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In a message dated 6/23/99 7:18:58 PM Central Daylight Time,

suebirney@... writes:

<<

Kathie I have a recipe for low carb ketchup if your interested.Sue

>>

I would like to have the low carb ketchup recipe also if you don't mind.

Theresa

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  • 2 weeks later...
Guest guest

The archies is where you call read what has been posted to the group

--- PattiPH@... wrote:

> From: PattiPH@...

>

> Is there a place to go and read messages sent before

> I joined the loop?

> I hate to think I've missed out on some great

> information!

>

> Patti

>

> ---------------------------

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Guest guest

> From: MPost10271@...

>

> Am wondering if any of you who have been so successful on the atkins diet

> snack between meals? am just curious.....maryanne

I have very seldom snacked between meals. I still find it hard to believe

that I have lost my hunger pains! If I do need something here is what I

have had so far , I am still new to the WOE and trying to increase my food

choices: fresh fried pork skins, 1/4 cup macadamia nuts, Slim Jim, boiled

egg or a little cheese.

Lyndia

Alabama

Atkins Way of Life since 6/14/99

" Only cat lovers know the luxury of fur coated, musical hot water bottles

that never go cold "

meet my family at http://www.geocities.com/Heartland/Park/8396/

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  • 1 month later...

>

>

> Hi,

>

> Could anyone please inform me how can I access the archives via member

> center?. I guess I'm doing something wrong.

>

> Thanks in advance.

When you are in your member center, click on graves_support under groups

you are subscribed to. There should be a View archives. Click on that, it

will take you to the current digest and will have a Archive index. Click

on that and it will give you the listing of the past indexes. Click on any

of those to get that days digest. There is one for each day the list has

been up.

C

" Never doubt that a small group of thoughtful concerned citizens can

change the world. Indeed, it is the only thing that ever has "

Margaret Mead

http://www.uidaho.edu/~bjcraw/

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thankyou so much Bonnie Jean.

I had already done this that way, but after getting in the member center

" account manager " page, when I click on graves' list to display posted

messages I cannot get them, and a cookie error page appears. I don't know

why this happens as I've the cookie warning turned off in my browser, to

accept them when I go there.

Well, anyway!...

Thanks again.

>

>Reply-To: graves_supportonelist

>To: graves_supportonelist

>Subject: Re: question

>Date: Thu, 12 Aug 1999 08:29:03 -0700 (PDT)

>

>

>

>

>

>

>

> >

> >

> > Hi,

> >

> > Could anyone please inform me how can I access the archives via member

> > center?. I guess I'm doing something wrong.

> >

> > Thanks in advance.

>

>When you are in your member center, click on graves_support under groups

>you are subscribed to. There should be a View archives. Click on that, it

>will take you to the current digest and will have a Archive index. Click

>on that and it will give you the listing of the past indexes. Click on any

>of those to get that days digest. There is one for each day the list has

>been up.

>

>C

> " Never doubt that a small group of thoughtful concerned citizens can

> change the world. Indeed, it is the only thing that ever has "

> Margaret Mead

>http://www.uidaho.edu/~bjcraw/

>

>

>

>---------------------------

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  • 8 months later...
Guest guest

Hi Laurie,

I'm not sure what your asking with that question about how many get

disability...I have read of several that have gotten it, others have just

never applied, and from what I have read, it has just recently (last couple

of years I think) been an accepted diagnosis for being able to collect

disability on a temporary basis.

You will have to talk with your dr. or endocrinologist also, as they will be

the ones who will fill out the paperwork.

How are you feeling and how are you holding up? I hope all the reading

isn't overwhelming you and that you are keeping pad and pen handy to write

down questions to take to your dr. and to throw out on the board here.

Take care,

Jody

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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Jody Spitale wrote:Hi Laurie,I'm not sure what your asking with that question

about how many get disability...I have

read of several that have gotten it, others

Im just asking because not having insurance - trying to figure a way to be able

to pay my bills if I can't work.

