Re: Prednisone and massage

[Guest guest]

My friend who has had MS for about 40 years told me that she took Prednisone

several years ago for about a week and it was a " miracle drug " for her. Has

anyone with PLS taken Prednisone, or has it been prescribed? If so, what were

the results?

I'm also wondering about neuromuscular massage. I'm sure it can't do any

harm, but does it help? Sounds as if it should, but I'd appreciate feedback

from

anyone who's had it.

Thanks.

Edith

[Guest guest]

I took Prednisone for almost 2 years. High doses and maintenance.

They also had me on Solumedrol IV for almost a year. When I first

took it , yes,,it felt like a miracle drug. I felt stronger and

better. I continued to progress though. My pain though was

controlled for a while. They put me back on Solumderol IV for about

a month in half recently. I became very weak. Had it stopped. I

have been off Prednisone for a few months now also.

I have also heard that neuromuscular massage is wonderful and I do

believe it would help me also. Just the idea of relaxation and your

muscles stretched would help.

Braintalk: They are having server problems..-- I know they hoped

to have it back up and running last week...

Sherry

[Guest guest]

I took Prednisone for almost 2 years. High doses and maintenance.

They also had me on Solumedrol IV for almost a year. When I first

took it , yes,,it felt like a miracle drug. I felt stronger and

better. I continued to progress though. My pain though was

controlled for a while. They put me back on Solumderol IV for about

a month in half recently. I became very weak. Had it stopped. I

have been off Prednisone for a few months now also.

I have also heard that neuromuscular massage is wonderful and I do

believe it would help me also. Just the idea of relaxation and your

muscles stretched would help.

Braintalk: They are having server problems..-- I know they hoped

to have it back up and running last week...

Sherry

[Guest guest]

I have been on prednisone for at least 9 years off and on but it happens

about once a year and I only take it for a week. I have asthma so when I have a

severe attack my allergist puts me on them.. Yes it is a mircle drug I feel

wonderful BUT it has side effect as I am finding out now. I had a bone destiny

test done and the years of predisone has effected my bones. I now have

osteopeonia (thinning of the bone) only on one hip. I take " Evista " which they

say

will reverse the process. So before warned...........Flora

[Guest guest]

I have been on prednisone for at least 9 years off and on but it happens

about once a year and I only take it for a week. I have asthma so when I have a

severe attack my allergist puts me on them.. Yes it is a mircle drug I feel

wonderful BUT it has side effect as I am finding out now. I had a bone destiny

test done and the years of predisone has effected my bones. I now have

osteopeonia (thinning of the bone) only on one hip. I take " Evista " which they

say

will reverse the process. So before warned...........Flora

[Guest guest]

I guess there's a downside to everything. Thanks for the info.

edith

[Guest guest]

I guess there's a downside to everything. Thanks for the info.

edith

[Guest guest]

Hi Edith,

Yea, I did take Prenisone for PLS. At first I thought it was a miracle

drug. My feet felt so light - not like they weighed a ton. I could get them

off the floor when I walked.

But, then the side effects set in. First of all you can only take it for a

short period of time. Everyone else gained weight on it but I lost.

Except for my face which became so round that it looked like a moon. Then,

it tore my stomach up in spite of alll the medications that they gave me to

combat that. So, Prednisone didn't do good for me but you may have none of

these symptons. Beth

[Guest guest]

>Sorry,,,don't know why that posted twice.

Sherry ,,,

[Guest guest]

I've taken prednisone for asthma for up to 6 weeks- never noticed a change

in my PLS. Lavon

At 10:43 AM 7/5/2003 -0400, you wrote:

>My friend who has had MS for about 40 years told me that she took Prednisone

>several years ago for about a week and it was a " miracle drug " for her. Has

>anyone with PLS taken Prednisone, or has it been prescribed? If so, what were

>the results?

>

>I'm also wondering about neuromuscular massage. I'm sure it can't do any

>harm, but does it help? Sounds as if it should, but I'd appreciate

>feedback from

>anyone who's had it.

>

>Thanks.

>Edith

>

>

>

[Guest guest]

--Edith, I took prednisone for a week a few years ago when I hurt my

knee. It is wonderfull takes all your pain away,BUT when you go off

you just are back to the way you felt in the first place. It is

dangerous to take for a long period of time. A Man that my mother in

law knows has been on it for years and he is in a world of hurt

because it has done alot of bad things to his body. He took it for

something he has wrong with his legs and at first it helped, but has

made his legs so weak from taking it for so long that he is unable to

even walk anymore. I could tell you some horror stories about another

lady that I know and what it has done to her, but I will not as I

think you probably will hear from more of us on how bad it can be if

taken for to long a time. In my opinion a week is the max. I hope I

haven't scared you, but It really is a bad drug. Carolyn- In PLS-

FRIENDS , wisecom77@a... wrote:

> My friend who has had MS for about 40 years told me that she took

Prednisone

> several years ago for about a week and it was a " miracle drug " for

her. Has

> anyone with PLS taken Prednisone, or has it been prescribed? If so,

what were

> the results?

>

> I'm also wondering about neuromuscular massage. I'm sure it can't

do any

> harm, but does it help? Sounds as if it should, but I'd appreciate

feedback from

> anyone who's had it.

>

> Thanks.

> Edith

>

>

>

[Guest guest]

--Edith, I was so eager to tell you about prednisone that I forgot to

tell you about massage. I did it for awhile it was wonderful. My ins.

won't pay so I had to lay off for awhile. The only thing you have to

make sure they don't do deep pressure on your muscles because with my

experience they could go into bad spasms. All you have to do is tell

them to be gentle and they will. Carolyn- In PLS-

FRIENDS , wisecom77@a... wrote:

> My friend who has had MS for about 40 years told me that she took

Prednisone

> several years ago for about a week and it was a " miracle drug " for

her. Has

> anyone with PLS taken Prednisone, or has it been prescribed? If so,

what were

> the results?

>

> I'm also wondering about neuromuscular massage. I'm sure it can't

do any

> harm, but does it help? Sounds as if it should, but I'd appreciate

feedback from

> anyone who's had it.

>

> Thanks.

> Edith

>

>

>

[Guest guest]

Edith yes ive taken it when i first started having symptoms of this dissease

my allergist gave it to me and it worked but said he couldnt give me anymore

because it would lower my immune system but ive talked to people that have

MG who take it regular so go figure GEO

Re: Prednisone and massage

> My friend who has had MS for about 40 years told me that she took

Prednisone

> several years ago for about a week and it was a " miracle drug " for her.

Has

> anyone with PLS taken Prednisone, or has it been prescribed? If so, what

were

> the results?

>

> I'm also wondering about neuromuscular massage. I'm sure it can't do any

> harm, but does it help? Sounds as if it should, but I'd appreciate

feedback from

> anyone who's had it.

>

> Thanks.

> Edith

>

>

>