Re: Update on me and dislocation

[Guest guest]

,

I'm sorry to hear about your problems, and I hope it will turn out OK.

When you say you had a revision in Dec. 2001, what kind of revision

operation was that? And who is your doctor, if I may ask.

Schiller

BHR 3/12/02

> Right BHR May 2nd 2001.

> Left BHR November 14th 2001.

> Left revision December 13th 2001.

> Hi folks. It's been a while since my last post about my BHR

> dislocation back in December.

>

> I saw my surgeon on Tuesday,and I might have to go back under the

> knife again.

> A large Heterotopic bone formation has occured at the sides of my

> revised hip socket (acetabular component).

>

> Its classified on the " r Scale " as being stage 2 to 3.

> (that was in February)

> I found out about it all a few weeks ago, after requesting my

medical

> records from the hospital. They sent me them through the mail, and

i

> had a good read.

> It stated in my doc's notes about the Heterotopic bone formation.

> I had no idea, and nobody had told me anything.

> This was written after my appointment with him in February this

year,

> and said the formation was visible then.

> I was due for a check up in May, so I contacted my doc and brought

> the appointment forward.

> I waited to see if he was going to mention it, and he did.

> It was clearly visible on my latest x-ray.

> He has given me a course of Indomethacin tablets to try and

disperse

> the bone.

> From what I have read up on the net, it has to be caught early for

> these to work.

> It they dont, the bone will have to be removed surgically.

> This will be followed by radiation treatment.

> And he said there's no guarantee that it will not reform.

> I asked about Physio Therapy and he said that it would'nt help at

all.

> It explains why my recovery has seemed slow, and why it seems so

> painful.

> My range of movement is not very good at all. I still can't put my

> own sock on the left side.

> It's annoying for me, knowing the great outcome i had with my right

> side BHR.

> I see my doc again at the back end of June.

> As always, any thoughts are welcome.

[Guest guest]

Hi .

I had the socket (acetabular component) replaced with a bigger one.

The cause of the dislocation was a " mystery " to all concerned.

Have a look at the December posts and you'll find more detils there.

My doctor was a Mr I W Wallace, from Middlesbrough General Hospital

UK.

> > Right BHR May 2nd 2001.

> > Left BHR November 14th 2001.

> > Left revision December 13th 2001.

> > Hi folks. It's been a while since my last post about my BHR

> > dislocation back in December.

> >

> > I saw my surgeon on Tuesday,and I might have to go back under the

> > knife again.

> > A large Heterotopic bone formation has occured at the sides of my

> > revised hip socket (acetabular component).

> >

> > Its classified on the " r Scale " as being stage 2 to 3.

> > (that was in February)

> > I found out about it all a few weeks ago, after requesting my

> medical

> > records from the hospital. They sent me them through the mail,

and

> i

> > had a good read.

> > It stated in my doc's notes about the Heterotopic bone formation.

> > I had no idea, and nobody had told me anything.

> > This was written after my appointment with him in February this

> year,

> > and said the formation was visible then.

> > I was due for a check up in May, so I contacted my doc and

brought

> > the appointment forward.

> > I waited to see if he was going to mention it, and he did.

> > It was clearly visible on my latest x-ray.

> > He has given me a course of Indomethacin tablets to try and

> disperse

> > the bone.

> > From what I have read up on the net, it has to be caught early

for

> > these to work.

> > It they dont, the bone will have to be removed surgically.

> > This will be followed by radiation treatment.

> > And he said there's no guarantee that it will not reform.

> > I asked about Physio Therapy and he said that it would'nt help at

> all.

> > It explains why my recovery has seemed slow, and why it seems so

> > painful.

> > My range of movement is not very good at all. I still can't put

my

> > own sock on the left side.

> > It's annoying for me, knowing the great outcome i had with my

right

> > side BHR.

> > I see my doc again at the back end of June.

> > As always, any thoughts are welcome.

[Guest guest]

Hi

So sorry to hear your news. It must be so frustrating when you have a

perfectly good BHR on the other side. I guess your notes didn't give

you any idea why the dislocation happened. I really don't know what

to suggest to you other than, if you're not happy with your doctor at

the hospital, you could possibly find somebody more experienced in

this sort of bone condition and take a second opinion. Two heads are

better than one and all that. Also if this condition has a better

chance of being treated successfully in the early stages it may be

better to find somebody sooner rather than later.

