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Exercise and Lupus

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Hello all: I have a question about exercise. Our family joined a

gym. I am determined to work out, but very slowly! I use only 10 to

15 pounds of weight. I do only bicycle and weight machines. I only go

2 - 3 times per week. I've noticed a large increase in muscle pain,

not unexpected. What I'm wondering is this: Have any of you tried to

tame the wolf with mild exercise? If so, did the wolf finally let

go? Did your muscles ever acclimate? Any input would be appreciated.

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hey, it might help if you take a advil or something of that nature before you

begin your workout to reduce some of the muscle discomfort. personally, because

of medication and swelling i don't see the benefits of exercise as quickly as i

would like to, but i do have more energy. so just hang in there and talk to your

doctor maybe they can give you a little something for the pain...shan

>

>

> Date: 2003/06/23 Mon PM 10:28:32 EDT

> To: LUPIES

> Subject: Exercise and Lupus

>

>

Hello all: I have a question about exercise. Our family joined a

gym. I am determined to work out, but very slowly! I use only 10 to

15 pounds of weight. I do only bicycle and weight machines. I only go

2 - 3 times per week. I've noticed a large increase in muscle pain,

not unexpected. What I'm wondering is this: Have any of you tried to

tame the wolf with mild exercise? If so, did the wolf finally let

go? Did your muscles ever acclimate? Any input would be appreciated.

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http://www.itzarion.com/lupusgroup.html

" The LUPIES online photo albums! "

Check out what your fellow Lupies look like...

http://www.picturetrail.com/gallery/view?username=lupies

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, I had my greatest success in using very mild exercise, and in water.

In fact,

if my Lupus lesions were not so prominent as to get me kicked out of the

local pool,

I would still be going every morning at 5:30 a.m. to do my routine. However,

I am not

allowed in the local public pools right now because of the lesions. Other

clients have

complained that I " might be contagious " , and it is just too much hassle to

explain

every five minutes to the uninformed. So, I do mild stretching routines at

home, but

it's not the same. Water exercise was best for me. Good luck, Hugs, MM

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oy, the idea of a bike in a gym makes my knees hurt just thinking

about it, but it know exersize is really important..i count on my

physical therapist to get me on a plan of action that is designed for

my ra and lupus, and on bad days the instructions are not to skip it,

but make the same movements, really small....ask a physical therapist

who knows your condition what they'd say...i am told swimming is the

perfect thing for us. depending on your skins condition...i wish i

had the energy to get dressed undressed shower and dry my hair twice

a day!! lol no really!!

leslie

> hey, it might help if you take a advil or something of that nature

before you begin your workout to reduce some of the muscle

discomfort. personally, because of medication and swelling i don't

see the benefits of exercise as quickly as i would like to, but i do

have more energy. so just hang in there and talk to your doctor maybe

they can give you a little something for the pain...shan

> >

> > From: " bunny42260 " <bunny42260@y...>

> > Date: 2003/06/23 Mon PM 10:28:32 EDT

> > To: LUPIES

> > Subject: Exercise and Lupus

> >

> >

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i swimm once or twice a week but mostly to keep the musles i have

from degenerating not really to build new ones, and yea if i overdo

or go too long im paying the next week...im too stubborn to not live

my life though i work and play through it im claiming my life,

through diet excercise and good rest now and then, the wolf will NOT

take my life from me.....but he sure makes it difficult to stay

positive somedays...LOL hang in there i cant do the gym thing so good

for you!!! im very impressed my hubby would have to carry me home

sheila

> Hello all: I have a question about exercise. Our family joined a

> gym. I am determined to work out, but very slowly! I use only 10

to

> 15 pounds of weight. I do only bicycle and weight machines. I only

go

> 2 - 3 times per week. I've noticed a large increase in muscle pain,

> not unexpected. What I'm wondering is this: Have any of you tried

to

> tame the wolf with mild exercise? If so, did the wolf finally let

> go? Did your muscles ever acclimate? Any input would be

appreciated.

>

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, I don't have much more energy than that, but I just skipped the

shower before

pool time, then showered off the chlorine after. Worked fine that way. MM

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Hello all: I have a question about exercise. Our family joined a

gym. I am determined to work out, but very slowly! I use only 10 to

15 pounds of weight. I do only bicycle and weight machines. I only go

2 - 3 times per week. I've noticed a large increase in muscle pain,

not unexpected. What I'm wondering is this: Have any of you tried to

tame the wolf with mild exercise? If so, did the wolf finally let

go? Did your muscles ever acclimate? Any input would be appreciated.

, I have tried all of the types of exercise and the only thing that has ever worked for my is just plain walking with my kids at night.

a C

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The only exercise I can tolerate is swimming. I don't think it helps

the pain, but it definately helps with strength and that helps with

the exhaustion. My problem is motivation...since it doesnt' help the

pain, I have a hard time making myself get out of the house and DO

it. It's just one more activity that I have to take drugs to get me

through, I try because it is so good for me, and it also helps

sleep.

