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jenny

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i can understand your protectiveness with

i also try and keep melissa away from anyone who is sick

head lice is one thing i have tryed to keep her from getting

when my son was little his dr said to use hair spray on his hair before he

goes to school and wash everyday this helped him all through his school days

he never got head lice knock on wood with melissa she ended up with it 1

time and it was from my niece she got them from i almost shaved her bald

headed due to my fear of getting this stuff

i took her to the dr and she confirmed it and explained i didnt need to shave

the head lololol but showed me how to get rid of them and keep them away

it took 2 or 3 weeks of stripping her hair to get them all but she had very

long hair down to her waist also

took 2 hours everyday to do that

the dr said the same thing about the hair spray use it and wash the hair

everyday

so thats what i did lololol and no more of them

i went nuts because i knew them things would get every where in the house

so i scrubbed everything lolololol

dont be afraid of things but be cautious of things

i have lysol spray in the house all the time i know this only helps inside

the house and i cant protect melissa from the outside world but i can teach

her

and that is what i did washing hands is the most important one

keeping them clean if you hear someone coughing or sneezeing step away from

them if you hear someone say they have a fever step away dont share cups

or spoons or forks or eat after anyone bathrooms is where kids pick up

things also and this should be extremely taken to teaching them what to do

i do not use my hand to flush a toilet in any store or mall i will use the

toe of my shoe or toilet paper also use toilet paper to cut on the faucet

and shut it off

bacteria is everywhere

kids do as they see if you the parent do these steps as a example the kids

will follow you lololol

you lessen the risk of germs

you cant keep them from getting sick but you can try and do the best you can

like in the kitchen washing the hands alot while cooking is great when i

finish with one thing i am cooking and have that on the stove or in the oven

i wash my hands

then start on something else

just like this anthrax germ or spores use common sense with touching things

think about a dollar bill lolololol or a coin those are touched by how many

people ?

Robbin

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, we live in Mundelein, IL. Were near Great America, where is Lake in the Hills? I've heard of it. My daughter is 7 too. How long has had this? Maybe they could meet someday, we don't know any other kids with JRA, near us I mean. is Systemic and we just passed our 1 year mark. She is doing fairly well but seems to be having trouble getting used to going to school everyday. It really wears her out. I'm sorry that isn't feeling well. Is she only on MTX? is on MTX pills, folic acid, Arava, prednisone, calderol and ibuprofen. Please keep in touch. I have been trying to find someone near us.

Pat & (1 year Systemic)

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Hi ,

Seems like you're doing the very best you can. Hopefully the injections

will start to make a big difference soon and 's eyes and knees will

start showing signs of improvement. It does sometimes leave you feeling

powerless though, wanting to do something more to help in a bigger way

but not really having anything more to do. Like you said, you have to

give it some more time and try to remain hopeful.

Since Josh takes prednisone and MTX, as well as the other meds, it's

hard to know for sure if MTX or something else might be to blame. When

he does catch something viral, our past experience has been that it

takes longer for it to clear up and sometimes causes an increase in his

arthritis symptoms. I stress that washing his hands frequently and well

is one of the best ways to avoid catching what's going around. He

doesn't get as sick as often now, as he used to. He's getting older (12,

now) and I think the hygiene lessons are better understood. Still

bothers me when he tells me about kids that seem really sick still going

to school. He's very conscious of their coughs and sniffling and likes

to avoid getting too close.

Hang in there, Becki, and give a gentle hug ...

Georgina

tec1959@... wrote:

>

> Hello All

> Its been a very long time since I wrote about .

> We live in Lake in the Hills Illinois

>

> Things are still hard for her. It seems nothing so far has worked.

> She still having problems with her eyes. It seems they are still

> flared up and we can not get them under control. She still has

> major swelling in her knees.

>

> She started injections two weeks ago, so I know I have to give

> it time.

>

> I read her the poem about the 9 year old and she cried.

> She says she feels sad most of the day because she hurts.

> I hurt inside just listening to her.

> I really wish I knew if there was more I could do.

>

> I am really nervous everytime she has a cold or someone else

> is sick. I want to know if anyone has really gotten sick

> because the methroxat lowers your system. I am not sure what to watch

> out for,

> I know her school has a lot of cases with kids with lice so I

> am always checking cause I do not want this.Most of the kids I work

> with have colds and one has impetigo.

>

> Well any info about shots or other ideas to help her will be

> greatly accepted.

> Thanks for listening to me!!!I am glad you all are here to listen

>

> Thanks

>

> Mother to age 7

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--- sdbpab@... wrote:

> , we live in Mundelein, IL. Were near Great

> America, where is Lake in

> the Hills? I've heard of it. My daughter is

> 7 too. How long has

> had this? Maybe they could meet someday, we

> don't know any other kids

> with JRA, near us I mean. is Systemic and we

> just passed our 1 year

> mark. She is doing fairly well but seems to be

> having trouble getting used

> to going to school everyday. It really wears her

> out. I'm sorry that

> isn't feeling well. Is she only on MTX? is

> on MTX pills, folic acid,

> Arava, prednisone, calderol and ibuprofen. Please

> keep in touch. I have

> been trying to find someone near us.

