Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 I would be shocked if your 24 hour oximeter didn't at least show you needed oxygen during exertion or exercise (do make sure you do exert yourself and exercise during that period). That being the case you will certainly need it when flying. Even if you don't need it when sitting at home, you're quite likely to need it when flying as cabins are pressurized only to 6000-7000 feet. Assuming you need oxygen when flying, there are some portables accepted by most airlines but a few hoops to jump through as well as obtaining the equipment from your supplier or renting it. Then you need to be prepared at the other end of the flight. You can get oxygen from the airline at generally around $100 per leg but then that doesn't help you unless you have arrangements at the other end. Here is a site with some good basic information. http://www.homeoxygen.org/airtrav.html My personal situation is I doubt I will ever fly with it. I have the time available to drive and enjoy the places along the way or even to take the train. However, if there was somewhere i really wanted to go and flying was the only way, then I'd plan way ahead, jump through the hoops and enjoy it. The only other caution I would issue is don't do it in the midst of a flu epidemic. > > I have not travel by air since the surgery that finished me of and > made sure I stayed on this road. I am a bit nervous to travel by air > for fear of desaurating too much. How have you all done with that? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Jeff...I will add here that air travel can be complicated. You need to check with your airline (or others for comparison) about their o2 requirements. It's easier to get it from them than from me. But do be sure you call well in advance for info. Also call your O2 provider...they can be helpful too with travel info. For instance you can arrange to have your O2 needs delivered at a motel or ship, to be there before you arrive and to be picked up when you leave. Be prepared you may have to buy certain DME. Again, get this direct from provider. Making advance plans is necessary but once made you certainly can fly ok. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Jeff...I will add here that air travel can be complicated. You need to check with your airline (or others for comparison) about their o2 requirements. It's easier to get it from them than from me. But do be sure you call well in advance for info. Also call your O2 provider...they can be helpful too with travel info. For instance you can arrange to have your O2 needs delivered at a motel or ship, to be there before you arrive and to be picked up when you leave. Be prepared you may have to buy certain DME. Again, get this direct from provider. Making advance plans is necessary but once made you certainly can fly ok. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Hi Jeff, let me say welcome first..I've been reading your posts, sorry you're having such a puzzling time. It seems you really do need to visit one of the Specialist Teaching Centres. As for Air Travel...you can probably get an 'Altitude Simulation' Test done. I'm in Australia & had one done in preparation for a long-haul flight a few months ago. I'm not on daily oxygen at all but needed oxygen supplementation for the flight based on that test. They can then advise what flow rate you need as well. I only needed 2L Continuous. Good Luck in Oz IPF: Fibrotic NSIP/UIP???? Reynauds' May 2007 I can't help on what US airlines offer. >> I have not travel by air since the surgery that finished me of and > made sure I stayed on this road. I am a bit nervous to travel by air > for fear of desaurating too much. How have you all done with that?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Jeff, is from Austrailia...she means a teaching hospital in American English!!! It's amazing how different the two languages can be!!! BTW...get yourself evaluated for O2..you probably need it...if you cvan tell how in O2 you feel...you need supplememal O2!! Lack of O2 can damage all the cells of our bodies...get a 6 minute walk, PFT's, and good pulmonologist in a nearby teaching hospital!!! Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Jeff Allred wrote: My thanks to everyone welcoming me.I just don't know how to tell when I am doing to much or not getting enough oxygen until I go way under. There has to be a clue. I am not familiar with "Specialist Teaching Centers", what are they? Re: Air travel issues Hi Jeff, let me say welcome first..I've been reading your posts, sorry you're having such a puzzling time. It seems you really do need to visit one of the Specialist Teaching Centres. As for Air Travel...you can probably get an 'Altitude Simulation' Test done. I'm in Australia & had one done in preparation for a long-haul flight a few months ago. I'm not on daily oxygen at all but needed oxygen supplementation for the flight based on that test. They can then advise what flow rate you need as well. I only needed 2L Continuous. Good Luck in Oz IPF: Fibrotic NSIP/UIP???? Reynauds' May 2007 I can't help on what US airlines offer. > > I have not travel by air since the surgery that finished me of and > made sure I stayed on this road. I am a bit nervous to travel by air > for fear of desaurating too much. How have you all done with that? > No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.17.5/1190 - Release Date: 12/19/2007 7:37 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2007 Report Share Posted December 21, 2007 Sorry Jeff, I'm probably speaking Aussie lingo here..I mean a Medical Specialist attached to either a Pulmonary/Respiratory Diseases Research Facility or a Doctor Training Facility that excels in Lung Problems or some such. By the time this gets posted someone else will have set you sraight I supect! in Oz > >> > I have not travel by air since the surgery that finished me of and > > made sure I stayed on this road. I am a bit nervous to travel by air > > for fear of desaurating too much. How have you all done with that?> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2007 Report Share Posted December 21, 2007 Sorry Jeff, I'm probably speaking Aussie lingo here..I mean a Medical Specialist attached to either a Pulmonary/Respiratory Diseases Research Facility or a Doctor Training Facility that excels in Lung Problems or some such. By the time this gets posted someone else will have set you sraight I supect! in Oz > >> > I have not travel by air since the surgery that finished me of and > > made sure I stayed on this road. I am a bit nervous to travel by air > > for fear of desaurating too much. How have you all done with that?> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 That's ok . I speak all sorts of other dialects too Ironically we have a medical school here, but their pulmonary department seems as if it is still in the 1960's in terms of training. I live in Salt Lake City, Utah U.S.A. and had to go to Denver, Colorado U.S.A. (400 miles away) to get a complete pulmonary exam because there are no specialists in Salt Lake who know how to handle my disease. My doctor here in town is calling to Denver for instructions on what to do all the time. So that is why I am so confused, doctors do not want to touch me because they have no clue how to treat me. I have seen a half dozen doctors and she was the only one who would take me on. I work in the medical world so I do have a lot of contacts and avenues I can explore. I am very versed in cardiology and orthopaedics, but pulmonary is not an area I spent a lot of time in so I know just enough to be dangerous - lol. So I am now on a quest to learn this area so I can understand how to work with my new worst friend. That is where all your experiences come in handy. I find practical application is often very different from textbook therory. Mybe I can find a way to keep my quality of life up by learning from the true masters - My new friends. -----Original Message-----From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Sent: Saturday, December 22, 2007 12:10 AMTo: Breathe-Support Subject: Re: Air travel issues Sorry Jeff, I'm probably speaking Aussie lingo here..I mean a Medical Specialist attached to either a Pulmonary/Respiratory Diseases Research Facility or a Doctor Training Facility that excels in Lung Problems or some such. By the time this gets posted someone else will have set you sraight I supect! in Oz > >> > I have not travel by air since the surgery that finished me of and > > made sure I stayed on this road. I am a bit nervous to travel by air > > for fear of desaurating too much. How have you all done with that?> >> Quote Link to comment Share on other sites More sharing options...
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