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Re: Re: Raynaud's Disease & PF

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Posted
Posted

I do wear mittens if I go outside because I know they

keep us warmer.

IPF 2/07 Il

--- wrote:

>

> Just thought i'd butt in here on the glove v's

> mitten chat...I've found

> that good quality mittens put on straight away in

> the morning work

> pretty well BUT in case I also have some beautiful

> silk glove liners

> that I can wear underneath the mittens. That way I

> get better feeling &

> can still do things,

>

> Sadly, on my recent trip OS I actually dropped my

> Nikon Digital camera

> while stuffing around trying to get my leather

> gloves off my hand to

> take a photo...BANG ...I had my camera looped around

> my wrist to stop

> that very thing from happening!

>

> While away I was taking Adalat 10 which conatins

> Nifedipine 10 mg...it

> did help but didn't stop the problem altogether. I'm

> off it now because

> it's summer time in Oz & the Reynaud's is in

> abeyance UNLESS I stick my

> hands in the Fridge for too long!

>

> Apparently Air Conditioning can also set it off so

> I;m leaving mine

> turned off until the sticky heat becomes

> unbearlable. I'll be running

> around in my summer saoring & MITTENS...that'll be a

> HOOT!

>

> in Oz

>

>

>

> > >

> > > >

> > > > I'm getting seriously CURIOUS about the

> numbers on

> > > > this list who have

> > > > Reynauds'..It is clearly a part of some

> diagnosed

> > > > Autoimmune conditions

> > > > like Scleroderma etc but it also seems to be

> > > popping

> > > > up for those of us

> > > > with Idiopathic PF!

> > > >

> > > > I'd find it interesting if all people with

> > > Reynauds

> > > > add it into their

> > > > profile on the Database & include Dx date.

> > > >

> > > > Reynauds came on very suddenly for me AFTER my

> > > > symptoms of IPF were

> > > > being investigated. I think I've had IPF

> symptoms

> > > > for many years.

> > > >

> > > > Correct me if I'm wrong but my impression of

> > > > Reynauds' is that it ISN'T

> > > > a common problem in the general population!

> > > >

> > > > in Oz

> > > >

> > > > IPF: Fibrotic NSIP/UIP???

> > > >

> > > > Reynauds'

> > > >

> > > > May 2007

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> >

>

__________________________________________________________

> > > Be a better friend, newshound, and

> > > know-it-all with Yahoo! Mobile. Try it now.

> > >

> >

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Be a better friend, newshound, and know-it-all

> with

> > > Yahoo! Mobile. Try it now.

> >

> >

> >

> >

>

________________________________________________________________________\

> ____________

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

>

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

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Posted
Posted

I was talking to a friend of mine who also has Raynaud's and she said it helps her if she keeps her neck and shoulders warm. Even more so then gloves. Just thought I'd share. Leanne uip 1/03 Illinois listed for single lung transplant 10-12-07kiki boettin wrote: I do wear mittens if I go outside because I know theykeep us warmer. IPF 2/07 Il--- <gina.francisbigpond>

wrote:> > Just thought i'd butt in here on the glove v's> mitten chat...I've found> that good quality mittens put on straight away in> the morning work> pretty well BUT in case I also have some beautiful> silk glove liners> that I can wear underneath the mittens. That way I> get better feeling & > can still do things,> > Sadly, on my recent trip OS I actually dropped my> Nikon Digital camera> while stuffing around trying to get my leather> gloves off my hand to> take a photo...BANG ...I had my camera looped around> my wrist to stop> that very thing from happening!> > While away I was taking Adalat 10 which conatins> Nifedipine 10 mg...it> did help but didn't stop the problem altogether. I'm> off it now because> it's summer time in Oz & the Reynaud's is in> abeyance UNLESS I stick my>

hands in the Fridge for too long!> > Apparently Air Conditioning can also set it off so> I;m leaving mine> turned off until the sticky heat becomes> unbearlable. I'll be running> around in my summer saoring & MITTENS...that'll be a> HOOT!> > in Oz> > > > > >> > > >> > >

