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Re: Neurosarcoidosis

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,

For me this has been a 12 year long journey. It's nowhere near over-- but it is scary that it's progressing to the disfigurement stage of my hands and feet. I'm also getting more leg weakness, so I'm sure that I'll be using a cane down the road.

I was talking with another member tonight, and we discussed living in the moment versus living in the what if world. It's so hard not to go there-- but I know that when I do, it makes me crazy. I have to keep telling myself that the kindest thing I can do for myself is to stay in the present.

Hugs, Tracie

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