Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 dear all, i touht i would write efoe read to give you all an update. pleae first ofall plese pray fr me, i cry now asi write. i don't know if i am more frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng at leat our or fve tmes a day to getting furious but as you now anger taks a lot of energy and that i ave little of. i have been oing beack an forth with and rom dfoctors for three mnths. nowtyingto figure out hat s rongwith me. of course i ave rp and a couple handfuls or other dx's but there s something else wrong. my head hurts so bad anymore i cnnot stand it no matter how much meds i take. and i avebeen throwing up for about wo month every tm, almoteverytime i eat. at firti wa blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a two day reprieve and then t started up again. i have been treated for a sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14 onths ago i have never een f antibiotics fo more than two days before it comes back with a vengence. i ave ths feaar tht if goto too many dferent doctors that my records get so scttered tha the right had doesn/t know what he left hand is doing. thi has happened so may time. in the lat two months i have been to my EENT specialist, a neurologist, obgyn doc, pain control specialist, anda few others.now they want me to see a urologist an a gi specialst. my husband went t the docs with me yesterday (my PCP and my pulmonologist and he even askd could they no put m in the hospital to try to fighure out hat iswrong. he old temhe a seen me cntinue og et worse and thet my quality of li9fe is at a stand still. you know how it goes. .....a doc gets an idea......he tells you to seeaother doc.which take a leataweek to get an appointment...that doc orers som tests which take another wek or two.....then you hae o wait anoter week for the report.....when negative you start he procssover wit the same o a new doc. and then atain and again. i am sorry if i ound frustrated but i a and iguess i just need o blow off steam. since i have seen these various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc. now they are oing bloodwork (you tink they would have done that first) so far hey have ruled out things like an aneurysm, brain bleed, cancer of the brain and a spinal yrinx. they have found acuple of herneated discs. i had opt surgery last week --you know the proverbial shot in the bck of steroids) but of course that did nogood. now they are going to do a sonagram of m gall bladder an pancreas. i have been having right lower quadrant pain in he front and even inthe back. with the amount of pain meds i'm on if smething hurts and i feel it it usually mean hat thre i somehing wrong. maybe this will be it. my mother almot died last february with a gangrenous gall bladde. then from medical records i get a copy of my admission and discharge summaries of my last two hospitaliztions ( i been hospitalized aobut 9 times since this started). low and behold it sttes that i am resistant o leviquin (antibiotic) tht has een given to me at leat three times for the sinuses buy the doctor who wrote he discharge summary. yes i am mad. i fond out that my kidneys were damaged by the amphocertan B tat i got--it caused rnal failure andthat i hve charco't syndrome---LIKE ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no one told me. ofcoure these thing can and most likely do have lng erm effects. i am lucky if i have 1-2 hours of he day where i can function. my poor husband is bside himself--he justs feels helpless to relieve the pain. he is eng very supporiv. howver i am asham t admit there have been tmes where out of sheer frustration i have given him hell for little or no reason--he is being so patient. i cannot even make my meetings.havent been out o the house in a long time. if it weren't fo he dogs i would not even get up. at the do'c yesterday they did a test ad my ox sats drop rapidly with minimal exerction. as much a i fear he hospital (infections etc) i swear i am ready if it would help. my back head ears, eyes, rm bones etc are a mess. ok ive griped long enough. thank you for lettng me get f off my chest. i feel etter. please keep me in your prayers andfrgive me if i don't emil as often. tank you n ove, denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 Get to a good rheumatologist. These specialists you are seeing are missing the point. Call Trentham' s office in Boston. It is worth the trip . Re: HI FROM PHILLY From: dlbmo@... ( Bigham) dear all, i touht i would write efoe read to give you all an update. pleae first ofall plese pray fr me, i cry now asi write. i don't know if i am more frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng at leat our or fve tmes a day to getting furious but as you now anger taks a lot of energy and that i ave little of. i have been oing