RE[neurosarcoidosis] just wondering

[Guest guest]

Hi Lynne,

It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis. I'll arrive on Friday and check out Sunday to go to Cincinnati for my first appointment with Dr. Baughman on Monday. I don't know exactly who is all going. I heard something about everyone wearing a spotted thong on their heads (lol). I don't think so!!!!!!!!! Maybe we can find something else in common to wear instead.

I appreciated you letting me bunk with you. I don't mind sleeping on the floor. We can always get a roll away cot. Lately, I've been having trouble getting out of the bed by myself. I have to call for my sister or her husband to roll be over and lift me up. I'm stiff as a statue.

If you think it may be to crowded in your room let me know and I will ask if anyone else has room or I'll call to make reservations.

I can't wait to me you,

Your Sarc Sister,

Kim from EP

[Guest guest]

How about baseball-style caps? Or sandwich boards? They could say "Yahoo Neurosarc Family" or something. Maybe they will have a message board & we can get together that way. Still thinking. . . . .Rose

RE[neurosarcoidosis] just wondering

Hi Lynne,

It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis. I'll arrive on Friday and check out Sunday to go to Cincinnati for my first appointment with Dr. Baughman on Monday. I don't know exactly who is all going. I heard something about everyone wearing a spotted thong on their heads (lol). I don't think so!!!!!!!!! Maybe we can find something else in common to wear instead.

I appreciated you letting me bunk with you. I don't mind sleeping on the floor. We can always get a roll away cot. Lately, I've been having trouble getting out of the bed by myself. I have to call for my sister or her husband to roll be over and lift me up. I'm stiff as a statue.

If you think it may be to crowded in your room let me know and I will ask if anyone else has room or I'll call to make reservations.

I can't wait to me you,

Your Sarc Sister,

Kim from EP~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

I can set up t-shirts and baseball caps to be sold via cafe-press for the

NS family if that is what you'd like? They would be available 24/7 365.

Let me know, I'm working on our new website (www.neurosarcoidosis.com) this

weekend.

Love Aisha.

From: Neurosarcoidosis

Date: Tuesday, 14 October 2003 02:52:56 PM

To: Neurosarcoidosis

Subject: Re: RE[neurosarcoidosis] just wondering

How about baseball-style caps? Or sandwich boards? They could say " Yahoo

Neurosarc Family " or something. Maybe they will have a message board & we

can get together that way. Still thinking. . . . .Rose

RE[neurosarcoidosis] just wondering

Hi Lynne,

It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis.

I'll arrive on Friday and check out Sunday to go to Cincinnati for my first

appointment with Dr. Baughman on Monday. I don't know exactly who is all

going. I heard something about everyone wearing a spotted thong on their

heads (lol). I don't think so!!!!!!!!! Maybe we can find something else in

common to wear instead.

I appreciated you letting me bunk with you. I don't mind sleeping on the

floor. We can always get a roll away cot. Lately, I've been having trouble

getting out of the bed by myself. I have to call for my sister or her

husband to roll be over and lift me up. I'm stiff as a statue.

If you think it may be to crowded in your room let me know and I will ask if

anyone else has room or I'll call to make reservations.

I can't wait to me you,

Your Sarc Sister,

Kim from EP

[Guest guest]

I think it'd be great too. But I don't think I'd want to advertise Yahoo on a shirt. Baseball caps work well, especially since the hairs thinning. (I'm ending up with as much of a widows peak as has. AARGH!!

gnomelady

[Guest guest]

Great idea Aisha!

Neisa ^..^

RE[neurosarcoidosis] just wondering Hi Lynne, It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis.I'll arrive on Friday and check out Sunday to go to Cincinnati for my firstappointment with Dr. Baughman on Monday. I don't know exactly who is allgoing. I heard something about everyone wearing a spotted thong on theirheads (lol). I don't think so!!!!!!!!! Maybe we can find something else incommon to wear instead. I appreciated you letting me bunk with you. I don't mind sleeping on thefloor. We can always get a roll away cot. Lately, I've been having troublegetting out of the bed by myself. I have to call for my sister or herhusband to roll be over and lift me up. I'm stiff as a statue. If you think it may be to crowded in your room let me know and I will ask ifanyone else has room or I'll call to make reservations. I can't wait to me you, Your Sarc Sister, Kim from EP ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Ditto! Rose