>

> Pat & (1 year Systemic)

>

Dear Pat and taylor

Sorry for the delay, its been crazy around here.Lake

in hills is near Crystal lake and Algonquin. was

dx in May, so this is fairly still new to us. She take

folic acid, lodine and sulfazaline in a liquid form

and well as the weekly shot of mtx. She takes eye

drops for her eyes too. have you talk to school about

her day, maybe things are to fast pace for her and if

they slowed it down she might to better. I keep extra

books at home for her and I also make sure her

backpack is not heavy for her. I make she she wears

her good shoes everyday, even thou sometimes she hates

to do that.\

i too would like to meet someday,.

Write soon

always

mary and

__________________________________________________

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  • 1 year later...

What type of improvements did your son have on the PRO EFA? My son is 3

years and 9 months old. And I am just checking into supplements.

[ ] Re: Did you ever think?

> , it was about three months before I increased from 1 to 2

> PRO EFA . How much does your son weigh. Mine is 3years and 4 months

> and weighs 38 pounds. The two really seem to help , but I'm no

> expert on dosage etc., just telling you what worked for us.

>

>

>

>

>

>

>

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Hi Jane,

This is Bridget ('s wife) I have a lot of questions. Where and

what do you buy? MG's and name brand? Also where do you get it? My son is 3

1/2 he is verbal but hard to understand. He was making great progress last

school year and now he seemed to take a lot of steps backwards over this

summer. He loves foods, and has good oral ability, but has a very hard time

talking. We have been working on him since he was 1 1/2 yr old.

Bridget

Re: [ ] jenny

> Hi ? Before i started my daughter on EFAs i can honestly say she was

> constantly ill with coughs and colds for approx 12 months, her appitite

was

> non existant and of course there was no speech. I started her on 5ml, she

> was 21/2. I saw a improvement striaght away [ i mean days] in her

appitite,

> energy and her colds. She actually wanted to play and enjoy herself,

rather

> than just wanting to sit and watch. Within weeks she wanted to try and

make

> the effort to speak, until this piont she could only say " mama " . Now some

> people could and have said this was just a " spurt " , but i have tested this

> by giving her a 2/3 day break[usualy when we've run-out over the weekend]

> And i see a change for the worse as quick as i saw a change for the

better,

> and she will always have the start of a cold by Monday. I've just put her

> dose up to 10ml and i feel this has helped further, although not as

> noticible as the initial spurt. By the way she is 5 now, speaking in 5+

word

> sentences[not as clear as she would like] but we are getting there. hope

> this can be of some help. Jane

>

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hi, Bridget

Sorry i've not got back to you sooner, been off line for a couple of

days. Maybe you got the info you need already, i've not checked the other

posts yet.Anyway i am actually based in the UK and i use the brand Efalex.

Although when i first heard about EFAs i actually traced them to the USA. If

i remember correctly they were from a company called Nordic Naturals, based

in California. I eventually got them via Holland [my brother lived there]

But i found my daughter developed a rash on this brand.There is also a brand

called EYEQ not sure if this is available in the states. Hope you've got the

info you need already, if not maybe someone closer to home may be able to

fill you in better than myself. Oh yes i've heard that most children make a

big step forward with their speech at around about 3 years old, so hang in

there. Jane.

Re: [ ] jenny

>

>

> > Hi ? Before i started my daughter on EFAs i can honestly say she

was

> > constantly ill with coughs and colds for approx 12 months, her appitite

> was

> > non existant and of course there was no speech. I started her on 5ml,

she

> > was 21/2. I saw a improvement striaght away [ i mean days] in her

> appitite,

> > energy and her colds. She actually wanted to play and enjoy herself,

> rather

> > than just wanting to sit and watch. Within weeks she wanted to try and

> make

> > the effort to speak, until this piont she could only say " mama " . Now

some

> > people could and have said this was just a " spurt " , but i have tested

this

> > by giving her a 2/3 day break[usualy when we've run-out over the

weekend]

> > And i see a change for the worse as quick as i saw a change for the

> better,

> > and she will always have the start of a cold by Monday. I've just put

her

> > dose up to 10ml and i feel this has helped further, although not as

> > noticible as the initial spurt. By the way she is 5 now, speaking in 5+

> word

> > sentences[not as clear as she would like] but we are getting there. hope

> > this can be of some help. Jane

> >

>

>

>

>

>

>

>

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  • 5 months later...
Guest guest

Hi ,

I just wanted you to know that you and are in our thoughts. I hope

your appt with the rheumatologist went well today and that will be

doing much better, very soon. I am so sorry to hear about the accident

too. How awful, for her. So much going on right now. Please stay well.

Aloha,

Georgina

tim chesney wrote:

> --- Emeraldsx3@... wrote:

>

>>HI :

>>

>>Sorry to hear that 's pressure in her eyes is

>>up:( How do they bring

>>that down?

>>

>>How did she get hit by a car??????????

>>

>>There's still some time left for a big snow. I hope

>>she gets enough so she

>>can laugh at her mommy going down the hill LOL:)

>>

>

>

> The pressure in 'a eye is being treated with

> another eye drop. The Rhem called me back after

> hearing about the pressure and ask for me to bring her

> in Monday. What a fast response. I am grateful for the

> Dr. THe Rhem also wanted to know about the nodules on

> Jen's wrists and the swelling of the other knee, along

> with headaches and hip pain. I know the Dr will help

> get to the bottom of this.

>

> Jen was hit by a call backing up in a parking lot.

> and I were walking when she the lady cross the

> yellow line and hit JEn in her left knee, the one we

> have been told has no arthritis yet.

>

> As for the snow I hope we get hit hard soon,

>

> Thanks for writing

> IT means alot to me and the fact I get so much info

> and know what to ask

> Thanks and =age9

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