beack an forth with and rom dfoctors for three mnths. nowtyingto figure out hat s rongwith me. of course i ave rp and a couple handfuls or other dx's but there s something else wrong. my head hurts so bad anymore i cnnot stand it no matter how much meds i take. and i avebeen throwing up for about wo month every tm, almoteverytime i eat. at firti wa blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a two day reprieve and then t started up again. i have been treated for a sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14 onths ago i have never een f antibiotics fo more than two days before it comes back with a vengence. i ave ths feaar tht if goto too many dferent doctors that my records get so scttered tha the right had doesn/t know what he left hand is doing. thi has happened so may time. in the lat two months i have been to my EENT specialist, a neurologist, obgyn doc, pain control specialist, anda few others.now they want me to see a urologist an a gi specialst. my husband went t the docs with me yesterday (my PCP and my pulmonologist and he even askd could they no put m in the hospital to try to fighure out hat iswrong. he old temhe a seen me cntinue og et worse and thet my quality of li9fe is at a stand still. you know how it goes. .....a doc gets an idea......he tells you to seeaother doc.which take a leataweek to get an appointment...that doc orers som tests which take another wek or two.....then you hae o wait anoter week for the report.....when negative you start he procssover wit the same o a new doc. and then atain and again. i am sorry if i ound frustrated but i a and iguess i just need o blow off steam. since i have seen these various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc. now they are oing bloodwork (you tink they would have done that first) so far hey have ruled out things like an aneurysm, brain bleed, cancer of the brain and a spinal yrinx. they have found acuple of herneated discs. i had opt surgery last week --you know the proverbial shot in the bck of steroids) but of course that did nogood. now they are going to do a sonagram of m gall bladder an pancreas. i have been having right lower quadrant pain in he front and even inthe back. with the amount of pain meds i'm on if smething hurts and i feel it it usually mean hat thre i somehing wrong. maybe this will be it. my mother almot died last february with a gangrenous gall bladde. then from medical records i get a copy of my admission and discharge summaries of my last two hospitaliztions ( i been hospitalized aobut 9 times since this started). low and behold it sttes that i am resistant o leviquin (antibiotic) tht has een given to me at leat three times for the sinuses buy the doctor who wrote he discharge summary. yes i am mad. i fond out that my kidneys were damaged by the amphocertan B tat i got--it caused rnal failure andthat i hve charco't syndrome---LIKE ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no one told me. ofcoure these thing can and most likely do have lng erm effects. i am lucky if i have 1-2 hours of he day where i can function. my poor husband is bside himself--he justs feels helpless to relieve the pain. he is eng very supporiv. howver i am asham t admit there have been tmes where out of sheer frustration i have given him hell for little or no reason--he is being so patient. i cannot even make my meetings.havent been out o the house in a long time. if it weren't fo he dogs i would not even get up. at the do'c yesterday they did a test ad my ox sats drop rapidly with minimal exerction. as much a i fear he hospital (infections etc) i swear i am ready if it would help. my back head ears, eyes, rm bones etc are a mess. ok ive griped long enough. thank you for lettng me get f off my chest. i feel etter. please keep me in your prayers andfrgive me if i don't emil as often. tank you n ove, denise --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 Get to a good rheumatologist. These specialists you are seeing are missing the point. Call Trentham' s office in Boston. It is worth the trip . Re: HI FROM PHILLY From: dlbmo@... ( Bigham) dear all, i touht i would write efoe read to give you all an update. pleae first ofall plese pray fr me, i cry now asi write. i don't know if i am more frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng at leat our or fve tmes a day to getting furious but as you now anger taks a lot of energy and that i ave little of. i have been oing beack an forth with and rom dfoctors for three mnths. nowtyingto figure out hat s rongwith me. of course i ave rp and a couple handfuls or other dx's but there s something else wrong. my head hurts so bad anymore i cnnot stand it no matter how much meds i take. and i avebeen throwing up for about wo month every tm, almoteverytime i eat. at firti wa blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a