Re: Re: Patient/Physician testimonials

[Guest guest]

Shanna,

I agree with what wrote. I think that even though your doctor is not

calling his method the Ponseti method it is most definitely similar and from

your postings it sounds as though you have quite a bit in common with the

parents that have used the Ponseti method. Maybe more in common than you

realize. Our experience with the traditional method was quite different than

yours. For instance, our casting for 3 months was below the knee everytime,

there was never going to be a tenotomy of any type performed during the

casting stage, it would have been included in the major surgery at a later

date and that would have been followed by AFO's, no DDB's of any kind. Our

old ortho told us that those particular shoes were no longer even used.

Since your doctors method seems so similar to the Ponseti method I would

think you could still find some valuable information and comparisons to some

of the other parents on the group. I have found many of your postings very

similar to some of my own experiences, especially now that Zowie is in the

shoes! Best of Luck,

Holly and

Patient/Physician testimonials

>>

>>

>> >What does everyone think about starting a reference list here for

>new

>> >parents looking for people to talk to who have gone to certain

>> >doctors? (Ponseti as well as French Physiotherapy)

>> >There are obviously a lot of us who went directly to Dr. Ponseti,

>but

>> >it would be nice to list the state (regional area for places

>outside

>> >the U.S. also), the physician (and method), and then the reference

>> >family could put their name under the physician. Only families

>that

>> >wouldn't mind others contacting them would participate (the family

>> >doesn't necessarily have to be active on this board either).

>> >Any feedback?

>> > & 3-16-00

>> >

>> >

>> >

>> >

[Guest guest]

No Ihavent had a chance to ask him but I will try to when she has her

appointment on the 3rd of January. He says he doesnt practice the Ponseti

but his treatment is quite similar with the castings and positioning I

guess. He was taught at some school in Michigan. This is where he learned

and practiced before he came here. He says the Ponseti method is different

because it only requires minimal casting but more use of the DBB. So I dont

know .. Zowie was casted from day 1 of her life until November 30th then she

had the tenotomy and then 3 more weeks of casts then the DBB on December

20th she will be 4 months old on the 2nd of January. And I thought the

Ponsetimethod was only 3 casts? Is that 3 weeks?Hmmm I am not really sure

though but I will try and remember to ask him at her appointment...

Shanna

Patient/Physician testimonials

>>

>>

>> >What does everyone think about starting a reference list here for

>new

>> >parents looking for people to talk to who have gone to certain

>> >doctors? (Ponseti as well as French Physiotherapy)

>> >There are obviously a lot of us who went directly to Dr. Ponseti,

>but

>> >it would be nice to list the state (regional area for places

>outside

>> >the U.S. also), the physician (and method), and then the reference

>> >family could put their name under the physician. Only families

>that

>> >wouldn't mind others contacting them would participate (the family

>> >doesn't necessarily have to be active on this board either).

>> >Any feedback?

>> > & 3-16-00

>> >

>> >

>> >

>> >

[Guest guest]

No Ihavent had a chance to ask him but I will try to when she has her

appointment on the 3rd of January. He says he doesnt practice the Ponseti

but his treatment is quite similar with the castings and positioning I

guess. He was taught at some school in Michigan. This is where he learned

and practiced before he came here. He says the Ponseti method is different

because it only requires minimal casting but more use of the DBB. So I dont

know .. Zowie was casted from day 1 of her life until November 30th then she

had the tenotomy and then 3 more weeks of casts then the DBB on December

20th she will be 4 months old on the 2nd of January. And I thought the

Ponsetimethod was only 3 casts? Is that 3 weeks?Hmmm I am not really sure

though but I will try and remember to ask him at her appointment...

Shanna

Patient/Physician testimonials

>>

>>

>> >What does everyone think about starting a reference list here for

>new

>> >parents looking for people to talk to who have gone to certain

>> >doctors? (Ponseti as well as French Physiotherapy)

>> >There are obviously a lot of us who went directly to Dr. Ponseti,

>but

>> >it would be nice to list the state (regional area for places

>outside

>> >the U.S. also), the physician (and method), and then the reference

>> >family could put their name under the physician. Only families

>that

>> >wouldn't mind others contacting them would participate (the family

>> >doesn't necessarily have to be active on this board either).

>> >Any feedback?

