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Re: re:hearing

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Dear Angie Thanks for the encouraging words they meant alot to me, but I

really haven't done much lately to warrent such praise. I was reading a note

from arto and are you ok? he mentioned a trache and you and are you getting

a trache what's going on I'm worried about you and you know stress isn't

good for any of us so tell me what's happening with you please! Yes I was

the one that mentioned colchecine and I'd use it when I needed it for joint

pain on top of all the other meds. If I took more than a couple a day I had

abdominal pain and diarrhea. It was worht that because it really helped the

joint pain. I miss talking to you and I don't have a microphone like you

mentioned. I'll try and write more often but its so hard to find the time to

do the have to stuff muchless the want to stuff I know you know what I mean.

Still flaring but trying to get down on the pred anyway because it really

messes with my mind and I get so depressed and I'm already maxed out on the

antidepressant I take. Your in my prayers and I hope you are doing better

please let me know I really care and worry about you. love Sue P

Re: re:hearing

> From: AngieCATW1@...

>

> Oh Sue your life mattered, mattered to me. I am so oh so glad that

> misunderstanding got cleared up. you are such an important asset in my

life

> and an inspiration to me. not only are you libing with this rotten disease

> you have other worse problems to deal with. you are one very strong woman

to

> be admired for sure. Never underestimate your worth I wish we lived closer

so

> we could chat with each other. do you have a mircophone for your computer?

> there are free programs that would allow uis to actually voice chat.

> I hope you didn't go back to work too quickly so please take care of that

> knedid I tell you my new doic put me on colchicine? wasn't it you that

> mentioned it? I know all about the pred rebound effect. I can't get lower

> than 20 and that takes forever.

> Sue remember you are important to me and I love you, write me anytime and

> don't be surprised if you get a phone call from me. BTW what time zone are

> you in?

>

>

> Love and Gentle Hugs,

> Angie

> Yesterday will fade and tomorrow will take care of itself. Lord, help me

> give today my best shot

> http://www.geocities.com/acenneno_1999

> http://rpolychondritis.tripod.com/index.html

> http://members.tripod.com/~autoimmune

>

> ---------------------------

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Sue when I get another mic for my puter I will get two and send you one they

aren't expensive at all and we can talk to each other. I have to have a cat

scan done of the throat area the trachea is involved they just don't know how

extensive it i s yet. I choke on my own salava now. it is scaring the heck

out of my family. I am having a tough time with the hmo and the meds and no

stress is a real joke when you have an illness. every med they want me on we

have to fight like crazy for. Long story but several years ago we lost our

home cause my husband gambled away all our money and didn't pay the mortgage

he was a good one at hiding thigs from me. well I found out when they served

the eviction papers and eedless to say I hjad a MI from that little bit of

stress. It was a house that was in my family for years. my father grew up in

it and I practically did and my son lived there from when he was 7 mo old

till we moved when he was 14 it was a very hurtful thing. My DH retired and I

had no insurance so I had to go on SSI and they helped me get mdicaid and it

stinks they won't pay for anything without a battle that lasts for weeks. I

decided against getting a trach tube put in if it comes to that. I decided I

would be better off gone then but I don't see that happening anytime soon. I

am too nasty to die. oh I can be believe me. the pred makes us all crazy so

just use it as an excuse to be nasty I do! lol I am ok really and you are an

inspiration don't ever count yourself short. Love you my friend. I t is such

a shame that it took this disease to get to know you. I think we could have

become friends any way we met.

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

give today my best shot

http://www.geocities.com/acenneno_1999

http://rpolychondritis.tripod.com/index.html

http://members.tripod.com/~autoimmune

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Angie, what a wonderful person you are. Here's praying you get help real

soon. I know how frightening it can be for your family. Hang in there,

you've come too far and you will get better. God will see to that.

Love you and sure miss you when you aren't on. Take care and get yourself

better.

Love and God Bless,

Jo

Re: re:hearing

>From: AngieCATW1@...

>

>Sue when I get another mic for my puter I will get two and send you one

they

>aren't expensive at all and we can talk to each other. I have to have a cat

>scan done of the throat area the trachea is involved they just don't know

how

>extensive it i s yet. I choke on my own salava now. it is scaring the heck

>out of my family. I am having a tough time with the hmo and the meds and no

>stress is a real joke when you have an illness. every med they want me on

we

>have to fight like crazy for. Long story but several years ago we lost our

>home cause my husband gambled away all our money and didn't pay the

mortgage

>he was a good one at hiding thigs from me. well I found out when they

served

>the eviction papers and eedless to say I hjad a MI from that little bit of

>stress. It was a house that was in my family for years. my father grew up

in

>it and I practically did and my son lived there from when he was 7 mo old

>till we moved when he was 14 it was a very hurtful thing. My DH retired and

I

>had no insurance so I had to go on SSI and they helped me get mdicaid and

it

>stinks they won't pay for anything without a battle that lasts for weeks. I

>decided against getting a trach tube put in if it comes to that. I decided

I

>would be better off gone then but I don't see that happening anytime soon.

I

>am too nasty to die. oh I can be believe me. the pred makes us all crazy so

>just use it as an excuse to be nasty I do! lol I am ok really and you are

an

>inspiration don't ever count yourself short. Love you my friend. I t is

such

>a shame that it took this disease to get to know you. I think we could have

>become friends any way we met.

>

>

>

>Love and Gentle Hugs,

>Angie

>Yesterday will fade and tomorrow will take care of itself. Lord, help me

>give today my best shot

>http://www.geocities.com/acenneno_1999

>http://rpolychondritis.tripod.com/index.html

>http://members.tripod.com/~autoimmune

>

>---------------------------

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In a message dated 01/17/2000 1:23:47 PM Central Standard Time,

Idigflower@... writes:

<< Angie, what a wonderful person you are. >>

She Sure Is!!!!!! >>

Hey I will 3rd that statement right now : ) Angie, you are a wonderful

person:):):)

Lu

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