et al - do they have new information to help?

[Guest guest]

is on my plan and my brother lives

in Rochester – I wonder if he has anything really useful to offer?

Has anyone seen him?

My gyno here is the sweetest and kindest

doctor ever, but she’s learning as I go. I’ve seen Dr. Kaufman here (he’s on all

the articles) but he is getting older (he is probably 80) and just hands out

desepramine prescriptions. If that doesn’t work, he doesn’t

have too much more to offer.

That’s it for the “vulvar

specialists” in Houston. I wonder if it would be best to travel – either

to Goldstein, or , or back to Dr. in Dallas (I saw her, but probably didn’t stick with her long enough

for her to really help me.) I don’t have a lot of time to waste.

My question is: Does anyone ever

really get help from these doctors – does anyone ever get better from

this condition? Or are we just running around trying everything but

nothing will ever help?

Currently I am bombarded on all sides by

advice from other people:

1. One friend who sells Shaklee vitamins

thinks that if I take her products I’ll get better. 300.00 a month

of vitamins will fix me up, she says. She is so earnest and sincere, but

can vitamins really fix nerves?

2. One friend just gave me the book “What

you doctor won’t tell you about fibromyalgia” about using

guafenisin medication, which does mention vulvodynia. Has anyone tried

this guaifenisin for DV, or constant burning?

3. My husband wants me to have my

hair down there lasered off (because it irritates me so much) and then have a

hysterectomy to fix the prolapses I have.

4. I am thinking about Goldstein’s article about

using all those nasty meds at the same time (Neurontin, Effexor, Celebrex, and

lidocaine) and being in a brain fog for months, but maybe getting better?

I am leaning towards Goldstein’s

approach with my doctor here, along with biofeedback and PT, although I dread

the side effects of all those nasty meds, What do you think, Dee? I

would say this has almost ruined my life, so I really need to keep trying. I

would travel to see someone else, if there were any help that could really work

for me.

I am having a hard time living with this

condition. I have passed my one-year anniversary, and am starting my

second. I too want to run, exercise, and have enjoyable sex with my

husband. Will this ever be possible again?

Do these vulvar specialists really know

anything different, or are they all giving us the same meds and hoping it will

work out for us?

Sincerely,

Anne in TX

I hope this helps to get info

about Dr. ,

I've several articles written about or by him.

Sounds like a good guy

Dee

http://www.stronghealth.com/services/womenshealth/fosterbio.cfm?master_id=4035