Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Arline, Augh,It seem's like im constantly looking for drs. to give me tests I need.I will try the diet in the mean time. I live on disability right now.With 2 kids there's nothing left over.I wish I could take the test.When I go back to this dr. I dont know how willing he will be to give me any tests or perscriptions to a specialist. All I can do is more research and try. Thanks for the lead,Tami --- BABB wrote: > Tami and Sara, > > I strongly suspect that both of you are suffering > from > what I call gluten poisoning. The medical profession > calls it Celiac Disease or Gluten Sensitivity. > Whatever you call it, it is a serious disease and > that > is probably what is wrong with your immune systems, > nervous systems and nerve damage, hair loss, pain, > yeast overgrowth, muscle pain, hormone disruptions > and > whatever else is going on. All of these things are > symptoms of gluten sensitivity. If this is what you > have you will only get worse if you don't find out > specifically if you have this. Major neurologists > (Latov, Hadjivasseliou) urge people who have > neurological problems to be tested for Celiac > Disease. > Unfortunately there is not much research in the US > about this disease and a lot of the information > available is twenty years behind. > > I cannot urge you enough to get a stool test at the > following lab for gluten sensitivity: > > http://www.enterolab.com > > It will cost $99.00 plus postage and it is cheap to > find out how to make your life livable again.If you > have good insurance you will be reimubursed when you > make a claim. > > You could have tests at the doctors' offices but > unforunately the blood tests they use are not > accurate > and you might not find out anything at all. > > When I first went gluten free my beauty operator > noticed that within weeks I had a whole new growth > of > hair like fur close to my scalp. I hadn't realized > that I had any hair loss as I always had more hair > than most people anyway but I suspect it would have > eventually all gone away if I hadn't discovered what > was wrong with me. I had such back pain I could > hardly > function and was led to believe that I had a > herniated > disc. I was diagnosed with fibromyalgia and within > two > weeks my back pain and all other pain was gone after > decades of pain, when I went gluten free. My fatigue > went away almost immediately as did my IBS anxiety, > etc. My immune system was killing me and it was > caused > by gluten sensitivity (and in my case--dairy > sensitivity). > > The following is a URL that tells some about this > but > at the bottom there are references on which you can > click and read more about this especially related to > the neurological aspects. This disease can do so > much > more than the neuro part of it but it is a major > thing > with it and often not understood by doctors or > anybody > else. This is new science and very important. The > doctor whose lab I mentioned is also on this. > > http://brain.hastypastry.net/forums/printthread.php?t=2127 > > I hope this helps you. You need to stop suffering > and > have to find out what is wrong. Probably you will > find > out if you take this test in my opinion. > > Arline > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Tami, Pls remember hun, that you are the boss of your body and not the dr and if they give you a hard time about the fact that you are trying to educate yourself so that you can find out what's wrong then it's time to find another dr. They can only make recommendations but you are not obligated to carry them out. If this is a good dr there should be no problems with ordering different tests. Hang in there hun and know that I'm thinking about you. Kristy __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Yeah, just to reinforce that, my doctor orders whatever test I want and she prescribes whatever I ask for, including narcotics. She respects that I have something that you can't look in a book and find a cure for, and that we have to try everything. When I first met her we discussed these issues and agreed that we would work together. You can have a doctor like that too. They exist. It took some work to find her. Oh, and I was in non-stop severe pain when I met her in 1998, seriously considering suicide. It took some work to find her. > Tami, > > Pls remember hun, that you are the boss of your body and not the > dr and if they give you a hard time about the fact that you are > trying to educate yourself so that you can find out what's wrong > then it's time to find another dr. They can only make > recommendations but you are not obligated to carry them out. If > this is a good dr there should be no problems with ordering > different tests. > > Hang in there hun and know that I'm thinking about you. > > Kristy > > > > > > > > __________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 : tell us who your doctor is and where she is? hugs, ML NICE Lou says "when God said NICE I thought HE said ICE so I said 'give me LoTS of that cause it sure is HOT in TEXAS!'