Laurie

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Guest guest

Laurie,

Are you on any treatment at all yet?

If not you really need to see your endocrinologist as soon as possible, and

I would talk to your GP or the endo this week about going on disability on a

temporary basis until you have things better under control...the drs. are

the ones who have to do the paper work, but in my daughters case she had to

pick up the papers from her employer (her disability is due to complications

of pregnancy)...

I had thought earlier you had said you had not started on any treatment form

as of yet...the reason I suggest the disability is because I *believe* but

can't say for sure, that once you qualifiy for disability/SSI that you will

also beable to get some form of medical aid since you are uninsured. You

also had something about when you call the drs. office they refer to you as

" the one without insurance " which to me is certainly not acceptable behavior

and attitude for them, but you do need treatment. Graves can not go

untreated, it only gets worse.

Also, see if they have some form of medical aid for you through your

hospital...here they have something I believe it is called Hilburton or

something close to it...most people thought it was only for hospitalization

relief, but a friends daughter was able to use that for some outpatient

treatment.

The other thing you can do is call your local social security office, and

ask to speak with someone regarding SSI...tell them what is going on, that

you have no insurance and see if they can tell you the procedure you will

need to follow, and they may beable to point you in other directions...

If your employer is as you say, then I don't think it would be a good idea

to bring up disability to them before speaking with your doctor. They may

try to terminate you before you could get disability. Sounds like a

thankless place to work when they treat you that way. I am so sorry you

have to deal with that ontop of learning to deal with GD too.

Jody

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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Shen wrote:employer who will be flexible with you until you feel better.

Well, I am the only one who does my job. They do not understand or care. They

are angry that I missed work Friday.

The first day in five years.

Laurie

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Guest guest

Laurie:

Are you feeling like you cannot work at all? My experience was that I was

too distracted, aggressive and emotionally unstable to do very much work

for the couple of months prior to diagnosis. Once I was on the meds, I

began to be able to handle more and more work, although I will never be

able to pull 36 hours straight again.

I know that initially I was very afraid that I would not be able to make a

living. I remember someone in this group had a quote on her email to the

effect that when we lose confidence in our bodies, we lose confidence in

ourselves. I found a lot of my fear dissipated after the meds started to

kick in, and I began to come to terms with Grave's.

You may want to re-assess your work situation after giving your meds a

couple of weeks to work. I also hope that you have an understanding

employer who will be flexible with you until you feel better. I found

that once I explained my condition, most people were very understanding and

accommodating.

A friend of mine has Hashimoto's and could not manage to get to work on

time or do any productive work for quite some time. It turned out his

boss also had Hashimoto's, so when he was finally diagnosed, they were very

understanding.

Good luck.

At 10:37 AM 04/30/2000 -0700, you wrote:

>Jody Spitale wrote:Hi Laurie,I'm not sure what your asking with that

question about how many get disability...I have

>read of several that have gotten it, others

>

>Im just asking because not having insurance - trying to figure a way to be

able to pay my bills if I can't work.

>

>Laurie

>

>

>------------------------------------------------------------------------

>Was the salesman clueless? Productopia has the answers.

>http://click./1/3019/3/_/585824/_/957116532/

>------------------------------------------------------------------------

>

>-------------------------------------

>The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

>Please consult your doctor before changing or trying new treatments.

>----------------------------------------

>

>

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Guest guest

Well, I didn't and I'm mad <smile>. Actually, I quit working in 1992

because I was just too frazzled trying to work and keep rage under control

and wasn't really sure what all was happening to me. I should have sought

counseling and attempted to go for disability then, but disability wasn't a

cut and dried item where thyroid was concerned. It was never suggested by

my doctors at the time. I think my office thought I was falling apart after

being widowed which also entered into my problems I am sure. I am not

certain that it is cut and dried now, although I read about a year ago that

it was considered a disability. I haven't followed up on it because it no

longer would be applicable to me. If you are considering a claim, talk to

someone (attorney) who does social security work since most disability

insurers require that the two payments be combined and will force the

claimant to seek social security disability as well. The law firm I worked

with had such a disability insurance policy. A friend who had lupus was

eventually required to seek social security and the two payments match 60%

of her salary at the time she was disabled. I assume they have built-in

COLAs but have lost contact with her and can't confirm that.

