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Re: bad news about SCS

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Lori - I have RSD in my left foot, my left arm, and my right hand. Althought the most painful symptoms are in my left arm and foot, I have had internal problems that they have also explained as being likely sequelae to RSD. Although most odcs don't use the "stage" thing about RSD, I like many others here, have been told I have stage 3. My SCS is wired to both of my arms. I purposely did not wanted it wired to include my foot (long story) but I also receive stimulation from the SCS to the back of my left leg and calf. Typically you need two stimulators to cover both upper and lower body RSD. Barbara

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Lori

I am having my SCS implant taken out something next month when I get better. It hasn't worked since the last idiot Dr changed the battery it has been 4 years now and still nothing but it feeling like electricity going through my body and zapping me.. The first one was a huge success.. Good luck Sis and please check it out fully before you make the decision ok.. Not everything works the same way for each individual. I will keep you in my prayers... Gentle Hugs..

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Barbara,

Thank you for the information, what you said about needing 2 stimulators was exactly what I was wondering. I thought that was why my doctor said I might not be able to have it. I don't know, my leg and feet really hurt but I'm so lost without my arms and hands and they hurt soooo bad, I can't do anything I used to do. So more than likely I would choose my upper half if I had to make a choice. Thanks again for the info, hope you are feeling well!

<hugs> Lori

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