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In a message dated 12/5/99 1:07:05 AM Central Standard Time,

lizzwizz2000@... writes:

<< Hello Lu, it may be too late to wish you a happy

birthday, but I certainly wish you a happy and healthy

year! Love Liz

__________________________________________________ >>

Thank you I'll take all the happy wishes headed my way.

Thanks again.

Love,

LU

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  • 1 month later...

Hi Angie:

I hope you are feeling better. This disease is such a bummer from so

many aspects. Let me know if you think the Minocin helps. I seem to

recall it took about a month for it to

start to work but I didn't really appreciate what it was doing until I

forgot to take it and

the fibro pain and Reynaud's came back. It is once you don't take it

that you really do see it helps.

My doc was worried about the color of my hands and vascular

insufficiency. Vascultitis

is indicative of more serious outcome per the literature but I'm too

stubborn to listen.

Both doc and I feel the Ibu is the best and such large doses because of

the vasculitis.

Hope my stomach holds in there, but so far so good. How much Ibu do you

take? It

seems to thin the blood better than some of the other anti-inflammatory

meds except for

asprin which is why I think I respond better to Ibu than the others.

Think I'm going to

add a coated asprin a couple times a day since vasculitis is acting up.

You should see

how long I bleed after I shave my legs. It's pathetic. Only thing I

worry about is if

I would have to have surgery, I'd be in big trouble. I'm sure they

wouldn't even consider

doing surgery on all the ibu I'm on but run the risk of blood clots and

strokes if my blood

isn't thin from vascultitis. Thank goodness the low dose birth control

pills are helping the endometriosis and it is tolerable now. Docs don't

think risk of blood clots from that is very high since it is such a low

dose.

Hope everyone has a painfree day or one in which God helps us find a way

to deal with it.

Take care,

> I think when all my tests are done and

> everything is evaluated I may finally be able to get some meds for

> relief. so

> far I was able to get sleeping aids. they figure if I can sleep I can

> cope

> better. so progress is being made for me. I pray it is coming for you

> as well

>

>

> Love and Gentle Hugs,

> Angie

> Yesterday will fade and tomorrow will take care of itself. Lord, help

> me

> give today my best shot

> http://www.geocities.com/acenneno_1999

> http://rpolychondritis.tripod.com/index.html

> http://members.tripod.com/~autoimmune

> -----------------------------------------------------------------------

> [

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Hi Angie:

I hope you are feeling better. This disease is such a bummer from so

many aspects. Let me know if you think the Minocin helps. I seem to

recall it took about a month for it to

start to work but I didn't really appreciate what it was doing until I

forgot to take it and

the fibro pain and Reynaud's came back. It is once you don't take it

that you really do see it helps.

My doc was worried about the color of my hands and vascular

insufficiency. Vascultitis

is indicative of more serious outcome per the literature but I'm too

stubborn to listen.

Both doc and I feel the Ibu is the best and such large doses because of

the vasculitis.

Hope my stomach holds in there, but so far so good. How much Ibu do you

take? It

seems to thin the blood better than some of the other anti-inflammatory

meds except for

asprin which is why I think I respond better to Ibu than the others.

Think I'm going to

add a coated asprin a couple times a day since vasculitis is acting up.

You should see

how long I bleed after I shave my legs. It's pathetic. Only thing I

worry about is if

I would have to have surgery, I'd be in big trouble. I'm sure they

wouldn't even consider

doing surgery on all the ibu I'm on but run the risk of blood clots and

strokes if my blood

isn't thin from vascultitis. Thank goodness the low dose birth control

pills are helping the endometriosis and it is tolerable now. Docs don't

think risk of blood clots from that is very high since it is such a low

dose.

Hope everyone has a painfree day or one in which God helps us find a way

to deal with it.

Take care,

> I think when all my tests are done and

> everything is evaluated I may finally be able to get some meds for

> relief. so

> far I was able to get sleeping aids. they figure if I can sleep I can

> cope

> better. so progress is being made for me. I pray it is coming for you

> as well

>

>

> Love and Gentle Hugs,

> Angie

> Yesterday will fade and tomorrow will take care of itself. Lord, help

> me

> give today my best shot

> http://www.geocities.com/acenneno_1999

> http://rpolychondritis.tripod.com/index.html

> http://members.tripod.com/~autoimmune

> -----------------------------------------------------------------------

> [

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did you get yeast infections from the minocin? I saw two rheumy in two weeks,

the first one added the minocin the second one wants me off, I am stuck

between the rock and the hard place here knowing what to do. so far I am

still taking it as it is helping another condition I have and that was an

unexpected bonus.

I take 2400 mgs of ibu at a time and I can take it 4 times a day if swelling

is severe. It helps with the swelling but not the pain any more.

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In a message dated 01/16/2000 3:20:28 PM Central Standard Time,

Rlr1999@... writes:

<< I was really surprised, that Roy let you get past that mouse

thing. >>

Jim, what mouse thing? Did I miss something good?