Elaine

Question

>

> Hi all,

>

> I have been doing lot's of reading about Graves.

>

> How many people get disability from graves?

>

> Laurie

>

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Guest guest

Well, I didn't and I'm mad <smile>. Actually, I quit working in 1992

because I was just too frazzled trying to work and keep rage under control

and wasn't really sure what all was happening to me. I should have sought

counseling and attempted to go for disability then, but disability wasn't a

cut and dried item where thyroid was concerned. It was never suggested by

my doctors at the time. I think my office thought I was falling apart after

being widowed which also entered into my problems I am sure. I am not

certain that it is cut and dried now, although I read about a year ago that

it was considered a disability. I haven't followed up on it because it no

longer would be applicable to me. If you are considering a claim, talk to

someone (attorney) who does social security work since most disability

insurers require that the two payments be combined and will force the

claimant to seek social security disability as well. The law firm I worked

with had such a disability insurance policy. A friend who had lupus was

eventually required to seek social security and the two payments match 60%

of her salary at the time she was disabled. I assume they have built-in

COLAs but have lost contact with her and can't confirm that.

Elaine

Question

>

> Hi all,

>

> I have been doing lot's of reading about Graves.

>

> How many people get disability from graves?

>

> Laurie

>

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Guest guest

Laurie,

I am in the same situation as you at work. My boss gets very angry when I

miss work. And he could care less what was wrong with me. I do have health

insurance though, thank goodness.

I have been crying so much at work that a psychiatrist there has been

chasing me around trying to give me samples of Prozac. I am either crying

or having a fit of rage every day. I have not been able to function at all.

My endocrinolgist keeps writing me a note to take off of work for 2 weeks.

And I am like, yea, right. When hell freezes over. Also, my

endocrinolgist has told me that none of these rages or crying have anything

to do with Graves. I never had them before!!!

e

Re: Question

> Shen wrote:employer who will be flexible with you until you feel

better.

>

> Well, I am the only one who does my job. They do not understand or care.

They are angry that I missed work Friday.

> The first day in five years.

>

> Laurie

>

>

> ------------------------------------------------------------------------

> Accurate impartial advice on everything from laptops to table saws.

> http://click./1/3020/3/_/585824/_/957117771/

> ------------------------------------------------------------------------

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

>

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Guest guest

>e

>Your doctor claims the rages and crying have nothing to do with Graves, then I

>think we should take our own little survey here! Because I certainly had them,

>

>reminded me of a child having a temper tanturm, and no doctor will tell me it

>is a female thing either. Because mine only happened with GD!

>There were times I contemplated suicide, but stopped myself I didn't have the

>nerve. When I was 20 my boyfriend committed suicide and I saw how it effected

>the people around me. There were even times I just wanted to get on a bus and

>run, thinking that would make the feelings I felt go away, or I could run away

>from them. The thing is at the time the doctor was giving me SYNTHROID FOR

>HYPOTHYROIDISM, and blood tests showed I was hyper!!! I was so hot all the

>time, I'd take lukewarm showers to help me cool down 3 times a day, or I'd be

>in the pool in the summer. Let those doctors walk in our shoes for a month, if

>they think it has nothing to do with GD. I bet they'd find a different way to

>treat it real fast!!! Sorry, but that just makes me mad!

>Debbie R.

----------

>

>To: <graves_supportegroups>

>Subject: Re: Question

>Date: Sun, Apr 30, 2000, 3:32 PM

>

> Laurie,

>

> I am in the same situation as you at work. My boss gets very angry when I

> miss work. And he could care less what was wrong with me. I do have health

> insurance though, thank goodness.

