disease or disorder?

[Guest guest]

I gotta say something that has long plaqued me. Do you really feel

" diseased " with nf2? I keep hearing disease over and over. I have never

felt diseased, I equate diseased with someone whose body is riddled with

AIDS or cancer, or hepatitus c, or infections etc. NF2 has affected me,

I'm deaf, my right hand is near gone, left weakened, I walk not so

great, leftfoot is dropped, have various tumors here and there, but yet

..... I dont think of myself as diseased. I even consider myself the

epitome of health aside from these tumors because i exercise, eat well,

have a strong immune system and try to strengthen the muscles i have. I

see people hacking up phlegm while they puff away on cigaettes or

destroy their liver with booze and it sickens me, i feel in my heart i

am much healthier than them. so how do you see yourselves, do you think

you have a disease or just a genetic disorder?