How are you doing? >>

yeppers you missed it : ) : )

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In a message dated 01/16/2000 3:21:57 PM Central Standard Time,

Rlr1999@... writes:

<< Hey, I got one of those surprise phone calls! The babies eyes did look

a

bit like mine but that was about it. What have you two been up to anyway?

>>

Oh my gosh ! LOL you nut! LOL

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In a message dated 01/16/2000 3:21:33 PM Central Standard Time,

Rlr1999@... writes:

<< I must have missed something good. I am going back to find it. LOL

'Roy >>

LOL you sound like me I can't stand it to miss something....

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In a message dated 1/16/2000 2:29:07 PM Pacific Standard Time, Lu1953@...

writes:

<< << I must have missed something good. I am going back to find it. LOL

'Roy >>

LOL you sound like me I can't stand it to miss something.... >>

I went back and looked through and couldnt find anything. Was it from awhile

ago?

I am sure we will find something else to entertain us. : )

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Hi Roy,

I'm doing very well. Thank you. Lu has been a real comfort for me

lately, and I really should not rag on her. But I'm only a man.. Lu was

explaining the operation of the computer, and it seems that she can

accomplish a lot, if she just uses a mouse lick.

Hi Lu

I bet I'll get that phone call a lot sooner now. I still Love ya.

Jim

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In a message dated 01/17/2000 9:56:07 AM Central Standard Time,

HAIGJIM@... writes:

<< Hi Roy,

I'm doing very well. Thank you. Lu has been a real comfort for me

lately, and I really should not rag on her. But I'm only a man.. Lu was

explaining the operation of the computer, and it seems that she can

accomplish a lot, if she just uses a mouse lick.

Hi Lu

I bet I'll get that phone call a lot sooner now. I still Love ya.

Jim

>>

yeppers or not at all LOL

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Thanks, Dan. And welcome back. We miss you when you aren't posting.

Jo

(no subject)

>

>

>

> ... TO MY FRIENDS

>

>

> " If you live to be a hundred, I want to live to be a hundred minus

> one day,so I never have to live without you. "

> -Winnie the Pooh

>

>

> " True friendship is like sound health; the value of it is seldom

> known until it be lost. "

> - Caleb Colton

>

>

> " A real friend is one who walks in when the rest of the world walks out. "

>

>

> " Don't walk in front of me, I may not follow.

> Don't walk behind me, I may not lead.

> Walk beside me and be my friend. "

> - Albert Camus

>

> " Strangers are just friends waiting to happen. "

>

> " Friends are the Bacon Bits in the Salad Bowl of Life. "

>

>

> " Friendship is one mind in two bodies. "

> - Mencius

>

>

> " Friends are God's way of taking care of us. "

>

>

> " If you should die before me, ask if you could bring a friend. "

> - Stone Temple Pilots

>

>

> " I'll lean on you and you lean on me and we'll be okay. "

> - Dave s Band

>

>

> " If all my friends were to jump off a bridge, I wouldn't jump with them,

> I'd be at the bottom to catch them "

>

>

> " Everyone hears what you say. Friends listen to what you say.

> Best friends listen to what you don't say. "

>

>

> " We all take different paths in life, but no matter where we go, we take a

>little of each other everywhere "

> - Tim McGraw

>

>

>

>

>

>---------------------------

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  • 3 weeks later...

In a message dated 02/03/2000 9:05:27 PM Central Standard Time,

b.enderle@... writes:

<< Lu:

What a great picture. You both look terrific. You do look like you

could be her sister.

>>

yada yada yada... :) lol

But thank you very much!

Lu

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Here's a pic of Lu and her daughter. Don't they look like twins? I know she

sent this to some of you, but she said I could send it to the group. OK, I

had to beg her. LOL

----------------------------------------------------------------------------

----

[This message contained attachments]

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Lu:

What a great picture. You both look terrific. You do look like you

could be her sister.

Thanks for the picture. It really does help to put faces to names.

Woods wrote:

>

>

> Here's a pic of Lu and her daughter. Don't they look like twins? I

> know she

> sent this to some of you, but she said I could send it to the group.

> OK, I

> had to beg her. LOL

>

>

>

> -

> --------------------------------------------------------------------------

>

> ----

>

>

>

>

> -----------------------------------------------------------------------

> [

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Waht an awesome pic!

nancie

--- Woods wrote:

> Here's a pic of Lu and her daughter. Don't they

> look like twins? I know she

> sent this to some of you, but she said I could send

> it to the group. OK, I

> had to beg her. LOL

>

>

>

>

----------------------------------------------------------------------------

> ----

>

>

>

>

>

> ATTACHMENT part 2 image/jpeg name=L & h.jpg

=====

Everyone hears what you say, friends listen to what you say, best friends listen

to what you don't say.

__________________________________________________

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In a message dated 02/05/2000 2:04:12 PM Central Standard Time,

AngieCATW1@... writes:

<< went no mail so if you want to send a sympathy card here is her

address >>

what happened????????