>

> I have been crying so much at work that a psychiatrist there has been

> chasing me around trying to give me samples of Prozac. I am either crying

> or having a fit of rage every day. I have not been able to function at all.

> My endocrinolgist keeps writing me a note to take off of work for 2 weeks.

> And I am like, yea, right. When hell freezes over. Also, my

> endocrinolgist has told me that none of these rages or crying have anything

> to do with Graves. I never had them before!!!

>

> e

>

> Re: Question

>

>

>> Shen wrote:employer who will be flexible with you until you feel

> better.

>>

>> Well, I am the only one who does my job. They do not understand or care.

> They are angry that I missed work Friday.

>> The first day in five years.

>>

>> Laurie

>>

>>

>> ------------------------------------------------------------------------

>> Accurate impartial advice on everything from laptops to table saws.

>> http://click./1/3020/3/_/585824/_/957117771/

>> ------------------------------------------------------------------------

>>

>> -------------------------------------

>> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

>> Please consult your doctor before changing or trying new treatments.

>> ----------------------------------------

>>

>>

>>

>

>

> ------------------------------------------------------------------------

> Accurate impartial advice on everything from laptops to table saws.

> http://click./1/3020/3/_/585824/_/957126671/

> ------------------------------------------------------------------------

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

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  • 4 months later...

The most relief I've gotten is maybe one or two days in a row then a breakout

..

It's funny too that I've noticed I start breaking out more sverely starting

in aug gets very bad by jan. ,I keep breaking out severely till around april

then I come down a bit .does that happen to anyone else?

Patty

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<<<<I have aquestion which might sound alittle stupid,but I've only been in the

list for a short timeand from reading what everyone writes it sounds like

they don't breakout everyday...please tell me this isn't that rare because I

breakout everyday. >>>>

Patty,

Before I found real relief (from meds and diet), I broke out EVERY DAY, without

fail. I even tried going without meds because I

felt that they weren't making a difference. Actually, they were, but the

continuous break-outs were so depressing - with or without

them! I now take take my medication (Allegra 180) everyday, religiously,

whether I am hiving or not. I'm pleased to say, that the

combination of meds and watching what I eat, has made my break-outs a lot less

often, and a lot less severe.

~~Barbara

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  • 2 months later...

> I believe this question is for T., but if anyone else has info let

> me know!! , is it you who went to the University of Michigan's

> Childrens Hospital before going to Iowa? Let me know. :)

>

> Joy

Joy,

It was me, Holly (and of course )! In fact we will be returning there

sometime in 2 months for a check up with Dr. Farley now that I saw her in Iowa

during our last visit a week ago and Dr. Ponseti gave me the big " OK " to go

there.

>

>

> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

>

>

>

>

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>It was me, Holly (and of course )! In fact

> we will be returning there sometime in 2

> months for a check up with Dr. Farley now

> that I saw her in Iowa during our last visit a

> week ago and Dr. Ponseti gave me the big

> " OK " to go there.

Holly,

I knew it was you, but for some reason, I was thinking , I guess!

:) The reason I was asking is because I have a parent writing to me.

She went to see Dr. Noonan who said he didn't think the method would be

successful, and she now has an appointment at the U of M on the 20th. I

don't believe the appointment is with Dr. Farley (I think she said " he "

was the head of the department or something to that effect), though.

Would you mind if I gave her your address? I'm thinking she might live

fairly close to you (though I'm not entirely sure), and would appreciate

the support. ;)

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

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  • 2 months later...
Guest guest

Hi Jody

I'm off to the GP tomorrow and the ob/gyn on Monday. The appointment

with the endo is on the 16th . So, if my bloods

are out I'll call him. I'm still feeling off. Tired, achy, hair falling

out and sore limbs. I hope it gets better

soon.