Hope you find something that will work for you!

> Hello all: I have a question about exercise. Our family joined a

> gym. I am determined to work out, but very slowly! I use only 10

to

> 15 pounds of weight. I do only bicycle and weight machines. I only

go

> 2 - 3 times per week. I've noticed a large increase in muscle pain,

> not unexpected. What I'm wondering is this: Have any of you tried

to

> tame the wolf with mild exercise? If so, did the wolf finally let

> go? Did your muscles ever acclimate? Any input would be

appreciated.

>

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Yes, really! Thinking of cutting all my long hair off... I already

look like crap, what's another good feature gone? Swim is good but

involved!

Deb

> > hey, it might help if you take a advil or something of that

nature

> before you begin your workout to reduce some of the muscle

> discomfort. personally, because of medication and swelling i don't

> see the benefits of exercise as quickly as i would like to, but i

do

> have more energy. so just hang in there and talk to your doctor

maybe

> they can give you a little something for the pain...shan

> > >

> > > From: " bunny42260 " <bunny42260@y...>

> > > Date: 2003/06/23 Mon PM 10:28:32 EDT

> > > To: LUPIES

> > > Subject: Exercise and Lupus

> > >

> > >

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a B, You will not believe this! I was just going to ask my niece to cut

off my hair yesterday but got sidetraked. It has gotten so that it hurts my

arms so bad to brush it and even put curlers in it. I feel real bad because I

love my hair and it's the only thing that makes me feel like I look nice when I

fix it. I am rethinking now. Maybe I will wait a week or so and see if I still

feel the same way?

a C

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Deb - I read your post and cried. Glad everybody is in bed cuz it

was a real gusher. I felt my hair was my only good feature. Weight

gain because of prednisone, facial lesions and scaring - - Then it

got so I couldn't hold my arms up long enough to use a curling iron

or even set in regular or hot rollers. For a couple years I let my

mother curl it for me. My hair is really fine so even with a perm it

doesn't hold a curl well. How can I expect my mother or anyone else

to set my hair for me all the time? So, it is now super short and

without perm. I find I'm avoiding looking at my face in the mirror.

Caught myself brushing my teeth with my eyes closed and realized I

always do that now. For me, cutting my hair was my best choice. I

have a few really nice wigs that look good when I wear them. You

wouldn't know I'm wearing a wig if you hadn't seen me without one.

But - I sure don't suggest going with a super short hair cut unless

you really want one. My sis wants her hair that short, and it looks

super good. Hugs - a B.

> > > hey, it might help if you take a advil or something of that

> nature

> > before you begin your workout to reduce some of the muscle

> > discomfort. personally, because of medication and swelling i

don't

> > see the benefits of exercise as quickly as i would like to, but i

> do

> > have more energy. so just hang in there and talk to your doctor

> maybe

> > they can give you a little something for the pain...shan

> > > >

> > > > From: " bunny42260 " <bunny42260@y...>

> > > > Date: 2003/06/23 Mon PM 10:28:32 EDT

> > > > To: LUPIES

> > > > Subject: Exercise and Lupus

> > > >

> > > >

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It really is the little things that get to us, isn't it? People take

for granted what they have, I guess we appreciate so much because we

have lost so much... maybe that is the lesson we were to learn.... I

am blessed that I don't have the skin lesions that so many Lupies

suffer from. I regard my flax seed oil and my vitamins as the reason

my skin has stayed as good as it has. I still get exhausted when I

have to be in the sun, though. Our pharmacy was selling lawn &

garden chairs and one chair had a canopy on it... we bought 2! Now I

can sit on the river bank and fish without a golf umbrella.... Only

doesn't work at high noon.

I don't really look good in supe short hair, my hair is fine but very

curly (lots & lots of spirals that I hated as a child, but envy now)

Only because it is almost black the bald spots shine...lol Just put

a picture of yourself that you like on your bathroom mirror and

remember you are still your own sweet self inside!

My sis also has very short hair and looks good on her, I'm 5'10 " and

short looks awkward.... sigh...

Hugs.......Deb

> > > > hey, it might help if you take a advil or something of that

> > nature

> > > before you begin your workout to reduce some of the muscle

> > > discomfort. personally, because of medication and swelling i

> don't

> > > see the benefits of exercise as quickly as i would like to, but

i

> > do

> > > have more energy. so just hang in there and talk to your doctor

> > maybe

> > > they can give you a little something for the pain...shan

> > > > >

> > > > > From: " bunny42260 " <bunny42260@y...>

> > > > > Date: 2003/06/23 Mon PM 10:28:32 EDT

> > > > > To: LUPIES

> > > > > Subject: Exercise and Lupus

> > > > >

> > > > >

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