> I'm getting seriously CURIOUS about the> numbers on> > > > this list who have> > > > Reynauds'..It is clearly a part of some> diagnosed> > > > Autoimmune conditions> > > > like Scleroderma etc but it also seems to be> > > popping> > > > up for those of us> > > > with Idiopathic PF!> > > >> > > > I'd find it interesting if all people with> > > Reynauds> > > > add it into their> > > > profile on the Database & include Dx date.> > > >> > > > Reynauds came on very suddenly for me AFTER my> > > > symptoms of IPF were> > > > being investigated. I think I've had IPF> symptoms> > > > for many years.> > > >> > > > Correct me if I'm wrong but my impression

of> > > > Reynauds' is that it ISN'T> > > > a common problem in the general population!> > > >> > > > in Oz> > > >> > > > IPF: Fibrotic NSIP/UIP???> > > >> > > > Reynauds'> > > >> > > > May 2007> > > >> > > >> > > >> > > >> > >> > >> >>__________________________________________________________> > > Be a better friend, newshound, and> > > know-it-all with Yahoo! Mobile. Try it now.> > >> >>http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > >> > >> > >> >

>> > >> > >> > >> > > ---------------------------------> > > Be a better friend, newshound, and know-it-all> with> > > Yahoo! Mobile. Try it now.> >> >> >> >>__________________________________________________________\> ____________> > Be a better friend, newshound, and> > know-it-all with Yahoo! Mobile. Try it now.>http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> >> > > __________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

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Posted
Posted

Hi Leanne, That sounds interesting I think I will try

it.Thanks

IPF 2/07 IL

--- Leanne Storch

wrote:

> I was talking to a friend of mine who also has

> Raynaud's and she said it helps her if she keeps her

> neck and shoulders warm. Even more so then gloves.

> Just thought I'd share.

>

> Leanne uip 1/03 Illinois

> listed for single lung transplant 10-12-07

>

> kiki boettin wrote:

> I do wear mittens if I go outside because

> I know they

> keep us warmer.

> IPF 2/07 Il

> --- wrote:

>

> >

> > Just thought i'd butt in here on the glove v's

> > mitten chat...I've found

> > that good quality mittens put on straight away in

> > the morning work

> > pretty well BUT in case I also have some beautiful

> > silk glove liners

> > that I can wear underneath the mittens. That way I

> > get better feeling &

> > can still do things,

> >

> > Sadly, on my recent trip OS I actually dropped my

> > Nikon Digital camera

> > while stuffing around trying to get my leather

> > gloves off my hand to

> > take a photo...BANG ...I had my camera looped

> around

> > my wrist to stop

> > that very thing from happening!

> >

> > While away I was taking Adalat 10 which conatins

> > Nifedipine 10 mg...it

> > did help but didn't stop the problem altogether.

> I'm

> > off it now because

> > it's summer time in Oz & the Reynaud's is in

> > abeyance UNLESS I stick my

> > hands in the Fridge for too long!

> >

> > Apparently Air Conditioning can also set it off so

> > I;m leaving mine

> > turned off until the sticky heat becomes

> > unbearlable. I'll be running

> > around in my summer saoring & MITTENS...that'll be

> a

> > HOOT!

> >

> > in Oz

> >

> >

> >

> > > >

> > > > >

> > > > > I'm getting seriously CURIOUS about the

> > numbers on

> > > > > this list who have

> > > > > Reynauds'..It is clearly a part of some

> > diagnosed

> > > > > Autoimmune conditions

> > > > > like Scleroderma etc but it also seems to be

> > > > popping

> > > > > up for those of us

> > > > > with Idiopathic PF!

> > > > >

> > > > > I'd find it interesting if all people with

> > > > Reynauds

> > > > > add it into their

> > > > > profile on the Database & include Dx date.

> > > > >

> > > > > Reynauds came on very suddenly for me AFTER

> my

> > > > > symptoms of IPF were

> > > > > being investigated. I think I've had IPF

> > symptoms

> > > > > for many years.

> > > > >

> > > > > Correct me if I'm wrong but my impression of

> > > > > Reynauds' is that it ISN'T

> > > > > a common problem in the general population!

> > > > >

> > > > > in Oz

> > > > >

> > > > > IPF: Fibrotic NSIP/UIP???

> > > > >

> > > > > Reynauds'

> > > > >

> > > > > May 2007

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

__________________________________________________________

> > > > Be a better friend, newshound, and

> > > > know-it-all with Yahoo! Mobile. Try it now.

> > > >

> > >

> >

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Be a better friend, newshound, and know-it-all

> > with

> > > > Yahoo! Mobile. Try it now.

> > >

> > >

> > >

> > >

> >

>

__________________________________________________________\

> > ____________

> > > Be a better friend, newshound, and

>

=== message truncated ===

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

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Posted
Posted

/....pardon me for jumping in here for a minute. , did you send me an email and it was returned? I think you had the address wrong. It's bofus@....

Did you receive the Genie Mattress yet?

...how do you tolerate an ice-box in the winter? Do you mean every day?

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

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Posted
Posted

...sounds like a fairy land to me. All the things you describe are so foreign to me. I think you aussies are lucky.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

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