Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 In a message dated 9/2/00 9:55:29 AM Eastern Daylight Time, acastenell@... writes: << As a smoker I find that it relieves attacks before they get full blown. >> I am but I find that it doesn't help me at all, even more I think it hurts. Just shows again the differences for each patient. Poncho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 In a message dated 9/2/00 8:55:44 AM Central Daylight Time, acastenell@... writes: << Just curious since it's never been brought up. We always speak about drinking and pancreatitis (I don't and never have drank alcohol in my life) but never mentioned anything else (vise-wise) like smoking. Andre' >> andre - i don't smoke but two of my sisters do. i DO know that the nicotine does something to your blood vessels, so maybe it opens them up more, that might somehow help?? debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 In a message dated 9/2/2000 11:14:57 AM Eastern Daylight Time, poncho9191@... writes: << I am but I find that it doesn't help me at all, even more I think it hurts. Just shows again the differences for each patient. >> Funny, but my doctor agrees with you and seems to think that it isn't helpful to my condition. I don't care, if it helps alleviate my pain when I am undergoing an attack, I will use it. Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 In a message dated 9/2/2000 11:23:46 AM Eastern Daylight Time, jang2@... writes: << I can;t see why nicotine would be helpful except for a relaxation effect. Nicotine causes constriction & spasm of blood vessels, so I'd expect it to make things worse. >> Jang, You're not a Puritan; just someone who was smart enough to quit 30 yrs ago. Hopefully, I will join the ranks soon, but only if it doesn't result in my Pancreatic attacks being more severe or more frequent. Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 In a message dated 9/2/2000 12:00:38 PM Eastern Daylight Time, djssekis@... writes: << andre - i don't smoke but two of my sisters do. i DO know that the nicotine does something to your blood vessels, so maybe it opens them up more, that might somehow help?? >> Debbie, Who knows, it sounds logical to me. Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 In a message dated 9/2/00 9:55:42 AM Eastern Daylight Time, acastenell@... writes: << I know smoking is bad for your health, but it does seem to help me get through my crises periods better. >> Hi Andre, I read an article that stated many times that smoking can increase the chances of getting cancer of the pancreas. With our pancreas illness smoking is a no, no. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 -- >I was just curious as to how many in our group smoke (Cigars, cigarettes, pipe ....). As a smoker I find that it relieves attacks before they get full blown. >Does any one else find this to be true? I know smoking is bad for your health, but it does seem to help me get through my crises periods better. >Andre' Andre`, I was a heavy samoker (2-4 packs/day of unfiltered Camels), quit 30 years ago. I can;t see why nicotine would be helpful except for a relaxation effect. Nicotine causes constriction & spasm of blood vessels, so I'd expect it to make things worse. jang (the ol' Puritan) --== Sent via Deja.com http://www.deja.com/ ==-- Before you buy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Andre' I have a friend that has this disease and smokes. He says it really helps his nausea. Diane _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/2/00 6:55:41 AM Pacific Daylight Time, acastenell@... writes: << Does any one else find this to be true? I know smoking is bad for your health, but it does seem to help me get through my crises periods better. By the way, started smoking prior to my knowing about my Pancreatitis. Also, I am not condoning smoking to anyone. It may or may not work for me but it is still a bad, filthy habit that one day will mean the end of me (if my pancreas doesn't do me in first). Just curious since it's never been brought up. We always speak about drinking and Pancreatitis (I don't and never have drank alcohol in my life) but never mentioned anything else (vise-wise) like smoking. Andre' >> Hi Andre', I think that all of health care would say that smoking affects everything. My feeling on the issue is that our lives have been so catastrophically altered, the quality of life we have is so minimal, that I say that if there is anything that helps make the long minutes of a day less painful, then I would not condemn anyone who smokes. I don't think many of you remember Fred (Nufrius). He is still a member, but is too ill to participate. He admits to drinking too much and smoking too much. He now not only has Pancreatitis, but Lung Cancer and a trach. God bless him. I too a lot of harmful things, sometimes, regarding my diet, or activities, but that is the choice I make. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/2/00 8:00:07 AM Pacific Daylight Time, acastenell@... writes: << I promise to never smoke while online to the group :-) >> That's great! Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 09/02/2000 9:55:28 AM Eastern Daylight Time, acastenell@... writes: << I was just curious as to how many in our group smoke >> Hi Andre', Guilty as charged!!!! However, before I got ill last year with an attack of pancreatits I was a smoker and had been for years. When I woke up from the coma, I didn't really even know who I was let alone that I was a smoker. LOL I went for 10 months without a cig and then stress led me back to it. Not to mention that my hubby and his son (who lives with us) are big time smokers. I am so disgusted with myself over it though. Everybody said " you had it easy, you went through the withdrawals during your coma " NOT TRUE---Since I don't remember the withdrawals, they came later. So instead of quitting getting easier it actually got harder for me as time went on. My friend Janet said that she was glad that I started again, she knows it is bad for us but she said that I was so stressed out over trying to quit that she was afraid I was going to stroke out!!! Too funny :-) I think that I can quit again-after all, we are pancreatitis survivors------WE CAN DO ANYTHING!!!!! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/2/2000 3:11:58 PM Eastern Daylight Time, shirlf3542@... writes: << Hi Andre, I read an article that stated many times that smoking can increase the chances of getting cancer of the pancreas. With our pancreas illness smoking is a no, no. >> Shirley, You know, as it stands now, I don't know if I will even mind if/when I develop Pancreatic Cancer. Sometimes death doesn't seem too bad an alternative. Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/2/2000 9:42:48 PM Eastern Daylight Time, Helen4@... writes: << BUT, they weren't successful until they themselves really wanted to quit for themself, and not for any other reason. Then, they just did it - one by one. So, when it's time for you, I'm sure you'll do it >> Helen, Thanks for not being condescending or offering false of phony words of encouragement. Only a smoker knows how irritating it can get when people who have never smoked a day in there lives start telling you why you need to quit and how easy it should be. If only I didn't enjoy smoking so damned much! That's been my biggest downfall over the years and has been responsible for my continuing to indulge after all of these years. I have managed to keep my daily intake down to a pack a day (2 packs if I am up all night) and can go long stretches between smokes. When working, I never stop for breaks and have gone over 14 hours before lighting up! Therefore, I am fairly confident that, when I am ready, I will be able to give them up without much difficulty. At least, that's what I'm counting on :-) I promise to drop the smoking thing now. This is a Pancreas Support Group; not a smoking cessation seminar. I'll just need to find another egroup for this :-) Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/2/2000 9:53:46 PM Eastern Daylight Time, dhollis062@... writes: << I have a friend that has this disease and smokes. He says it really helps his nausea. >> Thanks Diane, that helps somewhat, since I too find that ti does help, up to a certain point. I find that if I am about to vomit, lighting a cigarette will not help; however, it does seem to make you vomit a lot faster, if that is your intention to get it over with as quickly as possible. I still fight it with all my might and refuse to give in to the vomit urge until the last possible minute. I've been lucky thus far. I haven't come across a locked bathroom when I've needed one :-) Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/3/2000 10:41:15 AM Eastern Daylight Time, KarynWms@... writes: << I think that all of health care would say that smoking affects everything. My feeling on the issue is that our lives have been so catastrophically altered, the quality of life we have is so minimal, that I say that if there is anything that helps make the long minutes of a day less painful, then I would not condemn anyone who smokes. >> Karyn, That has always been the rationale I've used whenever approached concerning the subject of my smoking and my health. I've been deprived of every " enjoyable " social function (not that smoking is very social nowadays) such as eating (anything), drinking (anything but water), going out to visit friends and family very short on these as of late), going out dancing (too fatigued or in too much pain) or to a movie (usually fall asleep shortly after lights go dim). Smoking seems to be the one activity that I can enjoy (if you ignore the constant nagging from my wife, that is). Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/3/2000 10:41:15 AM Eastern Daylight Time, KarynWms@... writes: << I don't think many of you remember Fred (Nufrius). He is still a member, but is too ill to participate. He admits to drinking too much and smoking too much. He now not only has Pancreatitis, but Lung Cancer and a trach. God bless him. I too a lot of harmful things, sometimes, regarding my diet, or activities, but that is the choice I make. >> Karyn, I was wondering what ever happened to Fred. I am so sorry to hear that he is doing so poorly and will remember him in my daily prayers for a quick recovery. If you have access to Fred in any way, please convey my sincere concern for what is happening. I, like the rest of us in the group, miss his insight ad compassion and appreciate his contribution to my understanding of this illness. Get better Fred! Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/3/2000 10:43:17 AM Eastern Daylight Time, KarynWms@... writes: << That's great! >> Oops! I just broke my promise :-) Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/3/2000 1:10:39 PM Eastern Daylight Time, spets@... writes: << I am so disgusted with myself over it though. Everybody said " you had it easy, you went through the withdrawals during your coma " NOT TRUE---Since I don't remember the withdrawals, they came later. So instead of quitting getting easier it actually got harder for me as time went on. My friend Janet said that she was glad that I started again, she knows it is bad for us but she said that I was so stressed out over trying to quit that she was afraid I was going to stroke out!!! Too funny :-) I think that I can quit again-after all, we are pancreatitis survivors------WE CAN DO ANYTHING!!!!! >> , Don't get disgusted with yourself over smoking. Yes, it is a terrible vice that we don't need in our lives. And yes, it will ultimately lead to our demise. However, what else is there for us to enjoy? Maybe there is no need to quit after all? Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 In a message dated 9/3/00 1:55:11 PM Eastern Daylight Time, acastenell@... writes: << You know, as it stands now, I don't know if I will even mind if/when I develop Pancreatic Cancer. Sometimes death doesn't seem too bad an alternative. Andre' >> Dear Andre, I understand completely how you feel but I do believe there are treatments in the works right now that will help us down the road. My daughter was at a party Friday night and she met a man who is a Ph.D. and works with University of Cincinnati Hospital and he told her that Harvard and other famous institutes are working on the islet cell transplant for diabetics. You have probably heard of this but I will explain it anyway since I care about you and don't want you to give up. They are taking cadaver pancreas and removing the islet cells and transplanting the cells into people who are diabetic. Canada is already doing this and now the US is really getting involved in the research of this new way of helping diabetics. If they can do this I am sure that in the near future pancreatitis sufferers will be able to have their pancreas removed and islet cells will be harvested from cadavers then transplanted into the patient. I saw on the television that here in Cincinnati a new researcher is now at the University of Cincinnati Hospital working on this procedure right now. I sent him a letter and he wrote me aback along with a form to fill out. There is progress going on and I know that in the next five years big things are going to happen for us. Never, Never give up Andre. Too many people love and care about you. We are at the threshold of new cures for us. Sorry I have gone on and on but I am enthused and want you to have a different frame of mind. A hopeful mind set. Your friend, Shirley PS I sure hope I haven't offended you. If I have I am so sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 -- >If only I didn't enjoy smoking so damned much! Of course! Why else would it be so hard to quit? You can only quit when you see benefits to stopping outweigh benefits of continuing. >I promise to drop the smoking thing now. This is a Pancreas Support Group; not a smoking cessation seminar. I'll just need to find another egroup for this :-) Andre`, sorry to disagree. Whatever is part of your life is a concern of this support group. Please feel free to continue to speak your mind. Hope you're having a comfortable weekend. jang --== Sent via Deja.com http://www.deja.com/ ==-- Before you buy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 