to start working. And, the doses need to be adjusted.....

That is why I said to give it at least 2-3 months, but, if you are on good enough insurance where you don't have to pay very much for your meds.....I would suggest being on this combo for 6 months for the full effects, because by then, the doses should be upped enough to actually help if it is going to.

The way I've come to think of things now, after having RSD, Fibromyalgia, and disc problems in my back......along with the Depression.......anything is worth a try, no matter how long it takes to get it up to the full doses. With uncurable diseases, we have our whole lives to find meds that works, a cure, or anything else.

6 months is a drop in the bucket time wise compared to a lifetime.

Tonia

-------Original Message-------Now from what I understand RSD will often spread to another part of the body on the same side as the original injury or will spread across to the opposite limb...sounds like that may be a possibility in your case. My problems began after an Ulnar Nerve transposition of my right elbow. Other than pain and weakness in my right arm and shoulder, headaches and irritability it hasn't really taken hold anywhere else. The numbness of my right toes and knee cap are sporadic at best, hopefully they will stay that way.Tim

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[Guest guest]

Tim,

I think that just about cover's every thing. They gotta cover cause I don't

think they know completely. Always looking out for the hiney.

Hope your day is going well. Sold lots of cookies.

Laurie

P.s. my head hurts. I fear it's starting again.

[Guest guest]

things I just realized that I am not scared, maybe that is the what is eating at my wife, she likes structure and a sense of control and I have resigned myself to riding the wave of life. Is it irresponsible?

Tim,

I don't believe it is irresponsible at all. I have always been a control freak. I used to plan, plan, and plan some more and Heaven forbid anything change those plans, I was a mess.

Then, RSD.

I had to finally accept that I do not have complete control over anything or anyone, including myself. Know what? It's EASIER!!! LOL. I am so much more relaxed now, I laugh more, despite the pain, etc. and I am, quite honestly, happier. Go figure.

I am one of those who does believe that everything does happen for a reason. I have changed so much, for the better, actually. I am much kinder and more compassionate.

I do not have the patience that I want yet, but I'm getting there. I STILL don't wait for Drs. though!

I still have to be very controlling in my job, but that goes with owning a business and dealing with people and $$. I find that most days, when I leave the office (without work with me) that I leave that behind, and I never used to do that.

Hmmm. good to reflect on life. It is good, in many ways.

Thanks,

Jo

[Guest guest]

Tim,

I've found a few other links you might want to check out.

Some of these are groups that I have joined that gives info out even if you don't join. It all depends mainly on what you are looking for or what info you want.

http://www.cpmission.com

http://www.paincare.org/pain_management/correspondence/patient_letters/toc.php

http://forums.delphiforums.com/n/main.asp?webtag=forgracenac & nav=start & prettyurl=%2Fforgracenac%2Fstart

So far, those are the only 3 I can find at the moment in my Saved area.

I can't find Dr. Swartzman's Personal website....but, that was 2 years ago when I had found it, so he may have taken it off by now.

Hope that these will help you...

Tonia

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