Severe Overnight Hearing Loss

[Guest guest]

Funny you should say that Marie. My sudden hearing loss was from suddenly

stopping Prednisone, COLD TURKEY !

Marcus who should know better than to organise his own medication treatments

:-(

Oh well 15 years too late now.................

Marie wrote :

> call quickly and get a prescription for steroids; if gotten quickly

enough,

> sometimes this will reduce swelling and bring hearing back. Marie

> -----Original Message-----

[Guest guest]

NOOOOOOOOOO!!!!

not the p word! Marcus, did you have nasty withdrawal when you stopped the

deceptive little devil drugs? How long had you been on them before you stopped

COLD TURKEY? I'd issue a warning to anyone considering steroids as a means to

restoring/preserving hearing: they can turn into a very, very slippery slope

without you realizing it until you're in way too deep. They are great the first

couple times the hearing takes a dive and they restore it back to a relatively

decent level, but then it takes more and more... and the level has to be

maintained or it takes another dive... and before you know it, you've been on

prednisone for 5 years and then you have to get the tumor out because it's huge

and now the surgery's riskier and after you lose your hearing in the surgery,

it's time to get weaned off the prednisone... and with that comes the 6 months

of nausea and headaches, muscle cramps, steroid myopathy for another few

years... intestines that have turned to jelly (didn't even mention

the water retention that stressed the body out for a couple years while taking

the prednisone...)

I can't say don't do it short-term, b/c my memories of the frame of mind of that

time is still so vivid (waking up and not understanding voices--so horrifying

the first few times) even though that was nearly ten years ago... just please be

careful that it doesn't turn into an indefinite period of time (dependent only

on the last absolute moment of requiring surgery). My experience is probably

unusual, but looking back I know I was just doing what the situation called for

using what I knew at that time. Please let V know she's not alone... and many

have traveled her path and survived. Wishing you all strength...

so a funny... we had some wicked winds go through here last Wednesdays... an

outbreak of tornado(e)s in the area... and the beautiful evergreens that lined

the west side of our property were blown in towards the house... looked ready to

fall... so my Dad and some of his buddies had to take them down before they fell

uncontrollably... I ran to Arby's to pick-up lunch for the workers... got 3 sets

of the 5 jr's for $5... that's 15 sandwiches... plus 4 lg. fries and another

sandwich. I finish the order, it's confirmed (told her I couldn't hear well and

she repeated it all very clearly back to me...) and then she says something

else...

something I wasn't quite expecting...

" Is this for here or to go? "

.... and she was serious.

8~)

Love, Hugs, and Smiles,

>>

Date: Wed, 31 Oct 2001 20:23:18 +1000

Funny you should say that Marie. My sudden hearing loss was from suddenly

stopping Prednisone, COLD TURKEY !

Marcus who should know better than to organise his own medication treatments

:-(

Oh well 15 years too late now.................

Marie wrote :

> call quickly and get a prescription for steroids; if gotten quickly

enough,

> sometimes this will reduce swelling and bring hearing back. Marie

> -----Original Message-----

[Guest guest]

> " Is this for here or to go? "

>

> ... and she was serious.

>

> 8~)

> Love, Hugs, and Smiles,

I wasn't on steriods near as long as describes, maybe just 6 months and

still experienced most of the withdrawal symptoms she describes, nasuea.. and

worst of all muscle cramps that feel like your muscles are getting pins shoved

through them.

and .. you must have looked hungry. My lipreading isn't the greatest but

if I have an idea of what they are gonna say, I can usually catch it. This works

well in restuaraunts and Fast Food places since you usually know what they are

gonna ask.

My new bane of the world is starbucks since they have little quirky names for

everything and I have no idea what they are asking. I JUST WANT HOT CHOCOLATE.

Plain hot chocolate.. Pretty much what I kept saying until the girl grabbed

some cups and wanted me to point to a size

Pete

--

Brayman ICQ # 66709621

[Guest guest]

Craig: I haven't had that happen yet, but my doctor described it and said it could happen and IF IT DID to contact him immediately! They can put you on steroids I guess for about 4 days and then operate?! Anyway contact the doctor NOW!

Charlotte

[Guest guest]

jAMIE, When I was still trying to save my hearing, it would take a nosedive,

I would call Doc, and he would call in ONE prescription of steroids which

would last maybe 10 days. Then that was it. This happened about 3 times

over 2 years, but no side effects, as I was never on them very long. I

would think/hope docs today would know better than to leave you on steroids

long term--but you better make sure yourself. Marie

Re: Severe overnight hearing loss

>NOOOOOOOOOO!!!!

>not the p word! Marcus, did you have nasty withdrawal when you stopped the

deceptive little devil drugs? How long had you been on them before you

stopped COLD TURKEY? I'd issue a warning to anyone considering steroids as

a means to restoring/preserving hearing: they can turn into a very, very

slippery slope without you realizing it until you're in way too deep. They

are great the first couple times the hearing takes a dive and they restore

it back to a relatively decent level, but then it takes more and more... and

the level has to be maintained or it takes another dive... and before you

know it, you've been on prednisone for 5 years and then you have to get the

tumor out because it's huge and now the surgery's riskier and after you lose

your hearing in the surgery, it's time to get weaned off the prednisone...

and with that comes the 6 months of nausea and headaches, muscle cramps,

steroid myopathy for another few years... intestines that have turned to

jelly (didn't even mention

>the water retention that stressed the body out for a couple years while

taking the prednisone...)