I wish you all the luck in the world... don't sit back and TRUST be

proactive.

Take care

Arlene

[Guest guest]

In a message dated 4/26/02 3:35:02 PM Eastern Daylight Time,

TerryHooper2@... writes:

> 's site mentions the precautions that his surgeon took to avoid

> the formation of heterotopic bone when he had his op. at JRI.

What kind of precautions?

Diane

[Guest guest]

Re: Update on me and dislocation

Hi ,

Just read your message on the board. First of all what is your history, as I

am not familiar with your story. Also where are you from. I am having my op at

the Freeman Hospital in Newcastle, hopefully within the next few months.

Hi .

I had the socket (acetabular component) replaced with a bigger one.

The cause of the dislocation was a " mystery " to all concerned.

Have a look at the December posts and you'll find more detils there.

My doctor was a Mr I W Wallace, from Middlesbrough General Hospital

UK.

> > Right BHR May 2nd 2001.

> > Left BHR November 14th 2001.

> > Left revision December 13th 2001.

> > Hi folks. It's been a while since my last post about my BHR

> > dislocation back in December.

> >

> > I saw my surgeon on Tuesday,and I might have to go back under the

> > knife again.

> > A large Heterotopic bone formation has occured at the sides of my

> > revised hip socket (acetabular component).

> >

> > Its classified on the " r Scale " as being stage 2 to 3.

> > (that was in February)

> > I found out about it all a few weeks ago, after requesting my

> medical

> > records from the hospital. They sent me them through the mail,

and

> i

> > had a good read.

> > It stated in my doc's notes about the Heterotopic bone formation.

> > I had no idea, and nobody had told me anything.

> > This was written after my appointment with him in February this

> year,

> > and said the formation was visible then.

> > I was due for a check up in May, so I contacted my doc and

brought

> > the appointment forward.

> > I waited to see if he was going to mention it, and he did.

> > It was clearly visible on my latest x-ray.

> > He has given me a course of Indomethacin tablets to try and

> disperse

> > the bone.

> > From what I have read up on the net, it has to be caught early

for

> > these to work.

> > It they dont, the bone will have to be removed surgically.

> > This will be followed by radiation treatment.

> > And he said there's no guarantee that it will not reform.

> > I asked about Physio Therapy and he said that it would'nt help at

> all.

> > It explains why my recovery has seemed slow, and why it seems so

> > painful.

> > My range of movement is not very good at all. I still can't put

my

> > own sock on the left side.

> > It's annoying for me, knowing the great outcome i had with my

right

> > side BHR.

> > I see my doc again at the back end of June.

> > As always, any thoughts are welcome.

[Guest guest]

Hi Gazza

Man, I really feel for you, you seem to be just about the only

surface-hippy on this board that really grabbed the sh*t end of the

resurfacing stick - first the dislocation, almost unique, then this

heterotopic ossification thing! It seems incredible that it has

formed to quickly, particularly as you were opened up again after the

dislocation.

's site mentions the precautions that his surgeon took to avoid

the formation of heterotopic bone when he had his op. at JRI.

I was never told that I was being given any particular treatment for

this, but trusted my surgeon, who is supposed to be about the best in

the UK - I am determined to ask about the subject on my next follow-

up.

Try to keep your spirits up, you'll get sorted eventually, I'm sure

Terry H

> Right BHR May 2nd 2001.

> Left BHR November 14th 2001.

> Left revision December 13th 2001.

> Hi folks. It's been a while since my last post about my BHR

> dislocation back in December.

>

> I saw my surgeon on Tuesday,and I might have to go back under the

> knife again.

> A large Heterotopic bone formation has occured at the sides of my

> revised hip socket (acetabular component).

[Guest guest]

Hi , good luck with your upcoming surgery.

I am from Middlesbrough,just up the road from the Freeman.

I am 36 years old, and suffered with my hips ( dysplacia )for over

ten years,,,,,until i heard about the BHR.

I'll give you the message numbers with my story,then you can read

them at your leisure.

2002. 2079. 4035. 4155. 4392. 4400. 4542. 5079.

It went from elation with my first BHR op, to..... well you'll see

for yourself, not so pleased with the left side BHR.

I have no qualms about the product itself. I believe in it 100%.

Maybe my choice of DR was wrong. Although saying that, I had'nt a

choice with getting it done for free on the NHS. Beggars can't be

choosers so to speak.