>> > & 3-16-00

>> >

>> >

>> >

>> >

[Guest guest]

Oh cool ok well I feel a bit better now then. LOL LOL Although he says he

isnt practicing the Ponseti method I guess I will just be happy with it

right?? LOL

Shanna

Patient/Physician testimonials

>>>

>>>

>>> >What does everyone think about starting a reference list here for

>>new

>>> >parents looking for people to talk to who have gone to certain

>>> >doctors? (Ponseti as well as French Physiotherapy)

>>> >There are obviously a lot of us who went directly to Dr. Ponseti,

>>but

>>> >it would be nice to list the state (regional area for places

>>outside

>>> >the U.S. also), the physician (and method), and then the reference

>>> >family could put their name under the physician. Only families

>>that

>>> >wouldn't mind others contacting them would participate (the family

>>> >doesn't necessarily have to be active on this board either).

>>> >Any feedback?

>>> > & 3-16-00

>>> >

>>> >

>>> >

>>> >

[Guest guest]

Shanna,

Ponseti casting usually lasts 5-9 weeks depending on the severity and

stiffness of the feet when started from birth. Some of us parents whose

children were treated later had less casting because they had prior

casting that stretched the ligaments but never correctly aligned the

foot. Your doctor's method sounds much more similar to Dr. Ponseti's

method than it does to our original doctors. Rose was casted for 6

months, and then she was going to have surgery (not the tenotomy). She

would have worn an AFO after a total of 8 weeks of post-op casts.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Ahhhh I see. I just thought everyone using the Ponseti method was treated in

like 3 or 4 castings but now I understand... Okedoke. Well maybe he is using

the method and wont admit to it? But why would he not admit it right? The

way I hear it is that is the best way to go. Although her first cast was

below the knee for about 4 days then every one after that was all full leg

casts and the tenotomy at about 3 months. SHe was shy a week but heck it was

close enough for them to do it becuase of anesthesia risk and all I guess.

Anyway wow maybe he is HUH????

Shanna

Re: Re: Patient/Physician testimonials

>Shanna,

>Ponseti casting usually lasts 5-9 weeks depending on the severity and

>stiffness of the feet when started from birth. Some of us parents whose

>children were treated later had less casting because they had prior

>casting that stretched the ligaments but never correctly aligned the

>foot. Your doctor's method sounds much more similar to Dr. Ponseti's

>method than it does to our original doctors. Rose was casted for 6

>months, and then she was going to have surgery (not the tenotomy). She

>would have worn an AFO after a total of 8 weeks of post-op casts.

>

>Joy

>

>

>http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

>

>

>

>

[Guest guest]

Shanna,

Even with the Ponseti Method, even 3 or 4 casts seems to be remarkable.

Jakob had 1 set of below the knee (before our referral to Dr. Weinstein)

for a week, then 5 full leg sets of casts with Dr. Weinstein - including

the ones after the tenotomy. I think more in terms of the length of

time the child is in casts - which for Jakob was from birth to 8 weeks

old.

Shanna wrote:

> Ahhhh I see. I just thought everyone using the Ponseti method was

> treated in

> like 3 or 4 castings but now I understand... Okedoke. Well maybe he is

> using

> the method and wont admit to it? But why would he not admit it right?

> The

> way I hear it is that is the best way to go. Although her first cast

> was

> below the knee for about 4 days then every one after that was all full

> leg

> casts and the tenotomy at about 3 months. SHe was shy a week but heck

> it was

> close enough for them to do it becuase of anesthesia risk and all I

> guess.

> Anyway wow maybe he is HUH????

>

> Shanna

>

[Guest guest]

Yeah see I still dunno what he is using because she was changed every week

for 6 weeks then every 2 weeks thereafter then the tenotomy at 3 3/4 months

old. then casts for 3 weeks straight then now the shoes! then we had the

shoes changed into the wrong feet shoes. LOL Thats what I call them cause

that is what it looks like.. It looks as though her shoes are on the wrong

feet.

Shanna

Re: Re: Patient/Physician testimonials

>Shanna,

>

>Even with the Ponseti Method, even 3 or 4 casts seems to be remarkable.

>Jakob had 1 set of below the knee (before our referral to Dr. Weinstein)

>for a week, then 5 full leg sets of casts with Dr. Weinstein - including

>the ones after the tenotomy. I think more in terms of the length of

>time the child is in casts - which for Jakob was from birth to 8 weeks

>old.

>

>

>

>Shanna wrote:

>

>> Ahhhh I see. I just thought everyone using the Ponseti method was

>> treated in

>> like 3 or 4 castings but now I understand... Okedoke. Well maybe he is

>> using

>> the method and wont admit to it? But why would he not admit it right?

>> The

>> way I hear it is that is the best way to go. Although her first cast

>> was

>> below the knee for about 4 days then every one after that was all full

>> leg

>> casts and the tenotomy at about 3 months. SHe was shy a week but heck

>> it was

>> close enough for them to do it becuase of anesthesia risk and all I

>> guess.

>> Anyway wow maybe he is HUH????

>>

>> Shanna

>>

>

>

>