Cheers

Caroline

Jody Spitale wrote:

> Caroline,

> If I were you, I would call both my ob/gyn and my endo now. Maybe you just

> have a bug, but you have come so far in this pregnancy, I wouldn't take any

> chances. Have your bp checked soon too!

> Jody

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

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Guest guest

HI Elaine

Thanks. I did have very low calcium level post operative. I have not been able

to take the calcium supplement in the

mornings (makes me feel really sick) so I'm taking 2 at night.

I will ask the GP for calcium level as well as T4, T3 and TSH. - Going tomorrow.

Cheers

Caroline

daisyelaine@... wrote:

> Hi Caroline,

> why don't you also ask for an ionized calcium level and a magnesium level.

> I'm researching hypoparathyroidism and several articles mention that it and

> of course hypocalcemia (low serum calcium) usually occurs 4-18 months after

> surgery.

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

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  • 1 year later...
Guest guest

Hi Lucy,

Sorry I'm so late answering your post, been a bad week at work, I've

hardly been on the 'net for days....

The Cellquest site says

" Polyphenols, or Tannin Complexes, are chemicals that have been used

for thousands of years to precipitate proteins in processes such as

tanning leather and clarifying beer "

" CellQuest is a patented product derived from a naturally occurring

polyphenol liquid extracted from the plantain / banana tree. The

product has been tested and shown to be safe and effective against

cells in laboratory mice. "

" The primary possible reaction pathway for CellQuest is very simple:

the polyphenol, or tannin complex, de-polymerizes the PSA and then

binds with the N-Acetylneuraminic Acid. This reaction " strips

away "

the coating from the cells, thereby exposing it to all of the immune

system's abilities to destroy cells "

So after reading this I went to PUBMED to do a search on " tannin

cancer " to see what papers had been published.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search & DB=PubMed

This brought up about 168 articles - HOWEVER only a few of them were

about tannins specifically directed against colon cancer (total of 4

abstracts in the last 10 years, which isn't a lot if it's a " hot "

research topic). About the only recent abstract on this I saw was

*********************************************************************

Nutr Cancer 2001;39(1):108-16

PMID: 11588891

Plant tannins inhibit the induction of aberrant crypt foci and

colonic tumors by 1,2-dimethylhydrazine in mice.

We have shown that naturally occurring tannins possess antitumor

promotion activity in mouse skin. In the present investigation, we

studied the ability of a hydrolyzable tannin, gallotannin (GT), and a

condensed tannin extracted from red alder (RA) bark to inhibit 1,2-

dimethylhydrazine (DMH)-induced colonic aberrant crypt foci (ACF) and

tumors in Balb/c mice. In addition, we determined the ability of GT

to inhibit the proliferation and to induce apoptosis in a human colon

cancer cell line (T-84). Mice were given tannins by intraperitoneal

injections, by gavage, or in drinking water before treatment with DMH

for 24 weeks. Alternatively, mice were given tannins by

intraperitoneal injection or gavage for only 2 weeks before DMH

administration, then tannin administration was discontinued and mice

were treated with DMH for 24 weeks. The multiplicity, size, and

distribution of ACF and tumors were significantly inhibited by GT and

RA in the above treatment regimens. The most effective treatments

included GT by gavage, RA bark extract by intraperitoneal injection,

and either tannin dissolved in drinking water. Extent of inhibition

of ACF and tumors was gender independent. In cell culture

experiments, GT treatment for three days inhibited the growth of T-84

cells, with a concentration resulting in half-maximal inhibition

estimated to be 20 micrograms/ml. The treatment was not cytotoxic to

cells at 1-40 micrograms/ml. Interestingly, at 10 micrograms/ml, GT

induced apoptosis in T-84 cells as determined by the Hoechst DNA

staining technique. Collectively, these findings support a potential

role for tannins as chemopreventive agents against colon cancer.

