Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 >I have a question for those of you who have had stents put in. Has it helped at all with the pain and symptoms? Hi Shana. Everyone is different so you can't go by what works for some one else. I've had 2 stents for pancreas divisum. Both stents lasted a couple of days before severe pain returned. The first stent blocked up very quickly. The second stent drifted out of position & caused an ulcer in my gut. Of course you are frustrated being on narcotics, still having pain, not seeing any relief in sight. Do you live in Canada? Do you think your health plan is blocking your treatment options? Perhaps you should see another gastro doctor for another opinion. You may have to settle for a lifetime of pain & narcotics, but I agree that you would be foolish to do so without exploring other options. Good luck, Shana. jang --== Sent via Deja.com http://www.deja.com/ ==-- Before you buy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 Shana..yes, please let me know where you are from..is there any possibility of travel if you could find a wonderful doctor? I am in Los Angeles and have, after many attempts, found a wonderful one! He is head of the Pancreas department (can you believe it??!!) at UCLA and he. along with the pain management doctor he sent me to and the nutritionist, i finally feel almost human...I would be more than happy to have you stay with us if you want to come down and see him..you just let me know if it is something you would even consider...and good luck! Re: just venting Shana >I have a question for those of you who have had stents put in. Has it helped at all with the pain and symptoms? Hi Shana. Everyone is different so you can't go by what works for some one else. I've had 2 stents for pancreas divisum. Both stents lasted a couple of days before severe pain returned. The first stent blocked up very quickly. The second stent drifted out of position & caused an ulcer in my gut. Of course you are frustrated being on narcotics, still having pain, not seeing any relief in sight. Do you live in Canada? Do you think your health plan is blocking your treatment options? Perhaps you should see another gastro doctor for another opinion. You may have to settle for a lifetime of pain & narcotics, but I agree that you would be foolish to do so without exploring other options. Good luck, Shana. jang --== Sent via Deja.com http://www.deja.com/ ==-- Before you buy. PANCREATITIS SUPPORT NETWORK Online e-mail group To reply to this message hit " reply " or send an e-mail to: Pancreatitisegroups To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 In a message dated 9/19/2000 5:02:54 PM Eastern Daylight Time, jang2@... writes: << >I have a question for those of you who have had stents put in. Has it helped at all with the pain and symptoms? >> Absolutely not! Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/00 2:08:44 AM Eastern Daylight Time, acastenell@... writes: << << >I have a question for those of you who have had stents put in. Has it helped at all with the pain and symptoms? >> Absolutely not! Andre' >> Same here. In fact they have made me much worse. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/00 8:32:29 PM Eastern Daylight Time, sunflower6668@... writes: << -----------------------------------------------------------> The part that scares me about stents is what I am hearing here. I had my first ercp and my first stent. Wow. One for one. Does this mean that it was particularly bad? Or that this is my future? All I know is that I was only pain free as long as the stent was in. The minute they took it out I was right back to where I was. So I guess I would think long and hard Shana, if I were you. But what else can we do? That is the hardest question for me....... >> Dear , do you have pancreas divisum? Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/00 10:00:35 PM Eastern Daylight Time, sunflower6668@... writes: << Shirley, Not that I know of. I have to go for the consultation next week. Hopefully I will find out the answers to all of these questions that I have. Have any suggestions for questions for them? Be well, christine >> Ask them why they put a stent in and where did they put it. Have them draw you a picture. Ask them if they feel the problem is solved and is so why are you still in pain. Oh I wish I could help you more. Maybe Jang, Poncho, or Andre could help you more. Some people in this group are nurses and have medical knowledge. I will help you all I can. If only I knew something about what is going on with you. Let me know. BTW do you have diabetes? Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 The part that scares me about stents is what I am hearing here. I had my first ercp and my first stent. Wow. One for one. Does this mean that it was particularly bad? Or that this is my future? All I know is that I was only pain free as long as the stent was in. The minute they took it out I was right back to where I was. So I guess I would think long and hard Shana, if I were you. But what else can we do? That is the hardest question for me....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Shirley, Not that I know of. I have to go for the consultation next week. Hopefully I will find out the answers to all of these questions that I have. Have any suggestions for questions for them? Be well, christine Quote Link to comment Share on other sites More sharing options...
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