Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Hey guys, I'm sorry I haven't been in touch for a few days. I've kind of been out of it. On Friday I had a Grandmal seizure so for the past few days I've been sleeping my life away. The crazy thing is that my Neurologist just increased my antiseizure medication. Well, I guess that didn't work. On the 18th I finally see a new doc for my Neurosarcoidosis. I'm sick and tired of being flipped from one treatment to another. I've been on Prednisone, Plaquenil, Methotrexate, Neurontin, Nortriptiline, and Depakote. I've already had my all 4 wisdom teeth removed, my tonsils, a portion of my left lung and have had Mycoplasma Pneumonia 3 times. I also have a Dorsol Column Nerve Stimulator implanted in my spinal cord to help take away the pain in my chest ( It's computer generated). Right now the doc have me on Topamax, Ativan, Klonipin, Limbitrol, Aricept, Lexopro, Vioxx, Imetrex, lortab,and loads of vitamins. That's just for the Sarc alone. We'll see what the spectialist add on the 18th I'm sorry if I seem like I'm in a bad mood but I guess I am because I had concert tickets tonight and didn't even have the strenght to go!!!!!!!! Sincerely, Your sarc sister Kim from EP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 my dauighter may 5 has epilepsy with her first 3 seizures they did an eeg and everything was normal after 8 they deceided 2 do a mri and found that her brain was malformed just something to thing about Quote Link to comment Share on other sites More sharing options...
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