Re: RSV, Flu shots, ultrasound

[Guest guest]

Dear Kathy,

You sound so down, so I wanted to reassure you as best I can. Actigall is

given to break up gallstones in adults, so hopefully won't end up

needing surgery. When I originally got 's prescription filled the

pharmacist comes out, hands me the medicine, and says, " This will break up

your stones and you'll be feeling better in no time. " Imagine his surprise

when I told him it was for my 6 year old daughter!

I know the feeling of " yet another medicine " is a real drag. I am feeling

that way right now about getting a vest, but that's another story.

Try and hang in there. If the Actigall does it's stuff, should be

fine. And its great that they are mixing you a smaller formulation. As I

said before, the adult sized pills can be a problem. When was doing

2 one day and 1 the next, I kept losing track; was it the 2 day or the 1

day? So the custom mix is a real positive.

Please let me know how you are doing.

(mother of , 10, wcf and constant gallbladder problems, and ,

the toddler terrorist)

RSV, Flu shots, ultrasound

> From: KajeGood@...

>

> HI Everybody -

> I feel really out of it right now. I am numb. I have been running on

empty

> for about 3 weeks now. With Christmas fast approaching I hope I don't

crash

> and burn! Last week Wednesday Joe, , and I went to get our flu

> shots...a freebie to go along with cooperating for the RSV study. At that

> time had to donate a small amount of blood to the study. Her

annual

> blood work showed slightly elevated liver function. I mentioned this in a

> previous post. Well, the second blood test showed the same thing. So, we

> were asked to go back to the hospital for an ultrasound. 7:45 AM check in

> and 8AM ultrasound. Were talking a 5 year old who wakes up and the first

> thing out of her mouth is " I'm hungry. " It was not easy. Our trip is

about

> 45 minutes to the hospital. Of course I had to get ready and to the

> sitter because Joe has to leave by 10 to 7. Enough bitching... So, I

freaked

> at the ultra because she showed what looked like gallstones in her

> gallbladder! I know because I had the surgery and the doc showed me the

> ultrasound. It looked very similar. The drive back and keeping my mouth

shut

> for 's sake was nor easy. I took her to Pizza Slut then back to

> school. I went shopping (a certain quick fix). Later I called the

hospital

> to talk to the CF doc. She went to read the tests ASAP because I was

> freaking. Joe's grandmother died of gallbladder surgery and I had

> complications with mine (lost staple, long story). She said it's " sludgy

> bile " mud like clumps of bile in the bottom of the gallbladder. To me it

> sounds like the beginnings of gallstones. She will begin a dose of

Actigall

> daily as soon as they can specially mix it for us. I'm just upset because

my

> baby is on another medication. I need your support now more than ever.

It's

> overwhelming sometimes.

>

> Health and Strength to you all!

> Love, Kathy G.(Mom of 5 w/CF and " sludgy bile, " 2 w/ messy

poop,

> Joe 34 w/Stinky onion soup farts!)

>

> > ***********************

> This is a secular list.

> ***********************

>

> --------------------------------------------------

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

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[Guest guest]

Dear Kathy,

One other comment I forgot to make about your note when you mentioned that

you had not yet told . I STILL have not told that surgery for

her gallbladder has been discussed on several occasions, and this has gone

on for a couple of years. When she has pain, and gets into one of these

testing bouts she just thinks they will give her some medicine to make it

better. I feel that I will deal with explaining surgery to her if, and

when, they finally decide that her gallbladder has to go.

Best wishes,

(mother to a 10 year old tormenting a 2 year old who is heading this way

crying, " Mom!!! " )

RSV, Flu shots, ultrasound

> From: KajeGood@...

>

> HI Everybody -

> I feel really out of it right now. I am numb. I have been running on

empty

> for about 3 weeks now. With Christmas fast approaching I hope I don't

crash

> and burn! Last week Wednesday Joe, , and I went to get our flu

> shots...a freebie to go along with cooperating for the RSV study. At that

> time had to donate a small amount of blood to the study. Her

annual

> blood work showed slightly elevated liver function. I mentioned this in a

> previous post. Well, the second blood test showed the same thing. So, we

> were asked to go back to the hospital for an ultrasound. 7:45 AM check in

> and 8AM ultrasound. Were talking a 5 year old who wakes up and the first

> thing out of her mouth is " I'm hungry. " It was not easy. Our trip is

about

> 45 minutes to the hospital. Of course I had to get ready and to the

> sitter because Joe has to leave by 10 to 7. Enough bitching... So, I

freaked

> at the ultra because she showed what looked like gallstones in her

> gallbladder! I know because I had the surgery and the doc showed me the

> ultrasound. It looked very similar. The drive back and keeping my mouth

shut

> for 's sake was nor easy. I took her to Pizza Slut then back to

> school. I went shopping (a certain quick fix). Later I called the

hospital

> to talk to the CF doc. She went to read the tests ASAP because I was

> freaking. Joe's grandmother died of gallbladder surgery and I had

> complications with mine (lost staple, long story). She said it's " sludgy

> bile " mud like clumps of bile in the bottom of the gallbladder. To me it

> sounds like the beginnings of gallstones. She will begin a dose of

Actigall

> daily as soon as they can specially mix it for us. I'm just upset because

my

> baby is on another medication. I need your support now more than ever.

