Yana Updates - December 2009 #1

[Guest guest]

A month or two back a man mailed me

off-List and said I was wasting my time in maintaining the Yana

site. His main objection was that since most of the site consisted of unsorted

anecdotal stories. He may have a point, but it seems that there are many people

who do place some value on the site, since the number of visitors established a

record last month with 958 visits a day on average giving a total for the month

of 28,765 visits – not quite as high as the total for October, where the

extra day in the month gave a total of 29,266. In the 11 completed months of

the year over one million pages were accessed on the site during the total

number of just over 300,000 visits.

There is a new entry on the TROOP C page

where there are some prostate related jokes and items intended to amuse or

uplift http://www.yananow.net/troopc.htm#et

ESSENTIAL TESTS

NEW POSTS:

http://www.yananow.net/Mentors/BillS2.htm

 BILL SCHMID newly diagnosed and undecided – and confused, as we

all were at one time

http://www.yananow.net/Mentors/E2.htm

 ROBERT E  newly diagnosed and has chosen Active Surveillance

http://www.yananow.net/Mentors/J.htm

 JOHN JONAS  newly diagnosed, very worried and undecided

http://www.yananow.net/Mentors/O.htm

 DONALD OBERLIN  decided on PBT (Proton Beam Therapy) in Florida and is happy

with outcome to date

UPDATES:

http://www.yananow.net/Mentors/BobE.htm

 BOB ETLING  very enthusiastic about his PBT (Proton Beam Therapy) at ville – has

no side effects and claims a better sex life than before therapy – cannot

give latest PSA due to prostatitis

http://www.yananow.net/Mentors/DickF.htm 

DICK FAY  was concerned about rising PSA after RALP (Robotic Assisted

Laparoscopic Prostatectomy) in 2007 but has moved away from ultra-sensitive

tests

http://www.yananow.net/Mentors/LarryC.htm 

LARRY CARL muses on the year just gone since his January diagnosis and

the uncertainties of prostate cancer while waiting for his latest results of

his ADT (Androgen Deprivation Therapy) following failed RP (Radical

Prostatectomy) and later rejoices

in an undetectable PSA

http://www.yananow.net/Mentors/W.htm

 JAMES WEIDENER  11 months after HDR Brachytherapy his PSA is down to

0.9 and his ED is OK with daily Cialis

http://www.yananow.net/Mentors/T.htm 

 STEVE TAYLOR  is undertaking ADT

(Androgen Deprivation Therapy) combined with an alternative

therapy for his prostate cancer and gives a link to a very full description of

what he is doing including charts and video clips

http://www.yananow.net/Mentors/I.htm

 CHRISTOPHER IVY  result from his fourth biopsy is negative in all 12

cores and so he continues on his Active Surveillance path

http://www.yananow.net/Mentors/BillR2.htm 

BILL ROBINSON -  Silver

member had PBT (Proton Beam Therapy) five years ago – some

minor bowel and ED issues

http://www.yananow.net/Mentors/F.htm 

ROBERT FRICK   an AdVance Male sling has dealt with his bad incontinence

following RP (Radical Prostatectomy) but his ED is still 100%

http://www.yananow.net/Mentors/TerryW.htm

 TERRY WAGONER  completed his radiation therapy – EBRT (External

Beam Radiation Therapy) plus Brachytherapy with Dattoli in December 2007 has

radiation proctitis and some ED issues

http://www.yananow.net/Mentors/JimS2.htm

 JIM S  three years after RP (Radical Prostatectomy) still has some

incontinence and ED

http://www.yananow.net/Mentors/TomS.htm

 TOM SULLIVAN eighteen months after RP (Radical Prostatectomy) his PSA

is undetectable and has only minor continence and ED issues

http://www.yananow.net/Mentors/CarlS.htm

 CARL SCHAEFER almost four years after his RALP (Robotic Assisted Laparoscopic

Prostatectomy) he has slight incontinence, some ED and Peyronie’s

Syndrome

http://www.yananow.net/Mentors/L.htm

 GEORGE LESNIKOFF eighteen months after RALP (Robotic Assisted

Laparoscopic Prostatectomy) has slight incontinence and ED issues

http://www.yananow.net/Mentors/LA.htm

 L ANON while waiting for his first PSA after his RALP (Robotic Assisted

Laparoscopic Prostatectomy) L mulls over what considerations people have when

making PCa related decisions

http://www.yananow.net/Mentors/JerryP.htm

 JERRY PERISHO attains Silver status five years after his RALP (Robotic

Assisted Laparoscopic Prostatectomy) followed by Chemotherapy (Trial) and ADT

(Androgen Deprivation Therapy)

http://www.yananow.net/Mentors/ClydeC.htm

 CLYDE CLARK  chose AS in  2006 and a second biopsy was negative his PSA

is stable

http://www.yananow.net/Mentors/B2.htm  

PETER BOON had a nice PSA result – 0.02 ng/ml after completing his

EBRT (External Beam Radiation Therapy) with neo-adjuvant ADT (Androgen

Deprivation Therapy)

http://www.yananow.net/Mentors/S.htm

 BRIAN SWEET  attains Silver status five years after being diagnosed and

choosing EBRT (External Beam Radiation Therapy) + HDR Brachytherapy + ADT

(Androgen Deprivation Therapy) was concerned last year about rising PSA but it

dropped again

http://www.yananow.net/Mentors/L.htm

 ERIK LEISURE  eighteen months after RALP

(Robotic Assisted Laparoscopic Prostatectomy) and he has full functions and

undetectable PSA

http://www.yananow.net/Mentors/P.htm 

VINCENT PALEOCELT  3 ½ years after RALP (Robotic Assisted Laparoscopic Prostatectomy)

he has no physical problems but is a little concerned about rising

ultra-sensitive PSA levels

http://www.yananow.net/Mentors/TerryS.htm

 TERRY SPENCE  Silver member has just celebrated his 70th

birthday and has no problems after his EBRT (External Beam Radiation Therapy)

seven years ago

http://www.yananow.net/Mentors/GP.htm

 G PUTT Silver member

has an increased PSA while on ADT (Androgen Deprivation Therapy)

‘holiday’ after failed surgery followed by EBRT (External Beam

Radiation Therapy)

http://www.yananow.net/Mentors/DennisD.htm

 DENNIS DENNISSURE  his fight to get decent medical

treatment from the VA for his failed Surgery continues

http://www.yananow.net/Mentors/EdH.htm

 ED HADDAD  three years after his RALP (Robotic Assisted Laparoscopic

Prostatectomy) everything is right and he has no regrets

http://www.yananow.net/Mentors/GeneG.htm

 GENE GRIGSBY  two years after failed RP (Radical Prostatectomy) and

EBRT (External Beam Radiation Therapy) created 100% incontinence has had

artificial sphincter successfully fitted

http://www.yananow.net/Mentors/MarkkuL.htm

 MARKKU LEITSO  first PSA after his ADT

(Androgen Deprivation Therapy) saw a drop from 268.0 to 0.14 – he

‘came out’ as a PCa man for Movemeber

http://www.yananow.net/Mentors/H.htm

 KEVIN HORNER  describes his frecent RALP (Robotic Assisted Laparoscopic

Prostatectomy)

http://www.yananow.net/Mentors/GregN.htm

 GREG NACKERS  Gold two star member – diagnosed young (41) now

celebrates 12 years post surgery despite a small rise in PSA

http://www.yananow.net/Mentors/HughA.htm

 HUGH ARMITAGE  has had a satisfactory first PSA

after PBT (Proton Beam Therapy) at Loma and reflects on the Past 12

months 

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed

in ‘96: and have learned a bit since then.

My sites are at www.yananow.net  and www.prostatecancerwatchfulwaiting.co.za 

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions

we make with regard to prostate cancer are made with inadequate data "