**********************************************************************

MY INTERPRETATION: They gave mice a chemical (1,2-dimethylhydrazine)

which causes colon cancer. They put a hydrolyzable tannin GT in the

drinking water (other methods of administration appeared to work as

well). Note the Cellquest site says " the hydrolyzable, polyphenols,

or hydrolyzable tannins, are the ones considered the most important

concerning physiological action " .

The results were

" The multiplicity, size, and distribution of ACF and tumors were

significantly inhibited by GT and RA in the above treatment regimens. "

" Collectively, these findings support a potential role for tannins as

chemopreventive agents against colon cancer. "

So I guess that particular experiment was a success.

Most research seems to be with regard to melanoma, primary liver

cancer, oral squamous cell carcinoma, salivary gland tumor cell

cancer, leukemia, etc. There was one very interesting abstract you

might find it worthwhile to go to the library and get the full

article on if you are interested in this. Seems to be kind of a

mixed bag here.....

**********************************************************************

PMID: 9759559

Crit Rev Food Sci Nutr 1998 Aug;38(6):421-64

Tannins and human health: a review.

Chung KT, Wong TY, Wei CI, Huang YW, Lin Y.

Department of Microbiology and Molecular Cell Sciences, University of

Memphis, TN 38152, USA.

Tannins (commonly referred to as tannic acid) are water-soluble

polyphenols that are present in many plant foods. They have been

reported to be responsible for decreases in feed intake, growth rate,

feed efficiency, net metabolizable energy, and protein digestibility

in experimental animals. Therefore, foods rich in tannins are

considered to be of low nutritional value. However, recent findings

indicate that the major effect of tannins was not due to their

inhibition on food consumption or digestion but rather the decreased

efficiency in converting the absorbed nutrients to new body

substances. Incidences of certain cancers, such as esophageal cancer,

have been reported to be related to consumption of tannins-rich foods

such as betel nuts and herbal teas, suggesting that tannins might be

carcinogenic. However, other reports indicated that the carcinogenic

activity of tannins might be related to components associated with

tannins rather than tannins themselves. Interestingly, many reports

indicated negative association between tea consumption and incidences

of cancers. Tea polyphenols and many tannin components were suggested

to be anticarcinogenic. Many tannin molecules have also been shown to

reduce the mutagenic activity of a number of mutagens. Many

carcinogens and/or mutagens produce oxygen-free radicals for

interaction with cellular macromolecules. The anticarcinogenic and

antimutagenic potentials of tannins may be related to their

antioxidative property, which is important in protecting cellular

oxidative damage, including lipid peroxidation. The generation of

superoxide radicals was reported to be inhibited by tannins and

related compounds. The antimicrobial activities of tannins are well

documented. The growth of many fungi, yeasts, bacteria, and viruses

was inhibited by tannins. We have also found that tannic acid and

propyl gallate, but not gallic acid, were inhibitory to foodborne

bacteria, aquatic bacteria, and off-flavor-producing microorganisms.

Their antimicrobial properties seemed to be associated with the

hydrolysis of ester linkage between gallic acid and polyols

hydrolyzed after ripening of many edible fruits. Tannins in these

fruits thus serve as a natural defense mechanism against microbial

infections. The antimicrobial property of tannic acid can also be

used in food processing to increase the shelf-life of certain foods,

such as catfish fillets. Tannins have also been reported to exert

other physiological effects, such as to accelerate blood clotting,

reduce blood pressure, decrease the serum lipid level, produce liver

necrosis, and modulate immunoresponses. The dosage and kind of

tannins are critical to these effects. The aim of this review is to

summarize and analyze the vast and sometimes conflicting literature

on tannins and to provide as accurately as possible the needed

information for assessment of the overall effects of tannins on human

health.

**********************************************************************

Abstract says " Tannins have also been reported to exert

other physiological effects, such as to accelerate blood clotting,

reduce blood pressure, decrease the serum lipid level, produce liver

necrosis, and modulate immunoresponses. "

Of that list, main negatives might be the " produce liver necrosis "

(definition " necrosis " : Death of cells or tissues through injury or

disease, especially in a localized area of the body) and " accelerate

blood clotting " . My guess is in practice it PROBABLY doesn't affect

that much (? - I don't really know).