two day reprieve and then t started up again. i have been treated for a sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14 onths ago i have never een f antibiotics fo more than two days before it comes back with a vengence. i ave ths feaar tht if goto too many dferent doctors that my records get so scttered tha the right had doesn/t know what he left hand is doing. thi has happened so may time. in the lat two months i have been to my EENT specialist, a neurologist, obgyn doc, pain control specialist, anda few others.now they want me to see a urologist an a gi specialst. my husband went t the docs with me yesterday (my PCP and my pulmonologist and he even askd could they no put m in the hospital to try to fighure out hat iswrong. he old temhe a seen me cntinue og et worse and thet my quality of li9fe is at a stand still. you know how it goes. .....a doc gets an idea......he tells you to seeaother doc.which take a leataweek to get an appointment...that doc orers som tests which take another wek or two.....then you hae o wait anoter week for the report.....when negative you start he procssover wit the same o a new doc. and then atain and again. i am sorry if i ound frustrated but i a and iguess i just need o blow off steam. since i have seen these various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc. now they are oing bloodwork (you tink they would have done that first) so far hey have ruled out things like an aneurysm, brain bleed, cancer of the brain and a spinal yrinx. they have found acuple of herneated discs. i had opt surgery last week --you know the proverbial shot in the bck of steroids) but of course that did nogood. now they are going to do a sonagram of m gall bladder an pancreas. i have been having right lower quadrant pain in he front and even inthe back. with the amount of pain meds i'm on if smething hurts and i feel it it usually mean hat thre i somehing wrong. maybe this will be it. my mother almot died last february with a gangrenous gall bladde. then from medical records i get a copy of my admission and discharge summaries of my last two hospitaliztions ( i been hospitalized aobut 9 times since this started). low and behold it sttes that i am resistant o leviquin (antibiotic) tht has een given to me at leat three times for the sinuses buy the doctor who wrote he discharge summary. yes i am mad. i fond out that my kidneys were damaged by the amphocertan B tat i got--it caused rnal failure andthat i hve charco't syndrome---LIKE ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no one told me. ofcoure these thing can and most likely do have lng erm effects. i am lucky if i have 1-2 hours of he day where i can function. my poor husband is bside himself--he justs feels helpless to relieve the pain. he is eng very supporiv. howver i am asham t admit there have been tmes where out of sheer frustration i have given him hell for little or no reason--he is being so patient. i cannot even make my meetings.havent been out o the house in a long time. if it weren't fo he dogs i would not even get up. at the do'c yesterday they did a test ad my ox sats drop rapidly with minimal exerction. as much a i fear he hospital (infections etc) i swear i am ready if it would help. my back head ears, eyes, rm bones etc are a mess. ok ive griped long enough. thank you for lettng me get f off my chest. i feel etter. please keep me in your prayers andfrgive me if i don't emil as often. tank you n ove, denise --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 Oh , my heart pains for you. How I wish I could do something. All I can do is pray and I will certainly do overtime for you. Love you, Jo Re: HI FROM PHILLY >From: dlbmo@... ( Bigham) > >dear all, > >i touht i would write efoe read to give you all an update. pleae first >ofall plese pray fr me, i cry now asi write. i don't know if i am more >frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng >at leat our or fve tmes a day to getting furious but as you now anger >taks a lot of energy and that i ave little of. i have been oing beack >an forth with and rom dfoctors for three mnths. nowtyingto figure out >hat s rongwith me. of course i ave rp and a couple handfuls or other >dx's but there s something else wrong. my head hurts so bad anymore i >cnnot stand it no matter how much meds i take. and i avebeen throwing >up for about wo month every tm, almoteverytime i eat. at firti wa >blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a >two day reprieve and then t started up again. i have been treated for a >sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14 >onths ago i have never een f antibiotics fo more than two days before it >comes back with a vengence. >i ave ths feaar tht if goto too many dferent doctors that my records get >so scttered tha the right had doesn/t know what he left