Yana Updates December 2009 #3 and probably the final for the year

[Guest guest]

It is always sad when one of our number leaves us. http://www.yananow.net/Mentors/ChrisF.htm 

CHRIS F  passed on December 17. It is not clear whether his respiratory

problems resulted from his chemotherapy or his prostate cancer.

NEW STORIES

http://www.yananow.net/Mentors/J.htm 

 JOHN JONAS  newly diagnosed and very concerned, he was on the last list

but had given an incorrect address – now corrected

http://www.yananow.net/Mentors/JoeH2.htm

 JOE H  has decided on Active Surveillance and is looking for input on

diet strategies

http://www.yananow.net/Mentors/M.htm

 MIGUEL MORALES  comes in as a Silver Member after his diagnosis in 2002

with a GS 9 tumour for which he chose IMRT (Intensity Modulated Radiation

Therapy) and Brachytherapy with adjuvant ADT (Androgen Deprivation Therapy) at

Dattoli - no side effects

http://www.yananow.net/Mentors/MikeC3.htm

 MIKE C newly diagnosed with what seems to be an insignificant disease

and is undecided

http://www.yananow.net/Mentors/phW.htm

JOSEPH WASIAK diagnosed with a PSA of  1,892 and T4 staging and

apparently has been treated with Degarelix and

Orchiectomy, which has failed – seems to me he needs help from people who

know something more about late stage prostate cancer than the medical person

who is treating him

http://www.yananow.net/Mentors/GeneC.htm

 GENE C diagnosed in June and has chosen Active Surveillance

http://www.yananow.net/Mentors/PatB.htm

 PAT B recently diagnosed and undecided –

would ike guidance on PSA velocity, doubling time, fPSA etc

http://www.yananow.net/Mentors/AllanM.htm

 ALLAN MURRAY chose RALP (Robotic Assisted Laparoscopic

Surgery) and a lymph node dissection showed spread – looking for

information   

http://www.yananow.net/Mentors/P.htm

 FRANK P   newly diagnosed and undecided – still collecting data

UPDATES

http://www.yananow.net/Mentors/GreggM.htm

 GREGG MORRISON Platinum Member (diagnosed in 1991 and had surgery to

his regret) and one of the original YANA team

has numerous health problems, but PCa isn’t one of them right now

http://www.yananow.net/Mentors/BillM2.htm 

BILL MAC  28 months after RALP (Robotic Assisted Laparoscopic

Prostatectomy) his PSA is still undetectable

http://www.yananow.net/Mentors/MarkkuL.htm

 MARKKU LEITSO   has posted pics of his scans, showing the metastases

http://www.yananow.net/Mentors/KentW.htm 

KENT WILLIAMS    nine PBT (Proton Beam Therapy) treatments to go at Loma

and he’s loving it

http://www.yananow.net/Mentors/AbdurrahmanO.htm

 ABDURRAHMAN OZAL   still on ADT (Androgen Deprivation Therapy)‘

holiday after successful IMRT (Intensity Modulated Radiation Therapy) 

http://www.yananow.net/Mentors/TimC.htm

TIM CASTLEMAN  is about to finish his Loma PBT (Proton Beam

Therapy) and is happy with everything so far

http://www.yananow.net/Mentors/RipS.htm

 RIP SMITH about to go in for his RALP (Robotic Assisted Laparoscopic

Prostatectomy) and worried as……

http://www.yananow.net/Mentors/BarryL.htm 

BARRY LITCHFIELD had an elevated PSA of 7.3 in 2000 but declined a

biopsy and has been watching his PSA levels since then

http://www.yananow.net/Mentors/BobA.htm 

BOB ARTHUR has been on Active Surveillance since 2008 but is now

concerned by a rise in his PSA

http://www.yananow.net/Mentors/LeoC.htm

 LEO CROWLEY has completed his Brachytherapy and is now sunning himself

in Florida

http://www.yananow.net/Mentors/K.htm

 FRANK K  has had a second positive biopsy, similar to previous ones and

has elected to continue on Active Surveillance despite his doctor’s

misgivings

http://www.yananow.net/Mentors/BobB.htm

 BOB B was undecided – now going for RALP (Robotic Assisted

Laparoscopic Prostatectomy) January 4

http://www.yananow.net/Mentors/H.htm

 KENNETH HORN six months since his IMRT (Intensity Modulated Radiation

Therapy) and neo adjuvant ADT (Androgen Deprivation Therapy) and he’s

happy he ‘beat the odds’

http://www.yananow.net/Mentors/S5.htm

 JOHN STEVENS  has completed his  PBT (Proton Beam Therapy) at Loma

– and is as enthusiastic about the experience as most are

http://www.yananow.net/Mentors/H4.htm

 JOHN H significant incontinence issues after RALP (Robotic Assisted

Laparoscopic Prostatectomy) and is looking for input on how best to deal with

this

http://www.yananow.net/Mentors/BillR.htm

 BILL RAU Gold 2 star Member 12 years out of Brachytherapy HDR (High

Dose Radiation) with neo adjuvant ADT (Androgen Deprivation Therapy) is waiting

for his latest blood test

http://www.yananow.net/Mentors/T.htm

 ERIC TAYLOR Silver Member, came up with

the idea of indexing the stories on the site and did all the preliminary work.

Diagnosed in 2000 with GS 9 he chose Perineal RP (Radical Prostatectomy)

– PSA now reported as 0.10

http://www.yananow.net/Mentors/IanV.htm 

IAN VAGG  diagnosed four years ago with T4 staging he chose ADT

(Androgen Deprivation Therapy) supplemented with natural therapies

http://www.yananow.net/Mentors/BobZ.htm

 BOB ZUPANCIC  chose RALP (Robotic Assisted Laparoscopic Prostatectomy)

2 ½ years ago and all’s well

http://www.yananow.net/Mentors/CM.htm 

 CAREY MURRELL  two years after RALP (Robotic Assisted Laparoscopic

Prostatectomy) he has slight leakage but only about 20% ED

http://www.yananow.net/Mentors/DanR.htm 

DAN RICE has an infection after his RALP (Robotic Assisted Laparoscopic

Prostatectomy) which may necessitate further surgery

http://www.yananow.net/Mentors/CharlieC.htm

 CHARLIE C  has had another negative biopsy after electing Active

Surveillance

http://www.yananow.net/Mentors/BobR.htm

 BOB ROBERTS 18 months after RALP (Robotic Assisted Laparoscopic

Prostatectomy) he still has some incontinence issues – does not mention

ED

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed

in ‘96: and have learned a bit since then.

My sites are at www.yananow.net  and www.prostatecancerwatchfulwaiting.co.za 

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions

we make with regard to prostate cancer are made with inadequate data "