So I guess its possible this could help, but it doesn't seem to be as

researched as many " alt meds " .

Best Wishes,

> Has anyone heard off, or tried a drink called Cell Quest?????? It

is

> suppose to maintain a good immune system and normal cells? I have

a friend

> who's mom has cancer and she take this and it has helped her? If

you are

> interested the website is called www.cellquest.com, please let me

know what

> you think about?

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  • 10 months later...

Hi Kaye,

It is " better " to have recurrence in the liver as far out from time

of diagnosis as possible...according to a paper by some surgeons at

Sloan Kettering

[snip]

In our recent analysis of 456 consecutive liver resections, the

following factors were associated with poor prognosis: (1) size of

liver tumors greater than 5 cm; (2) disease-free interval between

colon and liver disease of less than 12 months; (3) number of liver

tumors greater than one; (4) lymph-node-positive primary tumor; and

(5) preoperative CEA level of greater than 200 ng/ml.

http://www.cancer.org/docroot/pub/content/pub_3_8x_surgical_therapy_of

_hepatic_colorectal_metastasis.asp

(COPY link into browser as Yahoo splits long links!)

I think the reason is that if something shows up in the liver over a

year after resection of the primary, there is a good chance that a

stray cell or two escaped but that's ALL! In general, the longer you

go without recurrence, the less likely recurrence will happen. If

your get a " minor " recurrence of a solitary liver met " a long time "

after dx, chances are " better " that that's ALL there is (or it would

have already shown up!)

On the other hand, if there are liver mets at or near the time of CC

diagnosis, the chances are higher that there is more disease existing

but too small to be seen which will result in a recurrence later when

the hidden cells are given time to grow.

<<still finding nothing new>>

Nothing is good!!!

<< how are you doing>>

Thanks for asking...I've been a bit under the weather here (in

several ways lol!) Thurs. night I started feeling a bit ill, my

daughter has had a nasty virus for over a week now & I finally got it

too. Today is the first time in 3 days I have felt well enough to

leave the house...well come to think of it, first time in 3 days I

have been able to get out of bed for more than a few hours at a time

lol. Much better now, fevers are finally down but I'm still tired.

Sure hope this has run its course, think I've had more than enough ;o)

Best,

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  • 5 months later...
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Jeanna, who goes with you to appointments, etc? Have them write down questions & ask the doctor if you forget. Why do you have to anticipate being sick for a month after surgery? What can you take? There are some very effective antinausea meds now; even preventing vomiting when you first wake up. My son Brad has had general anesthesia 10 or 12 times. The first few times he was violently sick when he woke up. Then we moved to , Indiana & I told the anesthesiologist about it. Brad has had several more surgeries (ears, broken arm) and never been sick. I think Zofran is what they give him. We also give it to our pregnant moms when nothing else helps. If all else fails, who do you know that can get you some weed? Rose

Question

Good morning, I think, I have a question???? Do any of you know if they have come out with any definitive tests on cerebrospinal fluid or MRI that can help them in determing the difference between MS or NS. They are supposed to set me up with a neurologist while I am in the hospital or do I need another doctor with the neurosurgeon. Oh yeah did I mention I also have gall stones. I know they aren't going to mess with them right now but I will have to have them taken care of later on. You would think I have never had surgery before as anxious as I am. I think because this time is the first time the neurosurgeon has told me I was really going to be sick for about a month, I feel like I have already been sick enough so what does he mean by I am really going to be sick, oh yea so I get to be sicker than usual with my stomach, nausea blah blah blah. Any one out there with info on the tests I mentioned please let me know and what the levels should or should not be. I hope everyone is feeling great today and can have a really enjoyable day. Your friendly Texan Jeanna ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

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