You HAVE made the right choice, and everything will be fine for you

i'm sure.

Maybe i was just unlucky?

Take care, and mail me anytime if you want anything.

> > > Right BHR May 2nd 2001.

> > > Left BHR November 14th 2001.

> > > Left revision December 13th 2001.

> > > Hi folks. It's been a while since my last post about my BHR

> > > dislocation back in December.

> > >

> > > I saw my surgeon on Tuesday,and I might have to go back under

the

> > > knife again.

> > > A large Heterotopic bone formation has occured at the sides

of my

> > > revised hip socket (acetabular component).

> > >

> > > Its classified on the " r Scale " as being stage 2 to 3.

> > > (that was in February)

> > > I found out about it all a few weeks ago, after requesting my

> > medical

> > > records from the hospital. They sent me them through the

mail,

> and

> > i

> > > had a good read.

> > > It stated in my doc's notes about the Heterotopic bone

formation.

> > > I had no idea, and nobody had told me anything.

> > > This was written after my appointment with him in February

this

> > year,

> > > and said the formation was visible then.

> > > I was due for a check up in May, so I contacted my doc and

> brought

> > > the appointment forward.

> > > I waited to see if he was going to mention it, and he did.

> > > It was clearly visible on my latest x-ray.

> > > He has given me a course of Indomethacin tablets to try and

> > disperse

> > > the bone.

> > > From what I have read up on the net, it has to be caught

early

> for

> > > these to work.

> > > It they dont, the bone will have to be removed surgically.

> > > This will be followed by radiation treatment.

> > > And he said there's no guarantee that it will not reform.

> > > I asked about Physio Therapy and he said that it would'nt

help at

> > all.

> > > It explains why my recovery has seemed slow, and why it seems

so

> > > painful.

> > > My range of movement is not very good at all. I still can't

put

> my

> > > own sock on the left side.

> > > It's annoying for me, knowing the great outcome i had with my

> right

> > > side BHR.

> > > I see my doc again at the back end of June.

> > > As always, any thoughts are welcome.

>

>

>

[Guest guest]

Hi Gazza,

Good to hear from you again, I feel real sorry for you that it isn't the

news we like to hear. But remember the saying " Luck wouldn't be at your side

forever " , it is the same for the opposite " Bad-luck wouldn't be at your side

forever either !!! " . Three-times bad luck is enough, and ss Richie said it's

about time for the fat lady to show up again singing for you.

Pre-op, I've had extensive discussions with Dr.De Smet about Heterotopic

bone formation, because I'm at special risk for developing this bone tissue

around the prosthesis (Anklylosing Spondilitis patients are..). That's why

De Smet prescribed, next to the normal 3 weeks Indomethacine medication

(indeed direct after surgery), also a radiation therapy (one time 700 RAD

doses one day for or after surgery - it seems that a one time higher level

doses gives a Knock-Out to the HO-formation process, and works far better as

multiple lower doses sessions). De Smet also told that in case severe HO

bone has been formed around the prosthesis, it can only removed by surgery.

However they wait for one year before removal - if you do it to soon, there

is a chance for reoccurrence.

So Gazza, take care, and if the fat lady wouldn't show up soon, we, as

group, are going to sing for you !!!! - although, I doubt if that'll make

you happy ??!!.

Keep on posting.

Update on me and dislocation

....

A large Heterotopic bone formation has occured at the sides of my

revised hip socket (acetabular component).

Its classified on the " r Scale " as being stage 2 to 3.

(that was in February)

.....

He has given me a course of Indomethacin tablets to try and disperse

the bone.

>From what I have read up on the net, it has to be caught early for

these to work.

It they dont, the bone will have to be removed surgically.

This will be followed by radiation treatment.

....

I asked about Physio Therapy and he said that it would'nt help at all.

It explains why my recovery has seemed slow, and why it seems so

painful.

[Guest guest]

Re: Update on me and dislocation

Hi ,

I too have congenital dysplasia of the hip. I am also being treated on the

NHS, because like you I do not have a choice, going private is simply not an

option for me.

Take care

Hi , good luck with your upcoming surgery.

I am from Middlesbrough,just up the road from the Freeman.

I am 36 years old, and suffered with my hips ( dysplacia )for over

ten years,,,,,until i heard about the BHR.

I'll give you the message numbers with my story,then you can read

them at your leisure.

2002. 2079. 4035. 4155. 4392. 4400. 4542. 5079.

