welcome Bobbi

[Guest guest]

Hi Bobbi...My name is Cookie and I live in Upstate New York. I was dx. in Nov.

of 2002. I am glad that you found this group as it is the best place you will

find information, encouragement, and laughter. (we cry for each other also).

I think PLS has taught me that it is a " alphabet " disease. You probably know

or will know about HSP, ALS, DTR's, AFO's, EMG's ,MRI's, PT, OT, ADL, HEP. I am

sure there are many I forgot and I bet others can add to the list.

Don't ever be afraid to ask any questions...this is the place to find the

answer.

Welcome!

Cookie

--

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Man's way leads to a hopeless

end..God's way leads to an endless

hope.

> Hi everyone

> My name is Bobbi. I live in East Kentucky.

> I started having symptoms in 98. It startedwith balance, running into

> walls, and stumbling. By 99 I noiced I couldn't run. By 2000 I knew

> something was definetaly wrong other than gettin older.

> My first workup was for ms. After several

> dead ends I finally made myself a appointment at Cleveland was I was led

> to Dr. Pioro who diagnosed me with motor neuron disease. He

> referred me to Dr. Kasarskis at the University of Kentucky. He

> tells me he is quite certain it is pls and one more emg in July should

> confirm it. I have been on a cane for a year and have fallen numerous

> times. I am starting to wonder if I need something else becaue when I'm

> in public I feel it necessary to hold to my husband for extra support. I

> also have a jazzy fo longer distance.

> Anxious to hear from you

> Bobbi

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