. " -----Original Message-----From: VulvarDisorders [mailto:VulvarDisorders ]On Behalf Of MaceSent: Saturday, September 17, 2005 3:46 PMTo: VulvarDisorders Subject: Re: Tami and SaraYeah, just to reinforce that, my doctor orders whatever test I want and she prescribes whatever I ask for, including narcotics. She respects that I have something that you can't look in a book and find a cure for, and that we have to try everything.When I first met her we discussed these issues and agreed that we would work together.You can have a doctor like that too. They exist. It took some work to find her.Oh, and I was in non-stop severe pain when I met her in 1998, seriously considering suicide. It took some work to find her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Hi. She is Michele . She is in Raleigh. It is . However, Michele is *not* a vulvar pain specialist. She has sent me out to Libby in Charlotte, who got me on the Effexor- Neurontin combination, and Hope Haefner in Ann Arbor Michigan, who determined that I was a good surgical candidate. Those two are the best vulvar pain specialists, in my opinion. They are also very nice. Libby is . Hope Haefner is (734) 763- 6295. Michele hugs me. She really cares about me. It's amazing. I've never had a doctor like that before. She has been taking care of me for 6 years now. > : tell us who your doctor is and where she is? hugs, ML > > NICE Lou says " when God said NICE I thought HE said ICE so I said > 'give me LoTS of that cause it sure is HOT in TEXAS!'. " > > > > Re: Tami and Sara > > > > Yeah, just to reinforce that, my doctor orders whatever test I want > and she prescribes whatever I ask for, including narcotics. She > respects that I have something that you can't look in a book and > find a cure for, and that we have to try everything. > > When I first met her we discussed these issues and agreed that we > would work together. > > You can have a doctor like that too. They exist. It took some work > to find her. > > Oh, and I was in non-stop severe pain when I met her in 1998, > seriously considering suicide. It took some work to find her. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 : oh I am originally from Wyandotte, Mi. Do you think the Effexor helps with the pain or how? Dr. said "it was so good to see you"..which almost made me feel like the president or something really special. Dont you just love that when they are "human". hugs to you! ML NICE Lou says "when God said NICE I thought HE said ICE so I said 'give me LoTS of that cause it sure is HOT in TEXAS!'. " -----Original Message-----From: VulvarDisorders [mailto:VulvarDisorders ]On Behalf Of MaceSent: Sunday, September 18, 2005 10:07 AMTo: VulvarDisorders Subject: Re: Tami and SaraHi. She is Michele . She is in Raleigh. It is .However, Michele is *not* a vulvar pain specialist. She has sent me out to Libby in Charlotte, who got me on the Effexor-Neurontin combination, and Hope Haefner in Ann Arbor Michigan, who determined that I was a good surgical candidate. Those two are the best vulvar pain specialists, in my opinion. They are also very nice. Libby is . Hope Haefner is .Michele hugs me. She really cares about me. It's amazing. I've never had a doctor like that before. She has been taking care of me for 6 years now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Hi. Yes, I think Effexor helps. It deadens the nerves. I have no idea how! It is like a more modern version of Elavil. It does not make you thirsty like Elavil. > : oh I am originally from Wyandotte, Mi. Do you think the Effexor > helps with the pain or how? Dr. said " it was so good to see > you " ..which almost made me feel like the president or something really > special. Dont you just love that when they are " human " . hugs to you! ML > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 , What an awesome dr. I'm glad you have her. Kristy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 ML, it's helped my itching and burning a lot! I really don't have any itching or burning now; just other side effects from the Effexor. GA > > Hi. Yes, I think Effexor helps. It deadens the nerves. I have no idea > how! It is like a more modern version of Elavil. It does not make you > thirsty like Elavil. > > \ Quote Link to comment Share on other sites More sharing options...
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