It went from elation with my first BHR op, to..... well you'll see

for yourself, not so pleased with the left side BHR.

I have no qualms about the product itself. I believe in it 100%.

Maybe my choice of DR was wrong. Although saying that, I had'nt a

choice with getting it done for free on the NHS. Beggars can't be

choosers so to speak.

You HAVE made the right choice, and everything will be fine for you

i'm sure.

Maybe i was just unlucky?

Take care, and mail me anytime if you want anything.

> > > Right BHR May 2nd 2001.

> > > Left BHR November 14th 2001.

> > > Left revision December 13th 2001.

> > > Hi folks. It's been a while since my last post about my BHR

> > > dislocation back in December.

> > >

> > > I saw my surgeon on Tuesday,and I might have to go back under

the

> > > knife again.

> > > A large Heterotopic bone formation has occured at the sides

of my

> > > revised hip socket (acetabular component).

> > >

> > > Its classified on the " r Scale " as being stage 2 to 3.

> > > (that was in February)

> > > I found out about it all a few weeks ago, after requesting my

> > medical

> > > records from the hospital. They sent me them through the

mail,

> and

> > i

> > > had a good read.

> > > It stated in my doc's notes about the Heterotopic bone

formation.

> > > I had no idea, and nobody had told me anything.

> > > This was written after my appointment with him in February

this

> > year,

> > > and said the formation was visible then.

> > > I was due for a check up in May, so I contacted my doc and

> brought

> > > the appointment forward.

> > > I waited to see if he was going to mention it, and he did.

> > > It was clearly visible on my latest x-ray.

> > > He has given me a course of Indomethacin tablets to try and

> > disperse

> > > the bone.

> > > From what I have read up on the net, it has to be caught

early

> for

> > > these to work.

> > > It they dont, the bone will have to be removed surgically.

> > > This will be followed by radiation treatment.

> > > And he said there's no guarantee that it will not reform.

> > > I asked about Physio Therapy and he said that it would'nt

help at

> > all.

> > > It explains why my recovery has seemed slow, and why it seems

so

> > > painful.

> > > My range of movement is not very good at all. I still can't

put

> my

> > > own sock on the left side.

> > > It's annoying for me, knowing the great outcome i had with my

> right

> > > side BHR.

> > > I see my doc again at the back end of June.

> > > As always, any thoughts are welcome.

>

>

>

[Guest guest]

Well another development. I have been taken off the Indomethacin

tablets by my local doctor.

They disagree with me big time. I have spent a lot of this last week

on the toilet lol.

I don't know how significant this is, but he replaced them with Vioxx.

I'll give these a try, but whether they will have the same effect

dispersing the heterotropic bone is another matter. He seems to

think they will do the same job.

Any input is appreciated.

Cheerio for now.

Gaz

> Right BHR May 2nd 2001.

> Left BHR November 14th 2001.

> Left revision December 13th 2001.

> Hi folks. It's been a while since my last post about my BHR

> dislocation back in December.

>

> I saw my surgeon on Tuesday,and I might have to go back under the

> knife again.

> A large Heterotopic bone formation has occured at the sides of my

> revised hip socket (acetabular component).

>

> Its classified on the " r Scale " as being stage 2 to 3.

> (that was in February)

> I found out about it all a few weeks ago, after requesting my

medical

> records from the hospital. They sent me them through the mail, and

i

> had a good read.

> It stated in my doc's notes about the Heterotopic bone formation.

> I had no idea, and nobody had told me anything.

> This was written after my appointment with him in February this

year,

> and said the formation was visible then.

> I was due for a check up in May, so I contacted my doc and brought

> the appointment forward.

> I waited to see if he was going to mention it, and he did.

> It was clearly visible on my latest x-ray.

> He has given me a course of Indomethacin tablets to try and

disperse

> the bone.

> From what I have read up on the net, it has to be caught early for

> these to work.

> It they dont, the bone will have to be removed surgically.

> This will be followed by radiation treatment.

> And he said there's no guarantee that it will not reform.

> I asked about Physio Therapy and he said that it would'nt help at

all.

> It explains why my recovery has seemed slow, and why it seems so

> painful.

> My range of movement is not very good at all. I still can't put my

> own sock on the left side.

> It's annoying for me, knowing the great outcome i had with my right

> side BHR.

> I see my doc again at the back end of June.

> As always, any thoughts are welcome.