>

>I can't say don't do it short-term, b/c my memories of the frame of mind of

that time is still so vivid (waking up and not understanding voices--so

horrifying the first few times) even though that was nearly ten years ago...

just please be careful that it doesn't turn into an indefinite period of

time (dependent only on the last absolute moment of requiring surgery). My

experience is probably unusual, but looking back I know I was just doing

what the situation called for using what I knew at that time. Please let V

know she's not alone... and many have traveled her path and survived.

Wishing you all strength...

>

>

>so a funny... we had some wicked winds go through here last Wednesdays...

an outbreak of tornado(e)s in the area... and the beautiful evergreens that

lined the west side of our property were blown in towards the house...

looked ready to fall... so my Dad and some of his buddies had to take them

down before they fell uncontrollably... I ran to Arby's to pick-up lunch for

the workers... got 3 sets of the 5 jr's for $5... that's 15 sandwiches...

plus 4 lg. fries and another sandwich. I finish the order, it's confirmed

(told her I couldn't hear well and she repeated it all very clearly back to

me...) and then she says something else...

>something I wasn't quite expecting...

> " Is this for here or to go? "

>

>... and she was serious.

>

>8~)

>Love, Hugs, and Smiles,

>

>>>

>Date: Wed, 31 Oct 2001 20:23:18 +1000

>

>

>Funny you should say that Marie. My sudden hearing loss was from suddenly

>stopping Prednisone, COLD TURKEY !

>Marcus who should know better than to organise his own medication

treatments

>:-(

>Oh well 15 years too late now.................

>

>Marie wrote :

>

>> call quickly and get a prescription for steroids; if gotten quickly

>enough,

>> sometimes this will reduce swelling and bring hearing back. Marie

>> -----Original Message-----

>

>

>

>

>

[Guest guest]

here here. I was on prednisone for a SHORT period and hated it thoroughly.

My dog was on it too for severe arthritis, he lost his bowel and bladder

control from the med (when he was off it he d have control but in severe

pain, makes me wonder what it wud do to people) and we put him to

sleep.

Lori Phibbs wrote:

You

poor thing you are sure tough in the fibre to go thru all that.

Ive had bad luck with steriods too but i only took them a bit so weight

gain was my prob. I actually blame Predisone for G'ma cancer and

death, it is a powerful antiflammitory and stifles your bodies own protection

mechanisms leaving you vunerable to EVERYTHING~~Lowi-----

Original Message -----From:

L. Przybysz To:

<NF2_Crew >Sent:

Wednesday, October 31, 2001 5:51 AMSubject:

Re: Severe overnight hearing loss >

NOOOOOOOOOO!!!!

> not the p word! Marcus, did

you have nasty withdrawal when you stopped the deceptive little devil drugs?

How long had you been on them before you stopped COLD TURKEY? I'd

issue a warning to anyone considering steroids as a means to restoring/preserving

hearing: they can turn into a very, very slippery slope without you realizing

it until you're in way too deep.

>

[Guest guest]

Hi Marie, I didn't mean to sound like your suggestion was a bad one. I'm glad

you suggested the option because it brought out other people's experiences,

which gives a good range of things to consider in deciding whether it's the path

someone really wants to take. I don't think I would have roused the prednisone

ghosts if Marcus hadn't used the name. lol! It is still an option and I think

it's realistic to take advantage of it as long as people are aware of the less

positive aspects that could accompany it. I do wonder if other steroids would

be somewhat effective in doing the same with less damage as we've seen can occur

even in the short-term. Since I can no longer tolerate prednisone, my post-op

steroid is dexamethasone. (Jennette's description of the healing period she got

using prednisone post-op was similar to mine with dexamethasone after my last

surgery--really great and no withdrawal effects!)

Anyhow, the way your experience was is how mine started. We never intended to

use it as long as we did, it just happened. Looking back now, it's sort of

scary how natural it seemed to use it as long as it was allowing me to retain

some usable hearing. While I was taking the prednisone, after awhile of being

on it, it seemed like the main side effects were weight gain (like for Lori),

" the runs " after eating meals, and then my mental workings were kind of clouded

(I think I could've gotten the college Calculus if it hadn't been for that!

lol) That whole phase of hearing fluctuation/loss is such an uncertain period

of time. I don't think we expected the hearing to stick around (even at a

pretty bad level) for 5 more years. One huge good thing that came out of it was

that I got 3 years more of playing the bari sax in concert, marching, pep, and

jazz bands. Since I discontinued sports b/c of the spinal tumors and decline in

health while on the prednisone, I think playing an

instrument was a very important stress reliever for me at that time.

Hugs and Smiles,

>>

Date: Wed, 31 Oct 2001 15:35:45 -0500

jAMIE, When I was still trying to save my hearing, it would take a nosedive,

I would call Doc, and he would call in ONE prescription of steroids which

would last maybe 10 days. Then that was it. This happened about 3 times

over 2 years, but no side effects, as I was never on them very long. I

would think/hope docs today would know better than to leave you on steroids

long term--but you better make sure yourself. Marie

[Guest guest]

Herro , I think I was on the P drug for around 12 months. It was a

long time ago but I think I did reduce the dose for a few months. I just got

tired of it, and it gives you a little HUMP BACK just below the neck.

Standard symptom I'm told. So one day I just stopped. ZAP hearing went down

in one ear by around 50 % in an instant within a day of stopping. This was

the first sign of AN's so I guess I had it coming sooner or later. I was 26

I think at the time.

M whos so tired hes off to bed at 9PM.

> NOOOOOOOOOO!!!!

> not the p word! Marcus, did you have nasty withdrawal when you stopped

the deceptive little devil drugs? How long had you been on them before you

stopped COLD TURKEY?