RE[neurosarcoidosis] just wondering Hi Lynne, It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis.I'll arrive on Friday and check out Sunday to go to Cincinnati for my firstappointment with Dr. Baughman on Monday. I don't know exactly who is allgoing. I heard something about everyone wearing a spotted thong on theirheads (lol). I don't think so!!!!!!!!! Maybe we can find something else incommon to wear instead. I appreciated you letting me bunk with you. I don't mind sleeping on thefloor. We can always get a roll away cot. Lately, I've been having troublegetting out of the bed by myself. I have to call for my sister or herhusband to roll be over and lift me up. I'm stiff as a statue. If you think it may be to crowded in your room let me know and I will ask ifanyone else has room or I'll call to make reservations. I can't wait to me you, Your Sarc Sister, Kim from EP ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Ditto! Rose

RE[neurosarcoidosis] just wondering Hi Lynne, It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis.I'll arrive on Friday and check out Sunday to go to Cincinnati for my firstappointment with Dr. Baughman on Monday. I don't know exactly who is allgoing. I heard something about everyone wearing a spotted thong on theirheads (lol). I don't think so!!!!!!!!! Maybe we can find something else incommon to wear instead. I appreciated you letting me bunk with you. I don't mind sleeping on thefloor. We can always get a roll away cot. Lately, I've been having troublegetting out of the bed by myself. I have to call for my sister or herhusband to roll be over and lift me up. I'm stiff as a statue. If you think it may be to crowded in your room let me know and I will ask ifanyone else has room or I'll call to make reservations. I can't wait to me you, Your Sarc Sister, Kim from EP ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Oh, just had a thought when I wrote Ditto. If Jerry 's fans were Deadheads, and Jimmy Buffet's fans are Parrot Heads, and Rush Limbaugh's fans are Ditto Heads, what are Aisha's fans? (electric!! Get it? hahaha) Rose

RE[neurosarcoidosis] just wondering Hi Lynne, It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis.I'll arrive on Friday and check out Sunday to go to Cincinnati for my firstappointment with Dr. Baughman on Monday. I don't know exactly who is allgoing. I heard something about everyone wearing a spotted thong on theirheads (lol). I don't think so!!!!!!!!! Maybe we can find something else incommon to wear instead. I appreciated you letting me bunk with you. I don't mind sleeping on thefloor. We can always get a roll away cot. Lately, I've been having troublegetting out of the bed by myself. I have to call for my sister or herhusband to roll be over and lift me up. I'm stiff as a statue. If you think it may be to crowded in your room let me know and I will ask ifanyone else has room or I'll call to make reservations. I can't wait to me you, Your Sarc Sister, Kim from EP ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Oh, just had a thought when I wrote Ditto. If Jerry 's fans were Deadheads, and Jimmy Buffet's fans are Parrot Heads, and Rush Limbaugh's fans are Ditto Heads, what are Aisha's fans? (electric!! Get it? hahaha) Rose

RE[neurosarcoidosis] just wondering Hi Lynne, It's Kim from El Paso, TX. I'll be going to the conference in Indianapolis.I'll arrive on Friday and check out Sunday to go to Cincinnati for my firstappointment with Dr. Baughman on Monday. I don't know exactly who is allgoing. I heard something about everyone wearing a spotted thong on theirheads (lol). I don't think so!!!!!!!!! Maybe we can find something else incommon to wear instead. I appreciated you letting me bunk with you. I don't mind sleeping on thefloor. We can always get a roll away cot. Lately, I've been having troublegetting out of the bed by myself. I have to call for my sister or herhusband to roll be over and lift me up. I'm stiff as a statue. If you think it may be to crowded in your room let me know and I will ask ifanyone else has room or I'll call to make reservations. I can't wait to me you, Your Sarc Sister, Kim from EP ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hey Rose,

I tell people that I am an Aishaite...LOL

Hugs.

[Guest guest]

Rose has way too much time on her hands. Way too much time.

[Guest guest]

I have two hairdressers working with me right now to find the most natural wig so I am taking what I have with me tomorrow so we can pick it out and get the right size.

Sharon

Re: RE[neurosarcoidosis] just wondering

I think it'd be great too. But I don't think I'd want to advertise Yahoo on a shirt. Baseball caps work well, especially since the hairs thinning. (I'm ending up with as much of a widows peak as has. AARGH!!gnomelady ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~