Re: humour

[Guest guest]

Hi Mo,

Hang in there. A view from the edge is okay, just let us know if you start

contemplating jumping off, and we'll send those crazy Upoffs back up there

to talk some sense into you ;-)

Congrats on Allie and Becca heading off to school! Pretty exciting stuff.

The way we've decided to deal with M. in nursery school (and when she gets

to kindergarten next year) is to talk to her teachers about her having CF,

but not the class. It's the same way we deal w. Kailin's asthma. We deal

with both CF and ashthma as a matter of course at home, just part of life,

and all that, and I've heard them both talk to other kids and adults about

it in a laid-back way. (We told Kailin's teacher Meagan has CF at our

confrence last week just because we know Kailin will mention it at some

point or other, and we didn't want Ms. Ritter to be surprised.) Anyway, I'd

rather just let them deal with questions as they come up (if they even come

up) than highlight the issue of them being " different. " But I'm sure lots of

different approaches can be successful. Whatever works :-) (And thanks for

reminding me-- I still need to call Meagan's nursery school teacher and talk

to her a/b CF before school starts for her next Tuesday.)

My favorite dictionary term, by the way, was, " Ow, the first word spoken by

a child with older siblings. " Meagan could sure back that one up!!! Thanks

for sharing the laughs.

bye,

[Guest guest]

MO,

I guess everyone is different on the school ed. thing. We opt to be pretty

open about it--for one, we think the parents at our little school will more

likely think twice about sending in a sick kid if they know about JOshua's CF

and also I'd rather they think he has CF (due to taking all those enzymes the

kids are very likely to tell Mommy and Daddy about their little friend who

can swallow five pills!) than some horrible behavioral problem....(please

don't anyone take offense if you happen to have a child with a behavioral

problem....but we've been there, when Miranda was in kindergarten she had ONE

incident where she lost it, and the other parents were ready to have this

" disturbed " child ejected from the school....not the same school we are

currently using by the way) Besides there are 10 kids in the class, so I

figure thats 9 sets of parents who can remember to donate to CFF when the

time comes....(most of those parents are far more " in the money " than we are,

gee, do you suppose the cost of tobi and pulmozyme and hospital stays has

anything to do with that, hehehe) And the final reason--you'll love this

one, Mo---most parents will be more understanding when we just can't seem to

find the time to help out with field day again this year (hehehe)

Thats the reason for us, now for , I think it needs to be that enzymes

and nebs (which he gets at school, too) have to be such a part of life like

sleeping and eating that if he knows it from day one, maybe it won't be such

an issue....kind of like kids who know they are adopted from day one. YOu

wouldn't wait to tell your twins, hey, by the way, you two are twins....until

some way later age, huh? ok, shut up silly, right.

BTW, I found not one but two new docs to hire for my facility--one for med.

director and one for house doc...so now I have 2 at beck and call, hopefully

that will make work life easier.

take care everyone, and I can't believe I signed on to see your concerns

about Mallory's 65 roses just when an hour earlier I had dug out my copy to

send for JOshua's teacher to read to his class....(and I admit, I almost had

second thoughts, but just because it is almost too sophisticated for a bunch

of 3 yr olds...and Big Pats Little Pats seemed too babyish, oh well....)

night

Jennie

[Guest guest]

Mo,

LOVED IT!

Mandy

humour

>

>

>Hi,

>Just writing to say I'm still alive and hanging onto the edge (the view

>ain't bad). The girls met their teacher/creature today and start school on

>the 14th. Hard to believe that a short four years ago, I could hold them

>in my hand. No other kids in Allie's class take meds or have asthma, or

>any other medical probs, and although the teacher gives vibes that the

>enzymes will be a pain, she looks as though she'll manage. Not so much to

>ask - but I let her know that Allie can handle getting her own if it's a

>prob - she settled down after that! She asked me if I would come a week

>after school starts and talk to the class and read Mallory's 65 Roses. I'm

>not sure that I want to center Allie out in this way, on the other hand,

>the education re: CF may help. (Of course, that means I would have to get

>through that book without crying - guess I'd have to practice!) Any

>thoughts you have to share on the education vs. centering out question

>would be welcome.

>

>As for my father, he's hanging in although having lots of crisis related to

>the kidney failure and cardiac probs. Perhaps preparing me for Allie later

>on, but I think she'll prove to be a more compliant patient (I'm working

>hard on her anyway!)

>

>I miss our chats, and hope that life settles a bit - either I'm too bagged,

>or still at the housework thing at that hour!

>

>

>Take care of you and yours,

>Mo, mom of 4yo(looked at the teacher with disdain when she asked

>whether she knew her colours - gee since I was 2 1/2yo), andra

>(4yowcf)hey this school thing looks fun) and Jordan, 22 mos old ( what am I

>going to do without my sisters for half the day)

>

>

>

>Mom's Dictionary:

>

>>> AMNESIA: Condition that enables a woman who has gone through labor to

>>>make love again.

>>>

>>> DUMBWAITER: One who asks if the kids would care to order dessert.

>>>

>>> FAMILY PLANNING: The art of spacing your children the proper

>>> distance apart to keep you on the edge of financial disaster.

>>>

>>> FEEDBACK: The inevitable result when your baby doesn't appreciate the

>>> strained carrots.

>>>

>>> FULL NAME: What you call your child when you're mad at him.

>>>

>>> GRANDPARENTS: The people who think your children are wonderful

>>> even though they're sure you're not raising them right.

>>>

>>> HEARSAY: What toddlers do when anyone mutters a dirty word.

>>>

>>> IMPREGNABLE: A woman whose memory of labor is still vivid.

>>>

>>> INDEPENDENT: How we want our children to be as long as they do

>>>everything we say.

>>>

>>> OW: The first word spoken by children with older siblings.

>>>

>>> PUDDLE: a small body of water that draws other small bodies wearing

>>> dry shoes into it.

>>>

>>> SHOW OFF: a child who is more talented than yours.

>>>

>>> STERILIZE: what you do to your first baby's pacifier by boiling it and

>>> to your last baby's pacifier by blowing on it.

>>>

>>> TOP BUNK: where you should never put a child wearing Superman pajamas.

>>>

>>> TWO MINUTE WARNING: when the baby's face turns red and she begins to

>>> make those familiar grunting noises.

>>>

>>> VERBAL: able to whine in words

>>>

>>> WHODUNIT: none of the kids that live in your house...

>

>

>

>

>

>

>

>---------------------------