hand is doing. >thi has happened so may time. in the lat two months i have been to my >EENT specialist, a neurologist, obgyn doc, pain control specialist, >anda few others.now they want me to see a urologist an a gi specialst. > my husband went t the docs with me yesterday (my PCP and my >pulmonologist and he even askd could they no put m in the hospital to >try to fighure out hat iswrong. he old temhe a seen me cntinue og et >worse and thet my quality of li9fe is at a stand still. you know how it >goes. .....a doc gets an idea......he tells you to seeaother doc.which >take a leataweek to get an appointment...that doc orers som tests which >take another wek or two.....then you hae o wait anoter week for the >report.....when negative you start he procssover wit the same o a new >doc. and then atain and again. i am sorry if i ound frustrated but i a >and iguess i just need o blow off steam. since i have seen these >various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc. >now they are oing bloodwork (you tink they would have done that first) >so far hey have ruled out things like an aneurysm, brain bleed, cancer >of the brain and a spinal yrinx. they have found acuple of herneated >discs. i had opt surgery last week --you know the proverbial shot in >the bck of steroids) but of course that did nogood. now they are >going to do a sonagram of m gall bladder an pancreas. i have been >having right lower quadrant pain in he front and even inthe back. with >the amount of pain meds i'm on if smething hurts and i feel it it >usually mean hat thre i somehing wrong. maybe this will be it. my >mother almot died last february with a gangrenous gall bladde. > >then from medical records i get a copy of my admission and discharge >summaries of my last two hospitaliztions ( i been hospitalized aobut 9 >times since this started). low and behold it sttes that i am resistant >o leviquin (antibiotic) tht has een given to me at leat three times for >the sinuses buy the doctor who wrote he discharge summary. yes i am >mad. i fond out that my kidneys were damaged by the amphocertan B tat i >got--it caused rnal failure andthat i hve charco't syndrome---LIKE >ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no >one told me. ofcoure these thing can and most likely do have lng erm >effects. >i am lucky if i have 1-2 hours of he day where i can function. my poor >husband is bside himself--he justs feels helpless to relieve the pain. >he is eng very supporiv. howver i am asham t admit there have been tmes >where out of sheer frustration i have given him hell for little or no >reason--he is being so patient. > i cannot even make my meetings.havent been out o the house in a long >time. if it weren't fo he dogs i would not even get up. at the do'c >yesterday they did a test ad my ox sats drop rapidly with minimal >exerction. > as much a i fear he hospital (infections etc) i swear i am ready if >it would help. > my back head ears, eyes, rm bones etc are a mess. > >ok ive griped long enough. thank you for lettng me get f off my chest. >i feel etter. please keep me in your prayers andfrgive me if i don't >emil as often. >tank you n ove, > >denise > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 Oh , my heart pains for you. How I wish I could do something. All I can do is pray and I will certainly do overtime for you. Love you, Jo Re: HI FROM PHILLY >From: dlbmo@... ( Bigham) > >dear all, > >i touht i would write efoe read to give you all an update. pleae first >ofall plese pray fr me, i cry now asi write. i don't know if i am more >frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng >at leat our or fve tmes a day to getting furious but as you now anger >taks a lot of energy and that i ave little of. i have been oing beack >an forth with and rom dfoctors for three mnths. nowtyingto figure out >hat s rongwith me. of course i ave rp and a couple handfuls or other >dx's but there s something else wrong. my head hurts so bad anymore i >cnnot stand it no matter how much meds i take. and i avebeen throwing >up for about wo month every tm, almoteverytime i eat. at firti wa >blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a >two day reprieve and then t started up again. i have been treated for a >sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14 >onths ago i have never een f antibiotics fo more than two days before it >comes back with a vengence. >i ave ths feaar tht if goto too many dferent doctors that my records get >so scttered tha the right had doesn/t know what he left hand is doing. >thi has happened so may time. in the lat two months i have been to my >EENT specialist, a neurologist, obgyn doc, pain control specialist, >anda few others.now they want me to see a urologist an a gi specialst. > my husband went t the docs with me yesterday (my PCP and my >pulmonologist and he even