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Re: HI FROM PHILLY

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In a message dated 1/22/2000 7:27:01 PM Pacific Standard Time,

AngieCATW1@... writes:

<< I will take her to see the liberty bell since she

didn't know it was here to begin with. >>

It is there! No kididng, how long has it been there?

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In a message dated 01/22/2000 9:27:15 PM Central Standard Time,

AngieCATW1@... writes:

<< Great FOOD ALSO! (Angie has her husband traind to cook WOW, I am learing

from her so I can train my hubby) >>

you mean you haven't taught Pat to cook????? Get with the program

girlfriend!!! LOL That is the first thing you do, next is teach them to wash,

iron, and clean...LOL

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In a message dated 01/22/2000 9:27:15 PM Central Standard Time,

AngieCATW1@... writes:

<< It is like an old time slumber party

with no sleep. We are comparing our aches and pains and having a great time.

as though we physically knew each other for years. >>

you two will be aching next week....get a little of sleep...LOL I hate we

all can't be there, we would have a blast!!!!!!!!

I love you both!

Lu

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In a message dated 01/22/2000 10:30:55 PM Eastern Standard Time,

Rlr1999@... writes:

<<

It is there! No kididng, how long has it been there? >>

oh I can see this is gonna stir up some conversation. no kidding the

decleration of independance was also written and signed here

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

give today my best shot

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://members.tripod.com/~autoimmune

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In a message dated 01/23/2000 12:49:27 AM Eastern Standard Time,

Lu1953@... writes:

<< That is the first thing you do, next is teach them to wash,

iron, and clean...LOL

>>

ok Jerry can do the laundry (but not as good as me) Iron he has no idea where

to plug it in and I will be nice here, And clean I am working on it

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

give today my best shot

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://members.tripod.com/~autoimmune

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You sh#%!! I can't stop laughing Roy. Good one, but I knew it was in

Philadelphia, New Jersey all the time. LMAO!!!!!

Angie,

You and sound like you're drunk on happiness. Enjoy and don't ever

become sober again!!!!!

>>>>>>>>>>>>>>>>>>>>>>>>>

From: Rlr1999@...

It is there! No kididng, how long has it been there?

In a message dated 1/22/2000 7:27:01 PM Pacific Standard Time,

AngieCATW1@... writes:

<< I will take her to see the liberty bell since she

didn't know it was here to begin with. >>

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Hey, you gals make us want to be there, also. Have enough fun for the rest

of us, too. Hope you both feel well and reaaaally have fun.

Love y'uns,

Jo

HI FROM PHILLY

>From: AngieCATW1@...

>

>Hi lu

>Angie here! we are having a great time sitting around bullshitting. no

plans

>except for tomorrow when I will take her to see the liberty bell since she

>didn't know it was here to begin with. It is like an old time slumber party

>with no sleep. We are comparing our aches and pains and having a great

time.

>as though we physically knew each other for years.

>

>OK< here, (How's the headache Lu?). We are having a great

time!!!!

>How I wish you all were here!! Angie's Son is a DOLL!!!! So cute and

>sweet as pie!

>

>Great FOOD ALSO! (Angie has her husband traind to cook WOW, I am learing

>from her so I can train my hubby)

>

>Love and Angie

>

>

>Love and Gentle Hugs,

>Angie

>Yesterday will fade and tomorrow will take care of itself. Lord, help me

>give today my best shot

>http://www.geocities.com/acenneno_1999

>http://rpolychondritis.tripod.com/index.html

>http://members.tripod.com/~autoimmune

>

>---------------------------

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In a message dated 01/23/2000 12:45:54 PM Eastern Standard Time,

Rlr1999@... writes:

<< he has no idea where

to plug it in >>

That must be frusrtating for you.

R

>>

ok I asked for that!

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

give today my best shot

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://members.tripod.com/~autoimmune

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In a message dated 01/23/2000 12:32:36 AM Central Standard Time,

AngieCATW1@... writes:

<< Iron he has no idea where

to plug it in >>

oh Angie...I could really have some jokes with this one...but I will be

nice......:)

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In a message dated 01/23/2000 11:00:14 PM Eastern Standard Time,

Lu1953@... writes:

<< h Angie...I could really have some jokes with this one...but I will be

nice......:)

>>

why Roy skirted the issue of it already

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

give today my best shot

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://members.tripod.com/~autoimmune

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In a message dated 01/23/2000 11:00:14 PM Eastern Standard Time,

Lu1953@... writes:

<< h Angie...I could really have some jokes with this one...but I will be

nice......:)

>>

aftr I wrote it and sent it I realized what I had said too late!!!!! can I

ask you something personal? if you don't want to answer cause it is personal

no problem just iognore this did the antidepressants kill your sex libido? I

mean dead! and why are you in menopause natural or surgical

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

give today my best shot

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://members.tripod.com/~autoimmune

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In a message dated 1/23/2000 9:39:02 PM Pacific Standard Time,

AngieCATW1@... writes:

<< Roy skirted >>

I dont think this is something anyone would want to picture. : )

But in light blue my legs dont look bad at all. : )

R

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In a message dated 01/23/2000 11:41:00 PM Central Standard Time,

AngieCATW1@... writes:

<< did the antidepressants kill your sex libido? I

mean dead! and why are you in menopause natural or surgical >>

yeppers like dead as a doornail...lol I am in surgical menopause.....its a

little bit harder on the body also....

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In a message dated 01/24/2000 11:11:23 AM Eastern Standard Time,

Lu1953@... writes:

<< lol I am in surgical menopause.....its a

little bit harder on the body also.... >>

I knew it would be harder because it is forced then. I was told that

medically induced menapause is almost just as bad because the body still

wasn't ready to stop producing harmones. Ask , Jerry don't know the last

time he got any!

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://disabilities-us.com/shad/

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In a message dated 01/24/2000 1:59:39 PM Central Standard Time,

AngieCATW1@... writes:

<< Ask , Jerry don't know the last

time he got any! >>

poor Jerry lol and poor you also...lol but when you feel the way I have

lately you just don't give a shit whether you get any or not....LOL when was

getting home? have you heard fron her since she left???? Darn you 2

sounded like you had a blast....I'm glad....

I love you Sis

Lu

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HI ,

You have every right to be frustrated, you are going in a circle trying to

find out what's wrong. Always get copies of your hospital stays and doctor

reports. I think I would approach the doc who had you hospitalized and didn't

tell you all the facts.

Also my friend are you on an anti-depressant, if not call the doc...you

should be on one. Hey anyone with a major illness should be on one. You can

help but be depressed. Hang in there, you are going to find the right doctor

one day. I know its aggravating so vent all you need to, we will listen and

try to help.....

Take care,

Love you

Lu

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HI ,

You have every right to be frustrated, you are going in a circle trying to

find out what's wrong. Always get copies of your hospital stays and doctor

reports. I think I would approach the doc who had you hospitalized and didn't

tell you all the facts.

Also my friend are you on an anti-depressant, if not call the doc...you

should be on one. Hey anyone with a major illness should be on one. You can

help but be depressed. Hang in there, you are going to find the right doctor

one day. I know its aggravating so vent all you need to, we will listen and

try to help.....

Take care,

Love you

Lu

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you poor woman. Your in my prayers daily but I will add a few more on

yur behalf. You have been through hell in a hail storm with your medical

problems. Being frustrated is normal and totally allowed, getting mad works

too, I am glad you wrote what you were feeling down at least it was an

outlet. Sometime we hold things in and that really is the worst thing for us.

The inner anger and stress only makes it all the more difficult. Yell,

scream, write whatever just get it out. I am sure your huband understands

your frustration and feels it too. He understands your not picking on him

when you go off on him. He is there for you and that is what is important.

Hell If I didn't tell Jerry to go f himself at least three times a day he

would think I had already died. (no kidding this is true ask ) with the

illnesses you have and the meds we need to take crying is also totally

normal. just let it out my friend

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

today

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://disabilities-us.com/shad/

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you poor woman. Your in my prayers daily but I will add a few more on

yur behalf. You have been through hell in a hail storm with your medical

problems. Being frustrated is normal and totally allowed, getting mad works

too, I am glad you wrote what you were feeling down at least it was an

outlet. Sometime we hold things in and that really is the worst thing for us.

The inner anger and stress only makes it all the more difficult. Yell,

scream, write whatever just get it out. I am sure your huband understands

your frustration and feels it too. He understands your not picking on him

when you go off on him. He is there for you and that is what is important.

Hell If I didn't tell Jerry to go f himself at least three times a day he

would think I had already died. (no kidding this is true ask ) with the

illnesses you have and the meds we need to take crying is also totally

normal. just let it out my friend

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

today

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://disabilities-us.com/shad/

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In a message dated 01/25/2000 3:03:56 PM Central Standard Time,

AngieCATW1@... writes:

<< no kidding this is true ask >>

LOL I did Angie, lol she agrees with you.....LOL She said it was so funny!

