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Congrats Bob:) People that have them are very pleased. Also the surgeons

at house are top notch:) I am very glad you wrote them~~Lowi

ABI

> I just got a call from HEI.. nd It looks like I am a candidate for the

new

> ABI. I will no longer be Bob. I will be.... CYBERBOB!

>

> CyberBob

>

>

>

>

>

>

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Now comes the big hurdle. Is insurance going to pay for it.....

Bob the Bumpy one

Congrats Bob:) People that have them are very pleased. Also the surgeons

at house are top notch:) I am very glad you wrote them~~Lowi

ABI

> I just got a call from HEI.. nd It looks like I am a candidate for the

new

> ABI. I will no longer be Bob. I will be.... CYBERBOB!

>

> CyberBob

>

>

>

>

>

>

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  • 2 weeks later...

well forget the poll, no one even replied but you!! Oh well. Marie

ABI

>>

>>

>> I have a copy of the New Jersey ANA newsletter and it talks about

>> the ABI by

>>

>>

>>

>>

>>

>> I have a copy of the NJ ANA newsletter, and it talks about the

>> ABI has a big

>> article by Dr Jed Kwarther, who apparently trained at HEI and does the

ABI

>> in NJ. Here are some stats I found interesting:

>> 83.2% of patients receive stimulation

>> 88.0 who receive stimulation show improved lip-reading abilities

>> 14.35% within the year demonstrate sound-only sentence recognition (This

>> percentatge of patients was able to converse on the phone)

>> 16.7% receive no stimulation.

>> I wonder if we take are own poll, what kind of stats we come up with.

>> Name of Person with ABI

>> Receive help with lip reading

>> Can use the telephone

>> ABI does not work

>> If anyone who has an ABI answers those 4 questions and forwards results

to

>> me, I'll take a poll for Crewbies and see how we stack up?

>> Secondly, in this article, he says that " Due to the proximitiy of the

>> brainstem electrodes, there is a small risk that electrical

>> stimulation may

>> compromise heart function. Therefore the initial stimulation of the

>> electrodes and programming are conducted in the hospital in the

>> presence of

>> medical staff qualified in resuscitation and with the patient connected

to

>> ECT monitoring equipment. "

>> I found this statement really interesting, as I certainly did not

>> have that

>> experience, and no one ever told me there was any danger with heart

>> function!!

>> marie

>>

>> dr Jed

>> Marie Drew

>>

>>

>>

>>

>>

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You know, I have 14 people so far; when I get it completel, I will not do

statistics, but rather just show who, when, and how well it works and let

people draw their own conclusions. You know even tho we say well yours is

old so it doesn't work--but look at Marilyn son, No 1 and it still

works! And then there's , who just got one recently and it does not

work! Me, I'm banking on that guy on the East Coast who is working on

restoring hearing! LOL

Marie

Re: ABI

>I really don't think I should, or any of us first 7, should be in

>your poll, Marie. What we had was under Bill House.... and then Bob

>'s team

>took over when got the multi-channel (forgot the year? Pat, do u

>remember?), and I think at that time we one-channels became the " antiques "

>you see in the glass case there in the lobby at HEI. Dr. Brackman had

>written to me that I

>could possibly consider the new ABI upon removal of this other tumor in my

>jugular foramen, but my MRI's would certainly be a fright! An old defunct

>piece of

>hardware on one side and even " more " hardware on the other. Oh, and let's

>not forget the shunt behind my ear to my belly too.:)

>

>Jennette

>----- Original Message -----

>From: Marie Drew

>

>Yes, she sent me a note; right nowI have that likes hers, Jane,

>does not work, Earl, works very well, Tev, does not work, me, works fairly

>well, Jen does not work, and I know says she can use the phone, oh

and

> says hers works good. Marie

>

>

>

>

>

>

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I AM TRYING TO REMEMBER MARIE... MAYBE 1994 BUT I AM NOT AT ALL SURE. I WILL HAVE TO LOOK THROUGH SOME PAPERS AND SEE IF I HAVE IT WRITTEN SOME WHERE

CATHERINE

Re: ABIHi Marie and I think you are right about Jenns ABI stopped working ? Tevyen

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  • 4 years later...
Guest guest

Hi

No she only did an external. I'm going to make an appointment on

tuesday to re-visit. I think mine is the same as what you said - i

have developed the vaginismus because of the v.v.

I'll let you know how it goes.

Thanx

>

> Abi,

> It depends what she did her last exam. Did she press on the

variuos

> pelvic floor muscles internally? That is how I was diagnosed with

vaginismus. None

> of the deeper muscles hurt, but all the ones near the opening were

painful to

> the touch. I am thinking it is probably a result of muscle memory

learning to

> associate pressure with pain due to the vestibulitis. If she did

not do an

> internal exam when she diagnosed you with VVS, perhaps you should

revisit her.

> Hope this helps. : ) -

>

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