Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 I totally understand the frustration in having a child who is probably apraxic and having him diagnosed as being PDD-NOS which is part of the autistic spectrum disorders. Often children with severe speech language impairments, especially those who are essentially nonverbal, can appear to look uunrelated and lacking in social interactions. If a practitioner does not spend enough time evaluating your child and asking you the right questions, it becomes too easy in this day and age to smack on the label of PDD and send you out the door with a " prescription " for ABA. Children with apraxia need intensive speech therapy that incorporates multisensory techniques with tactile cues, speech broken down into readily approximated elements, rhythm and melody, and often fun oral motor exercises. If misdiagnosed with PDD, precious time can be lost, however, it is not usually irrevocable, if you finally find an evaluator who puts you on the right track. What is also a problem, and why we wrote The Late Talker, is that apraxia may be a coexisting diagnosis with autism or other developmental disorders or syndromes. I look at a broader scope of apraxia than some of the clinicians/researchers in the field of communication disorders, because recognizing apraxic features can change the course of treatment and change a child's life around to meet success! ABA-discrete trials work beautifully for many children who may be on the autistic spectrum and others who are so unfocused that they cannot even sit in a chair and look at you. I see many children who have benefited greatly from ABA or ABA/VB. Verbal Behavior is an aspect of ABA that is employed in natural environments, but it is still ABA. Any child who has had a negative experience or has received ABA inappropriately has not had an individualized approach and/or not diagnosed properly as in Mel's case. I always advise parents, that if you are not seeing some improvement in your child in 3 months, there should be a reassessment of the plan, which may entail a team meeting with your therapists or an independent evaluation. Parents should not be complacent about the treatment their child is receiving. They need to work with the therapists and constantly question the methods if they are not working. As in the case of some of our children, a diagnosis of apraxia may have been missed. Sincerely, Marilyn Agin, MD Quote Link to comment Share on other sites More sharing options...
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