It's

> overwhelming sometimes.

>

> Health and Strength to you all!

> Love, Kathy G.(Mom of 5 w/CF and " sludgy bile, " 2 w/ messy

poop,

> Joe 34 w/Stinky onion soup farts!)

>

> > ***********************

> This is a secular list.

> ***********************

>

> --------------------------------------------------

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

> Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

> _________________________________________________

> Post message: cfparentsonelist

> Subscribe: cfparents-subscribeonelist

> Unsubscribe: cfparents-unsubscribeonelist

> List owner: cfparents-owneronelist

> _________________________________________________

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>

>

[Guest guest]

Kathy,

I am sorry about the stuff with . I am confused, though, did you mean

in her gall bladder or her liver?

Anyway, leave it to you to make us laugh even if you are having a hard time.

Pizza Slut, Rofl, rofl, rofl...... and stinky onion soup farts, hehehehehe

Take care,

'Jen

[Guest guest]

Kathy,

Sorry to hear about , hopefully this medicine will work. Sometimes I

think, ok put them all in the hospital, take out the appendix, tonsils,

adenoids, gallbladder, just remove all the sinuses (who needs those anyway),

put tubes in the ears.... in one visit get it over with.

Oh I think you were a bit confused, as Pizza slut is what the waitresses are

called who work at Pizza Hut (or so it was way back) I had this priviledge

at one time, but I was a hooker too. (figure that one out)

Daelynn

Re: RSV, Flu shots, ultrasound

>From: Ron88Jen@...

>

>Kathy,

>I am sorry about the stuff with . I am confused, though, did you

mean

>in her gall bladder or her liver?

>Anyway, leave it to you to make us laugh even if you are having a hard

time.

>Pizza Slut, Rofl, rofl, rofl...... and stinky onion soup farts,

hehehehehe

>Take care,

>'Jen

>

>>***********************

>This is a secular list.

>***********************

>

>--------------------------------------------------

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

>--------------------------------------------------

>

>

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

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[Guest guest]

Jen - It's her gallbladder right now. High liver function test indicated a

problem. Read the Pizza Slut post. LOL. I'm glad somebody got it! Are you

sure you're not a WNYer misplaced? I guess you know what I mean by the OSF's

too!! ROFL! Classic. (((((((((((hugs)))))))))))) KathyG.

[Guest guest]

Daelynn - Pizza " SLUT " Hooker? More explaining is necessary!!!!!!!

ROIFLMAO!

Kathy G.

[Guest guest]

Kathy,

I worked at a fishing lure factory, putting hooks on the little lures, a

'hooker', so I added that to my resume, Pizza hut slut and hooker. haha Of

course the 'slut' part doesn't go on the resume, but the hooker does, it is

an open to talk and let people see my humorous side, so if they don't find

it funny, I probably wouldn't like working there anyway. Oh yeah I almost

forgot, I used to Strip too. My fav job.

Daelynn

Re: RSV, Flu shots, ultrasound

>From: KajeGood@...

>

>Daelynn - Pizza " SLUT " Hooker? More explaining is necessary!!!!!!!

>ROIFLMAO!

>Kathy G.

>

>>***********************

>This is a secular list.

>***********************

>

>--------------------------------------------------

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

>--------------------------------------------------

>

>

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

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[Guest guest]

Kathy,

I worked at a fishing lure factory, putting hooks on the little lures, a

'hooker', so I added that to my resume, Pizza hut slut and hooker. haha Of

course the 'slut' part doesn't go on the resume, but the hooker does, it is

an open to talk and let people see my humorous side, so if they don't find

it funny, I probably wouldn't like working there anyway. Oh yeah I almost

forgot, I used to Strip too. My fav job.

Daelynn

Re: RSV, Flu shots, ultrasound

>From: KajeGood@...

>

>Daelynn - Pizza " SLUT " Hooker? More explaining is necessary!!!!!!!

>ROIFLMAO!

>Kathy G.

>

>>***********************

>This is a secular list.

>***********************

>

>--------------------------------------------------

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

>--------------------------------------------------

>

>

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

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