But she could tell Jerry really loves you:)

I heard on the news you got snow......

I love you all

Lu

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In a message dated 01/25/2000 3:03:56 PM Central Standard Time,

AngieCATW1@... writes:

<< no kidding this is true ask >>

LOL I did Angie, lol she agrees with you.....LOL She said it was so funny!

But she could tell Jerry really loves you:)

I heard on the news you got snow......

I love you all

Lu

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dear all,

i touht i would write efoe read to give you all an update. pleae first

ofall plese pray fr me, i cry now asi write. i don't know if i am more

frustraed, angry cnfused sad.....perhaps t s a mixture. i go rom cryng

at leat our or fve tmes a day to getting furious but as you now anger

taks a lot of energy and that i ave little of. i have been oing beack

an forth with and rom dfoctors for three mnths. nowtyingto figure out

hat s rongwith me. of course i ave rp and a couple handfuls or other

dx's but there s something else wrong. my head hurts so bad anymore i

cnnot stand it no matter how much meds i take. and i avebeen throwing

up for about wo month every tm, almoteverytime i eat. at firti wa

blaming it on the flu whtih i thought i hadfor almoxt four weeks, got a

two day reprieve and then t started up again. i have been treated for a

sinus infectiion fr the at four yers. sine i wa in the hosp8tal 14

onths ago i have never een f antibiotics fo more than two days before it

comes back with a vengence.

i ave ths feaar tht if goto too many dferent doctors that my records get

so scttered tha the right had doesn/t know what he left hand is doing.

thi has happened so may time. in the lat two months i have been to my

EENT specialist, a neurologist, obgyn doc, pain control specialist,

anda few others.now they want me to see a urologist an a gi specialst.

my husband went t the docs with me yesterday (my PCP and my

pulmonologist and he even askd could they no put m in the hospital to

try to fighure out hat iswrong. he old temhe a seen me cntinue og et

worse and thet my quality of li9fe is at a stand still. you know how it

goes. .....a doc gets an idea......he tells you to seeaother doc.which

take a leataweek to get an appointment...that doc orers som tests which

take another wek or two.....then you hae o wait anoter week for the

report.....when negative you start he procssover wit the same o a new

doc. and then atain and again. i am sorry if i ound frustrated but i a

and iguess i just need o blow off steam. since i have seen these

various docs, i have hadthe usual gamut of mri's, catscans, ugi's etc.

now they are oing bloodwork (you tink they would have done that first)

so far hey have ruled out things like an aneurysm, brain bleed, cancer

of the brain and a spinal yrinx. they have found acuple of herneated

discs. i had opt surgery last week --you know the proverbial shot in

the bck of steroids) but of course that did nogood. now they are

going to do a sonagram of m gall bladder an pancreas. i have been

having right lower quadrant pain in he front and even inthe back. with

the amount of pain meds i'm on if smething hurts and i feel it it

usually mean hat thre i somehing wrong. maybe this will be it. my

mother almot died last february with a gangrenous gall bladde.

then from medical records i get a copy of my admission and discharge

summaries of my last two hospitaliztions ( i been hospitalized aobut 9

times since this started). low and behold it sttes that i am resistant

o leviquin (antibiotic) tht has een given to me at leat three times for

the sinuses buy the doctor who wrote he discharge summary. yes i am

mad. i fond out that my kidneys were damaged by the amphocertan B tat i

got--it caused rnal failure andthat i hve charco't syndrome---LIKE

ANYONE TOLD ME THIS.. i als had exrreme cardiac complications that no

one told me. ofcoure these thing can and most likely do have lng erm

effects.

i am lucky if i have 1-2 hours of he day where i can function. my poor

husband is bside himself--he justs feels helpless to relieve the pain.

he is eng very supporiv. howver i am asham t admit there have been tmes

where out of sheer frustration i have given him hell for little or no

reason--he is being so patient.

i cannot even make my meetings.havent been out o the house in a long

time. if it weren't fo he dogs i would not even get up. at the do'c

yesterday they did a test ad my ox sats drop rapidly with minimal

exerction.

as much a i fear he hospital (infections etc) i swear i am ready if

it would help.

my back head ears, eyes, rm bones etc are a mess.

ok ive griped long enough. thank you for lettng me get f off my chest.

i feel etter. please keep me in your prayers andfrgive me if i don't

emil as often.

tank you n ove,

denise

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