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In a message dated 02/04/2000 1:09:19 PM Central Standard Time,

dlbmo@... writes:

<< geezzzzzz. i cannot ell who is the moher andwho is the duhter. you are

oth beautiful.

love >>

Thank you ,

How are you feeling? I pray better.... You have been so thru much, its time

for things to turn for you. I'll keep you in my prayers.

Love you

Lu

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I would really like to send her a card but no address

came thru. Can you send it again?

thx nancie

--- Lu1953@... wrote:

> In a message dated 02/05/2000 2:04:12 PM Central

> Standard Time,

> AngieCATW1@... writes:

>

> << went no mail so if you want to send a

> sympathy card here is her

> address >>

> what happened????????

>

=====

Everyone hears what you say, friends listen to what you say, best friends listen

to what you don't say.

__________________________________________________

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Woods

2804 Arrington Drive

Roakoke Va 24012

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

today

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://disabilities-us.com/shad/

You don't stop laughing because you grow old, you grow old

because you stopped laughing.

Just click on the link below, and sign up for an account at X.com. It

takes less than two minutes, and we'll put $20 cash into your account to

get you started.

So click on this link right now, and come get your $20!

https://www.x.com/new_account.asp?Referrer=angiecatw1aol

**********************************************************************

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Woods

2804 Arrington Drive

Roakoke Va 24012

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

today

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://disabilities-us.com/shad/

You don't stop laughing because you grow old, you grow old

because you stopped laughing.

Just click on the link below, and sign up for an account at X.com. It

takes less than two minutes, and we'll put $20 cash into your account to

get you started.

So click on this link right now, and come get your $20!

https://www.x.com/new_account.asp?Referrer=angiecatw1aol

**********************************************************************

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Thank You very much. I've passed on to all my friends.

Nancie

--- HAIGJIM@... wrote:

>

> >>Subject: Virus Warning

> >>

> >>

> >>>

> >>>This is no joke. Send it around!

> >>>

> >>>RE: Virus information PASS THIS ON TO ANYONE YOU

> HAVE AN E-MAIL ADDRESS

> >>>FOR. If you receive an email titled " It Takes

> Guts to Say Jesus " DO NOT

> >>>OPEN IT. It will erase everything on your hard

> drive. This information

> >>>was announced yesterday morning from IBM; AOL

> states that this is a very

> >>>dangerous virus, much worse than " , " and

> that there is NO

> >>>remedy

> >>>for it at this time. Some very sick individual

> has succeeded in using

> >>>the reformat function from Norton Utilities

> causing it to completely

> >>>erase all documents on the hard drive. It has

> been designed to work with

> >>>Netscape Navigator and Microsoft Internet

> Explorer. It destroys

> >>>Macintosh and IBM compatible computers. This is a

> new, very malicious

> >>>virus and not many people know about it Pass this

> warning along to

> >>>EVERYONE in your address book and please share it

> with all your online

> >>>friends ASAP so that this threat may be stopped.

> Please practice

> >>>cautionary measures and tell anyone that may have

> access to your

> >>>computer. Forward this warning to everyone that

> might access the

> >>>Internet.

> >>>

> >>>www.elvisrules.com

> >>>

> >>>

> >

>

=====

" A real friend is one who walks in when the rest of the world walks out. "

__________________________________________________

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  • 4 weeks later...
Guest guest

In a message dated 03/08/2000 12:30:46 PM Eastern Standard Time,

Idigflower@... writes:

<< CONGRATULATION CHRISTY & MR. OSCAR. >>

DITTO!!!!!!!!!Janet...we could make the RP mascot

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Guest guest

, Your husband sounds a lot like my husband. Rob cares in silent way.

He does however feel a lot of of anger towards my boss because he doesn't

always care about me making it doctor appointments. Some people do not

realize the seriousness of this disease if left untreated.

Thank you and God Bless. Tammy F.

(no subject)

>From: Hob@...

>

>My husband has trouble dealing with my RP, too. He is certain all I have

to

>do is think positive and eat enough garlic and I will be OK. But he

doesn't

>intimdate me with silence that I am afraid to break into and we can talk

>about it. He doesn't always contribute but at least he listens, agrees or

>disagrees, and doesn't walk out of the room to escape as soon as possible.

>The one time he really unloaded, he unloaded on the doctor. Sometimes out

of

>the clear blue sky he reminds me to " think positive " so I know it is on his

>mind a lot. His brother also tells me that when I am feeling better he is

>more chatty on the phone -- he can always tell if things are OK or not.

>

>Some of the spouse's reactions posted on the list make me realize how

>important it was for my husband to be with me when the doctor explained

>things right from the beginning. I didn't think about it at the time but I

>guess I used those office visits to tell the doc how I felt and to ask Leo,

>in front of the doc, what he thought. Having to answer or ask the doc

>something maybe broke the ice for him.

>

> H.

>

>------------------------------------------------------------------------

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>Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

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>------------------------------------------------------------------------

>

>hi and welcome. maybe we can come up with answers that our doctors can't

>

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