Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 I was around 29 times per hour in 2004 and 2005 so borderline. However, the one just completed said BiPap. My ex-wife averaged 86 interruptions per hour. And, although not stopping breathing, which use to be considered apnea, the excessive interruptions would be para- apnea. Just don't know how recently yours was but if your oxygen requirements have increased combined with existing sleep issues, I wouldn't be surprised if one a couple of years or so later would lead to different results. By the way, normal sleep interruptions per hour is 5-10 maximum. Wish Ambien worked for me....the difference is going to be very very expensive on Medicare. Although, maybe when I'm on BiPap something different than Ambien CR might work. But, previously I've been through about everything. I'll tell you what did work well- the vicodin after surgery.....lol. > > > > Sher and MB sleeping too much - TOTALLY the opposite for me. I have > a hard time sleeping. Period. I used to be able to sleep 10-12 hours a > day. Now I'm lucky if I get a sound 5-6 hours. Sometimes I feel like > I'm a walking zombie, but I " m so used to it now that it doesn't even > phase me. Ambien is my friend. > > > > Leanne > > > > > > > > > > --------------------------------- > > Never miss a thing. Make Yahoo your homepage. > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Bruce...what is 'BiPap'? Something new is always on the horizon. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Peggy....Ooooohhh. I use a CPAP and didn't know that. Although I don't need O2 with it either. Thanks. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Peggy....Ooooohhh. I use a CPAP and didn't know that. Although I don't need O2 with it either. Thanks. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 CPap just assists you in inhaling. BiPap assists in inhaling and exhaling. Therefore, according to the sleep tech at the time of my study, they are almost always using BiPap for those with respiratory and lung problems. If you think, most of us do have the same issues in exhaling that we have in inhaling so it does make sense. > > Bruce...what is 'BiPap'? Something new is always on the horizon. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 CPap just assists you in inhaling. BiPap assists in inhaling and exhaling. Therefore, according to the sleep tech at the time of my study, they are almost always using BiPap for those with respiratory and lung problems. If you think, most of us do have the same issues in exhaling that we have in inhaling so it does make sense. > > Bruce...what is 'BiPap'? Something new is always on the horizon. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Well, you can feed oxygen through with either a CPap or BiPap machine. So, typically one with the need would start on CPap, except for those of us with lung diseases, where we'd start on BiPap. As long as our oxygen requirements are mild (2-4 liters at rest) then it will probably be adequate. Now when our oxygen needs increase they feed oxygen in with the machine, so we're getting " oxygen enriched " air. > > > Bruce...what is 'BiPap'? Something new is always on the horizon. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 OK Bruce, thanks. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Bruce... I had my sleep studies done before I was Dx with PF. I think I will ask some questions about the ongoing use of my cpap now that my disease is a factor. I'm not thinking I need O2 at night but I'm curious how the use of the machine works for one with PF....... Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Well, it does change as my previous tests were read by neurologists and the sleep center i went to this time is run for the hospital by a pulmonologist. CPap has probably kept your oxygen from dropping at night and been very fortuitous with the PF. As your condition worsens definitely your pulmonologist will need to manage that as well and look toward BiPap or adding oxygen or turning the flow up. When your condition has changed significantly from your original sleep study (not diagnosis, but condition), then I think a follow up sleep study is in order. At the very least, they can give you an overnight oximeter to check your oxygen. > > Bruce... I had my sleep studies done before I was Dx with PF. I think I will ask some questions about the ongoing use of my cpap now that my disease is a factor. I'm not thinking I need O2 at night but I'm curious how the use of the machine works for one with PF....... > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Well, it does change as my previous tests were read by neurologists and the sleep center i went to this time is run for the hospital by a pulmonologist. CPap has probably kept your oxygen from dropping at night and been very fortuitous with the PF. As your condition worsens definitely your pulmonologist will need to manage that as well and look toward BiPap or adding oxygen or turning the flow up. When your condition has changed significantly from your original sleep study (not diagnosis, but condition), then I think a follow up sleep study is in order. At the very least, they can give you an overnight oximeter to check your oxygen. > > Bruce... I had my sleep studies done before I was Dx with PF. I think I will ask some questions about the ongoing use of my cpap now that my disease is a factor. I'm not thinking I need O2 at night but I'm curious how the use of the machine works for one with PF....... > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Bruce...these are things I will bring to the new Dr. at OHSU in March. A year or so ago I wore an oximeter through the night and sats were normal. Funny how I'm normal but sob. Have crackles and wheeze occasionally. Last Dr. wondered about asthma...tested me...no asthma. I get weary trying to figure it all out. Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Sher, I find it interesting that my psychologist also mentioned my panic attacks after I told her about my dx of NSIP. She still feels that I may have been ill far longer than I realize. I thought I became ill after the death of my Dad in May 2005...after many months of stress dealing with his terminal illness , and my Mom's needs.. Of course I totally ignoired my symptoms of SOB, coughing ,loss of weight etc. ..I was too involved with everything else.The symptoms of panic attacks are so similar to the ILD issues that I just dismissed them having been there before. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Sher Bauman wrote: Bruce... I had my sleep studies done before I was Dx with PF. I think I will ask some questions about the ongoing use of my cpap now that my disease is a factor. I'm not thinking I need O2 at night but I'm curious how the use of the machine works for one with PF....... Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.17.2/1185 - Release Date: 12/15/2007 12:00 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 Sher: Physically there are many components of panic attacks. They may include tremors, crying uncontrollably, shortness of breath, stopping breathing, hyperventilating, sense of paralysis. Now just to get an idea of the feel, think of the most severe shortness of breath you've ever had. I would imagine this was an episode where you couldn't get your breath and, at least for a moment, thought you'd never get it back again. If so, at that time you probably felt the breathlessness and some panic which is quite reasonable if you can't breathe. In a panic attack you feel helpless, and for that period, you feel like you'll never come out of it, like you can't breathe, can't stop shaking, crying. The similarity I would see, having experienced both, is that you've lost control of your body, especially your breath. Also, every second of the time feels like an eternity. You gasp for air which just makes it worse. You know you need to relax and breathe deeply, but you can't quite do it. After, you're mentally, emotionally and physically exhausted and just need calm to recover. Now shortness of breath can cause an anxiety attack to turn into a panic attack as it compounds it and pushes it to another level. Similarly, an anxiety attack will do the opposite and cause shortness of breath. > > ... how are panic attacks and ILD issues similar? > My daughter, Lysa, has panic attacks and perhaps I can share something with her because of MY ILD. > Help us to understand each other. > Thanks. I've never heard this before. > > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 Bruce...gee, sorry I asked. My daughter, Lysa, describes what you say here. I feel so badly for her when one hits her. At least there are some things I have been spared! Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 ...my daughter learned how to 'control' her attacks too. I hope you never have another one! Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 ...my daughter learned how to 'control' her attacks too. I hope you never have another one! Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
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