askd could they no put m in the hospital to >try to fighure out hat iswrong. he old temhe a seen me cntinue og et >worse and thet my quality of li9fe is at a stand still. you know how it >goes. .....a doc gets an idea......he tells you to seeaother doc.which >take a leataweek to get an appointment...that doc orers som tests which >take another wek or two.....then you hae o wait anoter week for the >report.....when negative you start he procssover wit the same o a new >doc. and then atain and again. i am sorry if i ound frustrated but i a >and iguess i just need o blow off steam. since i have seen these >various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc. >now they are oing bloodwork (you tink they would have done that first) >so far hey have ruled out things like an aneurysm, brain bleed, cancer >of the brain and a spinal yrinx. they have found acuple of herneated >discs. i had opt surgery last week --you know the proverbial shot in >the bck of steroids) but of course that did nogood. now they are >going to do a sonagram of m gall bladder an pancreas. i have been >having right lower quadrant pain in he front and even inthe back. with >the amount of pain meds i'm on if smething hurts and i feel it it >usually mean hat thre i somehing wrong. maybe this will be it. my >mother almot died last february with a gangrenous gall bladde. > >then from medical records i get a copy of my admission and discharge >summaries of my last two hospitaliztions ( i been hospitalized aobut 9 >times since this started). low and behold it sttes that i am resistant >o leviquin (antibiotic) tht has een given to me at leat three times for >the sinuses buy the doctor who wrote he discharge summary. yes i am >mad. i fond out that my kidneys were damaged by the amphocertan B tat i >got--it caused rnal failure andthat i hve charco't syndrome---LIKE >ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no >one told me. ofcoure these thing can and most likely do have lng erm >effects. >i am lucky if i have 1-2 hours of he day where i can function. my poor >husband is bside himself--he justs feels helpless to relieve the pain. >he is eng very supporiv. howver i am asham t admit there have been tmes >where out of sheer frustration i have given him hell for little or no >reason--he is being so patient. > i cannot even make my meetings.havent been out o the house in a long >time. if it weren't fo he dogs i would not even get up. at the do'c >yesterday they did a test ad my ox sats drop rapidly with minimal >exerction. > as much a i fear he hospital (infections etc) i swear i am ready if >it would help. > my back head ears, eyes, rm bones etc are a mess. > >ok ive griped long enough. thank you for lettng me get f off my chest. >i feel etter. please keep me in your prayers andfrgive me if i don't >emil as often. >tank you n ove, > >denise > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Dear : You will be a the top of my prayers. Try to hang in there until they can figure out what helps. Keep pushing docs for answers which is hard when you feel soooo bad. I hope this post finds you feeling some better and I'm sure everyone in the group who reads this will be praying for you also. Just know you are not alone and can let off steam any time you need. We are here for you. Take care, Bigham wrote: > From: dlbmo@... ( Bigham) > > dear all, > > i touht i would write efoe read to give you all an update. pleae > first > ofall plese pray fr me, i cry now asi write. i don't know if i am > more > frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom > cryng > at leat our or fve tmes a day to getting furious but as you now anger > t[ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Angie: here. How are you doing on the Minocin. Have you noticed any decrease in the fibromyalgia sx? What dosage are you on? As I wrote before I really didn't notice the difference when taking the minocin until I forgot to take it and then wham I realized the fibro pain was not as bad when on it. Vasculitis is also not as noticeable (blue knees) etc when on it. Between the Minocin and massive Ibuprofen, I think that is why I have been able to maintain so well. Hope your doing well. > hi and welcome. maybe we can come up with answers that our doctors > can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 I am finally getting to reading my email. I am so sorry that you are in so much pain. I will remember you in my prayers and if there is anything I can do let me know. I hope they figure out what is wrong soon. If there's anything at all please let me know I care. Love SueP Re: HI FROM PHILLY > From: dlbmo@... ( Bigham) > > dear all, > > i touht i would write efoe read to give you all an update. pleae first > ofall plese pray fr me, i cry now asi write. i don't know if i am more > frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng > at leat our or fve tmes a day to getting furious but as you now anger > taks a lot of energy and that i ave little of. i have been oing beack > an forth with and rom dfoctors for three mnths. nowtyingto figure out > hat s rongwith me. of course i ave rp and a couple handfuls or other > dx's but there s something else wrong. my head hurts so bad anymore i > cnnot stand it no matter how much meds i take. and i avebeen throwing > up for about wo month every tm, almoteverytime i eat. at firti wa > blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a > two day reprieve and then t started up again. i have been treated for a > sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14 > onths ago i have never een f antibiotics fo more than two days before it > comes back with a vengence. > i ave ths feaar tht if goto too many dferent doctors that my records get > so scttered tha the right had doesn/t know what he left hand is doing. > thi has happened so may time. in the lat two months i have been to my > EENT specialist, a neurologist, obgyn doc, pain control specialist, > anda few others.now they want me to see a urologist an a gi specialst. > my husband went t the docs with me yesterday (my PCP and my > pulmonologist and he even askd could they no put m in the hospital to > try to fighure out hat iswrong. he old temhe a seen me cntinue og et > worse and thet my quality of li9fe is at a stand still. you know how it > goes. .....a doc gets an idea......he tells you to seeaother doc.which > take a leataweek to get an appointment...that doc orers som tests which > take another wek or two.....then you hae o wait anoter week for the > report.....when negative you start he procssover wit the same o a new > doc. and then atain and again. i am sorry if i ound frustrated but i a > and iguess i just need o blow off steam. since i have seen these > various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc. > now they are oing bloodwork (you tink they would have done that first) > so far hey have ruled out things like an aneurysm, brain bleed, cancer > of the brain and a spinal yrinx. they have found acuple of herneated > discs. i had opt surgery last week --you know the proverbial shot in > the bck of steroids) but of course that did nogood. now they are > going to do a sonagram of m gall bladder an pancreas. i have been > having right lower quadrant pain in he front and even inthe back. with > the amount of pain meds i'm on if smething hurts and i feel it it > usually mean hat thre i somehing wrong. maybe this will be it. my > mother almot died last february with a gangrenous gall bladde. > > then from medical records i get a copy of my admission and discharge > summaries of my last two hospitaliztions ( i been hospitalized aobut 9 > times since this started). low and behold it sttes that i am resistant > o leviquin (antibiotic) tht has een given to me at leat three times for > the sinuses buy the doctor who wrote he discharge summary. yes i am > mad. i fond out that my kidneys were damaged by the amphocertan B tat i > got--it caused rnal failure andthat i hve charco't syndrome---LIKE > ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no > one told me. ofcoure these thing can and most likely do have lng erm > effects. > i am lucky if i have 1-2 hours of he day where i can function. my poor > husband is bside himself--he justs feels helpless to relieve the pain. > he is eng very supporiv. howver i am asham t admit there have been tmes > where out of sheer frustration i have given him hell for little or no > reason--he is being so patient. > i cannot even make my meetings.havent been out o the house in a long > time. if it weren't fo he dogs i would not even get up. at the do'c > yesterday they did a test ad my ox sats drop rapidly with minimal > exerction. > as much a i fear he hospital (infections etc) i swear i am ready if > it would help. > my back head ears, eyes, rm bones etc are a mess. > > ok ive griped long enough. thank you for lettng me get f off my chest. > i feel etter. please keep me in your prayers andfrgive me if i don't > emil as often. > tank you n ove, > > denise > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2000 Report Share Posted February 1, 2000 dear cathy, thank you for your kind words of encouragement. I am making appointments with the appropiate doctors. just found out that my ultrasound came back nd my gall bladder, pancreas and liver are ok. (no sign of stones or enlargement. However my blood work came back saying that i have a high alkylne phosphatase, high phosphorus and of course my wbc is high (it lways is) so now we do more bloodworik. Also have llod in my stool. t Clostridium difficele test has not co e back yet. so we are still humting. thank you o the prayers. love denise Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.