In a message dated 9/3/2000 5:46:27 PM Eastern Daylight Time, shirlf3542@... writes: << My daughter was at a party Friday night and she met a man who is a Ph.D. and works with University of Cincinnati Hospital and he told her that Harvard and other famous institutes are working on the islet cell transplant for diabetics. >> Shirley, No, you could never offend me. Help is what we are all about. As for the Islet cell transplant, I am no longer a candidate since I've already lost 90% of my Pancreas. Thanks for the words of encouragement, though. I've been through too much already and am just waiting to be told he next thing. The Big " C. " Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 In a message dated 9/7/00 12:35:37 PM Eastern Daylight Time, acastenell@... writes: << daughter was at a party Friday night and she met a man who is a Ph.D. and works with University of Cincinnati Hospital and he told her that Harvard and other famous institutes are working on the islet cell transplant for diabetics. >> Shirley, No, you could never offend me. Help is what we are all about. As for the Islet cell transplant, I am no longer a candidate since I've already lost 90% of my Pancreas. Thanks for the words of encouragement, though. I've been through too much already and am just waiting to be told he next thing. The Big " C. " Andre' >> Hi Andre, I would think that you are or will be a candidate if you have diabetes. Canada is having lots of success with transplanting islet cells from cadaver pancreas. I am planning a trip to MN. to talk with Dr. Sutherland about having my pancreas removed and the islet cells transplanted into my liver. Wish me luck. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 In a message dated 9/7/2000 3:37:08 PM Eastern Daylight Time, shirlf3542@... writes: << I am planning a trip to MN. to talk with Dr. Sutherland about having my pancreas removed and the islet cells transplanted into my liver. Wish me luck. >> Shirley, Will you not have a Pancreas when this is over? Is this to also take you out of pain? This may be the only option left and I'd like to know more about it, if you don't mind. Thanks Shirley for being there. You've done a lot to uplift my spirits with your responses to me and to others. You are truly a blessing to the group. Andre' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 In a message dated 9/7/00 4:52:27 PM Eastern Daylight Time, acastenell@... writes: << << I am planning a trip to MN. to talk with Dr. Sutherland about having my pancreas removed and the islet cells transplanted into my liver. Wish me luck. >> Shirley, Will you not have a Pancreas when this is over? Is this to also take you out of pain? This may be the only option left and I'd like to know more about it, if you don't mind. Thanks Shirley for being there. You've done a lot to uplift my spirits with your responses to me and to others. You are truly a blessing to the group. Andre' >> Hi Andre, since you have diabetes you would not qualify for the autotransplanted cells but you might be a candidate for the cell transplant they are doing in Canada. I am sure if you call Dr. Sutherland in MN. he could help you. His secretary is Anne Marie Papas. She is very nice. I will give you Dr. Sutherland's number. He also is involved in patients with diabetes. I will give you a site to go to and you can read all about it. Andre, there is so much going on in research now for diabetics. Hold on something will help you. I just know it. A cure won't be too long in coming. DR, Sutherland's # is The site is ----------http://www.insulin-free.org/stories/rebello.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 In a message dated 9/7/00 4:52:27 PM Eastern Daylight Time, acastenell@... writes: << << I am planning a trip to MN. to talk with Dr. Sutherland about having my pancreas removed and the islet cells transplanted into my liver. Wish me luck. >> Shirley, Will you not have a Pancreas when this is over? Is this to also take you out of pain? This may be the only option left and I'd like to know more about it, if you don't mind. Thanks Shirley for being there. You've done a lot to uplift my spirits with your responses to me and to others. You are truly a blessing to the group. Andre' >> Andre, here is another one plus when you get into this one you will find many more. http://www.insulinfree.org/sutherland.htm I know that you will find these very interesting. Feel free to call Dr. Sutherland, he is very nice from what I am told. He talks with patients who live far away from his hospital and answers all their questions. Let me know if you think you can be helped. Shirley Quote Link to comment Share on other sites More sharing options...
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